Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I haven't talked to her in 3 weeks and it feels very weird. I feel like I am doing something wrong. When I think of her laying in her bed thinking of how "bad" I am, it saddens me. I have always been the one to run back to her and try to fix it. I am not going to do that. I am not being stubborn by any means. I am protecting my feelings and trying to find some peace in all this. She also has told someone that I haven't called or come to see her--never mind she told me not to. She leaves that part out.
I have two ways of how I feel. guilt: I am doing wrong by not taking the initiative to make it better--but wait, I have!!--I have tried and tried. Then there is peace: peace that I don't have to hear the complaining, negativity and the put downs--(through innuendos).
I realize we all are going through difficult times. I hope I can be as strong as some of you!
UPDATE::: I called a counselor. Waiting for an appointment time. This will be a new experience for me. Thanks for your encouragement.
That said, being angry and then feeling guilty about being angry isn't a good feeling for you. It's normal to be sad and angry about losing your parents or seeing them decline. Totally. There would be something wrong with you if you weren't. Taking pills and observing fall precautions are things older folks - particularly guys - just hate to have to do, and I'd see if I could find it in my heart to forgive him on those. Realize that these things happened not just because of his non-compliance but also his losses in physical function. You don't need to feel guilt for normal feelings - hey - you have lost your mom too, and now you are watching your dad, and wanting to affix blame and be mad as well as sad is also very normal; and yet, it's not all his fault, or anyone's things have not gone so well lately. Can you still get him out to dinner or join him in other activities at the facility? Can you bring him his favorite items to keep at the facility? Talk with the staff about how to encourage him more - if they are good and caring people, they will notice things that he might not say or show to you when you visit.
Some days he's nice to me. and then other days he just says, "Blah blah blah..don't you ever shut up??"; while I tell him, "Dad..I'm trying to help you, but I'm not going to come and visit you if you're going to be so cranky all the time.." Those are the days he'll say, "Goodbye then..Bye..bye..bye..go home then and don't come back..I don't care.."
Breaks my heart over and over again.
Sometimes I get soo angry and talk to my husband about Dad being where he is now is his own darned fault. Had he just listened to me he wouldn't be where he's at now and probably could still be in his apartment in Independant Living. Wouldn't have taken much but he just wouldn't listen and went ahead and did it HIS way!!
Then I feel guilty for saying those things as I love my dad. He's my best friend and it's been he and I since Mom passed away.
Just makes me angry as he lays there in the nursing home..the one I told him he'd be in if he didn't listen.
He'd say all the time that he didn't want to be in a nursing home; as I'd tell him that if didn't do the simple things to keep him from getting there like take his meds, etc..it was just a few little pills..and if he didn't take them..one day he'd wish it WOULD take just a few little pills to get his health back.
A few weeks back he asked me if I could take him to his doctor so he could get his health back. My reply was that all he had to do was cooperate with the staff that wanted to help him and it would help him get his health back.
Instead he wants to lay in bed all day feeling sorry for himself. I can tell by the look on his face somedays that he's completey aware of what's going on around him and just plain angry about his situation.
I can no longer help that and again, it makes me angry as had he just listened to me..again..he wouldn't be at the place he's at now..not even being able to wipe his own rear end.
I used to say to him when he just layed in his bed wishing he could just die because again..he misses Mom so much, "God isn't finished with you yet..and you need to appreciate that blessing. You have me and we have each other. God has plans for you and you need to put one foot in front of the other.."
I was taking him out to eat three times a week; taking him out to see my Mom; taking him for rides, etc.; all which he appreciated.
But he didn't listen and fell.
I warned him about all of this and sometimes I am soo angry, yet feel guilty for feeling like I do at times, because I love my dad to pieces. He's my best friend.
I never thought there was such a thing as burnout when it comes to those we love..but there is.
And I feel guilty as heck for feeling the way I do at times.
Don't beat yourself up with regrets about her living as close to you as she does -- either way, it would have its own set of difficulties.
As time goes on, she may become angrier -- but YOU may become much better at making peace with all of this, and her anger won't matter nearly as much.
of course in real life the person is not a stranger...but of course in real life, most of the time, the person won't really die when you let go!!
Jewel, you've gotten her to a place that is safe; happy is HER problem, not yours.
Heidi, I wish I had the guts to stay away for 6 weeks and not call, I am the weak one. No courage here. Ha! Before my mom became ill, she would go months and not talk to me.--getting mad over something silly, like me doing something with my dad. (they are divorced in case you hadn't read that earlier). Once again, who would give in and call her--ME! I wish years ago, I had stopped calling and giving in. But I am here now, so I am sticking to my guns. If she calls me, I am not sure I will even answer. If she leaves a message and needs something, I will make sure she gets it.
Another thing I haven't shared until now is my mom, when she was well, went 5 years and didn't talk to her mom. Once again, getting mad over things that didn't matter--but to her they were a big deal. She thinks it is everyone else, but I believe I am seeing a pattern here. I have been dealing with this issue for a very long time, but for the past 4 years we now have doctors involved. Looking back, --hindsight is 20/20-- I can look back about 10 years ago and realize she was really changing. She is so much herself, but there are things she just can't do anymore or at least it wouldn't be safe.--Her mind sure can make her seem well and she is so believable which is the scary part.--it is almost dangerous.
I will tell you that today I have had a very peaceful day and I hope it continues. I could get used to this.
Many ((HUGS))
Write again and let us know how the counseling goes. I bet you'll start to see things so much more clearly, and the stress and heartache will diminish a lot. A LOT!
Hugs!
You're making an effort, and you're trying to be there for her, so you shouldn't feel bad, even though family drama is, well, family drama!
It does sound like it was the right sermon for the right person in the right place today for you. That is wonderful. I'm glad to read that you are going to call a counselor this week and begin working through this.
Keep coming back and updating us. You are making progress!
Her: Hello
Me: Hi, are you watching the game?
Her: Yes (at this point I am thinking this could go better than I thought)
Me: Telling her we just got home, blah, blah--trying to make conversation
Her: SILENCE
Me: silence
Me: You there?
Her: Yes, just listening to you.--with a sarcastic type of tone
Me: Ok, do you need anything?
Her: Nope, not a thing.
Me: Ok, I thought I might come up one night this week after work if that is alright with you? (here we go, get ready, brace yourself)--
Her: Well, only if you don't come here and throw one of your little screaming fits.
Me: I didn't throw a screaming fit. I didn't even get mad. I just walked out because you cursed at me and practically called me a liar.
Her: No! I did not! I know what I said.
Me: Repeated verbatim what she said...I even included the curse word
Her: Maybe I said that, but I know what I said.
Me: I also feel every time lately that we have visited or talked on the phone it didn't end well. It hurts my feelings when you say things to make me feel like a crappy daughter.
Her: Why do you come if I hurt your feelings every time. I wouldn't want to be around someone that hurts my feelings all the time.
At this point I am trying to tell her how I feel. She is not taking responsibility at all for her part in all this. I am not saying I am perfect and I haven't said things back, but this has been ongoing from my childhood.
Me: I feel like I have failed you because it is never good enough. All I have ever wanted is for you to love me unconditionally, no matter what. I just want your approval and for you to be proud of me.
Her: Do not put this off on my shoulders, do not blame this one me.
Again, more explaining.
Her: Just don't come back.
Me: Is that really what you want? I guess I have failed at my part (just trying to take responsibility on my part)
Her: I guess we both failed.
Me: That's not how I see it.
Her: Just don't come back.
Me: You are sure that's what you want? --(why do I keep begging at this point, I have no idea)
Her: I said, Stay away from me....
Me: Ok, then, I am here if you need anything, but I respect your request.
I am calling a counselor this week, to try to make sense of it. I know I am going to need a lot of encouragement to stick to this. I am sure she will also call and revoke the POA...and who knows what all she will say. Telling the attorney she doesn't trust me and so on. The backlash of all this could not be good. I am really trying not to worry. I have done nothing wrong, but you know the guilt they can put on you.
Thank you for your support in all this. I know my mom is safe, fed, and well taken care of...that gives me much relief.
I hope your call goes well!
The fact that you're getting scared sick feelings even when not interacting with her tells me that your relationship with her is still causing you the physical manifestations of stress. Your body is paying for this. Please make an appointment to see someone this week.
I noticed some have encouraged you that it's time to take care of you with some therapy. Have you made an appointment yet? No one else in this equation can change but you. Sleep well and keep in touch.
Until tomorrow... Sleep well, my friends.
Ideal would be that we didn't have to listen to their idea of us taking care of them. I do not mind at all taking care of my mom as I am sure everyone else feels the same. What I do not like is how unfortunate that they do not see the good in it.
A month or so ago she told me they didn't come in enough to check on her and that they weren't taking her food order til late. So, I called the director and told her some concerns. They are doing better, and now my mom says they come in too much. Really!!?? Just always looking for something to complain about. I did read something not long ago that made me realize that they think that it is everyone else because they think they are responding appropriately to the negative world around them. The world is negative not them. Sad!!
I too feel the depletion of myself. Broken, I am just broken. I also worry about the future with her. my mom being just under 70, this could easily go on 20 or 30 more years. GROWL!!
Like with your mom, looloo, I too feel I need to do things to help out. We feel some sense of obligation to them. Unfortunately!!
Today, I called my mother and spoke to her very briefly for the first time since last summer (with the exception of 1 or 2 10-second long phone calls). It went well, she sounded cheerful and happy to hear from me. I did my best not to be "seduced", but it was a relief to have a brief, low-maintenance conversation.
I asked her to go to her weekly calendar and write down a reminder to set her clocks forward this coming Saturday for Daylight Savings Time. And I let her know about her doctor's appt this coming Monday the 9th. I waited until today (Tuesday) to call so that she wouldn't have to figure out more than one Monday in her head. She gets her weeks mixed up quite a bit.
She asked which doctor this was, and I told her it was an orthopaedist, who might be able to treat her spinal stenosis. Didn't mention the possibility of surgery. She seemed fine with the info. And I told her I'd call her later in the week and remind her, and that was about it. BIG cleansing breath after I hung up.
Now I have a 6 page thing of information to fill out for the doctor....