Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Jewel, I hope this all is helpful.
My counselor also suggested I find a different way: so did my friends, and three doctors who told me my mother has a "toxic effect" on me!!
I called the florist today to confirm delivery, and discovered that she sent them to Nosy Neighbor Lady! Who, thank goodness, I haven't heard from in about 3 months now, but I guess she's still involved w/my mother. They give me such an icky feeling. Two nasty people, posing as sweet do-gooders.
CM: I am not too much on birthdays either, but when my daughter gave me a surprise party in November, I told her how much I appreciated it. I don't think my mom ever had inhibitions.. I do believe she is losing what she had.
Babalou: I haven't been to therapy yet. I cannot afford it right now, but I do need to find a way in the worst way. I need to get these things off my chest out loud. I was going to talk to my pastor, but they moved and left the church.
I go to my mom's tomorrow for her non-birthday. We decided not to wrap the gifts so she won't freak out too bad. If she thinks my daughter picked out some of it, she will not say too much about it. She at least keeps her cool around her. I pray she doesn't want us to come back for their Christmas dinner at the AL. If she does, then I will suck it up and go. She isn't too bad around others, but it is very uncomfortable, because she doesn't treat my family very nice. She used to and it is hard to watch her treat them how she probably really felt about them, but now the filter is getting very thin.
Um. I hate my birthdays, too! Discreet acknowledgement is about all I can handle, if I'm honest about how comfortable I feel. But at least I have the manners to stick a smile on and be grateful for people's thinking of me - she's not losing inhibitions or something, is she?
Mom: Friday?
Me: Yes, Friday for your birthday.
Mom: Did you get the thing in the mail about the Christmas dinner here for Friday?
Me: Yes, I wasn't sure if you wanted to do that.
Mom: I don't know.
Me: Well, I will see you Friday.
Mom: I don't want a birthday.
Me: Ok
Mom: Don't buy me flowers.--She hates flowers, who hates flowers? smh
Me: Ok, with a laugh.
Mom: Don't get me a cake.
Me: I won't.
Mom: I don't want presents either.
Me: ok, mom...I will see you Friday.
Mom: Silence--I don't really want a birthday. Don't get me anything.
Me: Ok, gotta go, see you Friday and you can let me know what you want to do about the dinner.
Mom: --click-
Who doesn't like to be thought of on their birthday? Um, my mom. She always complains that I don't do enough for her, but when I try--which is every week... She decides she don't want me too. I am climbing an uphill battle.
I really hope she doesn't want to do the dinner on Friday evening because I will just have to hear how everyone seemed bored.--if my family doesn't dote on her, she thinks they are bored. I pray she decides for us not to come. All she has to do is say it once. Ha!--no begging here. That is one thing I have completely stopped with her is begging. I used to beg her to do things, but now when she says no, I take no for an answer.
Hope everyone is ready for Christmas. I am trying very hard to get in the spirit of things but this year has reamed very difficult.
It is not too much to ask. However, God has given each person a free will and God will not override your mother's free will to be different that the way she chooses to be. Unless she's open to God changing her heart, it is not going to happen.
The only thing that keeps me on this path right now is that it's working better than any other attempt ever has. AND, everyone else who's commented on how they've kept contact to the minimum, or gone completely no contact -- they ALL say that their only regret is that they didn't do it sooner. That always gives me food for thought.
I hope your visit this week goes by as quickly and painlessly as possible. Good luck! Hugs...
"Caregivers are often the casualties, the hidden victims.
No one sees the sacrifies they make."-- Judith London
I couldn't agree more!!
While watching Joyce Meyer last night with my daughter, I realized even more of how I need to move forward from her and stop letting her control my thoughts. My mind tells me one thing and my heart tells me something else. Our minds are powerful things. My mind lets all these negative thoughts enter and my heart says don't believe it. When I talk to "her" then my mind goes crazy with negative thoughts and it consumes me. I will continue to work on this.
Another thing that drives me crazy is the lying that I have to do with her. I am always covering my tracks and telling her things that she would rather here, than the truth. If I am honest, I will even be in worse shape.--hard to comprehend but it is the way it rolls. I know this stems from the lifelong path she has set before me. My aunt tried to be honest with her the other day about some things dealing with my grandmother's estate and my mom went off--literally. Threw a fit, got mad, yelled, etc. I didn't tell my mom these things for I didn't want to get the blunt of it. My aunt agreed to do it. Now, I am dreading going to my mom's this week because it will be a living h*ll. We both agreed to lie to her about another issue with the estate and now I am back tracking to make sure the lie stays under the rock. Whew!! How exhausting. My chest hurts and my head hurts just thinking about it all. I will be SO glad when this estate thing is settled and I can finally tell her it is over and I don't want to discuss it anymore. My aunt is trying very hard to get everything settled so we can move forward. My mom has had ample opportunity to discuss, choose, make decisions and give her ideas. But NO, she would always say, "this makes me nervous and I can't make decisions"...that was her excuse anyway. Now, that most things have been done, she is angry and now giving her opinion about the way things should have been done. I have told her that it is too late to do her ideas. I also told her she had great ideas, but we cannot go back and redo things. This is where she hasn't changed, she lets others make decisoins, then she gets angry because it wasn't the way she thought it should be done. UUGH!! I am more than tired of the repercussions from her. Do it this way it is wrong, do it that way it is wrong.
One other thing on my mind...My grandmother had some personal belongings that my mom has chosen from. She didn't want anything but a couple of items and she asked my aunt what she was going to do with what was left over. My aunt told her she was going to let the rest of the family go through them. My mom got really mad and told her no. She is so selfish. She doesn't want it, but doesn't want anyone else to have them. One more thing I will have to hear about when I go visit. Her birthday is this week and I know the right thing to do is go visit on that day, but it will not be enjoyable. I have prayed that God change her mind about being so hateful. I wish all of a sudden she would be kind, sweet, caring, forgiving, and a pleasure to be around. Is that too much to ask?
So, I requested a day off from work on her appointment day (she better not cancel!), and while she's at the doctor, I will go into her house, check things out to see how everything looks, and so on, and will also gather some files that I'll need one of these days.
I've decided to give my once-every-3-weeks therapy appointments a rest after the one I have scheduled for next week. I think I've gotten to the "beating a dead horse" stage of things, which isn't a bad thing. If a crisis comes up, I reserve the right to make another appointment. :) Take care, everyone!
Yesterday my husband and I went Christmas shopping and I didn't call her to tell her...I was so proud of myself for not calling. I normally call every Saturday to remind her I will be up on Sunday. I did not call and it was so freeing. Well... She called me around 1 pm and I didn't answer. She left a message on accident--not hanging up when the message came on. She was talking to someone and I realized it was my aunt. She had gone for a visit. Then I was nervous to call her back because I felt like she was setting us up for failure. I figured she was going to ask questions trying to "catch" us in something. Just realize I think this way, because this is how my mom works now and how she worked before.--that part of her hasn't changed one bit. MANIPULATION
After about an hour, I decided to get it over with. I called her and she had a question for me, but it was about where I had put something. I truly believe though she was calling to see where I was. I am even more proud of myself because I called her today, Sunday, and told her I was NOT coming up today. YAY for me!!! I did tell her I would come either Tuesday or Wednesday. SILENCE! Then she said, "ok" and hung up. She no longer says bye. Weird. But that's okay with me. A quick click and done. I am keeping my eyes on Jesus and not her anger. It is helping me so much. It is not my fault she is angry, she is angry with me, but I didn't intentionally cause the anger--therefore, making it her issue. Such a breakthrough for me to realize that it is NOT my fault. Do I do things that make her angry? I am sure I do, but I am not being a brat of a daughter ignoring my mom. I am being true to myself which in turn makes her upset and a reason to find more manipulation. She likes to make me feel like I am wrong by putting myself and my family first. In her eyes she is supposed to come first. SMH!! She didn't put her parents first, she made sure we were taken care of first. I haven't been around a more selfish person.
I am just glad I have the day off. I will dread the next visit, because she will store this in her brain for ammunition for when I do come.
Enjoy your Sunday!!
I haven't called my mom since Thursday after her little fiasco about the pill box. Since I make it worse when I come, then I will not call either.--well today anyway. Ha! I am not calling tomorrow either because my husband and I are going Christmas shopping. My daughter is in from college and I will get her to go with me Sunday, so this week should be easier.
Judda: hope all goes well with your dad, so I assume your parents are divorced, like mine?
I get the pill thing--you cannot win--no matter what. I do wish that your mother could be put back on the same sedative that helped her be more calm long ago--maybe a smaller dosage? My heart goes out to you because "her in your head" is taking up so much of your life. I know this all too well.
Something in earlier post stood out to me. "I filled her pill box from Sunday night to today again, just in case I decide not to go then she has it ready for next week too." YOUR MOTHER IS NOT COMPLETELY OUT OF IT, SHE CAN FIGURE IT OUT-YOU MAY NOT COME THIS WEEK.
Then you have this comment in your later post AFTER you did not call her back immediately and the meltdown. "She went on to tell me what pills were missing and what pills I had put in there--she knows, but wants to complain and let me know I did it wrong instead of just fixing it."
Yes, you could be making terrible mistakes because you are a "bad careless daughter". Or you could be getting set up/punished when you indicate that you *might* not come back when your mother wants you to. She is fussing around you when she knows that it makes you flustered and more prone to mistakes. My mom would play victim head games sometimes too (don't change the light bulb, I'll just still here in the dark going blind). My husband leaves out crucial bits of info about stuff regarding my in-laws if he thinks I will not do something he/they want so there is not time for alternatives to what they or he want done.
If the facility does not offer medication aides, tell your mother that you will arrange for a medication aide to come fill her bottle and she can pay for it.
Boundary is my middle name. Narcissists want help when they want the way they want it. And if you are beaten down enough, you don't think about alternatives. FOG fear obligation guilt. (hugs)
Quiet? What would that feel like again? I surely would like to know. Her mouth never stops. I called her back this morning with dread and of course it turned out I did something wrong once again. While I am there she makes me a nervous wreck fussing over things.--anything. So, I filled her pill box wrong. SMH!! When I called her and apologized for not seeing that she called until late, the first thing out of her mouth was, "I don't know what you did to these pills, but they are all wrong", "you have two in one spot and three in another". "You have left out pills" "now I am confused and don't know what I am supposed to take". Once again, I apologized and offered to leave work to fix them. She went on to tell me what pills were missing and what pills I had put in there--she knows, but wants to complain and let me know I did it wrong instead of just fixing it. Again, I offered to come fix them. She said, "Nevermind, I don't want you to come fix them, it just makes it worse when you come." "I don't know what you have on your mind, but it is something" When I tried to explain, she cut me off and said, "I will fix them myself the best I can, I probably will do it wrong, but I don't want you to come" Defeat first thing in the morning. She will NEVER accept me as a human that makes mistakes. She thinks my mind she only be on her. Well, little does she know that it IS her on my mind and that is what is wrong with me. She will never understand. Rejection, defeat, and frustration--the center of my life. She has no idea what all I go through with her and not only her, but I think I mentioned, or maybe not, that my husband got a $4 an hour pay cut. It is taking a toll on us, our finances, and to add my mom to the mix is really getting me down. I have explained to her before about my husband and his job, but that doesn't cross her mind--only she is on her mind. ME, ME, ME!! What about ME? That is all this is about. I will tell you the truth and nothing but the truth, I really don't care. I used to care and did things for her because I care. Now, I do it for two reasons, for Him, and because I feel it is my obligation as a daughter. I wish she would fall into the black hole she has put forth for everyone else.
That is my rant this morning...thanks for listening. You are good people and I appreciate you so much!!