Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
One good image to use when under mother attacks: Her comments hit my mental roof like Teflon! I am safe, I am fine, I am good.
If someone tells me I am a ping pong ball, that doesn't make it true.
It's tough though, no matter what you do.
My mom too thinks she gave me life on a silver platter. If she considers only the "things" that she bought me and the stuff I owned--that they bought me, then yes, I was handed a silver platter. But the emotional and physical abuse that came with all the stuff, takes away the silver and leaves me with a tarnished platter. I have stated before that I will not deny I was very fortunate growing up. I had just about anything I could ever ask for except the most important thing and that was the acceptance from my mom. My dad on the other hand loves me no matter what. Between him and his mom(my grandmother), I learned what love was really about. I am so thankful for them in my life showing me. My dad always thought my mom did the same thing because he never knew about what all happend when he was gone to work. He didn't even know I had a spanking until 3 years ago. He always told people I never got a spanking (because he never did) and I finally was tired of hearing it and told him the truth. He cried. He was so sorry that he didn't see what she was doing. He knew she manipulated me through guilt, but had no idea she was putting her hands on me.--more than just spanking. I am not asking for pity by no means, but it does help me to finally put it out there. I have kept these secrets for way too long. If she weren't ill, I probably would still be holding them inside--you know the rule, don't spill the beans on the abuser. When my parents divorced I was 20. My dad asked me to move with him and I wouldn't--I was too afraid of what she would say. Not realizing since I stayed and he wasn't there she said a whole lot more. I wish so many times I had moved with my dad and got away from her, but that is what an abuser does--they mainuplate you to believe in what they say.
I could go on and on. :-) Thanks for listening!!
It was another torturous visit with my mom Sunday. I took some things from my grandmother's for my mom and she lost it. First, she cried and said it made her sad, then she got angry at me for not getting something else that she wanted. First off, I didn't know she wanted it..Oh yea, I am supposed to know that right? Ha! After an hour of listening to her put me down I tried to change the subject She then said, "When you were born I was so happy. I looked at you and was so happy. Looking back, while looking at you I never dreamed this many years later that you would put me in a place like this".... Yes, people, she said it. She WAS happy with me, but now she is just disappointed. She surely knows what to say. I still didn't make one comment. It was brought to my attention by a friend that just maybe some things my mom says doesn't deserve a comment. I have taken that to heart and using it wisely. We sat in awkward silence for about 30 min to an hour and I was ready to leave. I took a small tree and she didn't want it but finally she decided she would keep it. We went for a walk and she brought up my dad---this is why I didn't want to tell her about him...she asked "how do the kids like having their papaw living next door" I changed the subject and she didn't like it, but I didn't want to talk about it. She started complaining about the staff again too. They either don't come in her room enough or they come too much. I guess I should have moved her in to the Three Bears house, maybe it could have been "just right". Eventually after being around such negativity, one can't be anything but negative. When I leave her I feel like I could crawl under a rock. Judda , I thought about you when I left... I wished I never had to go back. I want to scream out loud when I get in the car. I also always seem to come home and reflect on our visit. I really wish I didn't do that. It puts me deeper under that rock.
One other thing she said yesterday that made me think she probably is right, She said, "you will never know what it is like to lose your mother". She might be on to something. If she lives 20 or 30 more years, I won't be able to stand it that long. Realize my mom is only 69 so it is very possible.
There is so much more to yesterday's story, but I will leave it at that for now. My soul is crushed as usual but I also realize that I have been rejected by her for many years and that is not going to change.
So... dealing with strictly emotional abuse, I am still suffering, but trying to be the best and kindest person I can. My husband is the most wonderful man--without him, well, it is scary because he grounds me. Just like you all, she is ever-present in my head, messing with my mind, torturing me so that I rarely relax. I see her essentially every day, usually more than once because she lives so close, and she is in my head hammering away relentlessly. I try to shut out her voice, but it stays. But when I get a chance to be with friends for a while, and laugh and have some fun, I am a different person. I hope retirment doens't do me in. I hope I am in charge of my life, and don't give in to her every hint of a wish. Maybe someday we could all meet somewhere and have a mini-vacation support group combo. Wouldn't that be something!
Well for now, I am grateful to each of you for sharing your stories. You are helping others, and I hope, little by little, yourselves. I get strength from all of you.
You are brave to step up and be caring for her even after her torture.
I am only seeing it all now. We must unlearn all the harmful patterns they taught us ; all those things that hurt us that we never questioned as children. They have been mentally ill all our lives: even though our mothers did other remarkable, or normal looking things.
Now we have to keep finding our own boundaries, dodge the abusive one-sided conversations or monologues, not be tempted to retaliate, be defensive, and often it always feels like a no-win situation, no matter what I do say, don't say, go or don't go, no matter what I do. This alone really burns me out an makes me rage with dispair. If this wasn't enough my need to grieve, love, feel compassion, and so on are at another end of the spectrum of the reality of dealing with her.
I keep trying and hoping it won't be so bad. At best, I can just barely tolerate her. Some moments are almost pleasant but any true closeness is out of the question .She'll set me up for her next target practice. I don't think she is even vaguely aware of what she says, what she is doing, and how she is effecting me. Same with your Mom.
Both mothers have never introspected on their OWN behaviors nor taken responsibility for their bullying, and abusive behaviors. My mother has never owned up to her cheating on my Dad all through their marriage, nor for beating on us. I still see her through my childhood eyes at times: the scary red face, the shouting, taunting, and so on. She could have been arrested for what she did to my sister. I don't know how we didn't have concussions or more bruises.
I try over and over again to smile, be brave, ask God for the right attitude, meditate, and do whatever I can to take care of myself when I am not in her presence. It's the right thing to do to be within reach to help her but it's the right thing to do to set time limits and use language that constantly reminds her that I have needs that are as important as hers. I don't care anymore how she reacts to that.
When it comes to holidays, it is sad that our mothers couldn't get together with all the family. My mom can't stand anyone so she never wanted to be around my husbands family. She thinks they are uppity to do people. They are well known in the community but she sees that as a threat. They may be better than her. Crazy!! Just Crazy!! I have always wanted to have Thanksgiving or Christmas dinner at my house and invite everyone from my family to his family...but NO, as long as she is living, I will not be able to do that. A couple years ago when she was really bad ill, I didn't fix dinner thinking she may come over and of course she wouldn't, so I had some friends over for Christmas dinner and it was so nice.
I want you to know that I feel like I am reading about my own mom and our relationship when I read all your posts. My mom apologized one time to me and that is when the dementia first started and she thought she was dying...she sat me down and told me she was sorry for the way she treated me. I thought it was sincere and heartfelt. Now, I know it was only because she was worried about her own soul at that very moment. She is back to her old self and no apologies for her.
We were definitely enmeshed though. We would spend a lot of time together, shopping, going to museums--every time I confided in her I regretted it, but continued to do so until I was probably 30 years old. She was always disappointed in me and angry, she embarassed me with her obliviousness and know it all attitude. As I got more "adult" and independent, she got bitchier, and would make snide comments and insults when I visited. She made it impossible to blend my husband's family at holidays (no one could stand her rudeness and condescension). When she and my father moved away, she didn't adjust, even though it was she who wanted to move there. When my father died, she got even worse, felt very sorry for herself, and then her dementia followed.
We were never on any kind of trajectory of forgiveness and understanding, which is sad. Whenever I have to deal with her, it's always irritating, frustrating, confusing, and it messes with my head.
I used to love my Mom so much. Even though she's always had emotional mental issues and was verbally and physically abuse in my youth, she and I had a working mother-daughter relationship where we were like best friends. I think that is what hurts the most. That person is already dead.
Just remember the boundaries you have set for yourself and know how important you are and surround yourself with those who make you feel good about yourself. Positive energy ONLY!!! I realize we cannot be happy all the time, but we don't have to be miserable for them. One day, hopefully soon, we will reap the benefits of being the "good daughter". Even though they will never acknowledge it, we know it. Losing ourselves through this process is a NO NO. We MUST keep true to who we really are.
Thanks for sharing. I really admire that you set rules and that you are using those to help you and your mom have a good experience.
God, she is SO looney!!!k But since no one knows her, and she is great at looking charming and being phoney, that everyone thinks she is "special".
While her friend told he her life story, totally unprompted and unaware of my queen mother fuming for lack of attention, I finally said, "I didn't have lunch, I am faint from hunger, I need to go back home to get back to work. Why don't you have a nice visit with my mother." They were both totally unaware of what's going on. Her friend went on and on about herself, while my mother inserted put downs about me and sat trying to get her friend to face and talk to HER.
I stood up from the couch, "I am sorry but I must go. I need to get some food now."
Mom jumped up and had this mean swaying motion as she walked to her refrigerator. "Well, I am sure it's not good enough for you, but you can have this."
She handed me some leftovers from a salad bar. It wasn't until after I ate it that I realized I probably consumed her germs: she has a UTI infection! Oh damn!
I was so hungry I ate it but it was only barely a handful of food.
This is in contrast to me making her a turkey with several sides, and dessert, all from scratch. I didn't even want to eat there. I should have just gave her the supplement, got the cash I spent and left. UGH, well next time.
I go away from her place, cursing and saying, "I HATE HER!" over and over. It's so disturbing. I am NOT like this as a person. She is utterly toxic to me. There's no way to win in this situation. Only glad she can still live on her own. But her behavior drives me to apathy and hatred. It's awful! Even my seeing a counselor doesn't make this scene from repeating over and over. I often wish I would never see her again.
My mother's neurologist is a very helpful man. Since I had to get off the phone during her exam on Monday, I called back and asked to schedule a 5 minute call with him to get an update. He called me around 7:00 p.m. on Tuesday, and spent probably 10-15 minutes explaining how everything went. I filled in a few gaps too for him.
I had one moment of real smug satisfaction (with a tinge of guilt, of course). He related something my mother asked him, which, if he knew her as long as I have, he would have realized that it was a setup for her idea of a clever joke. He answered her question, and she delivered her punchline. I would never describe my mother as witty or clever -- sarcastic? Yes. But a good sense of humor is something she's never had. So, her "joke" only served to confirm his suspicions that her "thought processes are very confused," as he told me.
I had a reflex reaction to explain immediately what my mother meant. I felt badly for her, that she was misunderstood, that her joke fell flat, and that she only made her case worse for herself. BUT, the doctor had been so generous with his time already, and I decided that it wasn't particularly useful to harp on this one incident, so I didn't say anything. And THEN, I remembered all the times when I felt compelled to joke around in order to lighten up the mood in our family, and my mother would either roll her eyes, or look through me like I was invisible, or ignore me as if she couldn't hear me. At that moment, the smugness set in ;).
Hey, I'm no saint...
I had thought about calling her and asking her how she feels, but I have come to the conclusion she is just pouting. So, therefore, I am going to enjoy my night and let her sulk.
Enjoy your night too!
I was flooded this morning with a lot of "mom stuff", which I tried to do while at my "real" job.
Her appointment with her second neurologist was this morning, and I had spent some time over the last few weeks drafting a letter for him, to give him all the background. I faxed it over this morning. A few minutes before my boss was scheduled to come in, I got a phone call from the doctor, who wanted to conference me in to the appointment. I did not expect this, but didn't think it was a bad thing (it's just, I'm at work, I can't just switch gears, find some privacy, and so on--but I managed to duck into a conference room). I had to ask him to take me off of the speaker phone so that my mother wouldn't hear my comments. Anyway, I filled him in as best I could, and got to hear my mother a little bit. She only went to the appointment because she had no idea what it was for, which was good. He asked her a few questions, which she was basically unable to answer, but she's never said "I don't know" in her entire life, so I listened to her fudging her answers.
I'm not sure if she comprehended that I was on the call, or that it was ME, her daughter, speaking. She didn't say hello or anything -- and neither did I for that matter. It was strictly business.
I appreciated the doctor being as thorough as he could be, although I had answered a few of his questions already in my letter, so it seemed that he hadn't read it very carefully. Ehh, well, everyone's busy. Guess what? The world does NOT revolve around my mother, except in her own mind.
Thanksgiving five years ago was the last time I saw my father. He was very ill and died a week later. I've been reflecting on my parents' behaviors, and how I picked up so many of them without knowing it until very recently. Have any of you been on the website OutOfTheFog? I've been reading the forum posts, and my goodness, I can't believe how similar so many of the stories are.
Anyway, hopefully I haven't been ruminating too much. It seems like there are still so many moments of realization, it's almost too much sometimes.