Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I don't have anything much to add regarding the dilemma about how much or little to be in contact with the ex-whoever they happen to be. It's always awkward, and we never get the full story, which is not always a bad thing. I think, if you have a hunch things will blow over, and that the people involved are basically decent, than it's counterproductive to go silent on them. It's so impractical and invites more complication. Better to give everyone a little space, but not shun anyone. Unless, like I said, that person is scum of the earth. Then, shun away! Lol.
Things have been relatively even keel for me. I think I'm going on 3 weeks now with no contact from Nosy Neighbor. It's wonderful. I have been devoting a good chunk of time to removing my mother's contact info from charity and campaign databases the past month or so. Her over-the-phone donations have begun to increase to the point where it's obvious she doesn't know who she's talking to, how much she's donating, and so on. Sigh...
Also, my husband happened to email me an informative article on what to do if you inherit an IRA (which could happen, since my parents both had/have them). It made me realize I should probably have more info on my mother's accounts than I currently do. As I was going through things online, I noticed something that was a little odd, and even though I don't think I can prove it (and don't really want to obsess that much over it--what's done is done and I'm ok with that), it sort of appears that my mother maybe (??) transfered an account of my father's to herself after he died, that maybe (??) I was the beneficiary on. I did as much pouring over things as I could, and made a few phone calls, but couldn't get any real facts over this transaction that occurred almost 5 years ago. I went through a bunch of emotions that were basically just a very confusing exhausing ball of...I don't even know. I decided to just let things be, be grateful that I'm able to take care of myself financially, and whatever may have transpired is ok as is. I don't like unanswered questions or strange, unexplainable financial things that I'm trying to be responsible for, but... whatever. I'm letting it go, and am grateful to be able to let it go. My curiosity is still there though!
Poor little lad. He was I'm sure just trying to do the correct thing, like a nicely brought up young man. Congratulations on your anniversary, too - did you get time to celebrate?
My nephew seems to have separated permanently from his fiancée, such a shame because she's a sweetie-pie. I do sincerely want to know how she's doing, but I daren't contact her because even if she doesn't ascribe any sinister motives to it and just thinks I'm being nice, won't that make her feel worse about not being part of the family any more? Better for her if she just thinks we're all horrible, isn't it?
Actually. We've got enough to worry about without taking on the younger generation too.
That sounds like a really successful Sunday, I'm glad it was better. Maybe you could wear running shoes, too, for the next visit, just in case? :)
Boys look at things very straight forward, I like you and it doesn't matter that you were my ex's friend. The same thing with my daughter--one of her friend's boyfriends has been calling on her, but she will not go out with him for risk of hurting her friend--even though this friend is getting married to someone else. He didn't care to ask her out for he has moved on. Girls just can't seem to move on and get past things...this is even true with me and my mom. Wow, I just had a break through after writing that.
This kids bring their boyfriends/girlfriends home, introduce us, make them a part of our family and then we are supposed to pretend we don't know these people once they are gone. Bull Poops, I must say. When the one hurt her and lied to my face (we loved him as our own) he disappointed us so much then yes, I like to pretend he didn't exist. Learn from your mistakes is what I say.
You know what today is, Sunday, yes, I went to visit my mom. The visit went well, which I thought it would since I stood my ground, but a few times things came up and I didn't make one comment. We eventually ventured to the sitting area where some other ladies came and joined us. This makes the visit so much better when we have company to take away her complaints. One of the ladies did say they didn't like the food there either and my mom gave me that eye..you know the one--"I told you so".. Ha ha. I came home with much better spirit than two weeks ago. I will tell you that I went prepared to walk out at anytime. Instead of leaving my car keys in her apartment, I put the key in my pocket. That way I could walk out without even going to her apartment first. I am learning--slowly, but I am learning. I will always be on guard and ready to take care of me first.
Hope everyone else is having a great weekend with less worries.
You have to give it a bit of time. My youngest (the cactus flower, henceforth CF) split up traumatically from her lovely chap, whom I genuinely liked for himself and had quite a lot of common interests with, except that it was All His Fault and I was disappointed with him. A couple of weeks later, though, when a poet he'd mentioned to me was being interviewed on the radio, I unthinkingly sent him a heads-up text about it at ten to eight in the morning. It wasn't until he hadn't replied for a while that it dawned on me that receiving a text from your very upset ex-girlfriend's mother out of the blue at that time of the morning… He must have crapped himself, couldn't pluck up the nerve to read it until lunchtime. I mean all it said was "Simon Armitage on R4 @ 8:05 x" - but then he wouldn't have known that until he read it, would he. We then had a quick flurry of back and forth texts, he said CF wasn't speaking to him, I said I was sorry about that but I had to stop there or she wouldn't be speaking to me either. Water has passed under the bridge, and she certainly has contact with his parents and sister now (they'd all got very fond of one another), but I still feel that he has to be on my Disapproved list. Then again, being a well brought up young man, I don't think he'd expect any different. What was your daughter's boyfriend thinking, going over her head to you on FB like that? Bad form!
Hopefully, her being young, she will see as she matures that all this is silly. Time will heal her pain. She is a very wise young lady, smart, and takes leaps of faith that I would have never taken.
Thank you for helping me see that the world is not as perfect as I would like it to be. If she brings this up again, I will sit her down and talk to her. She is a pretty good listener. Right now she is at college and it was just a phone conversation. She takes in consideration what I say to her, hopefully it will sink in and she can get over all this anger and confusion about how relationships are supposed to be.
Sandwich generation was not on my agenda. The past three years has taken a toll on my family. We have all had to make decisions around my mom. I have been missing a huge part of my children's lives and I have not been here to take control of my own household. I am losing charge of what means the most to me.
I don't mean control and charge as my mom means control and charge. Our momentum as a family has been severely changed. What we knew as a family has been altered and it is causing havoc.
The duty to love is real, when we are torn down and tortured by the control from another is not ok. Sending mixed signals in this household is what is going on. I talk to her about how it is not ok to take what someone else dishes out, but yet I still do--I am taking it from my mom. She continues to hurt me and I keep going back for more. What a web we weave.
I agree it is more common, and more marked, among hem-hem the more narcissistically minded types. My MIL - gosh I've only just remembered this and now I'm laughing about it - fell out nuclear-style with her mother's family years ago. We were all forbidden to have any contact with them. Being separated from my husband by then, and very fond of of his great-aunt, I ignored the dictat - but none of my MIL's own children did. They missed weddings, christenings, even (I was really displeased about this) their great uncle's funeral. It was ridiculous. It was also not even up for discussion. Bonkers.
Be that as it may. I've forgotten how old your daughter is? - but the chances are it's a hangover from adolescence; and actually the maternal thing for you to do, if you think it's worth the trouble, is to correct this behaviour in her. It is a form of tribalism that fosters conflict and wants stamping out.
There can be exceptions. If the person your daughter's fallen out with has actually done something to deserve it, it's a bit different - you can at least allow yourself a cooling of relations. And I must admit there is one child in particular, although she must now be a grown woman in her late twenties, who I would gladly poke in the eye and I couldn't care less that my daughter has long ago forgiven her. It's a matter of being clear that should it ever come to sides, then of course you're on her side, but that in general sides have nothing to do with it and you ain't picking.
The principle of the thing - that "I'm not friends with so-and-so any more so you're not allowed to be either" refrain - is just not okay. You certainly shouldn't ever feel you have to go behind her back about anything - who's the best judge of what's right and wrong for you to do, you or her? Stick to your guns. I know how it feels "sharper than a serpent's tooth" to have your child accusing you, but you still need to tell her what's right.
And you can tell her from me that you get enough shoving around from your mother! It is NOT her turn!!!
I think you might be suffering from Nice Person Syndrome a bit, you know. Less good people swan around the place not worrying about it, sometimes thoroughly enjoying a good grievance and rolling up their sleeves when it comes to an argument. Gentle and patient people, like you, because you care about the people you love, feel everything they feel and therefore fear hurting them. Relax, you won't hurt them by telling them the occasional home truth. I know you'd put it nicely anyway.
Tell your daughter that what you need from her is support and kindness, not second-guessing of your way of doing things. If she wants you to cut someone off, she has to have a good, an objectively good, a just reason. Failing that, you'll carry on as you were.
And meanwhile, as far as her feelings go - Oh! - what it is to be so young and certain! Long may she continue to be sure of her own mind :)
Can you share, just for perspective, what she was upset with you for disclosing?Does she know that being mad is OK, but cutting people out of your life and judging them harshly, especially if you judge them more harshly than you would judge yourself, is not so OK? And you are MOM - you can't let her hold whatever it is over you to look down at you about forever...maybe the weakness you feel is guilt, and feeling unable to make course corrections for your daughter because your imperfections and inability to be everything to everyone in this situation is looming larger than life.
Being sandwich generation is hard enough without seeing the future trying to go the way of the past on top of it...
One other thing I am really worrying about. I am so afraid my daughter is so much like my mom. I see so many characteristics of my mom passed on to my daughter. One example: When my mom is done with someone, whether it be friend or family, then she thinks you should be too. She thinks because she is my mother then I shouldn't talk to them anymore because she doesn't. I am seeing this in my daughter. Without going in to detail, she is doing me the same way. She thinks because she doesn't talk to someone anymore then I shouldn't either. She feels that I am going against her and hurting her. I wouldn't hurt her for anything. Something came up today and I almost didn't tell her about it, but I decided to and she got really mad at me over it. I feel like I am living with my mother all over again. The stress just keeps growing.
I feel like Job in the Bible sometimes. I am trying to keep my faith through all this. It is tough at times. When I go back and read my other posts--way back, I see how much more strong I was getting and now I feel weaker than I did in the beginning.
I am trying not to have any self pity, that is not what I am after, but I can see how someone can sit in self pity wondering why this is happening to them. Living life for yourself is very difficult because you can run the risk of loosing so many people in your life.--maybe that is not a bad thing in certain circumstances. Trying to figure it all out and wearing myself out!!!
What to do with all this information that I have? I am trying to process it and make decisions based on what I am learning new everyday. Something that I have always known and realize is that life is too short to be so miserable. My life is getting shorter with each passing day and I pray for less torture. I can feel it lifting and I have faith that will will dissipate. I hope sooner than later. Detaching is key and having no contact is a possibility. What will I do this weekend? I do not have the answer for that yet and will take it as it comes. If she doesn't talk to me? That is okay, that may be the answered prayer. Loving life is what I used to do and what I hope to do again. I never thought I would ever be "here" at this point of my life this soon, but I knew that my mom controlled me and breaking free is a very slow process.
Thank you for reading and giving hope where hope is due.
baBalou: I am the one who arranges her meds. It's only me. AL facilities do not do their meds being they do not have nurses like a NH.
Awkward silence filled the air today as we waited for the time to go. She didn't say a word, not one word to me. I tried to spark conversation, but it didn't work. I could feel the tension and the pouting. She is back to her normal self. I think it was Judda that mentioned about hydrating them and to be careful how we hydrate. We hydrated her back to the "old" self. I am now confused at her illness. Is she really as sick as I thought or is she just better. How do they get better when diagnosed with dementia? I do still see the confusion, but she even remembered her social security number today at the appointment. I was filling out papers and asked her for it--because I don't have it memorized, she blurted it out like a phone number.--but in another sense, she didn't remember her mother having glaucoma and it was about three years ago.
She talked to the girl that went with us and she talked to the doctor, but didn't say a word to me other than answer my questions or have a smirky comment to my "conversation". She even smiled and laughed at the doctor--he is the best eye doctor around--smart, funny and a GREAT outlook on life. He stated she had a floater (duh, I think I told her that, but it wasn't good enough, of course, it came from the no good daughter that doesn't know anything) She kept asking several times what it meant and what to do about it.--she will be confused about it for a while. She understands there isn't anything he can do for it. He said to her, but I took in what he said, "Let's not worry about what we can't do today, do not worry about things that we cannot control". I had to look twice because I thought he was talking to me. He told her to put it out of her mind and don't worry about what we cannot change. WOW! I wish I had his outlook.--I used to honestly until I had to start dealing with her on a regular basis. Before she became ill, I didn't deal with her as much so I could have peace in between calls and visits. Now, it is a daily thing. Who knew it could be so daunting?!
After finishing at the appointment, I drove her back and the girl met us at the door. I told my mom I had to go back to work and I would let her walk her back in. She wouldn't even look up at me, I asked for a hug and she barely hugged me. She is SO mad. Ha! How sad to choose to live your life so miserable. It also amazes me that a parent can be so mad at a child like that. I, as a parent, do get upset with my children, but it is more about choices they make and trying to guide them--NOT because they don't do enough for me. This is not about me, but my mom makes it about her. Narcississtic!!! As I looked at her today while in the room at the doctor, with her head turned away from me the entire time, I realized how she really is. I noticed this sad, pathetic, angry, pouty, woe is me, narcississtic person that I call mom. Not one time does it occur to her that I do for her and take care of her needs and make sure that she is safe. She only sees me as a nuisance, but yet someone that should be doing more. I can see how she doesn't really love, she just needs and takes.
Speaking of doctors--uugh!! I called yesterday to see if they could up her dosage on her anxiety medicine. I was hoping this might help with the attitude. I explained to them that I cannot add another medicine to the pill box or she won't take it. No changes. She said she understood. Well, they called today and had already called in two new medicines and LOWERED the dosage of her anxiety medicine. What the heck!! I called them back and told them to just not change anything. GRR! Now they have screwed it all up. They haven't called me back. I don't think they really listen when you tell them what is going on. Vent over!! Ha!
One last thing on my list of to do: Get an appointment with a counselor to get the ball rolling back to a good healthy mind. I do NOT want to be afraid of my mother any more!! I want to break free from the fear.
I survived last week and the weekend! YAY! After work today I called the dreaded lady. She did NOT answer my call. I laughed out loud thinking about her pouting in her apartment looking at my phone number come across her caller id. How childish!!? Do you see what I mean? I thought, fine, missy, you just sit there and sulk. I waited about an hour and called back. Still did not answer. An hour later, I had decided if she didn't answer this time, I was telling the director they could just take her. Well, she decided to answer the phone. (in a low, depressed voice, helloo) I cut straight to the chase. I didn't even say hello or how are ya, or anything. I just said, "I made you an eye doctor appointment for tomorrow and I will call the director and get someone to go with us to help." "you appointment is at 12:45 and I will take my lunch at that time and after your appointment, I will go back to work". SILENCE!!!
Mom: hmmm, tomorrow?
Me: yes, tomorrow
mom: I don't know what to do
me: let me know
mom: no one can go to help it's too much trouble
me: no, it's not, they will help
mom: I don't know what to do
me: I will tell you what, I will call the director and tell her we need help, then I will call you tomorrow to make sure you will still go.
mom: alright then
me: okay, bye talk to you tomorrow
mom: bye
YAY!!! I got off the phone and called the director and left the rest up to her.
I will go do a pill box to last another week and get my mom to the doctor, then get the heck out of dodge. Another successful week. I have been less stressed this week and it felt so good. I want that feeling all the time--at least away from this situation. After talking to the director let me tell you what really peeves me off about my mom, maybe you all can relate. I asked her how my mom had been this week being I didn't call or go see her. She told me that my mom got dressed the other day and came out for trick or treaters. Oh, really?! She acts like to me she is the most miserable woman that lives on earth. She wont get dressed, she sits with a sulky face the whole time and complains. I am glad she had a good time, I want her to do that. I just wish I could enjoy that with her, but it is NEVER going to happen, because she will NEVER want me to see her enjoy herself. She wants me to live miserable as she makes me think she is.
Looloo: Good job trying to get through to the neighbor. Hopefully she will get the hint, or not.
Thought for the day: If you focus on results, you will never change. If you focus on change, you will get results. (I pray for courage to change)
Sandwich -- if my mother doesn't agree to go see this doc (it's the second referral now, since she refuses to see the previous one), then I'm with you! No more wasting everyone's time, trying and trying again.
It's been almost 2 weeks since I've heard from her annoying neighbor, which is great. Hope it keeps up. Maybe 3 weeks ago, I collected my thoughts and responded to her previous onslaught of questions, and also let her know (pretty clearly, I thought) that her anxiety was overwhelming, that her questions and concerns continued to focus on things that I had no control over and that were outside her scope of responsibility (I was trying to say in a diplomatic way that she was being a pot-stirring nosy-body), and that I thought it was time for her to 'step back'. About 8 days passed, with no response, but then she emailed me, and didn't seem to register anything I'd said. Again with too many questions, too much prying, too much angsting, and more than a little implying that I wasn't doing enough. All I could think of to do was to wait to respond, and then I just very curtly answered the 1 or 2 questions that I felt weren't too instrusive. I didn't pad the email with any niceties, and didn't sign off by saying "thanks" or "have a wonderful week." So, maybe this will do the trick? I'm afraid to be too hopeful. But I really do NOT want to hear from her at all.
I didn't know there was such a thing as a CMA! I'm keeping this tip in my pocket in case we need it... :)
I count my lucky stars every day I could get my mom into a facility that can do it all and handle the insurance/Medicare billing. Not everbody has access to this. I am not willing to run myself ragged, obsess over it, and basically let it ruin my life. We stopped seeing the kidney specialist completely because with all mom's other problems, this wasn't the highest priority.
The geriatric doctors she sees now go onsite, and all testing is done onsite. The nursing staff prepare & administer meds, do blood draws, etc. I would be a basket case if I had to do that myself even after placing her into care. Otherwise, what was the point of going into care?
My mother broke a tooth months ago, and refuses to see any dentist. The onsite dentist or my dentist. The only dentist she will agree to is 1800 miles away in NC, and that "ain't happenin". So, she has a broken tooth. It must not cause her pain. When it does, I'm sure she will be willing to let somebody fix it. Or, it will give her an abcess that puts her in the hospital. I don't loose any sleep over it.
It is Sunday at 1:00 and I have not called nor gone to visit my mom. I am praying she doesn't call me. If she does, I plan on not answering. Tomorrow though I do have to call about her eye appointment and then Tuesday go do her pills and get her to the appointment with help from the AL, of course! I am trying not to worry how our conversation will go tomorrow. She may tell me to forget it and cancel her appointment.--then I will! I am NOT going to beg her anymore to be what I need her to be. I realize her dementia makes her say no to everything, but believe me when I say she is better compared to last summer. She is so much like herself again, besides a few minor details. It is hard to differentiate between the dementia and my mom now. When the doctor told me last summer not to let her tell me no, I took it to heart and did things for her anyway and reaped the repercussions. Then the hospice doctor told me not to make her do anything. Ask, then if she says no, say ok and know that you did attempt. So that is the story and I am sticking to it now... :-) When she said go home, I went home. When she says, forget it, I am not going to the eye doctor, then she won;t go. Liberating, that feels good!!!
Hope everyone enjoys their Sunday, I am planning on it.
Jewel, that's great that you have an ally in the director! Although I know it shouldn't matter whether or not anyone really understands or believes us, when they do, it's SO, SO nice.
I heard from my mother's doctor's office on Thursday morning. He agreed to provide the letter I requested (simply stating that due to dementia, she can no longer handle her affairs). I had been pushing for this really hard since July, but it's actually been about a year in the making. So many hurdles, one after the other...
Anyway, I asked the nurse if she could fax or email to me. NO, she can't. Why? I have no idea. She offered to mail it (why can it be mailed, but to emailed or faxed??? Who knows, it's a mystery), but I figured that was just tempting fate, so I said I would make the drive and pick it up today. So I did. Left my house at 8 a.m. Traffic was pretty smooth, so got back home at 2 p.m.
I spoke to the guy at the bank yesterday afternoon. I don't expect someone who's not "in the trenches" to really understand dementia, but it still gets frustrating. He said things like, "Can you just explain to her....." Um, NO, I can't.
Is anyone reading about Amanda Bynes? She's the former child/teen actress who is obviously very mentally ill. Very sad. Anyway, her parents have conservatorship, but she was just released from the hospital. She doesn't trust her parents at all, and therefore, her parents are powerless to do anything really. They're in a similar situation to mine--where we get to "wait" for the incident where their daughter ends up having a medical emergency. Why it was decided to release her from the hospital is just beyond me.
I did get to talk to the director and she agreed they would help me with my mom at the eye doctor. She even offered to bring her to the appointment and meet me so I wouldn't have to go to the AL to get her. After being very excited about that, I realized I have to go do her pills before we go to the appointment. I am NOT going tomorrow to visit. I have made up my mind. She did tell me my mom had a great week--well, I am glad someone did Ha! I have been a nervous wreck all week while my mom is just fine. Of course the narcissist doesn't tell what happens, it would look bad on her, right? I mentioned a few things and the director even told me--knowing me from before--that my mom has tortured me all my life. It is so true and still torturing me even though I have practically given my life to her. I can honestly say that I am NOT trying to torture my mom back or do this as a "punishment" for her. I am trying to protect myself from her mind torturing drama. Am I worried about what will transpire after tomorrow? ABSOLUTELY! I am nervous about what she is going to say to me on Monday when I call her to tell her of her eye appointment. This is probably going to be the start of an ugly battle, but I am armored up and getting prepared. I am sure her car, her money, her things, everything that I am now in charge of will be the topic of conversation. She will find a way to still make me feel worthless.
The director (which is an acquaintance of mine from school) told me it is okay that I don't come and it is okay that I don't make any comments to some of the things that she says. We already sit in awkward silence.
I will be definitely be on my knees tonight for sure praying for strength to help me enjoy tomorrow and not cave in.
Well, two days after she was on the mend, she called me in the morning, and WHAP! She proceeded to tell me what an awful daughter I was because I didn't tell her I would love to spend the night when she was sick. A good daughter would have done that. She was on a tirade. I went over as always before work and she continued to berate me and attack me for three or four things I said over the years that hurt her--one of them was from when I was 16! I am 62! Anyway, I left for work, and I was down, but I was also proud of myself. I felt more detached this time--not like a scared little girl. This was progress. During the day she called and left a message that she thought about things and realized I do many nice things for her. I appereciated that, but again, I didn't become elated like a little girl when mommy would finally pat me on the head and praise me. This was also progress! Then, when I went to see her, she said how glad she was that we had that "conversation." She asked me if I was glad. I told her that she had said many hurtful things, but I was glad it helped her. She asked didn't it help me? I told her it did not--that I never try to say things that are intentionally hurtful. She said well it was a good thing for both of us because she got rid of much "poison" (she doesn't realize that she sheds her "poison" several times a year at least...) She then told me that she finally realized that we were not the same people--that we were very different. She explained that my birth had been difficult (that story has been told thousands of timnes :-)) and because of it she felt that we were like one person. I have ALWAYS felt as though she would not let me individuate--that I had to fight and scrape for any sense of freedomn. So, this was somewhat enlightening. We shall see if she remembers all of this today, or if she decides I am a pretty worthless--could go either way. But, you know what? I am feeling stronger, at least for now, and it is freeing. I have SO MUCH more work to do, but something seems to be happening to free my spirit a bit. Does this make sense?