Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
....and I know I DON"T have to. Yes, here comes the but--she is in my head, you don't care about me, why do you treat me this way, leave me up here and never come back, what kind of daughter does that?--she won't be quiet in my head. It is like a tv show or a movie where they keep replaying what someone says over and over. She hasn't called--to no surprise. Which I am glad, because I wasn't going to answer anyway.
I want what you are having if it gives me a bigger backbone. :)
Start here. "I don't have to go." How does that idea feel to you?
That is a great idea. I have tried just about everything else--she will probably just call me a smarta**. I have cut visits down to a minimum now and I think this is another reason she is more angry. Who knows? I have tried to answer for her for 40+ years.
I will say this morning I had a sweet surprise from my husband. I got in the car and he had left me a sweet card.--something he USED to do and it has been a long time. I guess he sees how really distressed I am. It made me feel so good and definitely put a smile on my face.--something my family hasn't seen in a while.
As the week is pushing on, Wednesday already. I am having a hard time deciding how to handle the rest of the week. I plan on calling the beautician and asking her to do my mom's hair but not telling her I called.--just to pop in and offer to do it, like it was my mom's idea from a couple weeks ago. Then make her eye appointment for next week and get help taking her. That is all I think of right now. It will be the weekend visit I am struggling most with.
Have a great rest of your day.
It is funny because once my mom went to a therapist and wouldn't you know it, she found something wrong with them.. lol--therefore she quit going.
I am not offended at all that you asked, that is one more thing on my list I need to prioritize. Thanks for caring enough to ask.
No Guilt? That brings such joy to my heart when I even just say it!
Another UPDATE: As you know, I talked to my dad the other night. I haven't seen him since. I pulled in my driveway after work today and he was at the house working. My first reaction was, smh, there's my dad. Then my next reaction was, who cares what she thinks. Why am I hurting him too in this process? More emotions. I get out of the car and he comes over to my son and I and hugs us and then tells me he is putting a for sale sign in the yard in two weeks after he gets back from his vacation--to Hawaii--yes, really. Ha ha! I wish I were going. Back to the yard sign. I had more emotions--sad, pity, anger, and happy. See I told you my dad was a good person. Why do I do this to him?--it's called mother. He truly understands my concerns because he lived with the devil for 26 years. He knows how she is and he tells me all the time he is sorry and wishes he had stayed to relieve me of all this pain.--heck no, dad, run Forrest run!! I told him to do what ever he wants, that I just needed to voice how I felt and why. I do love him and wish it didn't have to be this way.He told me he understood and he was still moving in and fixing up the house, but the sign would already be in the yard and he could sell it as is, or do more work. I feel like a heel people. My dad is the one who would take a bullet for me and she is the one I keep protecting. I just don't understand.--don't get me wrong, my dad living next door is not a good idea for many reasons, but my main reason is how she makes me feel.
I prayed to God this morning and told him I need him to do something for me NOW! I need Him to show me an answer and give me and my family peace from her. Maybe my dad putting the sign in the yard was the "sign", but I over analyze everything--wonder where I get that?
Love you guys so much for listening. You are the BEST!!
"When someone says you've changed, that just means you have stopped living life their way".... Let us get on that wagon!!!
Jewel, I probably got the idea from my SIL's husband's shining example. He is a lovely, lovely man, the kindest in the world, who coped patiently for years and with no thanks for it with a mother who made Cruella de Vil look like a dalmatian puppy. But every so often, when it's called for, he throws his toys out of the pram and tells everyone to sit down and behave. There are then months and months of whispering behind his back about how tyrannical he is and how put upon - gasp! - my SIL is, but since his own mother used to slander him quite regularly I suppose he's developed a thick enough skin not to let it bother him. It's role play - someone being prepared to be the Villain of the Piece. Your mother, from all you've said about her, is always determined to believe it's you. It wouldn't hurt her not to be so sure about that…
Don't forget, the key thing, what really *matters*, is that your mother will be just fine if you get some time out. Nothing awful will happen to her. Her hysterical reaction to the very idea of it, part and parcel of her treatment of you, is part of a spell she casts on you. But that Doesn't Make Her Right, and it doesn't make it real - in reality, she is being done no harm. What we want to do is get your focus off her so that you stop being hypnotised and frozen by all that FOG that Emjo can tell you all about.
I can nurture myself. I can protect myself. I can empower myself. I do this now. I have been doing it, but was unaware. Now, I do it consciously. I had a great counselor who helped me see this and learn to do it on purpose.
I don't have NEARLY the amount of anxiety, sleeplessness, stress, frustration, and anger I did 6 months ago or even 3 months ago.
I stopped expecting my birth mother to provide anything to me. Not even recognition as a person. That was harder to do than it sounds. These expectations are hard wired. Every time I would get upset, I had to stop and talk myself through it. What is upsetting me, what am I expecting, what am I disappointed about? Then I had to take that list and let those things go. Stop expecting them and stop letting the disappointment run my life.
It's not about going numb necessarily, but being able to take cover when the bombs fall on your head. It takes practice and repetition. I'm not perfect, so this is perfect either.
I have a mental image where I have my kindergarten aged self on my lap. I hug, soothe, and speak lovingly to myself. I rock her and rub her back and tell her everything will be OK. Weird, but it works! I tell Little Me positive things about myself. My counselor had me picture injecting myself with a magic shot of something like Magnificence or Powerfulness, but that image just didn't stick. My anxiety meditation is Big Me comforting Little Me, like a mother & child. Have a glass of wine and keep at it.
Become conscious of where you are holding tension in your body during these times. Practice relaxing these areas on purpose. For me, it's my neck, shoulders, and fists. I open my hands, roll my head, roll my shoulders, and breathe deeply and slowly.
Releasing the expectations will free you from a lot. We are not brought up to work this way, but it can be learned.
I started to feel less pre-anxiety before visits. I no longer have my buttons pushed during visits. I no longer am upset for 3 days straight after visits.
If I've been doing my meditations! The first time I realized I didn't have those awful horrible feelings was really weird.
I realized I had alwasy expected to feel bulldozed, so I had to let that expectation go too.
One thing leads to another. I hope this helps.
I still lie about things that are going on so she doesn't feel sorry for herself more. Sunday, I even tried to say, "oh I dread tomorrow, going to work"--thinking she would say oh, I know. BUT NO!! She said, "would you rather go to work tomorrow, or be cooped up in here all day?" I answered: Actually, I would rather be cooped up in here all day.... she looked so puzzled that I would say that., and said, "oh, really?" with a sarcastic laugh. I said, yes, really. She just doesn't think what it was like to work, take care of her house (keep it perfect), her only child, and have dinner on the table every night. She thinks all I have to do is deal with her. I am still laughing over what she said to the staff Sunday...They came to ask her about dinner. She asked what they were having and they said individual pot pies. She ask, is it made with biscuits? They said they weren't sure, she kept on about the biscuit dough until the girl said, yes, I think it is with biscuit dough. Then here it came...."I don't want any then". They asked her what else she would like and even mentioned a few things. Her answer was no, I don't want anything. After they told her to let them know if she changes her mind, she then said. "I guess I will just starve" Ha ha! Feel sorry for me because I don't like what you have. Oh my. I can only imagine what they deal with on a daily basis from her. It's never good enough. More emmisions of guilt from you know who.
Loo loo: Envy is just as bad as poison. It makes the rest of us lie to keep peace. That's okay though. Last year at this time my husband and I went away for the weekend for our anniversary. This is when I was staying with my mom a lot. I had someone come for the weekend so we could go away. I wasn't going to tell her where I was going or what I was doing, but I decided I would tell her being it was our anniversary. BIG mistake. When I came back the lady staying with her told me that is all she talked about that weekend how I decided to go shack up with that man of mine and how he always takes me away from my mother. Good grief. When I went to stay with her she brought it up several times..."did you have fun while I was cooped up here in this house", "aren't you glad you can get out". "don;'t you see him enough everyday, you live with him?" When she asks these questions it is like she is throwing darts. LOL
If my mom asks about my day or my life it is only for ammunition for later. She also asks me many times, "aren't you glad you can get out and go and do things?"--this is not her being glad for me, that is a guilt question. I have learned to say yes. I used to walk around the question and now I answer her very gladly because I am glad I can get out and do things and that I am not as miserable as she is. God likes a grateful heart. Mine isn't so grateful as much anymore, but I am trying not to lose it completely.
My husband has offered to go see my mom and talk to her, but it wouldn't do any good, she would still see herself as the victim. My daughter is the only one who can talk to her, she has a bigger backbone than me. She hasn't been able to visit with me the past couple of weeks but she told me she would if I go back.
I appreciate your input.
If you really can't face calling your mother, could you enlist your husband? It might be easier for him to call his MIL and tell her that he is putting his foot down because his household needs your undivided attention for the time being, and he is the boss, and it's his say-so. The coward's way out, sure, but if it wins you a guilt-free breathing space then who cares?
I did pretty good yesterday but as the week is going on I am becoming more nervous about how to handle this situation. In my mind I am constantly going over my choices--do I call, do I not? do I go visit on Sunday, do I not? Do I make an eye appointment, do I not? My mind is a bit more free than usual because I am not going over in my head how she talked to me, it is now about my own decisions. I was thinking this morning after reading CJPTenn. When she talks about how her mother hates everything like mine. I was reminded about how my mom has stopped answering her sister's phone calls. Why can she make that choice? She decides she doesn't want to talk to someone then she doesn't. When she wasn't mad at her sister, then she would ask me if I talked to her that she hadn't called her (my mom wouldn't call her though, she is supposed to call my mom) She would go on about how we didn't care about her (my mom) but when decides she isn't going to answer the phone then she does it. If we decided NOT to answer her calls or come visit, then we would be the bad people. Look how we did her, can you believe my daughter and my sister treat me this way? GRRR. Something I didn't think to mention before until now contemplating no contact. My mom stopped talking to her whole family (mother, sister, brother) for about 3 years. She stopped attending Thanksgiving and Christmas. She sent Christmas gifts by me to give out. One year my grandmother cried when she opened the gift and I told my mom that would be the last time I took the gift. I told her she could take it herself or mail it. That story goes on and on for 3 years. Then my grandmother became very ill and I had to call and tell her what was going on. This was in '05..looking back that was about the time we think she was starting to become more ill (in retrospect of course) When I called to tell her my grandmother was in the hospital, she first was silent and then became angry because she knew she would need to go visit. At first she told me, so, I am not going. I told her she may regret it if something happened to her. That made her even angrier and told me not to preach at her, blah blah blah. My grandmother had to have surgery and someone had to sit with her at home or she would go to a nursing home for rehab. My mom did offer to help out. Grant it she worked and I helped out when I could too. My grandmother got better until '07. Same thing, she was getting worse and needed someone to stay with her. My mom retired and took turns with her sister and complained about it all the time. If my aunt needed to switch days my mom would throw a living fit and tell her no. She HAD to stay on that schedule. Now we realize that was the dementia coming on. Long story short...my mom was able to walk away because she was angry, why am I having a hard time walking away just for peace of mind? I am not angry and wanting to walk away, I am just looking for some peace and freedom from a hateful, unappreciative black hole. Also looking back, my mom has used me as the go to and the middle "man" all my life. It has to stop!
If she didn't talk to them, she thought I shouldn't talk to them either. One time she even ask me, "don't you think it is something that my family doesn't talk to me, but they will talk to you?" (well, first of all mother, you stopped talking to them) I told her, if you didn't want to talk to me, does that mean you would stop talking to your grandchildren? Of, course she said no...
Just some thougths today, I am trying to clear my mind. Thanks again for reading.
It helps so much to know how normal this situation is for most of us.
I think I have come up with a plan about the eye doctor.
option 1: Make the appointment for next week and pretend that is a soon as they can take her, then ask one of the staff members to go with me. Take her back to AL and tell her I have to go back to work.
option 2: Make the appointment for next week and let the AL staff take her.
I will make a decision on these options closer to the end of the week. If I take her maybe like Tuesday, I can just do her pills then. She can get out of the bottle for a couple days--won't hurt her.
I also think I am going to call her doctor and see if there isn't something they can give her to keep her in a "daze". something to calm her WAY down and keep her that way. I am truly ready for no contact and I am going to need to find a way to keep her in AL in case she starts getting out of hand there. I do not know what I would do if they were to say she had to leave. She did ask me the other day if she could leave when she wanted and I told her anytime.--this is due to her blaming me for her being there. I want her to think it is her choice.
I am so happy this blog is helping others to see their situation in a different perspective. It has truly helped me open my eyes to all options.
The other mother, where is she. Oh yea, she is a figment of my imagination. I have imagined what it would be like to sit and enjoy conversation without worrying about saying the wrong thing or cooking with my mom --she was an excellent cook!--of course she was, she was perfect. I would love to be able to invite her places but she can't be around others that may take my attention.--it all has to be on her. This reminds me of a friend who lost her husband several years ago to a tragic car crash. They had two little girls and she had a son from a previous marriage. The husband was a cousin to my husband, very nice looking, came from a very wealthy family, but boy was he a brat. We loved him for other reasons, but he was NOT a good husband or father. She wanted to get away from him and his family-they were very controlling over him and her. (money, ya know?) She would say things like, "I wish they would fall off the face of the earth and take him with them" She was so hurt and angry at them and him for so many different things. She tried to keep her family unit together. They were married about 5 years and tragically one night after he left work--his dad's business, he wrecked on the interstate and died. She called us and the guilt that she felt from saying these things. I told her the same thing Sandwich--I told her: "now, you can make him out to be anything you needed him to be for your girls." You can tell them how great he was and make him the way you needed". --they will never know any different. She really felt better after I told her it was okay to make him be the husband and father they needed he is gone and won't be here to prove you wrong. I told her not to feel guilty for he made her feel that way. I try sometimes to make my mom this great mom I needed.--she was great when it came to excellent cook, crafter, organizer, she made a good caregiver when I was sick (i needed her then see), but the narcissistic part of her took over. I have to say it is much worse now than then, but this all brings it back.
My friends don't really understand either because they do not live in this situation. I have a friend that just tells her mom, my other friend has a great relationship with her mom and I do have another friend that kind of understands because her mom is a bit controlling, but she does know her limits. My mother will say stuff like, all I have done for you...yes, she did a lot for me, but all I wanted was for her to be nice and not ridicule me.
Something funny I do have share: I have thought about my mom today and had to laugh. I can visually picture her today in her apartment mad at the world and sulking over me leaving and thinking about how horrible it was for her daughter to treat her that way. Lying in her bed watching tv and pouting. She has probably been a bit hateful to the staff or just the opposite been really nice so no one will know anything even happened. Either or, no in-between. She is probably wanting to revoke my POA, take back her checkbook, and her car. I will be happy to give it all back.
You are correct that my mother is not that forgetful. She remembers more than I ever want her to. She does get confused about things sometimes, but her memory is not that impaired. Just reasoning skills and ability to care for herself. Her mind is good and she is sharp. She first had lost the ability to read and comprehend but yesterday she read a little story to me that one of the other ladies wanted her to read. I will share it below....
I will end here for now:
There were two little brothers that went to a pharmacy and went to the counter with a box of tampons. The pharmacist ask the oldest boy "how old are you", he replied, "I am 11 and he is 4". Oh, said the pharmacist, are you buying these for yourself? The eldest brother said no, they are for him as he pointed to the 4 year old. The pharmacist then asked, "do you know what they are used for?" The older brother stated: Well, we saw on a commercial that if you use these you will be able to ride a bike, swim, and ride a horse and he can't do any of these things so we thought he could give them a try.
Enjoy your evening!!!
I will add that the more often I step away from Mom, the better my relationship gets: I mean it goes from traumatic horrible to bearable. And yes, letting go of the Mother that never was, is the hardest part. I am now sorting out the person I love unconditionally: and I still feel my reactions to her numbing and thoughtless behaviors she does now. I can also see she wants to try to connect but really has no clue! She just always had that missing in her brain: it's called mental illness.