Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Here is where I had to make a break for the door. While we were eating, in her room of course, can't go to the dining room like normal people. She started talking about my grandmother's things and it got heated. She acts like we all have cheated her. She keeps telling me that she didn't get a chance to pick out what she wanted--she did and the answer was no every single time. Now she thinks everyone should be paying her for what they took "her part" of "her" mother's things. She cried and screamed about how unfair it all was and that everyone was so unfair to her. After about an hour of it, I had to leave. No one was being unfair to her, she just sees it that way like she has every other thing all her life. I cannot tell you how sick of all this I am. I am so READY for this torture to be over! I was so torn up by the time I left it has taken me another hour to calm down and write. This is where I tell you once again how much I appreciate you reading what I write. It helps more than I ever thought it could.
Question before I end?? During her ultrasound--which I hadn't had this happen before, the girl doing it went and got the radiologist. He then asked to get pics of other areas and they told us we would probably get the results later today. Does that mean anything? I have had this bad feeling, but then again, I know my mom is healthy as a horse except for her mind and attitude, she will live to be ripe like emjos mom...HA!
Some people just find it very hard to take a compliment, or to express pride - your mother sounds very similar to mine in that respect. It's a lifelong habit that they tend to pass on…
Good luck for today, hold tight x
The visit wasn't too good at first today, she was concerned about her appointment tomorrow, stressing out over what to wear, should she eat first, should she take her pills in the morning, how was she going to get in the car, put her shoes on, walk in the hospital, afraid they may keep her...the list goes on. I tried my hardest to let her know everything will be alright and I told her what we would do step by step. Do not eat or take pills in the morning, we will lay out your clothes today, I will pull the car up close, I will drop you off at the door--we will even get a wheel chair if you need it ( I don't need a wheel chair--well, then mom, quit acting like it), I went over step by step what we would do to make it easier. After about an hour, we got her hair washed, picked out clothes to wear and let me tell you--my mom lost so much weight over the past 3 years down to 79 pounds we had to do buy a whole new wardrobe..I put those clothes in the closet at the AL and oh my guess what? In march she had gained back to 105 pounds, now she can only fit in two pair of the pants and actually they were hers from before and two shirts that were hers before, she is back to her 135 pound self. She cried and said, now you know why I don't put my clothes on here...I said, no, you didn't put your clothes on even when these fit. So, now ladies, back to storage at some point and get in clothes boxes and take her some clothes and I guess a shopping trip (oh how this is no fun shopping for her) remember the woman doesn't like anything I pick out. Today she saw one of the other ladies and told me that her daughter shops for her all the time and I like that blouse she has on...I said, "well, maybe I will get her daughter to go shop for you"....hahahahaha...yes, I did. I didn't crack a smile and I got the evil eye from her. After washing hair, trying on clothes, washing off, putting pjs back on, she was worn out. She then started to cry "how will I make it tomorrow"...I look at her with such pity sometimes because my mom was always so strong and independent she would have never second guessed how she was going to do something. We eventually ventured up to the patio and there were about 4 other ladies (yay) because I didn't have to sit there with her by myself. One of the ladies kept telling my mom how beautiful I was (I was embarrassed to say the least) over and over she kept saying it...finally my mom looks at her and said, "yea, she is a good girl"...I just about fell out of my chair, my mom bragged on me for a moment. --then she said, "I used to be young once, but look at me now"...oh my, back to me me me.She never did like when someone bragged on me and not her. I went to school with the director and she was filling in with someone today and she was there when this conversation was taking place, she said, She is a good girl and a good daughter, she comes every week and takes care of her mom..." chalk one up for me today--IN FRONT OF MY MOM! Listen to me, I sound like her...me me me...she is rubbing off.
Thanks to all of you for thinking of me today, my daughter texted me soon as I pulled in to see my mom (she is away at college) she said, positive thoughts and when you leave, leave the negative energy behind. I could feel all of you shielding me today. It worked. God, my daughter, and all of you!!! Keep shielding me through tomorrow!! Good night and only positive thoughts.
Have a great day everyone!
I can sense your disapproval (and yes I am being facetious). But for heaven's sake at least do this insane project - three days' notice? Big of them! - in your own good time and at your own pace. Though of course you'll be glad to have it done and off your hands.
Kazzaa, as long as the cat's being looked after it might be less problematic to wait 'til you've got your own place a bit further away before you attempt to move him. You'll be back and forth all day - don't forget cats are highly territorial and really don't care for having their boundaries moved. A few days won't change his habits, not if he can see his own stamping ground from your friend's house. Thank you for all the kind thoughts: I'm missing Gretel terribly - it's just weird even going through the utility room and not seeing her dishes there. My own cat, Sweeney, was 19 when she died - she got dementia, sundowning and everything, and walked into the road one morning for all the world as if she knew what she was doing. I still miss her (Guy doesn't! - she led him such a dance, clever little thing…), but the house wasn't so changed then because at least we had another cat. It's also made me think a bit harder and more seriously about how I will feel when mother's chair is finally empty, too. Possibly I won't be hanging up bunting and throwing a party, for example. It's funny what leaves the real gaping holes in your life, isn't it?
On the other hand, enough is as good as a feast, as they say - Jewel, if you're seeing your mother on Monday to take her for tests, can you not get away with calling her first thing and explaining that driving up two days' running isn't practical for you but you'll see her tomorrow? Don't whatever you do call her and then back down, though - decide beforehand what YOU want to do and stick to it. Either way I hope the visit/s is/are a success. Big hug.
Received yet another email from neighbor lady. Nothing urgent, just her shrill, panicky voice coming through. At least it's not a phone call. Those stress me out much worse. Anyway, I am ignoring and will respond on Monday. I've already spent time today doing other "mom" things and would appreciate a break.
edfernandez: That is how my mom started out about 5 years ago. They diagnosed her with depression and tried to say that is was all wrong with her until she got out of hand 2 years ago. I am glad you found it early and the meds are working.
Kazzaa: You have done a great job staying away and it paid off. I know the guilt of thinking now mom needs you and feels sorry for you. Don't fall in the pit. I am so glad she brought you a coat and money. She should, that is the least she can do after your 5 year roller coaster ride. Your brother will definitely find out what it's all about. Your mom sounds like she is playing both of you now. Don't tell brother, don't tell sister... Make it a joke. Laugh all the way to the store for groceries. HA! Sometimes "just knowing" is enough.
I have enjoyed my Friday and Saturday tackling my list and oh tomorrow is Sunday... I wish she would say she didn't feel like me coming, but that won't happen. I think she likes me to come, it is the highlight of her day to say mean things. Haha! Then I have Monday going for some testing for her. Two days in a roll...can I make it? I think I can, I think I can, It's all up hill from here. Can't wait for Tuesday and it will be over for a few days. I hate when I wish my life away. When I write sometimes, I think I sound just like my mom, negative nancy. I definitely don't mean it like she does.
Tried calling him alot but no unless hes pissed at me! havnt seen him in a wk! I will text my brother on monday and get him and his litter tray cant take him with no litter tray. They say keep him in for a few days so funny moving your cat a few houses away is not actually that easy!
Im ok just on antibiotics which i hate and these ones cut your appetite but am starting to eat more fresh veg and fish! I am forcing myself to eat good! alot less stressed than last wk, but i tell you it takes awhile to realise youve absolutely nothing to do? I mean im struggling to find things to do? just shows you just how much our lives are so taken up by mum i mean i never had time to think NOW i have too much time and looking for things to do!! it takes time as at the back of my mind i think oh must cook mums dinner or must do this then reality hits you! Yeh strange! Everyone here is sick as its so warm during the day and cold at night but WOW great weather for us and this time of year and it will last another wk!
Getting the bus to the beach tomorrow (no car) will go for a long walk the ocean is supposed to be very calming so cant wait! i live 7miles from the beach i should spend more time there!
Hugs to all and welcome Grandma! just reading am a bit lost but ill catch up with all soon!
CM hope youre doing ok missing the cat im sure it takes time to get over a pet everyone i tell is WOW 20yrs!
Jewltone the more i read about your mum the more she sounds like mine NEVER happy!! hang in there theyd be lost without us!
emjo your mum is some cookie!! maybe she just likes moving around!! i think shes so funny OH annoying but you have to laugh at her stubborness i cant wait to get to 102 and be stubborn!! JOKE!
Mother will be moved soon apparently - we will have3 days notice. I have to line up people to take her for doctor's appointments, shop for whatever or take her shopping, have her vitamins delivered to her new place if I can, then will have to set up TV and phone, get what she wants out of storage, get pictures up on her walls, and help arrange furniture, revise her insurance and so on. And there is no guarantee that this is the last move. If the pattern continues she will be unhappy there and wanting to move within 6 months to a year. The last year at her ALF was dreadful, If she could have she would have moved out before 2 years was up. This facility will be a mental health one, so, hopefully, staff will be able to handle her and she can stay there for the duration or until she needs a nursing home.
It sounds like we're all doing ok, despite the challenges--cheers to all of you!
It occurred to me yesterday that part of my difficulty w/my mother's neighbor isn't all her fault--it's my very ingrained knee-jerk response to "fix", "solve", "comfort" whatever is troubling OTHER people. So, it's on me to calm myself down and reassure myself that the neighbor's own problems are NOT my responsibility to solve. In another email yesterday, she provided some info she said she'd get for me a week ago, along with a lot of virtual hand-wringing. I emailed her back today with only a thank you for the info--I didn't acknowledge any of the other stuff. It felt rude and insensitive, but I'm doing the right thing. Gotta clear the b.s.out of our lives as much as possible.
Also, my lovely, loving MIL who lives across the country, suddenly was admitted to the hospital yesterday. Not sure how she's doing, but it's so inspiring how great her attitude is, as well as my FIL and her other children. I've never seen a family with stable, caring people, keeping their heads on straight, being a comfort to each other. It's beautiful.
Linda -sorry about your mum's room mate. Hope she gets a good replacement.
jewel - keep building your own life. It is healthy
Multipass - detaching is part of the answer good for you
sandwich - how are things? There have been a lot of good changes for you and your mother in the last few months. I told the transition coordinator the other day that I thought mother should be medicated whether she agrees or not. I sensed a hesitation the other end of the phone. I said she was suicidal before. She was still talking suicide when I saw her before she was medicated. What does it take??? They did not get 3 crazy phone calls a day for months and see and hear her when she was at her worst. Her quality of life was dreadful Now she is back to her usual borderline self, but a bit calmer..
Are you fine? Sorry to gather you've been under the weather but as Emjo says it wouldn't be surprising. More chicken soup! - wish you better x
I am a grandma too and like jewel and others on this thread, have a mother who is negative. In fact, she has been negative all her and my life. I have been following and contributing to this thread for some time and am going to share my 2c worth with you. Most of us have been grieving the lack of the mother we needed, and didn't have, all our lives. This is not a parallel to your experience.
Your experience is based, as you say, on your husband's change of personality since his heart attack. Their and my experience is based on a life time of emotional, verbal and sometime physical abuse by a parent with a personality disorder which includes narcissism, negativity and manipulation. The experts (psychologists to which many of us have gone due to childhood abuse) say we must protect ourselves. This is what jewel and others here are learning to do. And we are supporting each other as we learn to do that.
You say "I sincerely know how you feel." Dear one, I do not think you do. This is not the same as caring for someone who has been normal and then gets ill. This is continuing to deal with a mentally ill person as they age. The parent we deal with was not happy when they were young, we could never do enough for them nor good enough for them no matter how hard we tried -and we did try. We tried so hard. We put on a good face at school and when out with friends though our hurts may have shown through once in a while. Daily we dreaded what we would meet at home. That we have turned out to be caring people is a miracle. Despite the abuse we suffered, we still care for our abusive parent. It is not easy as many of us suffer from PTSD from childhood experiences, and that PTSD gets triggered by our parent's current behaviours.
You write - "It's hard to see someone you remember as you do your mom becoming bitter with life. Do you think this is how she envisioned her "golden" years? You'd be cranky, too!" As I write above, we are not seeing a person become bitter, we are dealing at close quarters with a person, who has been bitter, demanding and argumentative all their lives - a person who some of us managed to distance from for quite a lot if our adulthood and who we now have agreed to care take, despite the past and current hurts. My mother is 102. She is in excellent physical health, but now has vascular dementia to add to the Borderline Personality Disorder. She has had every reason to have a happy contented life until the last year or so. She has a very decent income which is secure. She traveled well into her 80s. She lived in her own lovely apartment with good help into her 90s. We got her a senior nanny to be with her 24/7 when she was 95, but they quit after 9 months due to the abuse. Yes, she is still abusive even at 102. We then moved her to the ALF of her choosing and she wanted to move again after 6 months. I moved her to another ALF of her choosing - one of the best if not the best in the city. She had a beautiful 2 bedroom apartment, and "home care" for life - people to make her meals as she wished them, to shop for her, and so on. Was she happy? No. All she looked at were the things that she could perceive were wrong - and no matter what, people with this personality can find wrong things and ways they have been wronged. They have a lifetime of experience.
Another point. I am 77 and have my own health issues, and as with everyone else have imperfect children etc., but do not choose to complain and play victim - and I still care for my mother who could outlive me. I have known a number of seniors who lived into their 90s who were delightful people despite their ailments. I aspire to be like them. The professionals that care for mother say she is lucky to have me. I think that is true for the others who post here - their parent is lucky to have them as a caretaker.
Jewel started this thread to get support for herself on her ongoing journey as the caretaker of her negative mother. Many of us are walking a similar road. You know the saying, “Don’t judge someone until you’ve walked a mile in their shoes”. It really applies here. I do not understand what you are going through with your husband, and I don't think you understand what we are going through with our parents. I sincerely hope that your husband gets some treatment for his depression and that he returns to being more the man he was. All the best and do something good for you today.
No i stand my ground and stay away until siblings see shes not right! Of course shes going to be lonely now brother is calling once a day to "check" just not good enough.
anyway doc will hopefully see her this week and he will get SS involved if he sees shes not well.
Its just disgusting mum needs me and her family around her and this should not be happening. Seems like brother is calling the shots now? but you all know he will take on more than he can handle!
I sent him an email outlining all her care meds hygiene etc sent copy to all siblings and told him SS will be in to check shes living in a safe and clean environment?
Cant wait until SS tell him whats what!
Hugs to all
My sincere advise, not that it's easy to take, is to always respond positively. She hates her hair? You respond, "I'm sorry you don't think so but you look beautiful this way!" She hates the food? You respond, "Really, I think it's delish!" She hates the staff? You respond, "Do you think so? I always think they're so nice!"
Let her know you understand this is not how she thought things would be and that you're so sorry that thing aren't always the way we envisioned them but that you feel so much better knowing she's safe and well cared for. Let her know how much you love her and wish that all her expectations had been possible. But don't let her pull you into her negativity.
Change the subject, take her out now and again, bring her treats you know she likes, be positive - and have a good scream in the shower now and then! It's hard to deal with but she won't always be with you and when she's gone you'll truly be able to smile when you say in a most loving way, "She was a pain in the neck sometimes but I miss her."
I called her earlier to tell her of her appointment on Monday for the ultra sound. She seemed fine with it but she is worried about getting her clothes on. Not sure if I have mentioned but my mom has been in her pajamas for over a year now. She refuses to get her clothes on. She attends their church service in her pjs, she sits out on the patio with the ladies in her pjs and any other activity that she participates in--in her pajamas. Ha! She does change her pjs and washes off, but hasn't been in the shower but once since March. I first worried about it, but that is trivial. As long as she cleans up, I don't care. Even the nurse and doctor stated how much better my mom looks. Well, she minds them better than she minds me. Ha! But the back side to this is she always asks me where she can get some new clothes.--So and so brings their mother clothes, on and on. She won't even freaking put them on!!! :-0
I did what I said today--I painted, did laundry, ran errands, paid bills and cleared my mind a bit. Since I called my mom this morning, I will not talk to her until I go on Sunday. Yay me. I am going to complete more on my list tomorrow. When I can complete my list of things that will help put my household back to some normalcy, I am going to celebrate. It may take me a few months, but I am diligently working toward my goals.
I did the above things on my list today without complaining or disputing. :-)
Now, Sunday, I will probably complain, but I won't dispute.--just to give a heads up. Happy Friday night!!
After a full week of nothing from her, this morning I got 2 phone calls and 2 different emails. As usual, she was talking a mile a minute, leaving out details that would have been helpful...just FREAKING OUT. After trying to get my own adrenaline to go down, I try to calm HER down enough to get some facts. Turns out that my mother found her other golf cart key and was going to try to drive it (no license anymore, she can't drive). I'm 99% sure that the electric golf cart isn't plugged in, AND the batteries are dead, so I'm not really worried that anything would happen--plus, I'm at that point now where if something DID happen, I would probably be able to tell myself that I've done everything I could.
Anyway, this neighbor actually ended up being able to take the key away (see? she's actually helpful in many ways). My mother can't possibly have more than 2 keys to the golf cart, and now the neighbor has both of them. So, there is no REASON to panic. Why can't she just email me and INFORM me of what happened, so at least I know. Instead she has an absolute TIZZY FIT, and I spend my time AT WORK no less, having to calm HER down, then THANK her, then process all the b.s. going on in my stressed out head and body.
The other phone call was about my mother misplacing her prescriptions. I reassured her that I had shipped new refills last week, and yesterday. The emails were about how she believes the gardeners still haven't come, after 4 weeks. I was down there myself on Tuesday, and frankly, things look fine. I had asked her last week when she brought it up if she'd be able to get me a phone number or two of other gardners -- but she never responded with any info. When I was there Tuesday, I drove around and took down a few numbers of gardeners I saw, and will follow up this week.
Anyway, I guess the good part of this is that it gave me more info to put into my letter to her neurologist, whom she'll see next week.
Linda: When I lived at home my mom had me to the doctor many times for being so thin and sick all the time. Any time something went around, I caught it...I was always sick to my stomach, headaches, etc. As I got older, I got better and after I got married. Viola I was better, I gained weight, I didn't sick anymore...I didn't really know the difference honestly until a few years ago it hit me. I was so anxious living at home with her that it physically made me ill. I wake many times still with that ill feeling, but as the day goes on I am able to shake it. But yes, looking back, her behaviors made me ill. Emjo: I know what you mean about not having the ability to have that compassion or empathy for others. They are missing the link and I do believe that is real. My mom was a middle child we sometimes "blame" that, but mental illness carries with it so much, who knows what the real culprit is. Most of it also comes from most of us, including their parents, have always enabled these behaviors.
The nurse called back about the place that came up on my mom's neck. They are wanting an ultrasound of it and labs drawn. I am dreading that, just getting her ready and encouraging her to get out to go will take an army. They will let me know today when that appointment is. I know most people look forward to Friday and the weekend, but I have never hated the weekends to come so bad until now. Philippians tells us to do things without complaining and disputing, but I will tell you, that is so hard to practice especially when the one you are doing these things for complains and disputes. I will pray for less complaining even if it is on my part. :-)
Multi: Your mom's behaviors are also out of your hands. If she washes windows, then let her wash windows. Tell her you bet they look good... HA! The laugh is on her. I wish I could take my own advice, even though I do take all of yours at different times.
I have a life to live, laundry to do, painting that needs to be done and the list goes on. I MUST put her misery--that I am NOT responsible for, out of mind and get busy with my own life. She had her chance at life and now I am wasting my chance thinking how to do hers better. How wrong is that? It is wrong I will tell you! Boy, I think I just had an epiphany. I just saw in front of me what I just said out loud. I am losing what I could be doing because I am trying to redo her life for her. Not today I am not!!! Today I will do what I want and what I need to do for my self and my household.---tomorrow may be a different story I tell, but TODAY is a good day to have a good day! Hope you join me!!!
"Oh, I'm just sitting here thinking of all the things I have to do. Yesterday really wore me out sanding the window frames and I'm in so much pain. You see, it's an ordeal - I have to take all my equipment out and then I had to wash each window afterwards - let's see how many are there - 16 sections, yes 16 - it's a BIG deal." (Oh, I'm sorry, by now I only hear the adult-speak that was displayed in all the Charlie Brown TV specials...)
Yikes! Ok, Miss Sunshine and kitten farts! She wanted me to know just how bad it was because we didn't run down there to paint a window frame. The sky is falling! I'm more concerned about her health, so I suggested she talk to her doctor about better pain management. But, no, that's just crazy talk according to her.
She would jump up and down if I told her I would give up my husband and home to come live with her. (Maybe in secret, but she'd do it.) I've really detached myself from her martyrdom. I hope she doesn't hurt herself but she won't listen to me. Frustrating. Have a great day all!