Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
You've detached in many ways, and that's good. Keep it up! And may I suggest investing in a good punching bag and some gloves? It's a fantastic stress release! ;) hugs....
But probably not served up deliberately as part of a class-hatred conspiracy, as I suspect my MIL would insist.
Jewel at the other extreme my mother is the prime candidate for getting genuinely forgotten about. She'll sit there for hours until the smell of burning martyr becomes so overpowering at the nurses' station that she gets remembered again. "Speak! Use words!" I urge her. "You cannot expect people to be psychic." Nope. She'd rather weep silent tears…
Just agree, it's quicker. Or offer to 'write to The Times'..?
When I hear those words from her it is so hard to comprehend: when she says, "I guess I have to do what you say"--like I am making her do things. She didn't do what I asked before (that's why she is where she is) why would I expect her to do it now. She just knows that she can't move without me. I am NOT moving her, I am NOT, sam I am. I don't care if there isn't anything left when this is all over, I am not doing it. As each day passes and more of these conversations come up, I am thinking how I can break free from all this. I feel like I am planning a prison break. I can see the sunshine and the green pastures, but they look so far away.
It is not your responsibility, but, I know, hard to shed those feelings of guilt as we have been blamed for the time of day since childhood. You are doing well, as are others here. Just keep detaching, sharing here, and setting boundaries. Reading about the disorder helps too. It is a disorder. They are wired differently. People the age of our parents were not diagnosed, never mind treated. There was no awareness, and not much even now. Even when there is treatment it is not often successful, unfortunately. Have a good day, regardless.
She always ends the conversation by putting the blame back on me! It is my fault that she is miserable, it is my fault that she didn't get breakfast on time, it is my fault she cannot stay alone... (I don't really believe all that, but SHE does) That hurts..but more than anything it makes me angry!! I would love to give her away as though she were an old sweater that I cannot wear anymore!!
Okay, had to get it off my chest so I can go on with my day! Thanks once again for listening and carry the burden with me...love to all
Oh so done with this BS! he rang mum while i was there and brother answered he spoke to mum and she was soooooo chirpy! no she cant come in and see him this wk she has visitors????? has she? yes maybe next wk? doc got a bit agitated and said no you have to come in as i cant give your pills until ive seen you? so shes seeing him next tuesday anyone want to bet that she will turn up? oh will bring brother if she does and BOY are my ears going to be burning that day BUT i got in and told him all i mean OMG its like classic text book dementia!
Anywhoo im done im not happy or relieved or anything im just so angry it came to this it will be hard to switch off from this but it will take time.
I do not want to see my mum for a long time im too mad as for siblings i think we are most definetly done! so whats next another hospital visit for mum so theres nothing i can do anymore.
Mmmmm what to do am twiddling me thumbs now!! i have started reading again which is good as havnt read a book in years! i am trying to eat my veg ive been walking so baby steps! Not going to be easy walking past my mums house everyday but for now its better than nowhere!
Will move cat and stuff this wkend that will be hard but get in and get it done!
Brother texted me to say there was a letter in the front porch for me? treated like im dirt after five years of mums care? but the sh*t hasnt even begun yet when mum knows im off for good she will get so mad and is bound to snap at brother she cannot fool them all for long!
anyway mum is now on her own so she is SS and brothers care now doc wants to see her before he decides on SS? EH DOC ive already contacted them! but they will not move until Doc says so?
I am sick drained and just wish i could hit a switch and it would all go away but its going to take time to adjust to my new life and my future. I tell you its sureal like ok now what do i do! well first i have to start eating lost 7pounds this week once i stop shaking and let go of so much anger ill be fine!
I mean who knows i may get a job as a carer for some nice little old lady who dosnt have dementia! Eh i have experience!! LOL
Hugs to all ill still be here not as much but i will now concentrate on helping you guys!! i could be the agony aunt of carers!
Hey my journeys far from over here but at least i have time to retreat and find out who the hell am i anyway! yes i think i need to regroup and get stronger so when mum needs me ill be mentally able to face her again!
My guts are telling me something will happen soon in the next few wks so we will see! be nice to have money and totally get away far away but that wont be possible. sad isnt it i wanted to be mums daughter again and not her punching bag hopefully this all works out and i can visit her and take her out but never be her carer again i could never go back to that unless she was just further gone and placid and also drugged up!
Doc wanted to give me sanex but i declined im very shaky but ill calm down once i get used to this change of life!
I will now take up my spanish lessons and go to the beach more then i have to look for work as Social welfare are on my back yeh get a job or care for mum they dont care what youve been through i just had a look today and there are no jobs here its just scary! but you have to try or they will cut your money so fast! gosh i signed off today as her carer and like that im a jobseeker now.they dont mess around! no respite money!! anyway im no better or no worse off finacially so thats ok i just feel so bad to have to ask a friend to help me even though shes fine about it its not easy to depend on someone else!
Things will get better so i just have to be strong now!
Hugs to all ill catch up with you all soon! jeweltone have you written that book yet??
1) The endless demand for our GRATITUDE. I know (now) what healthy and heartfelt gratitude is -- and I'm grateful for that ;), hee hee. Example from my mother: I work part time at the place where my mother used to work. She's been retired for at least 25 years now, but as one of her perks, she is supplied with a free "park anywhere you want" permit -- which she hasn't had any need for the entire time. Normally, I would have to pay quite a bit for my own permit, or park on the street, which is very difficult. She offered me her parking permit, which is a huge convenience for me. It's only been within the last year that she seems to have forgotten about having given it to me, which is a blessing, because she'd bring it up all the time -- "how is my parking permit working?" "are you still using my parking permit?" And I'd have to SHOWER her with the most effusive thanks every time in order to please her. "It's working great, Mom! Thank you SO MUCH!!" "Yes, I'm still using it! And I'm sure the others are so jealous of me, since I can park so easily! It's like GOLD!" Sheesh.... No wonder I'd be so drained after visiting or talking to her.
Next story, which would always really upset me. My mother has always seemed to be a dog lover. We've always had dogs, and I never questioned that she seemed nuts about them (I am too, by the way). However, her only involvement with them was to pet them, talk to them, and give them treats. My father always did all the 'grunt' work. When I was an adult, married, etc., they adopted a retired grehound (wonderful, sweet dog). This dog favored my dad (I called her a 'flirt' because she really loved men!). That did NOT please my mother. But it was my dad who really interacted with her, so what did she expect? Anyway, she'd make all sorts of wistful, sigh-filled comments over the years, about how this dog didn't like her as much as my dad. Time goes by, and the day comes to put her down. My mother LOVES to tell this story -- how my father was in the room with the dog during her final moments. My mother, on the other hand, was in the waiting room, crying, and being comforted by the staff. My poor mother, such a sad sad day for her...
Anyone who's gone through this with their own pet, I'm sure can relate to the anger I feel, every time she'd bring up this story.
I so agree we need to qualify for something. Vacation sounds great! I think when it gets like this, we should get permission to walk away without guilt or shame.
CountryMouse: I am SO SO sorry about you needing to have to make decisions about the cat. That is hard enough in itself. The emotions with your mom and now this. Today is a new day, then tomorrow. As time goes on the sadness will still be there, but it will lessen each day, each month. To some of us, animals are very much a part of our family and we miss them terribly when they are gone.
Cheers to another day! Let us rejoice and be glad in it....
your mother didn't want you to pay for the scarf but you did
she didn't want you to even though you did
she did want you to but, according to her, you didn't
she didn't want to tell you about it but somehow it just popped out - she did want you to pay for the scarf
so you paid for the scarf…
but she didn't want you to.
So, sorry, who is the one who's dazed and confused? Because, hey, you're just trying to follow her train of thought.
Moral: make your own decisions and don't worry about it!
I've just had my own object lesson in carrying my mother's emotional can. Her pushing 20 year old cat, who actually I've grown very fond of, has had chronic respiratory problems for more than 2 years. Back and forth, back and forth, surgery, antibiotics, anti-inflammatories, you name it. But the little thing is a trouper, seems content, just gets on with life, no trouble, even makes friends with the dog. Really endearing. Anyway. This morning, she is bubbling bloody mucus from both nostrils. And as I swab her little nose - no complaints, she sits patiently and lets me get on with it - I take a critical look at the rest of her. And I think: if I went to someone else's house, and I saw a cat this underweight, flanks heaving with every breath, obvious spinal problems, not able to purr or swallow more than the gravy off her food…
So I take mother to task - we've had numerous discussions over the years about 'when the time might come' - and after some confabulation (apparently it's one of the children's cat. She has no idea whose. She can't remember where the cat came from, but definitely one of the girls said Gretel was her cat…) and some tears, and the mulish face that says "you are being horrible to me but I refuse to comment", I pick up the cat, tuck her under my arm and go out to call the vet.
So I'm on the phone, describing today's symptoms, and realise that I'm rubbing the cat's ears and she's rubbing her cheek (now clean, thank God) on my shoulder - one perfectly happy, contented little cat whose euthanasia I'm discussing in urgent terms with the vet's office. I have a qualm. But next thing I know the receptionist is saying that the vet is already on her way to our house. It's almost as if she'd been expecting us to ring, or something.
The vet is brilliant with her patient - that is, with mother. She explains. She asks permission. She reassures. Mother agrees that ***I*** think it is the right thing to do (I've said nothing!) and gives her consent. We proceed from mother's room ceremonially bearing the cat on a warm, clean bath sheet. The cat co-operates fully. She has had extensive experience of vets, all of it positive. I feel a total traitor. The deed is done. I weep buckets, as does the vet's assistant - the vet herself is being professional but accepts a bolstering cup of tea. Mother? Tchah. Mother takes this as an injury done to herself. Not a question of the cat's suffering and lines being drawn. A question of whether mother will be upset to lose her cat.
She will be, of course, once she does grasp that the cat is dead and therefore will not be pinching salmon off the table ever again (actually she never did - this was just mother's conviction that she would if she ever got the chance). We both will miss having a cat around the place - first time in 22 years for me, first time in heaven knows how long for mother. It's going to be feel very odd.
I don't know, I just feel really resentful that I got left holding the baby. I didn't want to kill the cat any more than she did. I'm sure the decision was right but I still feel terrible. Not fair.
The big trap is that the Borderline is constantly looking outside herself for a fix. In contrast I think of a Buddha saying I heard somewhere: "The moment one ventures outside himself searching for peace, he is already going in the wrong direction." What a great lesson for us! Did we need our crazy family to demonstrate that truth in the negative? Who knows? Maybe God knows.
Sandwich, I love the idea of qualifying for therapy and vacation. I already gave myself permission for the therapist and I am so glad I did. Next week I am working a week in Maine and it will certainly feel like a vacation.
With borderlines (new name is emotionally unstable disorder), it's about control and manipulation. "I'll smother you to death so you won't leave me because I have no self-image or control over my emotions" and "You are all good or all evil to me".
Either one is a ticket to crazy-town for caregivers. Combine them and add a dash of other common companion problems (co-morbidities), and as a caregiver, you will find yourself running ragged for no acknowledgement, no appreciation, constant manipulation, emotional blackmail, stress, anxiety, and eventually PTSD of your own from dealing with this "package" on two legs.
Having a parent or care-receiver like this ought to qualify us for free lifetime therapy and annual vacation to some place with no internet access and 24-hour open bar.
One survival skill that is hard to do, but a real sanity saver is detachment with love. Google it. It's a technique for people who have any kind of destructive/toxic person in their lives. I can say it works. Between this and learning some anxiety control mind exercises, I am here today to vouch for it.
If it hadn't been for this site and the wonderful people on it, I probably would have a total breakdown by now with my lovely Cluster B mother. This is where I learned about detaching with love, boundaries, and got connected to some pretty life-changing support to deal with all this.
The hard part was admitting what was really going on, embracing the reality that mom's dementia was too far along for therapy to work for her, and finally getting her to care givers who could see through her monkey-shines and manipulation. And who were willing to be honest with me about her!
My mom bought me a comforter once (I was looking for a certain color and she found it when I wasn't with her) and I tried to pay her when she first brought it. She told me no because I may choose to take it back and I could just wait. Well, first of all, she bought it and I would dare take it back or I would have heard how she couldn't pick anything out for me, blah, blah, blah. Later, I told her I was keeping it and tried to pay her. She refused to take the money once again. About 6 months to a year later, she brought up the comforter and how I never paid her for it...uuugghh!! When I explained that I had tried, her remark was "not hard enough" with a big laugh!! Really?? I sent her a check for the comforter and she never cashed it. Shew. She just wanted to complain.
The saga will continue, but at least we have the encouragement and support where we need it. Go Super Heros!!!
I mean, that isn't a priority to me. My husband and I are still getting back on our feet. We have tried on three occasions to make small payments back to her and you know how she responded? With a brushoff of "oh, just don't, you can wait until you have more." Ok, that's rather insulting, especially when I find out that she told my brother that we have not made any effort to give her any money back. The paint on our home is peeling, too. However, like her, we live 200+ feet off the road and it's certainly not a priority. Not surprising, coming from the same women who complains that the leaves are falling off another neighbor's tree already and blowing into her yard, because certainly none of HER trees are causing any problems.
Oh, and this really bakes my cookies: when my parents divorced 25 years ago, my mom had to send my dad yearly insurance information, since he has to send her money to maintain health insurance. Well, because she was so devastated and didn't want my dad's new wife "to see her handwriting" because she's a private person, I agreed to pass the info along to him. What I did NOT agree to, though, was to follow up on it and she constantly complains about the timing of his payments, and asks me if I've talked to him. So, I just told her, "I agreed to pass the info along to him, but that's it. If you want to follow up with him I suggest you send him a letter." She was not pleased about that at all and said I was being a "smart-aleck".
If nothing else you may find this entertaining - once again a parent putting a child between them. Sorry, don't mean to hog this post today but I still am fascinated by my mom being so prudish and particular and proud of being naïve about the world. She would have made a great debutante. She was most likely this way when I was young, but I didn't notice it as much because I was living under her wing. Smart lady, and has given me some brilliant advice in my lifetime, but she would never follow it herself.
And, like you suggested, I think my husband and I are moving toward "being lousy caregivers", because she is so demanding and particular that there's no way we can do all the little tasks that she needs us to do. So, the more I suggest to her that she hire the work done, or ask a close by friend, the more peeved she is becoming. I know soon she will get really mad and say, "just don't bother, I'll be gone before long, anyway, no one cares, your dad did this, after all I've done for you..." I think I got all the typical responses in. Then, we won't talk for months. I'm telling you, she will NEVER be the one to call. I'd have to make a move.
Looloo - so true, we take pride in what we do and how we care for others. And some just take advantage of it. I hear, "But I'd do it for you." all the time from her!
Jeweltone - your friend sounds lovely and you are sweet to clean his room. He has a fantastic attitude - sorry it can't rub off on your mom. We just have to remember that some people will stay in their misery forever. My mom is starting to use the word, "depressed" more often now, but refuses to do anything about it. WE are supposed to cure that, don't you know. We don't visit enough, we're not doing things right and we don't do them soon enough, we talk to my dad. So-and-so's children are ALWAYS visiting their mother. If we changed, she wouldn't be depressed! (Sarcasm)
tonight my husband and I went to visit a life long friend of ours that got a blood clot in his leg and an infection in his spine 6 weeks ago and almost didn't make it. He is in a rehabilitation center about 30 min from home and is excited he will be coming to the center in our home town this week. He always loves when we visit and tells us he is happy to see us. Tonight his room was a mess. He said housekeeping hadn't been there today. I felt so sorry for him with it looking like that. I put on gloves and cleaned up his room. He kept telling me thank you and I didn't have to do it.--(which he really meant). But I wanted to do that for him, just as I would do for my mom. She just expects it and doesn't appreciate it. Before we left he still was thanking us and telling us to come by when he gets moved back closer to home. He is wanting pizza and we have already decided to take him a pizza party when he comes home. I love doing for people, but when it comes to my mom, I just resent it. I don't really need anyone to tell me thank you, I don't even care about that. It was a nice visit and I am glad we got to take the time to go. He has been on his back for 6weeks and not walked and still so happy to be here. My mom can walk and do what she wants and she is miserable. Go figure.
Before we understood what was wrong with my mom, she would call the ambulance and go to the ER. She would have never done that prior to being sick. Gosh, they never cease to amaze me.
We're you relieved, glad, etc. that your mom found someone else to take her to the ER? Was it a true emergency? My mother doesn't have that behavior of too many hospital visits, but I'd get pretty fed up pretty fast, if it were me.
Actually, you don't have to change: she already finds everything you do wrong, right? ha. Got to find the humor and insanity in this.
My mom didn't even call me the other day: she asked someone else to take her to the emergency room. Then a few days later she acted like nothing happened.
Tomorrow, I'm making the trek down to my mother's house. Will 'sneak' in while her home care person is taking her to her dentist appt. My mission (should I choose to accept it, lol) is to: take her supply of checks, take the safe deposit keys, and return her pet carrier to the garage -- we accidentally drove it home with us when we took her car away in July. I'll also pick up a prescription for her, since I just recently took that responsibility over, and will visit her safe deposit box and either copy the documents and return the copies to the box, or just take the documents home with me to the box I set up near me last Friday. And, fingers crossed, she will be none the wiser!
Also, while I'm in her community, I'll need to speak to a few of the gardeners, and line up a new one for her. I've never thought much of her gardeners--for years now, they've been breaking her outdoor lights regularly and never replacing them, they NEVER return my calls, and won't do ANYTHING that obviously needs taking care of, like trimming bushes around the window, pulling out/replacing dead plants, covering up wires with the gravel landscaping, and so on. I've been taking care of that stuff, which is an enormous pain the a-- since I live so far away. All they seem to do is cut grass, nothing more. According to her neighbor, they haven't been by in about 3 weeks, and I've noticed that their billing has been wonky the past few months.
And, last, the Jewish High Holy days start this week, and after devoting all my brain power for the past several days as to how to HANDLE this (what to do? how much should I involve myself? fret, worry, fret some more...), I decided I'll call her temple today and let them know her situation. I'm sure someone will be happy to take her IF she wants to go. She's not spiritual or terribly religious, and not at all involved socially with the temple community, but still, if she wants what she wants (to go to services), and it looks like she might not get it, then I don't want a lot of fallout. And I do want to demonstrate that I'm taking "fair and reasonable action", as they say in legal circles, haha, to provide whatever possible. Anyway, I'll ask the person at temple to please keep in contact with me, since I won't be in contact with my mother. I'll need to know what the arrangements are, since if she's going, I'll need to cancel the home care person.
Have a great week everyone! It's almost officially Autumn here, and I'm SO SO happy for the change of season!
I just had a call from mums diabetic nurse she called to house and she couldnt get an answer i told her to call my brother from now on so it seems hes not taking care of her like he should i would say he dosnt even know she has a nurse coming in every wk as mum wont tell him i just spent the morning ringing her nurses and social services to let them know the situation so im done now can sit back and take my life back until the next emergency happens.
yes LOOLOO no contact is a good idea sometimes and gives you some time to think and clear your head.
Gift horses, yes, I so do that every week. I wish they could see how beautiful the day is, or how lucky they are to just have another day and how lucky they are to have a child that will take care of their needs. My mom just expects it. she thinks this is my duty. All I really owe her is respect. My children do not owe me anything for giving them life. That was my choice not theirs. It was me that decided I wanted the gift of them, not that they would have me as a gift. My mother used to say, well, I AM your mother. Okay, mother, and what is your point exactly. I look at parenthood as a time for guidance, love, caring, compassion and so much more than just "I am your mother". A mother has a job too and it's not to boss around your children and expect things from them that only involve you as a mother.
Okay, my soapbox is full...I could go on and on about her narcissistic ways but I will stop there. Even thought they don't enjoy the beauty in the sunshine or the peace of the day, let's make sure we take time to do so.
The thing is, that would be such a small thing - actually something I started doing on the day my dad died, 15 years ago - but, of course, in her case it's made large by the wearying effort of listening to her. And futile by the fact that it probably wouldn't improve her level of general satisfaction. Which in itself is really sad.
I thought of you yesterday morning. It was THE most glorious day. Softest haze, golden sunshine, blue sky, still. Lovely. So I trotted into mother's bed room with a bit more joie de vivre than normal, swept back the curtains and with a kind of fanfare said the good morning equivalent of "Voilà!" Morning, mother, I said, look - a beautiful day! She stretches, yawns, creaks into action, peers at the window and says suspiciously "well it ***looks*** nice…"
A hidden agenda to a sunny morning. Lordy, mother. Any more gift horses I should be looking in the mouth?
Kaz: Glad you feel safe and I hate winter...I dread for winter to start here. It will all work out in your favor--how ever that may be.
Good night all.
I am ok at a friends but no money until tuesday and she cant find the battery for her computer so today im just at another friends using his so if im not on here youll know im just waiting to get battery.
Brother tore the battery from my computer and is refusing to pay for it? sister sent a nasty email saying she wants ME away from mum as im UNSTABLE????? she said we have no written proof that mum has dementia and im making mum out to be crazier than she is? again mums winning shes now back to siblings saying im crazy? this cant go on im done now and my caring for mum is over let them take over selfish lot.
My supportive brother is just horrified at whats happening said get out and save yourself let them see for themselves!
Im going to TRY and get back to me?? dont know who i am anymore look like a bag lady havnt stopped crying cant sleep with so much ANGER? but ill get better its all about me now and letting them take over as im obviously not doing a great job looking after mum??
MUM hates SIL but will put up with her for sons sake how can mum hide her hatred for this woman if she moves in??
Well i just switch off and stay away! its good im just down the road as im seeing just how much mum is on her own. Nurse says IF your phone rings and your needed for something ignore it!
I wish i was farther away but im so lucky to have a friend put me up!
Hugs to all and watch this space have taken photos of bruises to show siblings and to keep it on record!
23 degrees here and i have to wear a jacket as cant wear a tshirt as bruises so bad?
Just say a quick prayer for me to get through this visit with some sanity and then I am off to the movies with friends to relax later.