Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Family secrets - I got so tired of putting up a front and keeping the family secret that all was well and we were a happy family. This also relates to communicating and not getting the response you hoped for. I have shared with several cousins, and it seems they just do not want to hear it. I got one snappy reply, one very delayed response which side stepped the issues but let me know they did not want to deal with it, and one non response, though this cousin had said more than once, we know you are going through a hard time with your mother. So batting zero there – very little family support. It is complicated by the sister who puts up a wonderful front when she wants to visit someone, and then, according to my nephew, goes home and bad mouths them all. My nephew is the only one who has been supportive – he knows his mother, and therefore understands his grandmother. I am happy for that support. I did once have some support from a relative in Norway who knows mother well, and also from a cousin in England when I laid things out after other sicced him on me. I think they are both dead now. Her siblings were supportive as they knew her, but they are all dead now.
I once found an excellent web page which had biblical bases for dealing with abusive parent. We are not required to put up with abuse. If fact we should protect ourselves from it.
Young adult days and phone calls and messages, and fears that I was doing heaven knows what. So embarrassing to come back to one’s room and find a bunch of messages to “Call your mother” pasted on the wall going up the stairs and then have people ask what the emergency was. “Nothing”. Mother always instinctively seemed to like the boyfriends who turned not to be good for me and disliked the ones who were good for me.
We have to learn to set boundaries, to not second guess or over think things (hard one for me). To readjust our self-images – too fat, not smart enough, too smart, not well dressed, can’t get along with people (because I would not put up with her sh*t) and so on. We need to unlearn the lies.
I have felt alone most of my life and that I had to deal with things by myself – which I did as a child. There was no help. I find it hard to accept help at times – but more feel I have to give it. Getting better at that.
Tirades - mother ranted on and one and on and on and seemed to gather energy from it. The rest of us would be wrung out and she was on a high. It was such cr*p.
Being two people - I always said that my mother and my sister did not know me. They constructed me to be who they needed me to be - the scapegoat, the black sheep, the fall guy. They even decided what kind of clothing and jewellery I could and could not wear, and what type of man I would end up with. I would figuratively shake my head in wonderment. They really do not know me -and I guess, don't want to. Their loss. I would say that my mother has a better idea of who I am than my sister has. I know they have talked about me behind my back ad nauseam and bad mouthed me. Whatever.
Yesterday was my birthday and, for the first time, I had no communication from my sis or my mother. It was awesome and liberating. YAY!!!!!! I am looking forward to a good year and one with more mental and emotional space. Oh, how I long for that. They “left me alone”!!! That they did on my birthday was the best gift. Loo, if you look at sites for children of parents with personality disorders and/or narcissism I think you will find it. We find ways of withdrawing from the abuse even as children.
I am slowly decreasing contact with mother. The crazy phone calls last year were awful and I cannot have that again. She does not have a private phone in hospital but will when she is moved to her new facility. If she is still on the meds, she will not call as often or at least not be as crazy. Once a week is enough. The staff can let me know if there is a problem.
Pats on the back for everyone for dealing with these nightmares and surviving intact.. The support here is great. Have a good day and do something good for you!
A little girl, a grown woman and mom sucked in by mom's negativity--check
Taking her abuse most of my life--check
Doing what she wanted instead of what I wanted all my young and adult life--check.
Moved mom three times--check
watched her decline- check
moved in with her to hopefully make things better--check
left my family to do this--check
watched her get better--check
tried to please her--check and not check because nothing I do will do that
Finally move her in to a facility for help and get somewhat of a break--check
visit her and call her each day--check
visit her less because of the negativity--check
realizing I cannot fix it--check
blogging about my experiences--check
trying to find peace through reading other's experiences--check
Next Steps:
Break free from most of the guilt
Do not let her bring me down because I cannot fix it
Realize not matter what I do, It will not matter
Visit less and less
Call on her less and less
Find a way to get my happiness back and my life and home back in order
Break the guilt, pit of dread
These are just a few things I have realized and checked off (much more but not enough space to write) and a few things I want to check off in the near future.
My mom did the same thing to me when I was in college, called me and always asked stupid quiestions about where I had been. She still ask me questions about where I go, what I do, and why don't I come earlier to visit. Never satisfied=that woman.
Emjo: hope you feel better soon.
Even now, at 77 she can still do it. Rage and rage and rage and rage. I finally got to the point in high school where I was just sick of it. Fed up. It didn't scare me. It bored me. I started mouthing back things l shut it down, like "how long is this going to go on? I have somewhere to be." Or "can you finish this some other time. I'm really bored listening to this. You've been at it for hours." I do not know where I found that kind of bravery. I must have been thinking what the heck do I have to lose? Oh gosh, what if she throws me out - whatever shall I do? A happy dance for one.
She would call me in college and stalk me by phone. In my first dorm, we only had one pay phone on the hall. Mom would call and call and call, interrogating who happened to answer on where I was, what I was doing, etc. Obnoxious! I transferred to a school farther away the 2nd year, and mom would call non-stop. She would fill up the answering machine and then start calling the dorm office. Then she would call her brother & sisters and my dad's brothers to hash it all out more. I must be out prostituting and selling drugs since I am not in the room. There couldn't possibly be any other choices.
I know now that was her OCD that set her anxiety off, which fueled her paranoia. When I did talk to her, I'd get the third degree and just emotionally eviscerated. Over & over & over. It was difficult for me and probably scary to my hall mates to see me having to listen to this shrieking voice on the other end. At some point I found my brave pants again.
So I started giving smart answers back - "yes mom. I am currently shagging the socks off the biggest darkest sailor I can find. And we're doing drugs off each others' bodies while listening to devil music. I may be carrying his child." She would get so worked up that I didn't take her obsession seriously. I would ask her why she was on the phone with me instead of finding some friends of her own and doing something interesting for once. I had a great time in college, but if my life had been half as wild as her imagination, I would have had a much better time, but I don't know when I would have had time for classes and assignments.
If I go to to a beach or public place, I always head for the far end where there are few people. I can entertain a large crowd for my work but I prefer to be alone. I sure can understand where all these preferences come from! If you lived one day of our crazy family, you'd be that way too. Maybe you are?
Where did you find the info?
I will throw another one in here. For years I have had this phrase in my head "LEAVE ME ALONE". Finally I looked it up on the internet several years ago and, lo and behold, it relates to children of people with personality disorders. I didn't find it so easily now, but it came out then when I needed it. I have a very deep need to be left alone, from the continual interference of my narcissistic/BPD mother. Anyone identify?
Today my mom called once again with a list of items she wants from her mom's...those items are gone, of course. She tried to pull the woe is me, everything I want is gone, attitude. I told her straight out that she had first dibs and was asked every week if there was anything she wanted There is was, the awkward silence. That was my cue to say, I need to go back to work. I am going to take this time to say I don't really care that it is gone, she had her chance. With that said, I do realize her mind was not right to be able to make decisions about what she wanted. Now she is thinking about things in the house and wants them. For my own sake and the guilt I hold on to, I cannot worry about what is done.
My thoughts are with each of you tonight as you think of how tomorrow will go. Let's try to remember: Nothing we do will change the way it is.
Found out mom has (had) schizophrenia with paranoia. That explains even more than bi-polar. They started Risperidone with her last night. She believes everyone is out to kill her. Thus the flip out when she saw EMTs coming to get the lady next door to her at the NH. She thought she was next and they were going to cart her off to kill her. She has verbalized this kind of thinking to me many times over the years. This is not new thinking. The dementia just keeps her from hiding her reaction to the thoughts now.
Probably 5+ years ago I made an anonymous call to the county APS to report a vulnerable adult. They were worthless, but she wouldn't let them in the door because they were going to cart her off and kill her. It took me on the phone, my uncle next door to her, and the Sheriff to get her to open that door and let the SW inside. I told her, you can open that door or they will open the door. But the door will be opened. You aren't helping yourself look very sane right now by hiding like a child. They know you're in there.
I think MORE people ought to be trained on what schizophrenia looks like and how to respond to it. Mom was never a drooling idiot. She wasn't picking at her poop in a corner of a room. It's not always like it looks on TV. She could get dressed and have a conversation. The dementia made her stop keeping secrets like the voices she hears and hallucinations she sees.
Her deepest fear was anybody finding out and taking her away for lobotomy and shock treatment. Because that is what they used to do in the past. She never could understand we have progressed past that and a good doctor plus the right meds can set you on a terrific path. Sad.
I'm questionning my own sense of what I thought were lifelong ties. Even if we're hardly in touch anymore, I've known this person since she was born, and her parents and my parents were close enough that they were listed as guardians for each other, if something were to happen to us kids. I know people have falling outs, and drift, and I have no problem with that. I just am feeling a little like...if this person sends baby announcements the old-fashioned way, in the mail, to my mother and to me, then we are officially still in touch right? So, why not even a courtesy "i'm so sorry to hear..."? Sigh.... I guess I needed/hoped for/expected more, which is my mistake.
This is one of those times where I feel more alone for having reached out, then I would have felt if I'd just kept to myself. I feel that way a lot, actually. Kind of burned out on human interaction. Sorry for gloomy gus attitude today :(
Ready for Monday. An email appears from Mom. What? It reads like, like, an apology? I think that's what's underneath it and the words are almost there!
Ladies, get on board this boundary thing! It's a good thing. If the parent is not totally 100% sanity gone, there may be a few moments left of a thread of communication. Not much, but at 93, that's pretty good for her. Either way is ok with moi!
me: try to calm down from anger at myself for getting the phone. Got peaceful after 20 minutes. An hour later, I call her back.
"Well, well, are you UP now?" I didn't say anything.
"Are you there?"
"That sounded sarcastistic to me. I am fine."
"I am not sarcastic," she laughs with her demonic phoney laugh. "That's YOUR interpretation. But OH I am USED to it."
"Yeah, I am too." I said. "Now what's your problem?"
she can't explain it except for interrupting me when I ask her things to find out more, and then finally she shouts at me, "OH your're getting me all upset!!"
"Why don't you call Comcast and ask them about your bill. I never had them or cable before and they know what you need to do. That's their job to explain it to you."
"OH, you never listen to me. Why don't you listen to me!"
She goes through exactly the same illogical stuff with double nasty sarcasm.
I repeat what I said with more calmness and firmness telling her to call them.
"I have to go to the bank. Why don't you call me later when YOU'RE in good mood!"
I laughed (genuinely). "I WAS in a great mood!"
Geezum, Mary, and ghosts of Rage! or age or something!
Yes. Now I will put on my music. Turn it up and shower her crap off of my holy aura!
Comments welcome! Thanks for giving me a place to vent. I feel ever so much better.
My hopes for today: A good, quick visit with no complaining and no negativity. Just a calm enjoyable visit.
I have told myself: She cannot hurt me anymore, I am in control of the situation and can leave at any time during the visit and I will not let her ruin the rest of my day.
LooLoo: My mom has been ill for 3 years and now looking back at least the past 5 or more years. I am just now starting to tell people. I haven't told anyone that she used to work with or anyone that she used to go to school with. I always just say she is doing ok when they ask about her. I avoid any questions when I can. I do it for the same reason that my mom would not want anyone to know because she always displayed this perfect life and pristine self and would be embarrassed. I just do it out of respect for her since she was always so private before and still is. When my mom doesn't know the difference, then I will share more with others, but for now, I only share here. I do totally understand where you are coming from. Slowly though it is good to start telling people, because that has helped with my stress too--not holding it all in.
I was reared in a super duper strict Southern Baptist environment. Home wasn't as strict as school and church, but mom & dad were no slouches. It was the no card playing, no drinking, no movies, no pants for girls, no divorce, no smiles, no fun, no enjoying anything about life at all people. Anything that seemed remotely enjoyable probably led to dancing.
It was brainwashing from all corners, 7 days a week. Obey, obey, obey, obey or go to h3ll and be roasted like a S'more. This totally sounded reasonable to everyone. That God would send children to hades for sassing and having independent thoughts. We were inculcated at every turn to not think for ourselves. Don't ask questions. Don't speak up. Do as you're told and don't think. Anybody who was being abused must have done *something* to deserve it. These were the same people who eventually went on to do the preaching that if you're not rich, God doesn't love you and you deserve to be poor. Sadists, every single one of them.
This triple whammy from Mom, the private school, and the church that ran it really did a number on me. I had zero self-esteem until I went away to college and got completely away from that thinking. Those people systematically dominated the girls that went through that place. Guys were off the hook. Girls were from original sin, evil, dirty, and not worth anything. It was really shocking, but this place was huge, powerful, and nobody was going to question them back then.
It has taken me decades, therapy, and a lot of personal work to get over that upbringing. If it weren't for my dad and several key people at a different church who were genuinely loving, truly kind, and who never demonized me for questions, thoughts, and opinions....I'd probably have done myself in before now. They were like a small oasis in a hurricane. They never said I was evil.
When I moved to a different state with no S.Baptists, it was like somebody opened a window and let in fresh air. People laughed, told jokes, wore normal clothes, and went normal places. Life is to be enjoyed, not endured.
If it hadn't been for a handful of normal moms that I got to know in late highschool, through their daughters, I would be so messed up. Those mothers showed me what it could be like. They showed me love, kindness, softness, and basic respect as a worthwhile person. Amazing!
Now that I know what my mother was struggling with, I wonder how many other of these mean, sadistic, pathetic people were also struggling with mental illness and using God & church to justify their actions.
Example: in mom's piano bench was old sheet music titled things like "Why Me", "Searching", "Make me Whole", and other things that I can sum up by saying "Life has to suck and then you die. There's probably more punishment after that". Those people have no idea what they're missing and I feel pity for them.
I've gotten the impression over the years that her parents and my mother's relationship has soured--understandably. My mother has alienated many people with her rudeness, lack of interest in others, snobbishness, and so on. But I haven't told people about her dementia in some part because I believe she'd be embarrassed (and of course, she'd think I was trashing her to others).
Anyway, part of this journey is realizing how long I've kept up a facade for many reasons, and feeling like it's ok to let that go too. My mother won't know now, so it's ok, I think.
Yes, other people in your life deserve attention too, and so do your yourself.
"I am entitled to have my own life and be happy. Why is that so danged hard?"
You ARE entitled. !t is hard because a narcissistic mother brings you up to serve her, and does not recognise that you have a right to your own life. They have very poor, if any, boundaries. We have to "unlearn" what we learned about our roles in childhood, and learn - teach ourselves - new ones, all the while being pressured by our narcissist to stay the way they brought us up. It isn't easy, but with work it can be done (((((hugs))))
I don't know if it is your conscience speaking to you or the guilt - which is a very different thing. Let your conscience be active in terms of looking after you too.
I read a C.S. Lewis quote today to the effect that the heart must listen to the mind.
"We tend to trust too much in our feelings, and allow our feelings to direct how we think. It should be exactly the opposite, that is, our mind should direct our feelings. Allowing our heart to direct our lives can lead to ruin."
Take care of you.
After helping her a bunch today, my mom told me she loves me and doesn't mean to say mean things--it is just because she has pain. I appreciate her saying this but it just doesn't cut it. Pain is awful, but being mean doesn't make it go away. I feel like she treats me like an old shoe or a worthless piece of junk so much of the time. Less now than I used to, though. I told her about the way I felt she treated me a couple of years ago and she was furious. It did help a bit though. I think she appreciates me more than she ever did before.
Which Blog are you referring to, Jeweltone? I never saw that information in your posting.
As I stated yesterday, we had a sale at my grandmother's and was I ever right. My mom called me 5 times today remembering things she may want. Most of it was already gone and I was able to put back a couple things. I understand why this happens being the mind is not able to make decisions, but boy is it exhausting. When I saw her call, that dread was stabbing me hard. I feel so sorry for her then I get so upset with her. I finally quit answering the phone which by all means was so hard.
I have decided not to go see her tomorrow. I am glad I am able to stick with it, but it is still nagging at me. I am trying to pull back more and more, but my conscience tells me one thing and my mind tells me something else. Actually, my mind is full to capacity. I do not have anymore space left. That is one more thing I am working on--clearing out some space in my mind for more pleasure instead of all this dread and negative thoughts.
Hope all is well with everyone and I hope your weekend is going your way.