Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
Sandwich42: My mom has been on so much medicine, but nothing seems to help. She cries alot and they tried prozac for it, but it didn't phase it. She took seroquel too and said she had nightmares and eventually quit taking it. We (caregivers and myself) would even sneak it in something for her to sleep and she would get up and cry that she had the worst nightmare and that she didn't sleep well. It worked like a gem at first. She slept well, seemed happier (if that's possible) but after a month or so she had a hard time with it. Hope it works for your mom, because it did help some with my mom at first. Now my mom only takes a 5mg of a pain med and aleve for her back pain and lorezapam for anxiety. It's not much, but even without it she becomes a worse mess. In April after moving in AL, I got to the pharmacy too late and she had to do without her anxiety med for two days and she was literally a big mess. Wringing her hands, pacing the floors, saying "I can't do this", her eyes as wide as quarters. After giving her one then in 20 min she was a different person. Weird how a small white pill can make a difference. Even though she is like she is, she is so different without the medicine. She is more child like and so nervous without it. My mom doesn't hold her breath, but she constantly tells me NO. She isn't going to do this or that. Drives me crazy. No is her first answer to everything. The doctor told me not to let her tell me no. Okay? Really? She is a 68 year old woman that is my mother. The one who was always in control (...and do I mean control) and now you want me to be in control of a control freak? After three years, I am learning, but I still let her tell me no because it is too hard to fuss with her. The hospice doctor last summer told me the opposite, he told me not to make her do anything. If I offer her something to eat and she won't eat it, then so be it. That really helped me so much. After experimenting with different medicines, she got off of hospice and they put her on pallative care. She still says no and that is ok with me.
Wel, here goes. I will make my phone call and try not to ruin my day.
When mom would get her facts all mixed up and start demanding I make sense of it - usually quite angrily- instead of doing that, I just respond with "we are all just doing our best to get by." Over & over. You don't have to rationalize anything. It's a response we've had since birth, to explain ourselves to parents. But that isn't a good idea most of the time anymore.
Then I immediately jump to "It's going to be OK. You are going to be OK. Your job is to just relax and stop worrying." I realize this is a ridiculous statement on my part. Relax is not in her vocabulary. Never has been. Anytime there was quiet time or we were supposed to be on vacation, she would just sit there, wringing her hands and holding her breath. How long can a person hold their breath? Apparently 77 years is one answer. I have never seen anyone else in my life do that.
Today mom started Seroquel to calm down. No amount of prozac and anxiety meds were doing the trick. She may be 5 feet tall and 200 pounds, but her low center of gravity can hit you like a truck. I'm curious to know if she has side effects, or if it will help.
Good night all...
I feel like I am starting to sound like my mother. Shut my mouth. I do NOT want to sound like her, be like her, or even look like her.--(even though I do look like her) I hear her voice and I cringe. I can see those looks she gives over and over in my head. When I think of something fun to do or when I wonder what life would be like...I see her face all soured up and those eyes piercing right through me. Oh do I hate the look/looks. The look of "you should feel guilty" "what are you thinking look" the look that says "I could choke you".
Today I have had to tell myself, she is ok, stop thinking about her and her misery. She makes me miserable and I haven't even talk to her since Sunday. WHY I ask myself.--because I let her--because we let them. STOP!! NOW!!
Sounded good anyway. Ha!
Her answer: I don't care. I won't be here.
Another time I asked her why on earth would she not work with me on future planning her old age? Why do you insist on making it as hard on me as possible?
Her Answer again: I don't care. I won't be there. (She always insisted she'd not ever need care and would simply drop dead in her house.)
Nice. So there it is. If there's nothing for her, it doesn't matter. I don't matter. The inconvenience to anyone because of her doesn't matter. That was when I realized I had been carrying around a big bag of resentment for a really long time. And I had to work on that, not her. I'm a long way off from being done working on that big bag.
They don't get how they affect people, and make up what they want to in order to explain why others stay away. Narcissistic supply indeed. That is what mother is after with her current hunger strike. I would have thought that the psychiatrist would get it. She is refusing food - or was last I heard, but is still drinking and taking her vitamins. It is almost laughable. She said she was taking control. Of what I am not sure. It is an attention getter. One of these days she will go too far, but she has survived her own self created crises for 102 yrs so I suppose she will survive this too.
You are right, loo - it is all or 99 % transactional. I have a very few memories of a "normal" healthy interaction with my mother and fewer with my sister, A couple of years ago I admired a bracelet mother was wearing -a narrow bangle of gold and mother of pearl. She took it off and offered it to me saying she had another identical one. No strings attached, no undertones, no you owe me now - she just gave it to me in an rare act of generosity. I treasure those few memories. They help.
I am so happy to see you and your sister are starting the process of making amends. Peace is a life necessity. When we have to hold in so much it is like drinking poison. Slowly it is eating away at your mind, body and soul.
Take the books and read them yourself, enjoy and get the last laugh. When I went yesterday to see my mom and do what I think is "right", a man came to visit his mom. My mom said there he comes. He comes EVERYDAY. (I told this already, but....) He didn't stay but 10 min and left. She was disappointed I saw he didnt stay long. I asked one of the workers later and he does NOT come everyday. My mom makes herself miserable believing to herself he comes everyday and I don't.
Father in Heaven, I pray to You to watch over each one of us and keep us safe from the afflictions of dementia and keep us healthy in our minds and our bodies. I also pray that You will also make our land of afflictions fruitful. --In Jesus name I pray, Amen.
These people have such under-developed senses of self they rely on the outside world to validate everything. Some even fret that if they are not getting constant, non-stop narcissistic supply they might stop existing. This is something I personally can't get my head around. I'm not going to stop existing because I'm alone in a room. But, this certainty of mine is not true with the NPDs.
It's very existential. They have a physical self, but not a "soul" as I'd call it. We would think that if you need constant praise, attention, and validation, shouldn't you be nice to the people you want it from? These folks don't know how to do that because "nice" requires that you recognize the other person has feelings and is worth some level of human dignity. If you can't recognize that the other meat-bags standing around you in a room are people too, then you really don't have a foundation for sincere niceness. You can learn to fake it and force it though if that serves a purpose.
Remove that narcissistic supply and you get raw, pure narcissistic rage (google it). And we all know what that looks like.
I pray every day I never get like that!
emjo: It is difficult when our days are scheduled around "them" even when we aren't really doing for "them". My mind is consumed day after day. I do feel some freedom now she is in AL. It has only been 4 months since my mom's move and I am hoping I can get less and less discouraged through each day. I hope my mind gets less and less consumed with what needs to be done for her.
juddhabuddaboo: You are welcome, I hope when I write it helps others understand they are not alone because coming to this site, so many others have given so much encouragement. It helps me to write it all down (even if it all doesn't make sense) it helps me and if it helps someone else in the process, then I am even happier. I am so glad your day went as planned or maybe better than you expected. Now, you can enjoy the evening in some sort of peace and face tomorrow without looking back.
Good night friends.
Feeling torn between just doing whatever I want and feeling like I could take her somewhere today. I need quality time alone and exercise. She talks non-stop and is so annoying, insulting, or such a brain drainer. If I hope for a fun time, a quality conversation, of course I am disappointed. Doesn't happen anymore. Ok. Time to call her. It's 10:30.
Tactic 1 worked. She already took a short walk, doesn't feel good but wants something to do later.
Tactic 2: Fine. The freedom bell is ringing. "I'll pick you up at 1:30 and we can go to the dollar store and places like that." success! She ilked that idea and I could go for a short hike!
I discovered a new short hiking trail, had my quiet time with God and a few of his insect friends, got home, made a big salad and then took my happy mother to a new thrift store. She was delighted at the surprise. We took our time, had a lot of fun. She was happy looking on her own while I wandered on my own. I kept checking back with her which she appreciated. We ate out at a buffet place on the way home an had a really wonderful day!
Enjoy your music fest in your hot beer tent...you will have a blast!
Trust me. And allow yourself to BE on vacation when you get there.
Happiness is the best revenge. Happiness is a really healthy break from the normal guilt/stress/anxiety of all this. You'll get used to this feeling and will stop allowing other things to take away from it on regular days.
My mom did/does the big guilt-trip when we travel as a family without her. When she lived in another state, it was hilariously outrageous that she would expect us to go down there and get her first. We're 1800 miles away! Now that she is here, she expects to go along on everything - especially if it's a trip that would make no sense to bring an incontinent dementia patient along with us. Like hiking around Lake Superior. Or sitting in a hot beer tent for a weekend for a music fest. The answer is just a big fat unapologetic NO.
You take care of yourself and your family. Stop depriving everybody else because your mom might get her nose out of joint over it. You are all adults, so you get to make the calls these days. She can just lump it.
I mentioned to mom once that I do not recall any of our family vacations where we brought her parents along. Ever. We didn't ever go out to eat with them. Ever. So why does she expect to be the third child in our family?
Make those plans and don't look back.
My mom being 68 always makes comments about the other ladies and gentlemen that live in the AL. She will ask me, "have you ever talked to an 85 or 90 year old woman?, they don't know what you are saying...Really, mom? Some of those 80 and 90 year old people know more than she does at 68. She tells me over and over it is like a nursing home. Hardly!! It is a nice place (building) but her mind is an awful place to be.