Update on mom in assisted living. I had a hard time convincing my mom to go to assisted living. She was diagnosed with dementia 2 years ago and she couldn't stay alone anymore. I work, have a family she kept wanting them to leave. In March, she went to assisted living. I go twice a week and at first called her every night. I now only call three times a week because she is so negative I cannot take it anymore. When I go to do her hair, she constantly complains. She complains how I do her hair, about the place, about the people, about everything. She keeps asking me "could you live here?" Actually yes. It is brand new, wonderful people and great food. I worn out with the negativity. I have explained to her about her complaints, but she says I am "fussing" at her. Not true, just need some peace. Is it normal for a dementia patient be so negative? I do not want to go visit or call her. It would be so easy to just stop. I am an only child and feel obligated to help her. I feel so much better knowing she is safe and well cared for. She will not bathe or change her pajamas. She doesn't want to get her clothes on. She just wants to complain. She tells me she doesn't eat there, but they tell me different. Her memory isn;t so much the issue, it is her personality change, her inability to care for herself, and her reasoning skills are gone. Oh my, you cannot reason with her at all. When she truly believes something..well, she will say.."well, you are always right and want to argue with me." I want to walk away and enjoy my life without her in it, but I feel guilty for even thinking such a thing. Is all this normal?
I went to see my mom today, well, debbie downer showed up. The visit from last Sunday was great after I said my spill, then today she wasn't hateful to me, but it was my fault she was there (assisted living). She went on and on as she was crying..."you brought me here", "I begged you not to bring me here (no she didn't)", "you told me I couldn't stay home anymore"--(that I did, not alone anyway), so much cannot put it all here. I really became frustrated, but didn't let it show. I asked her not to blame me. She did say something relatively smart though--she stated there was something wrong with her brain and she don't know what happened to her. I try not use the term dementia (she has frontal lobe), I just agree and tell her I am sorry this has happened. She cried and the negativity started all over again today. Complained about everything. She started complaining that some of the girls (workers) that used to come in her room don't come by very much anymore, well debbie downer, can you blame them? She is always woe is me, poor me, look at me, what about me, what if you were me....WHAT ABOUT YOU!!!! Sorry, I really want to scream that at her.
Looloo: No you will never make her happy. I am seeing that with my mom. She does look for me to do that, but it can't happen. I have tried literally everything. She says the same things no matter where she is. Long story short, my mom sold her home of 18 years--started complaining of the neighbors, getting paranoid, HAD to get out of there__this was pre-diagnosis, post retirement. I didn't have a clue where we were headed. She found a house in another county on a golf course--did I say golf course? yes, my mom hated golf..Ha ha. She bought a brand new townhouse on a well manicured golf course must I say a beautiful place. TWO WEEKS after move in, my mom complained about the neighbors, was paranoid no one liked her, oh, I think I heard an echo. The same exact thing as before. She put it up for sale and 6 months later, I moved her back to the county she just came from --she even tried to buy her old house back. oh yes, she did. He wouldn't sell it to her. She bought a newly built home and moved in. ONE week after move in: I hate it here, I got to get out of here, the neighbors are crazy, the movers stole my jewelry, this place is awful, the air/heat wont work (well, you get the idea). She stopped showering, wouldn't eat, and stopped driving. It was like a light bulb went off in my head. I called her sister and told her I think I know what is wrong. DEMENTIA: I called a clinic that is renowned for this type of illness. It took 5 months to get in. in the meantime she was calling 911 in the middle of the night to get her out, several things. Luckily we got in and they put her in the hospital, then rehab and I moved her to her mother's home close to me for one year of hell.--you guessed it, get me out of here, I hate it here, the dogs bark all the time, the neighbors constantly mow the yard, on and on. Then now she is in assisted living and hating it once again--Pete and Repeat!!! This all sounds so fast, but it has been a long, long journey that is never ending. I try to remind her of everything, but she denies so much of it..well, maybe she really doesn't remember.
Now my mom lives in assisted living with two storage buildings full of furniture that came from a 2800 sq. foot, well manicured home. This is all just stuff, but she is struggling with what is wrong, so depressed, and so sad. Sad it is, but this is her new life. I hope for her sake, she doesn't have to suffer for a long time. My wish for her would be she could truly forget things and maybe she would forget how miserable she is. With frontal lobe she may never forget because like MaineMom stated, it affects reasoning skills, personality, decision making, senses, planning and short term memory.
We are all in the same boat and let's keep paddling together and the shore shouldn't be that far away.
My mom was doing her Godzilla over Tokyo impression all day yesterday. I got several calls about it from the care center. At one point, I talked to her for a bit in hopes it would help (yeah, right!)
She was so worked up, swearing, calling me every obscene name under the sun, blaming me for her life, that I thought she might just give herself a stroke. She should have given me up when I was born, she should have sent me away like everybody told her to, she should have left me for the buzzards, etc. Objective- me knows these are her own insecurities & fears she is projecting and it has nothing to do with me at all. Or maybe these were things she heard as a child.
The one detail I could focus on was her huffing and puffing into the phone. She had herself so worked up she was out of breath! Just like the wolf that blew the pigs' houses down. It was really loud. And just made the whole thing comical.
I let her run out of steam and then talked to the nurse. I think he was blown away with the demon that came out of my mother. Meh, I'm used to it. She's been this way my whole life. And it the typical meds don't work on her anymore. I suggested calling the doctor and getting a sedative for her simply to keep her BP down. Or not. Whatever.
Even though I can objectify these really awful abusive episodes better than I could in the past, there is still a PTSD factor there. I cry. I feel depressed. But I try not to allow myself to stay there. Objective-me is on the shore trying to pull the sad-me out of the water. Happiness is the best revenge after all. Happiness is not easy though. It takes purposeful work to stay out of the sea of despair. My mom is a walking after-school-special on what happens to a person who lives in the sea of despair their whole lives.
I prayed many nights to get her in the AL. Now that she is there, I do feel guilty, but not as guilty as I was feeling when I would go to her home and never wanted to go back and knowing I HAD to go. I still feel like I have to go, but not like I did when I stayed with her all last summer. My family suffered dearly and trying to fix it now has been rough.
Viohnson: Please know that you can do this!!! Honestly, my mom has been so overbearing ALL of my life and to stand up to her was a big no no. I would have never done it before and the stress it has caused me over the years, yes, damages us! It damages all the other relationships we are in whether it be marriage, kids, friends, etc. I used to go out with friends or we would have friends over, not in a year. A year, wow, that is a long time. You must find a way to find a place for her. It will be better for her and most of all YOU. She is running you from your home and that is not good. I thought of something my mom said on Sunday after she calmed down. We were talking and she said, "my mom always told me that young people don't like old people, and now I see she is right". Well, maybe people (young or old) don't like people who are mean, nasty, complaining, self-absorb and hateful.--that is what I wanted to say. I wanted to tell her to stop playing the role. That is exactly what my mom does, she plays the part of an "old" hag. I feel you when you say you could leave and never look back. I feel that way everyday. It would not hurt my feelings one bit, if I never had to see her again. I realize this stems from way back and not just now, but after 46 years of hell, I am ready for some peace. Now, she really don't have a filter. She really tells me what she thinks and I don't care what she thinks anymore.
Everyone has been so encouraging and helpful here, just listen to the advice and know you are not alone in this. We deserve so much more than the havoc they cause in our lives. Knowing she is safe is so important. We are supposed to get storms tonight and I do not have to worry if her electric is going out or will she be scared. I know she is in a safe place with someone to look out for her. Do I feel bad that she wants it to be me and it's not? Sure, but only if she were a nice lady with dementia. :-)
I do not have anyone else to take the heat so it's just time I stand up for me. Hopefully, one day soon, we can all thank our lucky stars we made it through. I also pray I do not put my kids through what my mom has put me through.
Good luck to all. Until next time, good night!!
I am a selfish b*tch, i dont care about anyone but me, i do nothing but sit and smoke all day(really love that one!) lucky i was going into town then i just came home and ignored her sat in the sun cooked her tea am now going to have a bath and PRAY to God,Buddha,Alla whoever that she goes to bed early!!!!!!
I want out of this and her in a NH shes just impossible to live with nasty negative and blackmails me with money or things then throws it all in my face.
Mums personality has been multiplied by this illness ROLL on next week im on a weeks holiday and pray again that my sis gets a good dose of her awful temper as noone has seen it yet?
I know its hard when we say its not thier fault but stuff this for a life? i will visit everyday be the dutiful daughter but live on eggshells for the next god knows how long no way! I just think she needs professional help as i cant be doing with her "vicious moods".
Yeh hang in there y'all!!!!!!!!!!!!
One day we will look back and laugh???????????? just choke me now!
You are right that they are unable to be happy, and making them happy is not a realistic goal. Keeping them safe, seeing that they have the care they need, is doable, as opposed to fulfilling their whims/demands which are endless.
To any one at or near the end of their tether, often the right time for a change is now. It means you have reached or are near reaching the end of your tolerance of certain behaviours which are dragging you down. There is help available though the various agencies. People on this site have made those changes. You can too.
HOWEVER, there is this other thing that isn't so nice and can't be helped with old fashioned adult courtesy & consideration for mom. You can bend over backwards and grab the moon with your teeth, and it won't be good enough.
It's as if they are the only person in the world and we ought to all give up life to sit at their knee and wait for instructions.
If this is a new personalithy change, I'd definitely talk to the doctor about it, as it may be dementia related. The part of our brain that makes us nice tolerable people is on the side that slips first - most of the time. There are so many kinds of dementias, they all have their own different signs. Losing your self control and empathy is a common sign though.
If this is not a new thing at all, and this is how mom/dad was all along, but maybe not this bad, it might be a personality disorder related thing. If mom/dad could keep it together for strangers/outsiders, authority figures, doctors & the like, and just saved it for you at home, then it might not hurt to look at the articles and conversation threads here for Narcissism. You will find people in that boat who are very sympathetic, and are walking that road too.
One of the skills that will help you regardless is learning to detach with love. It's a way to emotionally protect yourself from harm, while not totally abaondoning the other person. Sometimes that is even necessary to get your head & life back together. It's called going low or no-contact. There are some great books out there to help you. Stop Walking on Eggshells, Surviving the Borderline Mother. Just search on amazon.
My mom falls into the personality disorder bucket. It's one thing she does really well. She could be a gold medal narcissist with OCD and Borderline. Her dementia was progressing, so in 2013 I put her in an apartment first, now in the nursing home due to her cognitive decline and medical needs. There is no way on this earth I would ever voluntarily take her back into my home. 3 1/2 weeks was ENOUGH. She is not abandoned, but I get to decide when and how long visits last. Her physical needs are met. She is safe. I am not responsible for anything else. She is unable to be happy, so I don't use that as a way to tell if it's going well or not.
Growing up with a parent who is "difficult/domineering/controlling/abusive" causes damage I still feel at the age of 43 even though I left home nearly 25 years ago. It is not a good idea to expect someone to do physical/intimate care tasks for their abuser. It continues the toxic relationship. It's bad for everyone in volved.
If you need help getting your elder out of your home, and into somewhere else, call your local area agency on aging. You have to put a plan together to make progress. There will never be a "good time" to make changes, even if the changes are good. Use this site as a resource and ask lots of questions. There is more than one way to find success, happiness, and get your life back.
A Social Worker told me not to take her into my house after re-hap stay because she would complain about me, my husband and then start to pick on the dog.
Social worked correct on all accounts except she never got to the dog.
I also moved in with them after my Father broke his pelvis summer of 2012 (another mistake). Could go on but I would be going on for ever.
My house looks like a filing cabnet. Files all over the place from keeping tract of all their illnesses since 2012, Dad, broken pelvis in 3 places, pneumonia, numb fingers---Mom, septis, kindey cancer, broken hip with total hip replacement, her heart beating too fast hospital stay. You name it it all happened starting July 2012.
So I know what you mean about not being able to keep up with your house. My husband and I have done everything for them and they still complain, complain and complain. Both nasty on top of it. Yes, I believe dementia makes people like this. Yes they do suck the life out of you.
Sunday visit with mom was about the tv cable. Everything that came on (even commercials) she would say "seen that", "seen that", nothing on but commercials about dogs and cats... complain, complain. I finally turned off the tv and she asked me why I did. ((shrug)).. I am trying each day to be "happy" again. I used to keep a clean house, have dinner on the table every night for my family, enjoyed being off in the summer and taking the kids to the pool, etc. Now, I am so overwhelmed with "her" that my house looks like it threw up on itself (many times) dinner at the table is a thing of the past, and pool? what is that? Enjoyment? you say?-I want to get back to some normalcy and pretend nothing is wrong.
Even though I was able to tell my mom how I felt on Sunday, she ended up asking me if she had to live there (al) for the rest of her life. What do you say to that? I know she is well enough to enjoy us when she should and well enough that she chooses to be miserable, but I also realize she isn't well enough to live alone.
Sounds like we all have the same mother. kazzaa: you are so right, it is very sad they have spent their whole life being so miserable. I am relatively a happy person, but my mother has sucked it right out of me.
One of my friends Mother's had the same meal as mine, friends Mother said it was great. My Mother said that it was junk. Not happy with ANYTHING!!
I am about to give up. They say leaders will leave you if you are too hard to lead.
I understand that statement now. Cheryl