My father is soon to be 94, in Sept. He came to live with my husband and I in May of 2012. He has progressively been getting more demanding and mean spirited. I can’t do anything right according to him.
He orders breakfast every morning and wants it exactly so, I have been told by many people, my 6 kids my husband and friends, that I am a good cook, but my dad is angry every day that I can’t get anything perfect. I know that I am in burnout right now, because all I want to do is cry and wish I could run away. My daughters tell me to stand up to him. But when I try, he can turn it around on me and make me cry.
Now he wants to move south and go gold mining in the hills of Lake Havasu???
He can’t even walk around the block. He can’t drive. We took that away from him about 5 years ago because he was a danger to himself and others.
He can’t cook or even keep track of his meds. He says, well I just won’t take meds!
I am at wits end, and my poor dear husband, who is dealing with Chronic Lymphocytic Leukemia himself, is stressed out trying to smooth things over. I just don’t know what to do or where to turn.
My question is, is there a legal way to stop my dad from leaving and going off on his own?
Though to tell the truth it would be nice!
Thank you for listening.
When my mom (dementia) wanted to move out, I gave her the housing section in the Sunday paper, she didn't know what to look for & put it away, but kept saying she's moving out. Stop catering to your dad's menu demands, as mentioned earlier, give 1 or 2 choices and that's it. Please take care of yourself so you can take care of your husband & your marriage. Hugs to you both ❤️.
But my main question is, whats the problem. A demanding father wants to leave.
Unless you take steps to protect your husband and yourself, he'll continue to play these "games" since they provide him a sense of enjoyment.
That's rich for him to be acting in such a manner as your husband has CLL!
As for him going where he wants, make sure he can't open the doors to outside or have an alarm system so you know that he has gone out. Being unable to drive and having difficulty walking, he won't get far! Perhaps you can give him maps and maybe some phony mining applications to keep him busy. Make copies so he'll have to redo them - with memory loss, hopefully he'll forget he did it already or tell him he misplaced it or made a mistake and has to do another. Anything to keep him "occupied".
I do like one suggestion that says offer him a "menu" of meal/snack choices. Mom's MC does allow the residents to "choose" from several options on the menu. If he doesn't like what's on the menu, he'll just have to wait. He won't starve if he misses a meal, but he should be hungry at the next meal/snack time! If he complains that it isn't done right, just state the fact that this is how this restaurant serves them, and walk off. He'll either eat it or not. Do not let his complaints and personal bashing, etc get to you. It is easy to do that, but if you just think about how this isn't your "normal" dad, and that he's regressing, so it's like dealing with a toddler, you can work on letting his tirades roll off. You KNOW it isn't you and others have backed that up. It's the dementia controlling him.
As for going to the doctor - maybe add something to that phony application where he is required to have a physical. Let his delusion work for you! No physical pops, they will refuse your application! If you need medication and refuse to take it, they will also deny. Play into his "games".
Meanwhile... explore the VA option. If he is eligible, there might be somewhere he can be moved to, but it will take time and will be better to wait anyway, given the resurgence of the virus. It will give you time to explore that and any other options. It sounds like other than some medications he is healthy, so NH would not be the right place. MC would be best (and is less expensive than a NH - NH requires skilled nursing care, which increases the cost and he doesn't sound like he needs that care.)
If you find a good place and he can afford it (you might have to look into VA or Medicaid benefits, if his income is not enough), then comes the fun part! More trickery... When we needed to move mom (she was early stage, living alone, refused aides 1 hr/day after less than 2 months), the EC atty told us we couldn't force her to move. Despite having all the POAs, etc and dementia, this is where we were! He suggested guardianship, which is costly and time consuming, but the facility we chose said NO to committals. They said just get her there, they would take it from there. We had to come up with a ruse (having developed cellulitis helped us in her case!) For you, perhaps once everything is in place, you can call this the transition place for his "mining". Kind of like a meeting place or bus terminal that will organize everyone for the "trip". Be creative! Bring all his "mining" paperwork, so he can continue with his plans! It would be best if you have POA, so that you are signing FOR him, not you. If not, guardianship might be needed - wing it. Controlling assets are also best with POA, but SS can/should be done via rep payee.
Also, ER DUMP is NEVER the answer. Never. It is just so wrong and will likely backfire. They can and likely would return him to his last known address, even if they use a taxi - others have reported this happening, despite telling them it isn't a safe place for the person.
Then there is the virus issue - why would you want to jeopardize a person by exposing them unnecessarily to the virus?
Just don't go there. It is one thing if someone has an emergency and has to go to the ER for treatment - then you can discuss with doctor and SW what the options are and ask for help. But under no circumstances should anyone ever consider dumping anyone, much less a family member, at the ER, for ANY reason.
It seems you let him rattle you since you care so much. Start valuing yourself and your relationship with others. Your relationship with your dad is going to be flawed because of the dementia. Stop letting his disease tear down your self-esteem. Right now you have the equivalent of a toddler throwing tantrums and mommie trying to soothe him at any cost - regardless of the cost. Start by talking with your husband about what are reasonable limits and what to do when those boundaries are stepped over. Please read any of the Boundaries books by Townsend and Cloud to help with dealing with difficult behavior. You may also benefit from seeing a counsellor to talk through creating a new lifestyle at home.
Do you cook breakfast for everyone or just Dad? I might start there by telling Dad that you will only cook breakfast on Sunday and the rest of the week there will be cereal or whatever everyone else has. Also limit breakfast to what time you establish, what works best for you and your husband. If Dad misses breakfast time he can go without or is on his own.
Do not let him get away with the refusal to see his Dr or take his meds. Inform him if he is staying in your house he needs to comply. When he threatens to leave ask if he needs help packing and where will he be going so you can call a cab for him. Call his bluff! In the meantime start looking at facilities and see if there are any openings.
Contact the VA as others suggested and get him evaluated for care. Also contact your local Agency on Aging and see what they have to offer him and you. They should have Caregiver Support to help you deal with Dad and now caring for Hubby. Hubby is your 1st priority and if that means Dad has to move out then Dad has to move out.
If he can't walk around the block how is he going to get to Lake Havasu? That seems impossible. It's like a little kid threatening to run away. Maybe creating that as a fantasy is not such a bad thing. Maybe just planning and thinking about it is enough?
The best choice would be for him to move to Assisted Living and let the professionals tend to his daily needs, which would allow you to just be the daughter who visits. Is that an option for your family?
If not, it is definitely time for you to take back control of your house, your life, and your family. You are not a short order cook. Come up with a menu of items and provide those for meals. For breakfast, DAD, you can have toast, or cereal, or a toaster waffle. WHICH one do you want? You could even make a menu and post it on the refrigerator. And that's it. Do the same for lunch and dinner if you have to. You can have a menu of snacks, too. This way you can reduce the amount of energy dedicated to this particular issue.
My mother was pulling this "no food will satisfy me" crap when she still lived with my sibling. Now that she lives in Memory Care she eats whatever they serve her. I'm so relieved that she still enjoys eating and she still feeds herself. There are others in her unit who cannot feed themselves. This is the reality of diminished brain capacity.
Also, I have a little story about my mom which is similar to your dad wanting to take off for Lake Havasu. My mom went through a very hard time before we moved her into Assisted Living, and it wasn't all on her (longer story). We didn't understand how far her dementia had progressed, and she actually ended up in Memory Care. It has not been an easy or simple transition, it was very difficult, very fraught.
The night before we were supposed to go to the facility, she was staying with me and she pretty much had a meltdown. I had some travel magazines in my house and she took them, ripped out some pages and told me she wasn't going to any facility, she was going traveling. If I could've taken her, I would have.
No one wants to lose control of their mind or their life, and no one wants to contemplate death. I don't think we can understand how that feels until it happens to us. It's something to remember for when we are the elderly.
However, if your dad is not incompetent and his doctor will not testify, your dad has free will and can do whatever he wants. I know this information because my 94 year old dad wants to move from his independent living apartment to a house. I don’t think that’s a viable plan so I told him I would not help him and then I contacted all the people he has previously reached out to and told them dad is not moving.
Recently he was in the hospital because he got a pinched nerve from packing and now has a walker. He knows he can’t move himself with a walker so he has physical therapy and still is pushing to move.
His doctor said they will try and fail and then come back. Personally I don’t want my dad to face any danger. With Covid everything is on hold so tell him that. We told my dad that but he didn’t think it pertained to him! Every state is different for laws pertaining to the elderly. Call legal aid for free advice or social services.
I don’t live with my dad but still do a lot of care giving and he is similar to your dad. You need to set some boundaries or his demands will destroy you. I can’t help you there because I wasn’t good with that either. I did tell him over and over that I would not help him move because I don’t feel it was in his best interests. I also had to hang up on him. You will need to say no and walk away. It’s hard but you are hurting yourself by putting up with his mistreatment of you. Tell him you love him but he can’t be so demanding. Good luck!
You could say you don't believe he is really your father because your real father loved you and your cooking and never spoke a mean word to you. (In a way, tbat is true. He is no longer your father). You could give him a peanut butter sandwich for breakfast and when he complains you say you don't know how to cook. You could say you know his body has been invaded by an alien and demand to know what they have done with you "real" father. Of course he doesn't like "earth food" because he is not from this planet.
It may be helpful to not think of him as your father. You can't please him and I don't know how you have done it for so long. You and your DH should take a vacation together and have a nice time. You could put him temporary care. Some places have that. You need to get him out of your life because he is ruining your life and the life of your family. He was so lucky to have you care about him and for him. But there is nothing you can do and you need your own life back.
AZ is experiencing what could be considered a medical crisis b/c of Covid 19; I doubt if they'd even issue permits to mine for gold, if the rights aren't already tied up.
If you have not had therapy, now is the time for it. You have two major events going on in your life, a husband with Cancer and a father who is causing no end of problems.
First, not more cooking any meals to order. You are not running a restaurant. Dad will not like it, but tough beans. Just because he is ranting and raving, does not mean you have to feel any guilt.
How do you make this change? "Dad I am sorry but as you are never happy with what I prepare, I will give you what I am eating." He will rant and rave and complain, you go for a walk, get out of hearing range. If he does not eat the food in front of him he will go hungry, so be it.
Sondra, you do know that you can still stand up to him and cry? Starting to cry does not mean you have to back down from your stance. "Dad I can see you are upset, so am I, but no, I will not prepare what you want for breakfast. Here is a bowl of cereal and fruit."
As far as the statements that he is going to leave, you know deep down that they are empty threats. He is physically incapable of going gold mining.
I agree 100% with others, your focus needs to be your husband. Dad needs to be in a care facility, check with the VA for options.
What meds is dad now NOT taking? I'm hoping that that will create a medical crisis, and when that happens, or when he falls, you call 911.
And you refuse to let him back in the house. It is FAR past the time for him to be placed someplace where he can order breakfast to his liking and chew the fat with other older guys. He'll have a ball.
I think the best answer is that the man simply cannot do what he has in mind, as one of the others said. He won't get far, on foot! You can't reason with him.
I have POA, and I have dementia locks from Home Depot on the two street doors. Technically, my dad can get out the back, but the yard gate is locked, if he does.
One time he went out there, and I distracted him by showing him the new baby chickens, then calling him in for supper.
Your Dad can no longer be reasoned with. He has lost the ability to feel empathy. His mind is dying. He is in his own little world. He needs a good physical to rule out any physical problems and to have him declared incompetent. Your time and energy needs to go to your DH. The stress is not helping him or you. Dad needs more care than you can give. It no longer is what he wants but what he needs.
I love all the support. My trouble now would be to get him to a doctor. He just decided he wasn’t going to take his medication any more and he wasn’t going to the doctors either.
I never know what the next thing he’s going to come up with will be. I went for a walk with him this morning, about half a block, because I’m afraid he’ll fall. He proceeded to tell me we should take the 4wheeler to the power lines and walk the hill. I told him no, I don’t want to. He said what if we take the four wheeler around here and look for garage sales. Again I told him I didn’t want to. So he said he didn’t need me to do it he could go himself. He was tired after the walk and had to lay down for a while, so I got the 4 wheeler keys and hid them.
Such craziness!
Now he wants to take a hop to California, and says my cousins, his niece and nephew, will pick him up.
Frankly, they have their own lives and sure don’t need to deal with him!
my dear husband is away on a fishing trip and comes home tomorrow.
thank you for listening! God bless you all.
Check with the local Veterans Assistance Commission and bring what papers you have they can help determine what he is eligible for. It might be a little or a LOT. They base accepting someone into one of the VA facilities on % of "Service Connected Disability" so the paperwork is important.
If he qualifies for Medicaid begin that process now.
You might want to talk to an Elder Care Attorney, you might have to obtain Guardianship.
Does your dad have a "formal" diagnosis of dementia? If not hold off on that until after you see the attorney.
It sounds like Memory Care facility would be best for him. If he does not need skilled care he does not need a "nursing home" or Skilled Nursing Facility.
And I would stop catering to him as much.
He eats what the family eats, when the family eats.
Don't argue, you will never "win" an argument with a person that has dementia.
When he starts to "get" to you and you feel like crying...if it is safe to leave him..walk out of the room. Or take to wearing head phones or ear buds so you can block out the arguments.
If you can, if you are the only one caring for him hire a caregiver to come in a few hours a few days a week.
You might even want to look into Adult Day Care if that would be appropriate for him. He would get a break from you and you from him. The VA does in some cases pay for that and most Adult Day Care will pick up and drop off.
You need to prioritize your husband and his health and needs before your father.
Your also need to prioritize your health and needs before your fathers.
My mother nearly withered away in skilled nursing because she wasn't sick enough to warrant much attention. I finally moved her to a memory care place, and she's doing much better.
I suggest you decide which of his ailments is the most important to you to treat. In my very smart mother's case, it was her mind needing stimulation more than her heart condition, so I moved her. It was the best thing I ever did.
He sounds beastly and your husband doesn't need the stress.
I would give him a bowl of bran flakes for breakfast and tell him that is what he gets until he can appreciate the effort you make to feed him.