I find myself questioning myself now that my mother has been relieved of her earthly burdens (5/31/2020). On one hand, I know I have already mourned the loss of my mother in the previous few years as she became less herself and more of a child for me to look after, and I did cry at her passing. There are moments when I profoundly feel the loss, but overall, I am relieved for her and for me. It has been such a welcome relief to be able to focus on the good memories before the overwhelming stress of caregiving took over my life. I loved my mother dearly, but she was a tough cookie and made caregiving difficult. For the last 18 months I have felt like I was navigating a mine field every time we interacted. I guess I am worried that I am fooling myself and grief will overwhelm me at some point.
May God grant you grieving mercies and strength during this difficult time.
I think that it is wonderful that you can remember the good times before you started losing your mom. It says a tremendous amount about the love you shared with her. I never had the break down after I lost my grandmother, I grieved while she was alive, leaving me one brain cell at a time over a decade. I was happy that her struggle with AD was finally over and she could finally be at peace.
Take care of you now and know that she is finally at peace.
It took me months to get over the last years of anger and frustration and remember what a good mother and person she had been. I’ve grieved in bits and pieces since, never a sobbing breakdown, just moments here and there, looking at old pictures etc. My mom had a hard life. I think about that more these days. It shaped who she was and how she navigated through her life.
Im still looking after my dad, he’s on hospice in a nursing home now with advanced dementia.
Good luck to you. It takes time.
I DO grieve the recent loss of my bro. I made a diary I can "write letters" to him with, make collages. But I will tell you also that I feel relief for him. He was frank to tell me he didn't really want a long slow slide into what Lewy's dementia is. He was "ready" to go. And in his last days I literally prayed for him to be allowed to go. I am relieved he need suffer no more in the slow slide that would take away his dignity and strength a cut at a time.
I felt the same when my Dad passed. A good long life of a good and decent man. We all did our best. I went outside in the cold air and took a long breath and thought "I don't have to be afraid for you any more; I can be at peace; nothing can ever hurt you again".
I think there are times we get poleaxed by pain, just miss the person so, think of something we want to tell him or her about, think of something funny or sweet they said, think about a moment when we failed and wish we had done better, and we just utter their names, and miss them so.
But you and I seem to grieve in the same way. They did their best. We did our best. This is the end that comes to each man and each woman. They cannot be hurt again. We did the best we could, and the agony that is the end is OVER.
Perhaps it is just a function of how we are made. Perhaps we are of a more pragmatic or practical nature? I'm not certain.
Hugs to you.
Thank you for staying on and continuing to share your wisdom!
Some days will be harder than others. Firsts are hard e.g. the first birthday, Mother's Day, Thanksgiving etc. without her. Allow yourself to feel sad. And remember to be gentle with and kind to yourself.
May her memory be a blessing to you.
Their is no right or wrong way to grieve. I grieved the lack of a nurturing mother all my life. Grief becomes problematic when people get stuck in anger, guilt or etc. Sounds like you are doing very well.
Only grateful for who she was, and what she taught me.
If you now find activities and relationships that bring you joy, don't feel guilty about it. We all have a right to live our lives and choose the purposes and people with whom and for whom we live.
Prayers and hope for the future
We have mourned the loss for sometimes years while our loved one slowly disappears. Bystanders and sometimes family members that have not been as involved find the death more "sudden".
We are numb.
We grapple with not just the death of the person we loved, we cared for but our own "death" of sorts. We are no longer caregivers, a role that has been a major part of who we are. We no longer have to look at our watch when we are shopping and think...the caregiver watching him has to leave in 20 minutes and I have to get through this line...or...you wake up at midnight and again at 3 or 4 AM to change him and realize there is no one to change....or...you can actually sit and read a book or go to a movie but you are still physically and emotionally exhausted that you fall asleep reading the book, or you will pay $15.00 to see the movie and you fall asleep...
No one can tell you how to grieve or for how long. This is a personal thing that will happen on your time no one else's.
Do not be surprised if while driving down the road one day a song will come on that for some reason will trigger a memory and you will start crying. The same with an aroma, a snippet from a commercial, or something someone says.
Time. The old saying Time Heals All Wounds....
Like any wound grief can be raw, red, angry but it begins to slowly (and some people heal faster) fade and heal. Some wounds leave a large scar some smaller but even the scars fade but if you look they are always there, others may not see them but we know they are there. It is the memories that we carry that make us who we are.
She hated it too. She had always been very precise about life, everything in its place, and the chaos made it worse for her. I lost a lot of myself and my husband, and lost all friends.
At the funeral I felt that finally my mom could be happy. She was up in heaven with my dad, her mom, my Aunt, and Elizabeth Taylor. she was a big fan. There was nothing on earth for her to miss.
Since her death, I’ve been pretty numb, I can only take so much social interaction then I need solitude. I imagine worse is coming but I’m giving myself as long as needed.
Book recommendations - Ambiguous Loss - by Pauline ??
The 36-hour Day - by ??
Please let me say, "FORGIVE YOURSELF!!" You have no reason to feel guilty because you are only human and you did your duty with love. BE PROUD! Imagine how many "children" don't even give a damn about their helpless ill parents.
My mom died on June 9th, 2020 and I feel what you're feeling. Dementia robbed her of her faculties and we often felt like we were dealing with the "terrible twos" with our 94-year-old baby. Temper tantrums, favorite word "no", and of course the inability to use the bathroom.
Any time I might have felt like not doing something for Mom, I had to remind myself of the countless acts of love and sacrifice she made for us. I asked myself, "How many dirty diapers of mine did she change? How many times did she nurse a sick son or daughter back to health? And how many times did I hurt her and disappoint her as a rotten teenager?" My duty was never in question.
But I often said, "This person is our mother, but this is not Mom!" Quite simply put, she was ill. It's quite normal to lose patience and raise a voice when every conversation is interrupted and after you've heard the same question for the umpteenth time. e.g. "For the umpteenth time, it's 12:15. Wait....12:16!" I must say it always broke my heart a little after I would raise my voice in exasperation (and to make it easier for her to hear) and the poor little sweet old lady would look so sad and say: "Please don't yell at me, I was only asking." :(
And don't forget, some other folks just can't handle the stress of caregiving. After one day my mind was as confused as hers was and a stiff drink was in order. (Only for me, of course!)
My sister is an angel. She is retired and moved Mom into her home and, in addtion to the formidable existing stresses of her daily life, she cared for our mother 24/7 for more than 5 years. She was the one changing diapers and leaning awful messes. Despsite my best efforts to relieve her when possible, she was so dedicated to our mother that she rarely left her side 24/7. She is the most selfless and patient person I know, and those "minefield moments" were frequent. But the love was never in question. I still don't know how she did it.
Now my sister has her life back just like my mother wanted (and yours, too, I'll bet.)
But it's a big adjustment and it hasn't sunk in yet. And of course, we all miss her, but I feel we did our grieving for 5 years. Mom was ready and not afraid of the inevitable so no one was more relived than she was. She had a strong faith that death brings new life.
So really, go easy on yourself. You did your best when thrown into a chaotic situation and you responded the only way you knew how, like the rest of us who step up to the plate. Often with little or none of the help we may expect from family. You lived up to your responsibility to your mom instead of abandoning your elders like so many others do. THEY, NOT YOU, should feel guilty!
The suffering is over. Hallelujah! Enjoy your life and don't worry you're not grieving enough. Because as HILLARDMH wisely says: "There is no right or wrong way to grieve." Caregivers have to develop a thick skin to defend our own sanity so feeling de-sensitized can't just be shut off. It fades.
But don't be alarmed if one day sooner or later, you bust out weeping out of the blue! Maybe triggered by some little thing you didn't expect like a song, or a memory triggered by a glimpse of one of your mother's personal items, or maybe by nothing at all. And it will be the best cry you ever had! But please certainly don't fault yourself if it never happens that way like it did to me years after my dad died.
Everyone is not as able or as strong or caring as you are. SO SHED THE GUILT, "guiltridden"! You have earned it!
Here's to happier times ahead!
I am sorry for the loss of your mom.
I still miss her terribly, but know she is in a better place with her beloved brother, mother and husband/dad, along with wonderful wonderful people that proceeded her in death.
One thing that you may learn and that death may teach you is to show you who your real friends are. Many people tend to shy away and disappear when one mentions death, possibly because they think they may be called on to be a ear to listen too or a sounding board. They don't want to be that, so they abruptly or not, cut out communication with you.
Anyway, I hope you find peace and know that your dear mom is at peace and would want you to get the best out of life you possibly can. Blessings to you.
Self-authoring is good for self-therapy. I write and look back to see the progress or not: many do benefit from it. Talking to people is good but so many are wrapped up in their own thing but if it helps it's good.
You turned right when you should have went left...you said something you didn't mean when dealing in a situation you are not trained for. These well meaning caregiver pamplets and advice I feel put many of you up for failure as laymen.
Take the memories of your mother and put them in your memory room where you store ones that stay locked away under the past: access when needed but don't visit to often lest you forget to live in the present. Don't forget the bad times too: that's you as well as the good ones. All of it is what makes you who you are: it has made you stronger so own it. Don't forgive: learn, accept. To forgive means someone did something wrong...no. Accept you don't have anything to forgive or to forget.
The only way grief will overwhelm you is if you allow it.
Now I am going thru the same thing with Mom. 93, living in a nursing home, deep in dementia. I was actually relieved when Corvid locked everything down, now she is in the care of the NH and I can concentrate on living my own life.
Now, I am missing her in a different way. Just her presence in my daily life. The walks we did together, going for lunch, just that companionship.
But there is no proper way to grieve. Grief is unique to the person and the situation. If you aren't crying don't worry. You will or you won't. Neither is right or wrong.
Your relationship with your mother sounds like it was okay, but less than ideal. Which is, believe it or not, the experience of many.
Please don't think there's anything wrong with you, if you're not grieving as you think you should be grieving. You might never experience anything profound.
It's all good.
Maybe it's time to be less critical of yourself, you're okay and perfectly normal. Hugs for you.