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Mother how has dementia. Some family members seem to think she is still able to make financial decisions and other things. I don’t think they understand
Jarkab, There are so many articles, and questions covering family members understanding a parent with dementia right here on the Aging Care forum. You have come to the right place.
In the search bar above, enter "helping siblings understand dementia".
Yes, Jarkab. You will want to focus on 'Executive function", which can be found online. Helping family members understand is harder and frustrating when they are in denial. You may find yourself labeled as the bad guy for your efforts.
If you are the primary caregiver, focusing on your mother's care will be challenging enough. imo. Still, maybe worth an effort to try to get siblings on board. imo.
What are the 7 executive functions? Executive function and self-regulation skills depend on three types of brain function: working memory, mental flexibility, and self-control. These functions are highly interrelated, and the successful application of executive function skills requires them to operate in coordination with each other.
Here is just one article: "Siblings in Denial About a Parent's Declining Health"
Jarkab, there probably is, and you might start by contacting the local Alzheimers' Assn. and also any associations specifically focused on other dementias.
There's also an excellent movie clip which I saw when the Alz. Assn. offered a free class titled "Creating Confident Caregivers." The movie was very, very informative, and enlightening, but also extremely painful emotionally. Some of us were in tears by the time the third segment began.
The movie focused on a small group of women in care, presumably AL, or a basic level of care (I don't recall at this time). The women performed various tasks, including making a sandwich. As time progressed, one of the women was unable to make a sandwich - she was unable to recall the function of a knife, or of mayonnaise, and couldn't untwist the tie on a loaf of bread.
It was SO illustrative, sad, and heartbreaking.
I don't remember the name of the movie, if there was one, but you could contact the Alz. Assn. in your area and ask about the CCC course, and if the movie is available. The CCC course I believe used to be available on DVD.
You could also ask the staff in the office of the physician who D'X'ed the dementia for literature references.
Some hospitals have community education classes. In my area, I've found that the Catholic hospitals have more classes than for profit ones. There might be a class on dementia generally, with handouts that you could get and share with the family.
I do think it's natural for people to be in denial about dementia, for various reasons, including the heightened focus on its breadth and scope.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
https://www.youtube.com/playlist?list=PLVl8vTLjje8ESAEvpjVoVTEK-_6X2jTdl
There are so many articles, and questions covering family members understanding a parent with dementia right here on the Aging Care forum.
You have come to the right place.
In the search bar above, enter
"helping siblings understand dementia".
You will want to focus on 'Executive function", which can be found online.
Helping family members understand is harder and frustrating when they are in denial. You may find yourself labeled as the bad guy for your efforts.
If you are the primary caregiver, focusing on your mother's care will be challenging enough. imo. Still, maybe worth an effort to try to get siblings on board. imo.
What are the 7 executive functions?
Executive function and self-regulation skills depend on three types of brain function: working memory, mental flexibility, and self-control. These functions are highly interrelated, and the successful application of executive function skills requires them to operate in coordination with each other.
Here is just one article:
"Siblings in Denial About a Parent's Declining Health"
There's also an excellent movie clip which I saw when the Alz. Assn. offered a free class titled "Creating Confident Caregivers." The movie was very, very informative, and enlightening, but also extremely painful emotionally. Some of us were in tears by the time the third segment began.
The movie focused on a small group of women in care, presumably AL, or a basic level of care (I don't recall at this time). The women performed various tasks, including making a sandwich. As time progressed, one of the women was unable to make a sandwich - she was unable to recall the function of a knife, or of mayonnaise, and couldn't untwist the tie on a loaf of bread.
It was SO illustrative, sad, and heartbreaking.
I don't remember the name of the movie, if there was one, but you could contact the Alz. Assn. in your area and ask about the CCC course, and if the movie is available. The CCC course I believe used to be available on DVD.
You could also ask the staff in the office of the physician who D'X'ed the dementia for literature references.
Some hospitals have community education classes. In my area, I've found that the Catholic hospitals have more classes than for profit ones. There might be a class on dementia generally, with handouts that you could get and share with the family.
I do think it's natural for people to be in denial about dementia, for various reasons, including the heightened focus on its breadth and scope.