My 87-yr-old mother is suffering from dementia. I've been running back and forth between our two homes for over a year trying to care for her while trying to keep up with my job. Even with a pill organizer, she messes up her pills. She forgets whether she's eaten or not. She had cold cereal most evenings because it's easier. I cook dinners for her but she forgets they're in the refrigerator and the food goes bad and is thrown away. She has developed a nervous habit of scratching her legs and because her skin and blood is thin, her legs are always bloody, with bloody clothing, couches, bed, floors. She's very frail and weak and can hardly get up from a chair and walk due to arthritis. She no longer has any interest in TV, reading or internet and sleeps most of the time, just getting up to eat and go to the bathroom. She gets angry at me if I try to talk to her about any of this. I've been trying to get her to move in with me for two years.
Finally, last weekend she had two falls, just bruises but it frightened her enough that she agreed to move in with me. My daughter, son-in-law and I moved her hospital bed, bureau and most of her clothing and food to my house. I felt so relieved that I could now give her the care that she needed - one of the first things being a good bath! She's been eating three good meals a day. I've been putting anti-itch creams on her legs 3x/day and her legs look great and are healing up..
However, she is completely miserable and keeps saying that she's made a big mistake and wants to go home. I understand that she's homesick. But she will not admit that she needs help. I've tried talking to her about how exhausted I am and can no longer take care of two homes or give her the help she needs if she's not in my home and all she says is that she'll hire help until her money runs out. But she had help come in at one time and hated it and told them all to go! She also believes she can still drive, but there's no way I'm giving her cars keys back to her.
I feel completely unable to deal with this any longer. My nerves are shot, I can't sleep. I feel so sick. She told me tonight that if I don't take her home tomorrow, she'll call a cab and since she doesn't have her keys, she'll break a window to get in. Now I'm afraid to go to work in fear of what she'll do. If I take her home, then I'm back in the rat race of running back and forth there and knowing she's not getting the care she needs. I tried two years ago having her doctor talk to her but it made no difference. I don't know what to do. i have a durable POA but she hasn't been declared incompetent. I'm not sure how incompetent someone has to be to be declared incompetent. She told me today that she would rather be dead than stay in my home, although she said that I've been very good and kind to her.
She really messed up her pills yesterday. I have a pill organizer for the several days of weeks divided into AM and PM and she's done fairly well with it with my consistent telephone reminders. I went over Thursday afternoon and her pills were fine. When I went there yesterday afternoon, Friday night pills and Saturday morning pills were gone. I called the doctor and he told me what to look out for and if I saw any problems to take her to the hospital. But she seemed absolutely fine physically and is fine today. I took her pills and explained that I would bring Saturday night's pill over tonight. This morning she was calling in a panic that she couldn't find her pills and had absolutely no recollection of what had happened yesterday.
I know what several of you have said about adapting to nursing homes but without going into several nightmare stories, I truly am terrified of forcing her into one. No, she shouldn't be living alone but she chooses to do so and yes, I could give her better care here but she doesn't want it. I can't help but feel that she would be better off where she is, with my continued help, than in a nursing home. Both times, she deteriorated drastically in just two days. So I'm afraid I'm back to where I was before she came here. Falls can happen at my home, falls can happen in nursing homes. She does carry her cell phone in her walker so it's always near her. I live close enough that I can go there twice a day to give her pills. And I can cook for her a couple of times a week and bring it to her. No, I can't make her eat it but she does eat more at home than she did in the nursing homes.
I'm hoping that her increased confusion will calm down once she settles back down at home. The move here has really thrown her. I'm going to make a very determined choice to be much more careful of my own health and try not to worry so much. I know how I was when she was in the nursing homes - I got terribly sick both times she was there. As hard as she's finding it to accept the fact that she's no longer able to care for herself and should have more help, I'm finding it even harder to accept the fact that I'm losing my mom and best friend. I will get medical help for myself if I don't feel better. And if my mom gets worse, if I find that she isn't eating or starts digging at her legs again causing the extent of injury that she has in the past, I now know to call Adult Protective Services and will do that. So I do now know that I have someone to reach out to which is a huge relief. I just want things to calm down for a few days to see where we are. I think my constant worrying, constantly asking did you eat, did you take your pills, how are your legs, etc, etc, etc. has only made things worse. I have to back off a bit. As they say on airplanes, if there is a crisis, put your own mask on first so than you'll be able to help your family with theirs. My health and life is just as important as my mom's is and I WILL take better care of myself. I'm as independent, if not more, than my mom is and do everything myself. If it snows, I'm shoveling my driveway and hers. I do all of our yard work except cut her grass, which we hired someone to do. I replaced all the guts of my toilet a few weeks ago. Call a plumber? Nay, I can do it! I have to accept the fact that I'm no kid anymore either and will hire people to do things that are difficult as that is also wearing me down. Her lawn guy can trim up her yard this fall. I'm not running over this winter starting her car every few days either. If she refuses to get rid of a car that she no longer uses, than the battery can die and it can just sit there. I try to fix everything in my family's life and I have to stop it. This whole thing has been a real wake-up call for me.
Thanks again, everyone.
Well I got stopped, was diagnosed with cancer that came out the blue with no warning and no markers saying that would happen to me.... yikes... my life had totally changed.... I can't do landscaping any more... forget shoveling driveways.... just taking laundry downstairs to the washer can be tiring... I am thinking of hiring cleaning people to come in twice a month.
Your life can change overnight.... then what would your Mom do? Of course your Mom will want you to continue doing what you did before. It is so very difficult to stop doing things. I had to cut back 75% on driving my parents, no more Walmart/Target or going to the mall, I will take them to doctor appointments, and pick up their groceries which are already for pick-up when I drive up to the store [I order them on-line].
Imaging trying to find your Mom a qualified assistant living facility when you are trying to recover from a serious illness.
Prayers for your complete recovery.
My suggestion is to have your mother declared incompetent, then take over her care and living situation. Can you get live-in help so that she can stay in her own home? I'm spending my mother's VA pension $1000 per month to have someone live in with us and work 25 hours a week. The good part is that this person is here to prepare meals or to make sure my mother eats meals that I prepare, because, like most elderly, she will eat crap - cookies, chips, cereal etc.
When this happens I tell her that this is not an option. However, if she is not happy with the current situation, she could hire strangers to come in 24/7, which would cost about $10,000 a month. OR, we could find her a facility where she could have 24-hour care from medical professionals, if she would prefer. So, what'll it be, Mom?
At this point she generally pouts for a while, but she stops complaining - for a few days, at least. I phrase it the way I do because 1) It's TRUE, and 2) it gives her the sense that she does have some control. She obviously hates her alternatives, but these are her ONLY alternatives.
As for some of the other suggestions, if her doctor won't back you up, I believe you can go to the Probate Court to apply for Legal guardianship and POA. She would have to be declared unable to act in her own best interests. This does not mean she is crazy, it just means she can no longer make sound decisions for herself. In most states it requires her doctor to sign off on it, as well as a psychological evaluation.