My mother is in the final stages of her life in a hospice facility. It's a beautiful place, and the nurses are so caring. My poor mom has been suffering terribly since her stage 4 lung cancer diagnosis a couple of months ago. To make matters worse, she has mid to late stage Alzheimer's and dramatic hearing loss, so she cannot understand what is going on. She can't even understand that she has cancer, but she knows she is constantly sick and exhausted. Her pain is somewhat controlled but she is gripped with nausea every waking moment even though she hasn't eaten in literally weeks and drinks only small sips of water. I'm her only family and it is killing me watching her suffer and slowly waste away like this for what has been nearly 6 weeks. It's like some sort of torture. The nurses don't seem to have any answers. Is there anything that will ease her suffering? Why does this have to happen? It's so unfair.
As sad and tormenting as this experience is - it is how life often ends. It has to end somehow - somewhere - sometime for everyone, you included. I can hear and feel your pain. It is the pain of reality when you are loosing someone very dear to you. I am sure you have done everything you could to make this transition as comfortable for her. Now look for the same comfort in that for yourself. Death is an end stage of life - for all of us. It is how we stop living when our body cannot function anymore. No matter the circumstances involved.
I lost my father from a kidney disease when he was 32 yrs old and I was 8. That was in war years and the medicine they have now were not available to him at that time. I often talked to him in my private moments in the days of upheaval in my life after his death. In fact I often privately have conversations with him now in my mind - I am now 78 yrs old. I was 8 when he died. He was my hero and life for me; changed drastically after he died He remained my hero and silent confident - he was (and is) always in my heart.
When he died I was a child and had no way to help and the good meaning actions of my mother and his family decided to protect me by not letting me (and my 4 yr old sister) to take any part in the process or the ceremony of a burial etc.. That did not protect us but left us abandoned and not able to take part in the ritual of services for the family of the deceased. That left me at 8 yrs old with nothing to hang on to - the family thought they were protecting us but we needed the ritual that is acceptable in our society for death of a treasured loved one. We were sent to be babysat across from the church and had no part in the funeral or burial services but watched from a strangers' porch across the street.
That only increased my loss but perhaps it was best for my 4 year old sister who had no real relationship with our father. It angered me at 8yrs old.
But life requires us to adjust and carry on best we carry on. Actually we have no choice there but to accept reality and adjust and make the best life we can.
I did that and am proud of the family I had and often just sent a prayer up to tell him how proud he would have been of his grandchildren. So I still have maintained a imaginary relationship with him and I although I know that is not reality - enjoy having that very personal relationship. It is a hug to the little girl still in a part of my heart and brain. My experience occurred just at the end of WWII. There are many support groups now that know how to help people in your situation. Try going to one of them - if that is not your thing - try another because you are not alone in your situation. Someone, somewhere, is going thru (or has gone thru) the same thing you are now. If it helps not going thru this alone it may be the right thing for you. If not, keep looking for answers to help you cope with the pain you are suffering. You are not the first or will be the last person that will go thru this journey. I wish you peace and am hopeful that you will find a way to heal and return to a life of happiness. I am sure your loved one would have wished the same for you.
While he was dying, he was always cold, though he kept his room at the assisted living at a toasty 85 degrees.
I know Your Por Dad feels totally Lost without the Love of His Life after 69 years of Happily Married Life.....BUT....You and Your Dad were the Great Loves of Your Mom's Life. You should feel very proud of Yourself to have Cared for Your Mom for all those years, and now Your Dear Father. No Daughter could be more Loyal or Loving than You Caring42, and You are Your Parents Greatest Blessing.
I am glad you are participating in this group. They are people who have been there and done that. Most of our friends, unless they have gone thru this, can not understand. They are not hard-hearted - that just have not experienced it and cannot understand.
Know that you are welcome here and we understand your pain because we are experiencing it ourselves. If you think about it dying is part of life - the final part. Very few people are prepared - certainly not their caretakers if this is the first time they have had to suffer with the daily things that arise.
I myself was absolutely shocked. I was 21 yrs old and my much loved mother-in-law was dying of cancer. She was only 56 and I was appauled at the actions of her children. So I moved in with her and took care of her. She loved me and I loved her. She, in a gentle way, let me know how thankful she was that I was there. I have never forgotten that bonding! I am now taking care of a man that I rode the school bus with - and later became my Junior Prom date. We bonded many years ago due to our life circumstances. A maturity that most children do not experience.
So, please "take heart" and know that mother knows you are there for her. No matter what happens you will have peace with that thought.
As I said before - if I could give you a hug I would!
So, take a deep breath - and know you are doing all you can- know that your mother appreciates that even if she doesn't completely understand. In a way, you are her guardian angel!
Keep in touch,
rosepetal
Keep talkng to her , tell her every day how much you love her and wish she could stay longer but it is OK to go now you will be just fine. Talk to her about those who have gone before and are waiting for her. If you feel them in the room tell her who is there. Not many people feel these spirits but your Mom will and be comforted by the visits of her loved ones.
If you feel her pain and nausea are not well enough controlled ask the nurses to increase the dose. If you can bear to do this tell them you would prefer her to be unresponsive than in such pain and distress. Unfortunately they can not give her a lethal dose and you personally may be against that but they can use enough to be asleep most of the time. Even if you feel she can't understand you still tell her all the last things you want her to hear. Ask for forgiveness for any wrongs you feel you have done to her and forgive her for anything that has hurt you even if it was accidental.
Is there a scent she likes - lavender can be very comforting. Light a cnadle with the scent if the facility will allow it if not sprinkle a little on her pillow.
May God be with you both and end the suffering very soon. Do not be afraid that you will not be there when she passes as it is often the unspoken wish of the the loved one to cross the bridge on their own because they can sense the presence of others waiting to welcome them home.
I am now 71 almost 72, I am starting to deal with the issues of aging. My body is breaking down, OA has started it painful progression. I have had two issue with cancer, but it was caught early. Pain and suffering are part of life, we must know it is going to happen. It doesn't make it easy
Deal with it day by day, take breaks from the situation. Let your emotions go. I am sure many of us have dealt with the same issues. Each one of us has a different way of looking at life. I am a realist, I have seen many young people die, too many. That to me is the most horrific tragedy of all. If your loved one has lived a long life, you are blessed.
I almost died at age 46, along way from home. I was lucky I pulled through, You know it's bad when they hospital has called in a priest to stand by you.
I can empathize with what you are going through. My mother was almost completely deaf, with dementia, then was bedridden with pelvic fractures. It was almost impossible to communicate with her. She couldn't even hear us whisper "its ok to go". We used to use a whiteboard to communicate but with the dementia and morphine, she couldn't comprehend any more. But, just like your mother - she knew we were there, so we held her hand and let her feel out love. That is all you can do. Your mom knows you are there.
Your mom would tell you that you are a good daughter and that she loves you so and wished that you would not have to see her in this way.
You need to do something enjoyable so your mind gets some relief from this sadness. Going for a walk, mediate, spending time with young ones could help you remember that there is still joy in living.
It is hard to see a love one suffer.
Why life is this way?
Some say it brings us closer to God.
Yet others question if there is even a God.
I think no one truly know the answer.