I have an 83 year old mother with Alzheimer's disease who is living with us. I am her son in her 50s and she lives with me and my wife. She has had delusions and hallucinations in the past, but we have managed to help calm her down. However, last night she started believing that I am her husband and started to get violently angry about it. Has any other sons or daughters of Alzheimer's patients had this problem? What did you do? It gets very awkward. She is on Namenda, Exelon Patch daily, and on mild amounts of Trazodone at bed time. Previously her Geriatric Psychiatrist has not wanted to give her anything for anxiety or depression. He gave me "smart food" vitamins to give her.
We hear from a good many people who are living with their parent, enduring devastation of their home and family life (which also affects the cared-for person), struggling to provide the skilled care the parent needs - and who still won't even consider the option of placing the parent, not because of practical objections but because they fear guilt.
These people need to hear that there can be incredibly good reasons for throwing in the towel. Understanding offered by others on the forum can help them to accept - where it is the case - that their best intentions to care for their parent will not always make it possible for them to do so. It gives them a kind of moral permission to look at their situation more objectively, and perhaps consider options that had previously seemed tabu but which could in reality improve the quality of life of all concerned - not least the person they care for, with love.
I'm glad you're not in that situation; and I sympathise with your reaction, because my three siblings seem to me to hover like vultures waiting for the moment when I'll admit that I can't cope with caring for our mother at home - they'd have her in residential care so fast her feet wouldn't touch the ground - and I don't find it very supportive!
I'm touched by your belief that the caregiving role will become increasingly shared between the sexes. Don't think I'll hold my breath on that one… But there are some wonderful male caregivers on the forum - if you'd like their perspective, try posting a shout-out to them?
I was actually hoping to get some male comments, and I see almost all of the comments are by female caregivers. It seems like there are mostly female caregivers today, but I believe we will see that change over time.
Just try to imagine how you would react if your wife and everyone else in your life suddenly told you that your wife was actually your daughter and not your wife and to top it off there was a strange man in your house who everyone said was your wife's real husband.
The previous night she started talking about me as being her husband, and why was this other woman (my wife) there in the house, what was my plan with having this other woman there, etc. I guess if this happened again, I would try to get her out of the room with my wife. But in that circumstance, it wasn't going to happen.
I tried to calm her, change the subject, etc., but she was stuck on this subject.
In theory, I understand the need to go along with the delusions and fibbing to go along and keep the Alzheimer's sufferer calm. But when your wife is sitting there and is a co-caretaker sacrificing for your mother, it is very uncomfortable to deny who your wife is in front of her face. We have made many, many sacrifices for my family, my father who passed away years ago, and my mother now with Alzheimers. Denying the identity of my wife just seems like a line that I am unwilling to cross. I know we need to ignore what they say, as they can't understand things, but I just think we still need to have some boundaries in our family to show respect to caregivers as well.
Well, of course, trying to explain things also didn't work. I had a photo of my late father and I, and I showed it to her. I gently and calmed explained things, and I pointed out how we looked different (I have a beard and moustache; my late father didn't, among many differences in appearance.) No, that didn't work.
My mother dug in her heels and started to get violently angry that I (as her "husband") was cheating on her with this other woman (my wife). I didn't fight with her, but I wasn't going to lie about my wife. My mother was violently angry. She said things I won't repeat. But it was embarrassing and awkward. We finally got things calmed down, very late in the night. It was horrible. But I still don't think I would have denied who my wife is. I am sure my mother will get violently angry about other things as well. But I think I need to have some loyalty to the identify of my wife as well. I just don't feel it is right to my wife and the dignity that she too deserves.
The other delusions and hallucinations we have been able to deal with, but this one was really tough. I know a lot of people have said just go along with it, and I understand your point, of course, since that is what I do most of the time.
But to you daughters, I would ask you if your Alzheimer's father decided that you were his wife, and that you needed to deny who your husband is in front of his face, is that really a good idea for your marriage?
I really wasn't comfortable doing that with my wife. Certainly that is wrong as a caregiver. But my wife deserves respect as well. This is a marathon struggle, and I need all the help I can get, including showing my wife that I honor who she is as well.
7 DRUG INTERACTIONS
7.1 Drugs that Make the Urine Alkaline
The clearance of memantine was reduced by about 80% under alkaline urine conditions at pH 8. Therefore, alterations of urine pH towards the alkaline condition may lead to an accumulation of the drug with a possible increase in adverse effects. Urine pH is altered by diet, drugs (e.g. carbonic anhydrase inhibitors, sodium bicarbonate) and clinical state of the patient (e.g. renal tubular acidosis or severe infections of the urinary tract). Hence, memantine should be used with caution under these conditions.
Watch out dementia may be catching!!!!!!!!!!!!! or have you been sampling that wine?
Alzheimer's can bring a different reality to people, a reality that sometimes changes from day to day. In the early stages, comments and visual cues could sometimes bring my mom back to reality. Now that her disease has progressed, I am finding that is usually impossible and often provokes anger. Much easier to try to understand her reality of the moment or where she is in time. If you do that, her actions will often become logical and it becomes much easier to avoid things that would upset her and easier to create diversions that fit in with her reality.
Trying to correct her if she has dementia or ALZ won't help and just frustrate her.
It's creepy, but not uncommon.
You know music is very soothing for people with dementia, depression, really any kinds of mind or brain disturbances or diseases.. Do you know any music your mom was particularly fond of ie classical, be bop, jazz, on and on, you could play that music for her when she gets agitated thinking you are her husband and you denying it, and just hold her hand and rub her back and tell her " Mom it's okay, it's going to be okay, I'm here for you, I love you." I think it must be very scary for a person with dementia, I am positive a part of them knows what's going on, they cannot stop the deterioration so they lash out when confronted by their confusion. If you cannot think of any music she really liked you could buy some soothing meditation music ( I know Barnes & Noble , my fav store, sells those kinds of cds.). You could also, when she thinks you're her husband, divert her attention onto something else, like it may sound silly, but a music box that you wind up and the top moves, or say one of those cute press the paw stuffed animals that sing and dance, she might be interested in watching that. Or you could show her a book of beautiful nature photography or art work, etc. You could give her a big coloring book and crayons and try to get her to color, you can sit by her and color it might influence her to want to color and you can rub her back and tell her she's coloring so well.
As my co-authored article site above entitled, Alzheimer's disease as a 'trip back in time' suggests when she time travels in her head back to your age time frame and you resemble her husband that where the mismatch occurs. As our article suggests they time travel revisiting earlier stages of their life. So that family members who are younger who resemble another family member become that member for the person with dementia. This phenomena also explains why you see AD persons talking to the mirror in their bathrooms. When they are 83 and time travel in their heads back to age 23 and look in the mirror they wonder who is this old woman in my bathroom mirror and talk to the woman. Does this make sense?