This question relates to the recent post, 'feel like it's Groundhog Day'. Sometimes everyday does feel identical to the one before it. The same endless questions; the same belongings "lost" and must be located. In between the same-old, same-old, I look around at the clutter my parents have collected, and won't part with because "It might be useful someday". I think I understand that mindset, and indeed share it in some respects. However, as a merged household -- and the home I will inherit -- I often feel resentful that there's almost no space for my husband's and my things, due to all the unused, "can't part with that" stuff of my parent's. I guess I am the household manager now, but haven't felt comfortable sorting out, disposing of or donating their excess possessions. It's still their home, and their savings/ pensions pay the bills. So, I was surprised by forum members strongly recommending that live-in family caregivers begin sorting through and clearing away the care recipient's belongings. Not only has the idea made me uncomfortable, but I felt I didn't have the right.
If I were to start doing so, I know I would start feeling more in control, maybe even be more motivated to get out of bed to start the next Groundhog Day. What I'd like to know is, should I be rethinking my rights in this situation? Should I start making the decisions about what stays in the house and what goes, because it's of no use to them or to me any longer?
Something that resonated with me on this forum when I first discovered it is the advice that caregiving needs to be a two-way street, a give-and-take, a partnership. That would seem to suggest that you ought to be able not to live in complete chaos as you take care of your parents and live with them.
Would your parents actually notice if you cleared away some junk? And is it a health or safety issue?
My dad doesn't have cognitive issues at this time, but I have definitely gotten rid of a lot of items that I know he has no use for any longer without telling him. For instance, his second bedroom closet that used to be stuffed with a million size medium jackets that he can now no longer wear is now is a home health supplies closet. He has no idea.
Two and a half years ago my boyfriend of 15 yrs and I moved into my mother's house, which is my childhood home and the house I will inherit. My parents had enough stuff to furnish another house and my mother went out and bought things (that she never used) after my dad passed away. Actually my boyfriend and my stuff is in a storage unit because there was/is no room for it. Like your parents, my mother would not give up anything! I found the clutter draining my energy and depressing! And more over, I too didn't want to get out of bed! There was no room for us at all.
The feeling, the thought of going through their things ( yes you read correctly, my mother kept a lot of my dad's things) felt so wrong! I can't even find the words!
However, I changed my thinking! 1) Living this way was/is not healthy on any body. Not only does it drive your emotions down to no mans land, but it just sucks the life out of you. To move this to get to that. Looking for something that got miss placed...oh wait, it didn't have a place for it! Most of all, you can't really clean anything, because you either can't get to it or stuff was on it! So it becomes a physical health problem too. 2) I am going to inherit the house with all the crap inside as well. I had to ask myself, what will I do when mom passes? How long is it going to take me to clean this big house out and get it liveable for my BF and me? What should I keep? What can be donated? What can be sold to help with repairs? Because the house got full no body could do any repairs in it! These are questions you need to start asking yourself.
First thing I did was pick a spot and cleaned it out. This spot for my boyfriend's work apparel. Our bedroom was cleaned out before we moved in, however, that stuff was all over the house. Secondly, because we use our basement as part of our everyday living area ( which was full except for a pathway. We started with the basement. My mother doesn't use the basement that much. Stairs have become hard on her. We just start to go through stuff and put things into totes. Didn't ask and didn't say anything to mom. Here's why? She would just say, I am going to use that some day! I want to hang that picture on my wall ( there is no place to hang it on her wall). We couldn't even get to our bathroom in the basement! After we put things into totes we stacked them in one place. Yes, we threw away anything that was broken and can't be fixed, unusable. After my mother seen what we did she went into shock her anxieties went up, but I took her to the totes and showed her here are your things., and I expain that we couldn't get to the bathroom or dad's paint room, now we can! She said, " oh well that will make it easier for--my BF name." "It looks so much better!"
See where I am going with this.?
By the way, we are down to 2 of those totoes! I had her go through them. You start off with small things and you explain and keep explaining how you and hubby need your space. How you can't keep living this way! Give your feelings a voice. Also, tell them that you want to do it with them not to them. You have to get them to see your point of view.
Because humans are good at adapting to their environment they feel everything is good that way until you show them a new way!
I am not saying to do a huge clean up in one hit. Nor am I saying to disrespect them. It's a little at a time! You will be surprise how much they won't notice things missing. I have notice and did some research elderly people have tunnel vision. ( most of them)
As far as they pay the bills, offer to pay and to do some of the repairs. Even if they are just small repairs!
You have my deepest condolences. I for one know what you are feeling and going through. It is hard enough to see our parents decline, and try to take care of them, but to live in a house were you feel uncomfortable, and the walls are closing in on you makes it that much harder--unbearable!
Good luck!
She also has more pots and pans and bakeware than anyone in our family needs. She will only wear familiar clothes (things she's had for 40 to 50 years) and both parent's clothing are full of holes, underwear included.
There are books and magazines from ages past with print too small for me to read now. Financial records going back 10 to 20 years. And this is after my brothers got together some 10 years ago and completely cleared out the large, packed attic!
There's canned food and cookies/crackers in the cupboards with Best Before dates of 2005.
I did a big initial clean up when we moved in 2 & 1/2 years ago, trying to consult them on things to be sorted out. My father didn't care about much, but my mother balked at EVERYTHING. She couldn't part with the bathrobe that was so ripped and torn she struggled to locate the right "hole" for her arms to go through.
You seem to understand better than some members of this forum what I'm facing, and I appreciate that. Part of the reason I've put off doing any more organizing, is that I've been so focused on respecting my parents values and possessions. But I see no option but to start donating or disposing of things they'll never again use and won't miss. I grew up in this house, live here again and expect to spend many years to come here. It's time it actually felt like home to me again. Thanks.
What my mother and I did was box up some of the treasures, date the box and move them to the garage. The next year, if the box hadn't been opened, we donated it sight unseen to the Goodwill.
It was a slow process and she will occasionally mourn those "beautiful individual soup crocks you made me give away" (Bought at a garage sale, held for 20 years, used zero times!)
This is just how I feel and not meant to be fodder for argument or rebuttal.
Not to mention the nuisance and waste of time. And to play devils advocate,
what if they needed their phone to dial 911 but couldn't find it under all the clutter? Or were so busy and stressed looking for a misplaced item they forgot
something on the stove?
I spent years clearing away my father's clutter, he almost never missed anything
and the few things I got rid of that he went hunting for were easily replaced.
Which is basically for me the rule of thumb for decluttering. If it is replaceable
and not used out it goes. If it is something collectable or hard to find I'd put
it into storage. As my father was extreme fall risk, I really had no choice. He
hated it but didn't miss anything except a couple of DVD's which we promptly
repurchased.
I am a caregiver, part of my partner's illness was loosing our home with 0 warning to me. I left with my dogs, and clothes on my back and a few (I mean a FEW) boxes. I had a house full of a LIFE TIME of things, and things that had belonged to my mom and dad too. All those memories, gone, not by some storm, but by the act of a then undiagnoised illness.
Maybe an investment in a pod or storage shed out back, or even a rental storage unit would be ok for now. I MISS so many things, stupid things, I can, still, years later flashback on these items. Each held memories. And Im in my early 50's. I picture it on the curb for the trash and it STILL breaks my heart. Do some organizing, sure, especially those clear tubs. They can go a long way to make extra space without tossing stuff. (Unless we are talking about that 100 year old couch that no one sits on-that can go). Otherwise my vote is DO NOT MOVE IN YET. IT IS NOT YOUR HOME YET. Appreciate the "free rent" and respect their space. If you were my child and started tossing my stuff, you would be dis inherited to having my home. Death is not a Fast food, hurry up, I want your house thing. Don't be a vulture, be a pack rat.
I agree that sorting things into plastic boxes is a good idea. Mine have wheels but still stack, three boxes high holds a lot, and the stacks fit very neatly next to each other. You can put a contents list inside each box visible from the outside, or just put an item that makes it clear what’s in the box.
While you are sorting ‘treasures’, like the things Ahmijoy talks about, ask for the story about what they are and write it out to keep with the necklace (or whatever). If you don’t have a printer, take it to a shop and get the print-outs so that they stay with the items. Children and grandchildren will find that much more interesting than just the item with no history, and your parents can enjoy telling you all about things and seeing that you value them yourself. Of course it will be slower, but it has a long term value. They can be kept long term, because they become more interesting and valuable as they turn into ‘history’ rather than just ‘old-fashioned’.
The chances are that your parents will agree to donate or chuck some things as you go along, if they don’t feel threatened that it will lead to wholesale destruction. If you don’t find a box full of washed plastic bags, you will be in a small minority. If there are things that you (even your parents) think are only may-be’s, keep them in a separate box from the ‘definitely keep’. That will simplify your job when you do the final sort in the future.
Have courage!
My favorite time was when he was in the hospital. I really got the junk out. But that's all I threw out-junk- pens that didn't write anymore, week old newspapers and the moldy, half eaten dinners in the fridge that were "too good to throw out." Anything broken, unusuable or obvious garbage went.
But, as for things that were purpously saved by him, I took much more caution in chucking out. It may be something I might want to remember from him.
Make sure it wouldn't have some hidden story or unknown meaning. You can't get back what you've given or thrown away.
I have been staying with her in her house in preparation to move her closer to family in another state...then she fell. So, we have had MANY disagreements/arguments about all the things that have been tucked away for decades (literally) but must keep. Then my ever-so-smart daughter said..."so what? it's not hurting anything if she keeps what she feels is important to her, she may be more willing to downsize more at a later date".
Though we are not dealing with clutter, it definitely has been a learning process for all of us. Out of the 10 sets of sheets and cases we agreed to keep 4, 20 scarfs went down to 6, I was only aloud to get rid of 8 of the dozens of various sized empty plastic and glass food containers, but it's a process. We either pack or put away her treasures and move on to the next drawer, cabinet, box, or corner.
I hope you are able to find a compromise that is suitable everyone...keep strong!
when dad died 2 years before she had us put most of his things out for pick up with in a week of his passing, so I wasn’t as guilt ridden when we talked her into a tag sale and enticed her with the money it would bring.
She occaisionally ask for things that are gone and complains about all her losses, but I can’t do clutter and I resent the mess that came with her as is.
you need a tough partner to help and stick to your guns. Sometimes you just have to say hey I just don’t know where it went and cross your fingers and keep moving on.
good luck.
I would first define space for you and your husband. Space you are responsible for keeping clean and tidy. They may be inspired if they see your area!
I have had two situations happen. My brother and I threw out a lot of my mothers things when she first became ill without her. She was mad at us and still talks about it. So the second run through I included her. The second run through took longer but we could talk her threw each item.
Are they open for downsizing? If so, do it while you can! I would let them know you want to know the stories behind their possessions. In my opinion, it is best to do it while they can have input. Some stuff you probably don't know if it is valuable or not or if there are memories attached. It is very hard to go through loved ones things when they are not their to tell you what matters and what doesn't.
One pile at a time, start with three bins, bags or whatever. One for trash, one for keepsake and one to sell. I like the idea of jotting the story down behind what they feel needs to be saved. Throw away the trash and sell the stuff for them. Maybe they will be encouraged by the money?
Don't put huge exceptions on them the first run through. They may keep a lot the first run through. Say after six months if you do it again they may see the stuff is not being used and just taking up space they may be more open to getting rid of it.
We asked questions:
Would you buy it again?
Is it valuable?
Does it have significant meaning?
When there were 50 empty plastic medicine bottles that she wanted to keep we compromised on keeping 5.
It can be a slow tedious process but so worth it in the end. It helps to know where important papers are as well!
Good luck!
Pick 3 items & turn them backwards then note time & date .... if after 3 weeks neither notices then they won't notice that it is in storage & something of yours is in its place - but don't throw it out but store in basement etc
I am in a similar situation. My charge, brother, is in a NH and I put his things in a storage locker. He has progressed to advanced dementia. I am now not feeling guilty about sorting his things because he has no idea what there is. I take things to him periodically and he enjoys them, but doesn't necessarily remember them. It is a tough situation. My goal this winter is to be rid of the locker. I know in my heart there is nothing of value - just his life and memories for the family. :(
my trinkets, Maybe sit down and talk to them. But really are they sick, or what??
That is the first question why?
The clutter didn’t get there overnight, so it won’t disappear overnight either. Try going through ONE area at a time... a drawer, a shelf, a corner of a room. You will have a jump start on the inevitable-
I understand, as I had to empty my parents house of 53 years (full house plus an attached in-law apartment) in under a month from 120 miles away. The sheer distance made it impossible to save anything that didn’t fit in my trunk. A moving van or storage facility didn’t make sense because we weren’t “moving” anywhere.... and had no place to put the stuff.
You will feel better knowing that you “started” and are moving in the right direction, no matter how long it takes.
So, just think of it this way. It will eventually have to be done. We may as well get a head start, because after this care giving journey are we really going to want to be trying to decide what to keep or not?
If they will be very upset though, maybe you could discuss putting some stuff in storage.
It is still their home and you chose to move in to help. Maybe this should have been addressed prior to moving in. Whatever the situation is for you - I don't think it is your right for you to get rid of their belongings. I would discuss the clutter and include them with the "reorganization" of their home. That seems to be a must for any caregiver being a resident with them. Also the danger of falling is increased dramatically with clutter everywhere. Good luck - and have patience - you have support.