When she is in the bedroom, she wants us to move her to the tv room. We have to transfer her, as she is missing one leg, and she is a good size. I have no problem moving her, but as soon as I move her, within 10 seconds, she asks to go back to the bedroom. When this first started, I transferred her about 20 times in less than an hour. My dad and I are now at the point where we will not, and can not take her back and forth. She then screams out constantly, "please, please" then "help me", "I promise, just one more time". It is completely exhausting. We actually had the neighbors stop by yesterday because they heard her screaming.
If it's not transferring her, it's something else. She can't go 1 minute without calling for help. Half the time she can't remember why she called. Other times it's for something silly, like take one blanket off me (stuff she can do herself).
We are looking into a 24/7 care facility for her now, but I'm wondering if anyone else has had this occur, and if anyone has any suggestions on how we can calm her down. We are at our wits end. This disease is nasty.
A bit later I looked in the front yard and saw a poor misfortunate passerby moving the swing yet again. Sigh. She hasn't set in the swing since that day.
Michael, I think what we're really seeing is an unhappiness inside, and they are looking for something they think will make it better. It doesn't work, because it wasn't what was causing the unhappiness. I don't plan to move the swing again. It is one of those big ones, so not so easy to move.
Another possibility is a short term stay in a psychiactric hospital to find the right combination of meds to calm her. this would be a faster and better way to get the right meds, and it would release the minute to minute burden off you while she settles. This is a hard decision to make though, but could be so worth it for you.
Angel
Angel