My mom is almost 92 and in the final stage of Alz. She is completely bed bound, cannot move on her own, incontinent and non-verbal. She has started developing bedsores, the worst is on her butt, but now has one on her hip and starting to get them on her heels. We try to change her position as much as possible but she is in pain on her side and always falls back to lying on her back. We are using patches, med.ointment, position changing and keeping her clean and dry. She also seems to have trouble breathing on her side as she winds up getting face down on the mattress or pillow - we use props to keep her in place but again she still winds up face down. We are using an air pillow to relieve the stress on her butt, but now she is developing sores on her hips (lying on her side) and on her heels. She cannot move her arms or legs so we do that for but her joints are freezing up. Any ideas of what we can do to help her? Her nutrition is poor as she no longer wants to eat, so we keep her hydrated with home-made smoothies (yogurt, fruit, juice and her meds) as this is something she will take. Does anyone have any ideas of what else we can do for her? She is at home under hospice care.
I took very good care of her......including special mattress, bed, reposition, etc.
Our scenario is almost exactly like lindaz
Presently, I am trying to reposition my MIL etc but the whole process puts more stress on her skin. Just moving her position disturbs that already delicate broken area.
I truly care about her comfort.
What's the most comfortable thing to do?
After all these years of care..... I worked so hard to help her always and now I feel like a failure.
Any comments about my worry that re-positioning is also traumatic to the skin...........so..........what to do for maximum comfort?
The first thing to remember is that IT IS NOT YOUR FAULT if you have been following all the instructions given. People who have no experience of bed bound patients are very good at pointing the finger and saying the caregivers are negligent. Yes there can be negligence both at home and in healthcare facilities. But the original poster is doing all the right things and has the support of hospice. So everyone drop the guilt and make sure your loved one is given something to relieve the pain.
On my laptop, I created some Microsoft Word notes..like caregiving tips... dysfunction.. boundaries .... AC Funnies ...etc..I highlight, copy and paste the comments or the website location (www.agingcare.com/questions/....) It to my Word note file or to my kindle note app.
It is one of the best thing I did when I found this site about 2 years ago. I have fallen back to these notes when something comes up with dad. The stage that he hasn't reached, and now he is, I'm so glad that I can find it in my laptop notes to quickly take me to that exact discussion thread 15 months ago but not active today.
It sounds like your mom is nearing the end of life. It also sounds like you are doing everything you can for her, and that's all you can do. Keep her comfortable. Give her fluids. Sing to her. Hold her hand. Touch her. Rub her gently. Kiss her. Hug her. She can't talk, but she can still feel.