My mother was not a narcissist or abusive etc - she was decent. She was not the greatest and my brother's wife always points out her flaws but to me she was ok....my childhood was actually good. After raising my kids and knowing what actually goes into motherhood, I feel mom did her best.
Yet, I have started resenting her now that I'm caring for her. Some of you know my story of getting mom from India. Yesterday I had replied to one poster whose mom needed help with her passport. My reply to this poster got me thinking that even good parents are resented when dementia sets in and they depend too much on their child. Anyone here feel the same way? This resentment is now pricking me suddenly.
((I know mom needs to be in MC etc but since mom has not worked here and is a recent arrival, she doesn't get any Medicaid/Medicare for another 5 years at least and we are using our funds to pay for her pvt insurance.))
Yesterday I had taken my inlaws and mom for a small outing to a store which was not crowded. Mom was sitting and then stood up when she couldn't see me. I was in her view most of the time but stepped away for a minute. FIL rushed to me and said "ur mom is standing up" and I was like, "wth? Can you not tell her that I'm in the next aisle" This burden of being the point person for even minor things really annoyed me for a minute.
Btw, my ILs are awesome and I'm really grateful to them.
I think anyone that is "tied down" at some point feels resentful.
It is a loss of freedom in some respect. I can be perfectly happy staying at home, doing things or nothing at all around the house. But my car has a problem and it is in for service for a few days and I go stir crazy. I loved my Husband VERY much but there were times when I did not have a caregiver for an extended period of time and yes there were times I felt resentful.
We all have to learn how to "handle" the person with dementia. Maybe FIL did not know what to do when your mom stood up looking for you. If he was right next to her he might have been able to stop her from standing. He could have reassured her that you were right there. Was either of your In Laws talking to her? If they were talking to each other and ignoring mom I can see how she would feel alone.
Your mom will shadow you because you are the one she relies on, she knows so expect that. But do get her used to having someone else help out.
Can you get a caregiver to come in and help out a day or two a week? That would help you. And please don't forget the rest of your family husband, kids if any, they need just as much attention as mom does.
My kids are young adults and I'm an empty nester now..I do my best to be attentive to my husband & ILs...thank for your advice:-))
There's not much you can do other than hire some in-home caregivers to help with her. Or see if family members will take her different days of the week to stay with them to give you a break.
My Mom too was a good Mom. But I was always the "go to" child. Girl and oldest of 3, 2 boys. I can't do needy. I too don't like someone relying on me fully. Its part of the desease, though. Be thankful you have in-laws who are willing to help and can still care for themselves. With your job you can at least get out of the house.
So, how to find balance? You probably know all this already, but it works. You need to take time for you and push all responsibilities and possible guilt aside, and live in the moment. Appreciate the moment, whether it’s grocery shopping, or having that cup of tea in silence. Far too often we reminisce about the past (good times past, past wrongs, or past mistakes), or we stress too much about the future (what do I do if…, how do I keep my cool when…). However, how often do we stop and focus on the here and right now? I find that mindfully doing that whenever I can helps me compartmentalize my responsibilities to so many people, and I can more easily push it all aside and just think about this exact moment.
Best of luck finding your balance.
I got upset because I hated how FIL just expected me to run to mom because she stood up! He could've assured her that weary is just in the next aisle
I also wanted to hear from people if they hate caring for parents who are good people and not monsters. This intensity of being the be-all for an ailing parent is just too much.
I'm still in shock and disbelief that mom has dementia exactly like her father! And I have to hold her hand in this long, painful journey..smh....
Netflix and Prime video are good distractions sometimes:-)
I'm an only son. My father passed away almost 21 years ago. Not only was my mother dealing with the aforementioned issues, she didn't drive due to the seizures. So I became the "surrogate husband", taking her on errands and to doctors appointments. We lived close so it was okay. I had a demanding career and knew my Saturdays were gone but still made time for myself.
We all moved to another state in 2006, and I arranged for my mother to live in a 55+ community. She had friends there and someone I hired to take her on errands so I would simply visit on Saturdays. The pressure diminished temporarily. She was 25 miles away but I always made the drive.
4 years ago we moved her to into Assisted Living. She was fine there for a while but is now in the "transition" phase of hospice. There are days when she is incoherent and only drinks sips of water and days where she is lucid and hungry again for solid food. To avoid resentment, I don't make the drive every day but know she is in good hands and there is nothing I can personally do to make it better. I visit a couple of times a week just to let her know I care and say my potential "goodbyes" just in case.
I do have some resentment for being responsible for her for 21 years. I could have been living in a mansion for what I've paid to Assisted Living and I've given up so much of my life when I know children of elderly parents that see them maybe once a year But in the end I know it is my responsibility as her only child to see that she is comfortable and happy until the end of her life. Again, there is absolutely nothing wrong with feeling resentment from time to time. You are clearly doing everything possible to take care of your mother.
I am an only child, so there is no one else who can take care of mom. Her brother-in-law and sister each stay with her one night a week so I can get a break. We also have an overnight caregiver for her two nights a week, so I do get a bit of a break from her. But the responsibility is always there, it never goes away and I do resent it. Sometimes I get very angry at her for not having planned her life better so that this wouldn't happen. I also resent the expectation that I am the one who must take care of her, and I think that's what you are reacting to when your in-laws came to you. I suspect there's a strong cultural component here. I am not American in my culture (most every culture actually) it is women who are expected to take care of elders.
Is it possible that your resentment isn't so much towards your mom but this cultural expectation that it is your responsibility to take care of her? Whatever it is, I just wanted to give you some reassurance that you are not a monster, or an evil person. Your feelings are valid and they matter. It is inevitable that you will have these unpleasant feelings frequently during this journey. My mom also has dementia (I should have said this sooner) and this evil disease really complicates everything. I often find myself wishing that she would die soon because really I don't see that she has any quality of life now and it is only going to get worse.
In the example you gave about going to a store, what was wrong with your mother standing up? Was she in danger of falling or wandering off? It sounds like your in-laws were with her, so she was probably physically safe. If she is distressed at not seeing you but is actually safe, don't panic that she might have a few minutes of anxiety.
Dementia changed my Mom. She went thru so many changes. From, accusing me of stealing from her to saying I was an awful person and all my brother and sisters think so too. She would spit on me, call me filthy names, swing at me etc. I began to almost hate her but for sure I resented her for a while. Today , when I leave the room she begins yelling, Help me, Help me until I come back into the room and she can see me.
I do not resent her anymore. Nor do I feel anger or dislike towards her. She is calmer now. Loving, fun in different ways now and quite effectionate. The stages of this disease change. For a long time I have felt guilty for feeling so badly towards her.
Its not her fault. I live in my childhood when it comes to her. That's the Mom I will always remember. It's my childhood memories that keeps me from resenting her now and give me the strength to continue to care for her.
Your feeling of resent are normal. I hope it will pass someday.
What you are feeling seems totally normal to me. We still tend to think of our parents as they were, our carers (whether good or bad at it), and it's really hard to have the roles reversed, especially if you are also helping out with grandchildren, as so many of us are these days.
My mum sadly *does* seem to be a narcissist and was never independent or proactive, and I find being responsible for running the life of someone I've never felt close to extremely difficult. Recent blood tests show my stress hormone levels are far too high, but what can I do? Society expects me to help my mother and I would feel guilty if I didn't, so no gain there!
I have had counselling and try to go walking in the country to calm myself. I hope you find a way that helps you.
I totally understand where you are coming from.
I would recommend having a talk with your inlaws and explain that they would be helping you tremendously if they would address a situation with mom when they see it. Like telling her, she's okay, you are just on the other ailse and will be back in a moment.
Sometimes it is hard to believe that adults can not know how to deal with a simple situation but, it is a balancing act to find where to step in and when to find you. Encourage them and give them ideas how to cope with her. I bet it helps everybody. Dementia is so confounding when you 1st encounter it.
Remember - breathe and find the humor. I bet you FIL never dealt with his kids "issues" either. :-) I can hear him now, mommy little man child has pooped and is looking for you, aaaahhhhh!
This message board has really helped me too. Prior all I read were these loving messages and thought why don’t I feel warm and loving towards her all the time. This board has really helped me to know I am not alone. One day at a time and often one hour at a time. God bless.
Something I have to do now (and feel free to laugh, because this is so incredibly bizarre and nuts) is take the cardboard core out of all the toilet paper rolls at her place. I had no idea they would be so hard to remove without messing up the roll. I have to do this because she developed an obsession with flushing things down the toilet. She cut up a core in pieces, along with other things and flushed them. Plugged up the toilet several times.
Then, I feel guilty for having so many negative feelings.
You are not alone.
Just a little suggestion: I won't take my mom to the store anymore and maybe those trips need to be just a little break for you to concentrate on just doing what you need to do without the added burden of the hyper-awareness of taking her with you. If she likes going to a store, a specifically planned trip where the focus is only on her looking at things might take away the tension. My mom likes going out to eat, but now we can't even enjoy that much anymore because we have to worry about her not making it the bathroom in time. We have either cut down or cut out things that cause us even more stress, and 10 minutes later, mom won't remember whether she did it or not. This caretaking job is mind-numbing.
Yes, feeling resentment when you have to answer every issue, especially when there are 3 other adults around is expected. People get tired and your words were very unkind to someone that actually stepped up to bring her mom into her home because she wasn't getting the care she needed in another country is just unfair.