I don't often see posts where the adult child gave up their home to move in with their parents to help care for an ailing parent, yet this is what I did. I felt it would be easier to not uproot my mother, who is in the early stages of Alzheimers.
The problem is that my father, who is healthy and active, feels that I should "wait" and take over care for my mother after work and on weekends in exchange for free rent. I'm not exactly living free as I pay for their cable, groceries and storage fees for all my furniture from my own house. He doesn't allow my mother to do anything. I feel that it would be good for her to help prepare dinner, as much as she is capable of, such as stirring a pot or making a salad but he demands she sit down so I can "serve" her (his words).
This was not the arrangement I was expecting! I'm basically confined to my bedroom, expected to watch my mother whenever my father goes out after I come home from work and weekends and give up all social life. I have to justify every time I'm out of the house and say when i'm returning. I'm feeling alot like Cinderella! I hired a housekeeper that I paid for so I wouldn't spend my weekends cleaning but that idea was rejected after only one visit.
I can't go out, can't go to church and feel trapped. Yet, my father isn't capable of caring for my mother 24/7 and her health was in jeopardy because of that before I moved in. My dad is stubborn, demanding and is difficult. He will not consider live in help, visitng help or even talk about her future care needs.This is his home, his rules. I'd like to move out but even if I do, the situation of my mother not being able to be left alone still won't be solved so I'll still be expected to give up my free time. Any advice?
I can say here that I did expect my sibling would kick in some financially, I pulled my 401K, lost my health insurance, and am now in the beginning phases of most likely losing my own home to foreclosure because my realtor took such a low key approach to selling it, even though I have greatly reduced the price.
I never get to do anything, have totally given up a social life, have gained weight, and have a lot of moments of feeling bad for myself...
Would I do it again if I knew then what i know now...ABSOLUTELY!
Through a LOT of prayer, and those moments where Mom is able to talk to me, which are rare these days as she now has advanced alzheimers, I cherish each moment and as long as she is happy and feels good, I hope it continues for a long time...I want the time with her...
While I have a lot of moments where I get angry, sad, depressed (I was on here just a few nights ago ready to throw in the towel) but all in all, what I am saying is...I do bounce back and the highs are so very worth all the lows.
I love my sibling, but he does not have a clue what this is like. But I finally don't care any more. I expect nothing from anyone and I am therefore not disappointed. I make myself happy in whatever way I can, whether it is a little sewing project, some gardening and I am even teaching myself to paint via you tube videos...
I think maybe God knew I needed my Mom as much as she needed me. For now this is my life. Some day it won't be. Everyone however is different. All I am trying to say is you will find your way I think. And what I keep reminding myself...one day at a time....God bless you...
It feels overwhelming so I will take one "battle" at a time and try that instead of making sweeping demands and changes. I'm trying to be respectful to them as I am to myself. I hope I can and still accomplish what everyone needs==which is help for my mom and some free time ("life") for myself.
With all that everyone is coping and dealing with on this forum, its such a blessing that you all take a moment out to reach out with support to others. :)
OK, that said, you are a bit behind the eight ball. It does not sound like you have a really great chance of shifting the balance of power and negotiating from a position of strength. e.g. "you let the housekeeper in so I have a little rest and respite, or I'm gone, Dad, to save my own sanity and health. Sorry, but that's the way it is." Any chance someone from your dad's church or someone medical that he respects (I WISH he respected YOU but wishing will get us nowhere, will it?) could talk a little decency and sense into him?
Whatever that is, needs to happen now. GO. No one can handle working and then, being a waitress and nurse, 24/7.
What I've observed and what I now remind myself is to break things down in to do-able parts that contribute to the big picture.
1. Your mother's care needs
2. Your Father's (or others involved) definition/expectation as to how things are to be done
3. The relationship you have with your father totally aside from this situation.
4. How you are defining your self and your needs at this time in your life.
5. Your Father's needs related to coping with the transition
1. Get qualified opinions: Diagnosis/Doctor, Case Manger, Home Care evaluation, and your own care giving skills and blend these with your Father's expectation. Never say: I am doing this because (so and so) said this is the way to do it. You have to decide what advice to include and own it.
2. Find out what he is doing during the day for your Mom. Collaborate with him. If he is doing nothing, then find small doable ways for him to participate in her care. (He may just not know what to do and is too ashamed to admit that he is insecure about his ability).
3. Now is the time for your transition form Daughter to person. This is a big leap it can happen suddenly with a major life event where your parents put all their faith in you and hand over the wheel or slowly like giving up your home to help family and then battling it out to see who can outlast the other. Hint: your Father is aging, if everything goes uneventful you will outlast your father only at the cost of being miserable for the duration. If you want this to be a "fair" business exchange then treat it like one. If he wants you to do something his way and it does harm the situation then do it. An employee would do as their boss asked. And, the same goes for time 8 hours/day, 40 hours/week, keep money matters very clear, quantify the rent against your time spent and keep the books on expenses you are paying. Give him a number. Men understand paychecks. - I suggest introducing this in a weekly sit-down to discuss how this are going and scheduling.
Your Father takes off when you get home. He doesn't want a housekeeper. He doesn't want outside help. - These are probably old habits, he took the same stance with your Mother and again maybe insecure and doesn't want spectators. He want to treat you like his daughter and like his wife. You are neither in this situation you are the caregiver. You nee to use some tough love. Be clear about your assessment of the situation and inform him of what you believe will work because this doesn't work. If he can't cooperate. The deal is over and he can deal with Home care agencies and visiting nurses when you take yourself out of the care picture, on his own. You are not an emotional hostage. Be clear and strong. Would you work for a boss that mistreated you?
4. Evaluate your own needs. Include the essentials and then add the respite and rejuvenation. When you start to feel like everything is getting done and it seems easy then you have hit the mark. Things will have to change in your life and it sounds like they have already and you need to prioritize and keep aware of what comes later.
5. Your Father needs support. He may be coping with it through escape, drinking, and other distractions. He may have some medical affects too. You aren't just caring for your mother you are also caring for him and the best way maybe to get him support and medical treatment.
Final thoughts about your huge step to move in. Live in care is very expensive. Room and board is only half of it. The cost of rent is not a convenience to you. It is a convenience to your parents. Now if they are in financial need then pooling your resources is logical. but if your father is thinking like you are a teenager with a job then you need to educate him. Not having a place of your own is a sacrifice for you and is worthy of compensation. If anything you should be getting some cash in return. You are going to have to get real world dollars and professional standards with your Dad. Do a little research how much care cost in your community? How much time you spend? And, decide what you think is appropriate. And finally, you are right on with having your mother help do things. This is occupational therapy and will keep her mind active and maintain her sense of purpose. Include her as much as possible. Your father needs to be educated and it is up to you to help him understand what is best for your mother.
Also, 24 live in care by one person is recipe for disaster in my book. Everyone suffers and things get messy. Luckily you work outside and i suggest you keep doing working.
In a book called ZAP! I believe, I saw a maxim I've never forgotten: when you can't do things, remember NOT to do them, so the undone work shows up and it becomes everyone's problem to get it done. Hope I'm stating that clearly, it's a very useful concept. :) And I agree, you're a very good daughter.
This is something I found hard to grasp with my own parents. They do not remain healthy and independent.
They grow older and less able.
This is unlike children who grow up and become independent. Our parents will become more and more dependent. Your parents need to get outside help that they are accountable for, not you.
They most likely don't like to think or talk about it getting worse, not better. So, you are left alone to face the challenge of figuring out the solutions.
From all of us here, who have done this or are doing it right now, you MUST take care of yourself. They will not be able to take care of you. Only you can do that. You can be loving and kind, but do not give up your life.
I'm happy that you have friends and are going to church.
Try not to be the only one who compromises. Really, your mom and dad need to be thankful to you for being there for them. Your able hands will become more and more important to them. Stay healthy and strong now, so when you are needed for emergencies that inevitably WILL come up, you will be there for them.
Also, one day, many, many years ago I suggested that my mom, dad and I travel together. My father's response was, "you can't afford to travel with me. You could be my nurses maid, but that would be it!"
I was very thankful for that ugly response. While I COULD afford it, what I learned was his perception of me. Even though it wasn't a good perception, it warned me away and I kept my distance. The unseen blessing at that moment was that I kept my independence and had a life of my own.
I hope you are able to step away and keep a life of your own. In my opinion, I think you are right about encouraging your mom to help and stay active. It's a big adjustment for them to see you as more than their child. You are a loving family member who they will grow increasingly dependent on. They just don't know it yet.
Some of your time should be spent analyzing what kind of help they should be hiring. Do NOT try to do it all by yourself.
Lovingly, step away... and live your life.
Help care for your mother from your own base.
I know people with absolutely abysmal credit who manage to rent apartments or rooms. It won't be ideal but it won't be forever.
Again, thank you all so much for your ears, your shoulders and your support.
Since you both seem to be strong churchgoers, ask for help from your priest/pastor/imam to get your dad to get the additional help your mom needs. I imagine your dad is really feeling stressed/out-of-control because he can't "fix" your mom or figure out how to make things right. He needs you more than you need him, but getting him to acknowledge and act on that will be the hard part. I would think your faith leader could/would/should help with that. So reach out and look for help from other outside sources. I believe help is there, you just have to start investigating and asking for help.
If you want to go to church on Sunday morning with your dad, get another caregiver in. There are many agencies that you could contact. Another suggestion would be to find a geriatric care manager to come an do an assessment of mom's and dad's needs. It would be money well spent. As far as leaving mom for an hour or two, this is where the care manager would come into play. That person will be able to help you determine whether the alone time for you mom is appropriate or not. It often helps all family members look at the situation differently and in a way that is best for your mom. Impartiality.
On the vacation, just tell dad you need a break and that you will help him to line up care for your mom.
However, the stalemate is going to end. I've decided to compromise and start going to Saturday night service. Its not worth the power struggle anymore. This will probably become my weekly "night out" since my service is nearly 2 hours long plus travel time. Church is very social and uplifting and I miss it.
I've decided to take a much needed vacation next month--and booked it! It requires a plane so I can't back out now.
I haven't broken the news yet lol Any suggstions?
PS someone asked their ages: both are in their early 80's
You need to get out of there. You may be getting a roof over your head, but it is far from free rent. You pay groceries, for the three of you I assume, cable, maybe utilities too? In my area a live in caregiver is paid $4,000-$5,000 a month. This includes room and board. And you are paying other bills on top of that. Granted you work, so I'm guessing you are not there for 50 hours a week? Check out day programs in your area. Make it dad's responsibility to take mom there, then share the other hours of the week with him to care for your mom. In my situation my siblings would love for me to pay rent to my mom, though my mom would never do this. Siblings are only concerned with what remains of assets when mom passes.
It also sounds as if it would be an excellent time for them to move to assisted living. Your dad could get the help he needs with her whenever he needs it. And the sooner in the dementia process that mom moves will be easier for her. Just make sure the facility also has memory care so you do not need to move mom again. Then get your life back. Have you thought about a roommate situation for yourself? That could be another possibility for you.
You mentioned church, that would be a good place to look to rent a room. Maybe if you save up a few months rent, so you can pay in advance, they will overlook your credit score.
You don't mention your parents' ages but trust me, your Mom will only need MORE care. Your Dad won't be able to give that level of care and if you lived there even the 2 of you would not be able to handle your Mom. DO NOT give up your job.
Check 'alternate' housing opportunities. Shared apartments; private home arrangements; etc. Go to church this weekend and check the bulletin board. You may find housing inquiries; caregiver seminars; etc. Perhaps a few counseling sessions may be helpful. Finally, be strong. If your Dad begs you to stay and promises things will be different, don't believe him. Keep us posted.
Eventually I found an apartment complex that had "income guidelines". I thought this mean HUD or Section 8 and my mind snapped shut but out of desperation I looked into it (I didn't qualify for HUD or Section 8). When we went to the complex for a tour I saw lots of older folks coming and going. I asked the manager what exactly were "income guidelines" and she told me in order to be eligible I had to make at least X amount of money per month. And that the "income guidelines" were, like, elder-speak for a community with mostly elderly people. I am not elderly, I was 44 when this was going on.
There are places out there. I didn't trip over this one the first time I started looking for a place but I came across it eventually. People with bad credit get apartments all the time. They get houses. The manager of where I am now, the "income guidelines" place, was not allowed to discriminate against me based on age (as she told me later) but most people my age don't want to live where there are "income guidelines". As for me, this place suits me just fine. It's very quiet and peaceful and my neighbors are all lovely elders.
You can find a place. You're not stuck. Not yet.
Regardless of fairness, when you live in someone else's home, you live by their rules It is unfair to think that you can wait on someone all the time other than you work hours, but it will only get more demanding and she will eventually require 24 hour care.
Your dad is a different generation and mindset.
However, I do have to say one thing, you went through a short sale, a process that required approval from the bank, the alternative of which is typically foreclosure. I do not think your poor credit rating is a result of your mother's illness or your father"s controlling nature or your kind offer to help.
While you are at Dad"s save money, to get your own place. Stop paying storage consider selling items if you need to, or renegotiate with dad to store some items in another room....you had siblings, so maybe there is an unpopulated room? Offer help on your terms and grab the reigns to get yourself to a stronger positon. This situation will not improve, you need to change it.
If credit is an issue you may be able to find a room to rent in a house.
You are not a bad daughter, this is just a very difficult situation and you can become consumed by it.
Good Luck.
L
It is easy to say to leave, but we know that we are the base of the fragile stack of cards. Without us, all the cards would tumble, leaving trouble for everyone. So what do we do? There are no easy answers. We just have to do one small thing at a time.
My mother thought my father should be waited on. She did that until he died two years ago. It was rather sad. He spent the last 20 years of his life looking out a window from his chair. It was so hard to watch him slowly decay while she waited on him.
I know she expects the same thing from me, but I've already let her know that is not going to happen. When she says little things, like she needs water to take her pills, I tell her that she will have to get up and get it. I know that if I start doing the little things, pretty soon she'll be sitting in front of the TV, getting up just long enough to use the bathroom.
I found a good place for my mother, but she is not interested in leaving her house. I can't make her go. I can only go myself, but already know the chain reaction that would cause. I know that it would be hard to advise you what to do other than saying do one small thing at a time and to reserve a lot of your time for yourself. Your dad is no longer the boss of you, even if you're under his roof. He is going to have to realize that, maybe one small step at a time. If your mother won't stand up to him, you're in the unfortunate position of 2 against 1. I know that situation so well. It's hard to do anything when you're the only person that is on your side.
Maybe the first bit of time you can go for is Sunday all day. That way you can attend church and meet people. Friends on the outside make it so much better. Some churches have caregiver support groups. That would also be a good way to pick yourself up. Little things you can do for yourself mean a lot.
My mother has had Parkinsons for very many years and a number of strokes, along with increasing dementia. In 09 she could no longer manage alone and totally refused to move close to me "because I like it here and I have sooo many friends" - all lies as I later found out - but she's been a mean, manipulative spiteful narcissist life long and everything had to be all about her.
Stupidly I sold my high rise condo overlooking the lake, quit my well paid job and moved 200km to live in her freezing cold, gloomy basement. I had to get rid of pretty much all my furniture as well because there was no room for it. From that point on I was just a cook, housekeeper and servant, along with picking her up off the floor and running to hospitals, doctors and the ER.. Nothing was ever good enough and she was mentally and emotionally abusive on a daily basis. If I went anywhere I got the devil when I returned. In the evening I'd sit alone and cry, trying to fathom out a way to escape. When my beloved old dog died I had nothing left and considered suicide as the only way out.
In October 2012 she fell at 2 a.m., blood all over the place where she cracked her head and I couldn't get her up so an ambulance was called. It was obvious that she needed professional nursing care 24/7 so she spent a month in hospital while I raced around to find a place in a NH. She moved in there in November 2012 (broken a hip and had another stroke since) and, as POA, I cleared, had renovated and put her house up for sale (running back & forth 100km in winter with a broken foot), the proceeds from which pay for her care.
Even from the NH she continued to suck the life out of me until it was making me ill and I changed my phone number. I visit from time to time to ensure she has all she needs but she's declining rapidly. As I'd spent most of my life avoiding her nastiness I have no regret because I did my duty.
I bought a tiny dilapidated cottage on 2 acres in the country which I'm gradually fixing up. I love it out here but, close to 65, I'm having to start from scratch all over again. Based on my experiences I would say MOVE OUT ASAP! as it will only get worse. When your father finds he can't manage he'll have no choice but to get some outside help. If he's really mean and stubborn he may not and I would suggest you have a chat with a social worker to see what options there are.
Its only been 2 months and I'm already getting anxious when its time to leave work. When work becomes my oasis, then I know its bad!
Problem is, I gave up my house in a short sale because I lived so far away from them and it was a down market. Now my credit score has suffered and no one will rent to me. I really painted myself in a corner...My mother always called my dad a controlling and now I understand why. I feel I have very few options at the moment unfortunately. I foolishly thought I was doing the right thing moving in to help. Hindsite is 20/20.
But thank you for your post. It really meant alot.
I think you're a wonderful daughter and your parents are very lucky to have you care about them so much.