He has taken to trying to have a poop in his coffee mug/plate but misses and ending up getting it every where. On the floor, chair, bed, carpet, clothes etc. Though he knows the commode is there for use, he still after many times being told not to tries to collect it in various vessels. He has carers come in 4 times a day who put him on it every time but he just keeps up with this habit and sees no wrong, what can we do? TIA
Having carers come in 4x a day isn't enough at this level of dementia; he needs 24/7 care, a toileting schedule, incontinent (disposable) briefs, and a regular routine provided to him by a stable person or people coming in every day that he can get used to seeing regularly. Or, he needs placement in a facility where he can get that sort of care daily.
And you need to learn all you can about the mechanisms of dementia. I suggest you read this 33 page booklet which has THE best information ever about dementia and what to expect with an elder who's been diagnosed with it.
Understanding the Dementia Experience, by Jennifer Ghent-Fuller
https://www.smashwords.com/books/view/210580
Here is a list of useful tips from her e-book I found to be excellent:
The “Dont's”
· Do not reason and argue
· Do not demand that they reason or problem-solve
· Do not demand that they remember
· Do not demand that they get their facts straight
· Do not correct their ideas or scold them
· Do not reorient them
· Do not think that they are being uncooperative on purpose
· Do not think that they really do remember, but are pretending not to
· Do not use a “bossy” dictatorial attitude in care
· Do not act with impatience
The Do's
· Enter into their frame of reality, or their 'world'
· Be aware of their mood or state of mind
· Use few words and simple phrases
· OR use no words, just friendly gestures and simple motions
· Do everything slowly
· Approach from the front
· Wait for a slow response
· Constantly reassure them that everything is 'OK'
· Keep people with dementia comfortable 'in the moment' - every moment
· Maximize use of remaining abilities
· Limit TV or radio programs which they may feel are frighteningly real
· Maintain privacy
· Provide a safe physical environment
Language Needs
· Use short words
· Use clear and simple sentences
· Speak slowly and calmly
· Questions should ask for a “yes” or “no” answer
· Talk about one thing at a time
· Talk about concrete things; not abstract ideas
· Use common phrases
· Always say what you are doing
· If they repeat their question, repeat your answer as you did the first time · Give them a longer time to process information
· Wait patiently for a response
· Be accepting of inappropriate answers and nonsense words
· Speak softly, soothingly and gently
Care Needs
· Recognize that receiving personal care feels intrusive
· Reassure with your tone and manner
· Do one thing at a time
· Talk through the care “play-by- play”
· Be aware of your body language and use it to communicate relaxation and reassurance
· Be sincere
· Use a soft, soothing touch
· Be aware of the individual’s unique triggers
· Be aware that a person with dementia may not accurately judge whether a situation is threatening to them
· They may respond to fear, pain or anxiety by defending themselves with what we call “aggression”
· If they become distressed, stop immediately and allow them time to calm down – don’t try to restart the activity right away
You need to change your behaviour to adapt to the dementia because the person with the disease cannot.
Good luck!
When my Mom was living with me, she had her own bathroom not 10 ft from her recliner. I had a small table right outside the bathroom door. She had hollered she was going to the b/r so I started down the stairs and found her going on the table. She thought it was the toilet.
he may not "know" any longer what he is supposed to do.
This has NOTHING to do with laziness.
He may need caregivers more often then 4 times a day.
And if he is living alone he probably should not be.
You need to change your thinking process on dementia.
I have never met a single person who wants to sit in their own feces or get them all over the place.
Perhaps it is time to go with the diapers and be done with it.
Is he alone except for the four times the caregiver comes in during the day? If so, that needs to stop. He’s clearly beyond having someone just drop in to check on him.