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No one here offers the suggestion of NH lightly. It is a very difficult decision, and one that you very well may have to make in your future. Please consider refraining from more commenting of that nature. You are exceptionally lucky that she can afford to hire at-home caregivers.
Many conditions do not have a linear path of decline. There can be stagnant and slower periods, and then rapid decline. With you being away from home, you may not have your finger on the pulse of her timeline. It will be interesting to hear your thoughts once you return home.
To answer your questions:
I do not believe for a moment that your father has a scheme for your mother's decline, or he would not have in-home services for her. It sounds like after 5 years of this, he is no longer on top of his game, even if legally responsible for her care. You say he doesn't want to change caregiver schedules, but there could be many reasons for that aside from financial. How can you help him while abroad? Is he ready to hand over the reins to you once you return?
It sounds like your aunt is on top of your mom's care, and perhaps willing to step in more until you return and can assess the entire situation in person.
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There is nothing nefarious here.
How can your Dad speed up Parkinson’s with neglecting Mom?
As caregiver to husband with PD i know few things, and of course not even the best specialists are sure of disease trajectory.
PD after five years often escalates for different reasons, could be meds, obviously neurologist should determine that.
PD is characterized by slow progression generally, but with dementia could progress rapidly, again, drs opinion needed.
It is true for different reasons, many people with PD do better at home, again, as my husband is highly functional and exceptionally cognitive and often people in facilities are put together, assumption being made they all have PD and dementIa, which is 40% of PD.
Quality of life is important, again, it does not diminish or speed up progression.
You, being good daughter have concerns, but, I suspect you are getting part of the story from your aunt, whose opinion is rather subjective.
Objectivity and facts are necessary with this disease. And simple fact remains nobody got better with Parkinson.
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Just thought of the perfect solution- since your aunt lives close by and seems to know best according to her, she should become her full time caregiver!😄
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First of all, being in your mid-20s and being abroad at school, are you in a position to take over your mother's care? What about your own plans, career, and future? Your mother's health and mental abilities are likely to decline as she ages, and she is likely to need more care as this happens. Maybe the best solution is for her to go into a home where she can get professional care, and where she'll have a case manager that you can speak with. When my mother was in memory care I asked one of the staff to take a picture of her each week (my mother wasn't verbal at that point and couldn't do phone calls). Your father may be relieved at this suggestion, and it will take the direct responsibiltiy for her care off your shoulders. Try to find a facility in a convenient location where you and her sister can visit as often as possible. It can be disturbing when parents have relationships, especially when your mother is still alive, but people are not perfect. Not all people are cut out to be caregivers. Try to accept him for what he is, and try not to be critical of his choices. If you still have a good relationship with him, discuss the financial situation and how your mother will get the funds for being in a memory care/assisted living facility. If necessary, get connected with a local social worker who can explain your mother's options. You will probably have to be the one who searches for a good home and helps your mother move. Maybe her sister can help with this. All the best to all of you. You are being very responsible and should be proud that you are doing this for your mother.
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lovingchild95: Perhaps your mother requires residence in a managed care facility.
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OP has left the building.
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Lymie61 Aug 2022
I don’t blame her
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