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My question is, she thinks she is in the hospital, or she is lost in the mountains, she didn't recognize her own house when she lived there. Is there anyway to help a dementia person understand where they are now living?
Moving my dad from skilled nursing to memory care was the best thing for him. The only reason he was at skilled nursing was for some medical issues that had stabilized but he was not getting the socialization he needed. We chose a small facility that is run by an RN. She manages dads medical needs and works with the medical providers and home health. He is integrated into daily activities and gets socialization he needs. His anxiety is almost gone (with the help of Seroquel), as they seem better equipped to deal with his dementia behaviors.
This very thing happened to us as well. She was in assisted living and within less than 90 days they told us Assisted Living wasn't the right place for her and wanted to move her to memory care. We were not happy; she hadn't even had time to adjust to Assisted Living and they wanted to move her again. BUT, after talking with a friend who's mother was in the same facility, she said, it's harder for you than it is for her, they will get her room all ready and take her from one building to another. She will see some of the same caregivers and within a few days it won't be any different. So, that's what happened and she didn't appear to have any issues with the move. If she did, she never said anything to any of us.
Your generously honest comments about your mother’s care and the loving decision you made is possibly even more helpful than you can realize.
Everything you said was exactly how I felt- LO had been living by herself in a large 2 story house, driving to Church and her local supermarket daily in heavy urban traffic, and in general, managing her own affairs.
A week after entering Assisted Living, we got the call that she was being moved to the AL’s onsite Memory Care facility.
We grudgingly acquiesced to the move, and very soon afterward, realized it was the right decision for all of us.
Unless she asks, why bother telling her anything. IF she asks, tell her you are all taking a small vacation and that to enjoy the time now. They won't understand even if you tell them now, because in 10 minutes they won't remember, their brain is like a sieve........some of the holes are closed to retain some of the information they have lived thru, other areas are open and stuff flows right thru and has to be repeated. i wish you luck.
No, there isn't any way to help a person with dementia grasp reality in the ordinary meaning of the word. Some types of dementia destroy a person's ability to orient herself in time and place.
More happily, there are ways to reassure her which may also help her connect with the people who are looking after and/or living with her. It takes all day, and it takes training and aptitude and very special communication skills. If the memory care facility the NH is recommending can offer that kind of support as well as a living environment you'd be happy with for your mother, you'd be well advised to take their advice. At least look into it.
Has anything happened recently that might have exacerbated your mother's dementia and made her more frightened and disoriented recently? If so, could it be something she might recover from, e.g. anaesthesia, trauma, surgery? She won't recover from the dementia, of course, but that doesn't necessarily mean there's no hope of *any* improvement. You should still consider Memory Care, but if this is an acute situation it might not have to be forever.
Since her thought process is clearly already disordered, do you have a specific reason for not wanting her moved to an MCF?
She doesn’t know where she is now, and whether you decide to move her or not, she will not know where she is wherever she is placed.
Prior to the tragedy of Covid, good MCs provided structure and appropriate types of stimulation. My LO could get her hair done, watch a movie, play Bingo, do puzzles, cook and enjoy snacks in part of a social group, go to church services…..
Nothing made her cognitive status any different, but everything contributed to a pleasant quality of life.
Fortunately she is still in a beautiful environment, and the people who care for her are cheerful and attentive.
Your MIL’s physician may want to consider trying a small dose of calming medication if she is terribly uncomfortable when agitated, but there is no reason that you as her caregivers may not wish to place her in new surroundings as long as you are comfortable that the suggested placement will work better for her and those of you who visit and oversee her life in her residential placement see that she is more peaceful while there.
Actually the facility is giving you good advice. A person with dementia needs MC for their safety. Does she need a Skilled Nursing facility? Many MC will not take a resident if they do need more skilled nursing and they typically will not take any one with "tubes" so IV's. Feeding Tubes, Ports, and the like as people with dementia tend to try pulling them out. Have them help you find a facility that will accommodate her needs then tour it and a few others. The facility where she currently is can help arrange transport if that is a problem.
No, there is no way to make them understand. Once someone reaches that point, it is up to their family to accept that this is how they are. This is their current reality and that's that.
You might think about it as a child is in the stage before they can memorize their address. Sometimes I think about dementia as aging in reverse, back to childhood.
The staff at Memory Care is trained to deal with these issues. The agitation is something that they may be able to help with.
Is there a reason to have them understand? Isn't it conceivable that it does not matter? Believe me, it is very difficult for us to understand that our beloved family member understands little to nothing. Just hope s/he is content and oblivious. Yes, a damned shame.
The simple answer is No, there is no way to help a dementia person understand. That's the truth about dementia, and a sad truth it is. But there are ways to make the transition less traumatic. There is no need to have explanatory conversations about the move. Just do it. Talking about it, planning it as a future event, can cause apprehension. Change is confusing, so try to arrange her room in the memory care as close to the arrangement in the nursing home. Especially try to get the bathroom on the same side of the bed. Keep the same bedspread and the same items on the nightstand. You get the idea.
In my experience people tend to move from memory care into a nursing home. It sounds like your MIL may be in better physical condition and doesn't need the extra care of a nursing home. She'll have more interaction with people in memory care. It could be a good move for her! So just make it happen, and accept the fact that she may not understand. Best of luck to you.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Everything you said was exactly how I felt- LO had been living by herself in a large 2 story house, driving to Church and her local supermarket daily in heavy urban traffic, and in general, managing her own affairs.
A week after entering Assisted Living, we got the call that she was being moved to the AL’s onsite Memory Care facility.
We grudgingly acquiesced to the move, and very soon afterward, realized it was the right decision for all of us.
More happily, there are ways to reassure her which may also help her connect with the people who are looking after and/or living with her. It takes all day, and it takes training and aptitude and very special communication skills. If the memory care facility the NH is recommending can offer that kind of support as well as a living environment you'd be happy with for your mother, you'd be well advised to take their advice. At least look into it.
Has anything happened recently that might have exacerbated your mother's dementia and made her more frightened and disoriented recently? If so, could it be something she might recover from, e.g. anaesthesia, trauma, surgery? She won't recover from the dementia, of course, but that doesn't necessarily mean there's no hope of *any* improvement. You should still consider Memory Care, but if this is an acute situation it might not have to be forever.
She doesn’t know where she is now, and whether you decide to move her or not, she will not know where she is wherever she is placed.
Prior to the tragedy of Covid, good MCs provided structure and appropriate types of stimulation. My LO could get her hair done, watch a movie, play Bingo, do puzzles, cook and enjoy snacks in part of a social group, go to church services…..
Nothing made her cognitive status any different, but everything contributed to a pleasant quality of life.
Fortunately she is still in a beautiful environment, and the people who care for her are cheerful and attentive.
Your MIL’s physician may want to consider trying a small dose of calming medication if she is terribly uncomfortable when agitated, but there is no reason that you as her caregivers may not wish to place her in new surroundings as long as you are comfortable that the suggested placement will work better for her and those of you who visit and oversee her life in her residential placement see that she is more peaceful while there.
I'm afraid that is not in your power.
What you can do is make it homely with some familiar/favorites items, act positive & reinforce it is a safe place.
Does she need a Skilled Nursing facility?
Many MC will not take a resident if they do need more skilled nursing and they typically will not take any one with "tubes" so IV's. Feeding Tubes, Ports, and the like as people with dementia tend to try pulling them out.
Have them help you find a facility that will accommodate her needs then tour it and a few others. The facility where she currently is can help arrange transport if that is a problem.
You might think about it as a child is in the stage before they can memorize their address. Sometimes I think about dementia as aging in reverse, back to childhood.
The staff at Memory Care is trained to deal with these issues. The agitation is something that they may be able to help with.
But there are ways to make the transition less traumatic.
There is no need to have explanatory conversations about the move. Just do it. Talking about it, planning it as a future event, can cause apprehension.
Change is confusing, so try to arrange her room in the memory care as close to the arrangement in the nursing home. Especially try to get the bathroom on the same side of the bed. Keep the same bedspread and the same items on the nightstand. You get the idea.
In my experience people tend to move from memory care into a nursing home. It sounds like your MIL may be in better physical condition and doesn't need the extra care of a nursing home. She'll have more interaction with people in memory care. It could be a good move for her! So just make it happen, and accept the fact that she may not understand.
Best of luck to you.
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