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Who are you caring for?
Which best describes their mobility?
How well are they maintaining their hygiene?
How are they managing their medications?
Does their living environment pose any safety concerns?
Fall risks, spoiled food, or other threats to wellbeing
Are they experiencing any memory loss?
Which best describes your loved one's social life?
Acknowledgment of Disclosures and Authorization
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
Your loved one may not require home care or assisted living services at this time. However, continue to monitor their condition for changes and consider occasional in-home care services for help as needed.
Remember, this assessment is not a substitute for professional advice.
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Incontinence of bowel and bladder is one of the deciding factors for SNF placement. Caregivers being unable to manage the person's ADL's also is a factor. Not having enough help to safely care for her also should be considered.
I would ask at a support group for Huntington's disease and see what the members have to say. Also, I bet there is special Huntington's "class" for HD families to attend and learn how to cope, what the cause of HD is, etc. I attended NAMI (National Alliance on Mental Illness) which covered a variety of diseases of the brain, and learned quite a bit on mental illnesses. It is a 12 week class and is geared for families who deal with brain disorders. Check and see if there is one in your area. The classes were free.
My brother had HD and we started with assisted living while he was still somewhat cognizant but needed help with ADLs. He had been living with me and my family but his care became too much and our house wasn't safe for him. He was in assisted living for about 18 months before he went to skilled care. He was in skilled care for about a year and then in hospice in-patient for four months.
I was my brother's POA and advocate. I found I had to do a lot of education of staff in both facilities since HD is not as common. He was in his 50s and a male, too, so he was an unusual bird in both facilities. Most activities are focused on elderly ladies.
This is an awful disease. Let's pray for a cure soon.
My dad has Huntington's too, and sounds like he is at about the same stage. He's still somewhat mobile, but his brain is starting to have a hard time telling his feet what to do. I feel for you, I struggle with this too.
"it is better for her to walk in to a facility with her personality comparatively intact than to be wheeled in later on, when it will be more difficult for her to form strong working relationships with her care and support team." Countrymouse, that is such a great insight! Thank you!
The association publishes this guide, which I hope will be useful to you anyway but also could help you identify which facilities have the right kind of specialist insight into your mother's needs:
My personal feeling is that when a person will inevitably need residential care at some point, it is better for her to walk in to a facility with her personality comparatively intact than to be wheeled in later on, when it will be more difficult for her to form strong working relationships with her care and support team.
But talk to other families facing similar decisions, don't be alone with this choice.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
I was my brother's POA and advocate. I found I had to do a lot of education of staff in both facilities since HD is not as common. He was in his 50s and a male, too, so he was an unusual bird in both facilities. Most activities are focused on elderly ladies.
This is an awful disease. Let's pray for a cure soon.
http://san-diego.hdsa.org/about/hd-resources-in-san-dieg
The association publishes this guide, which I hope will be useful to you anyway but also could help you identify which facilities have the right kind of specialist insight into your mother's needs:
http://hdsa.org/wp-content/uploads/2015/04/CaregiverGuide_Mid_Late_StageHD.pdf
My personal feeling is that when a person will inevitably need residential care at some point, it is better for her to walk in to a facility with her personality comparatively intact than to be wheeled in later on, when it will be more difficult for her to form strong working relationships with her care and support team.
But talk to other families facing similar decisions, don't be alone with this choice.