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My Luz had aphasia. Her neurologist said there was nothing that could be done for her. Hers was called primary progressive aphasia related to her dementia. I hope it is different in your case. The only thing that helped Luz was our frequent hugs.
Old Sailor, your reply brought tears to my eyes. How you must have loved your Luz! My husband’s stroke left him with aphasia as well and it still affects him today. I know how frustrated he gets and it’s difficult not to correct him, but the speech therapist said to let him figure it out himself, so I still do.
I’m not sure any medication will improve her aphasia as this is because of her glioblastoma. How old is your mother? Is she still undergoing radiation and chemo?
I say this gently...glioblastomas are fast growing tumors and if you haven’t already thought about palliative care or hospice it may be time.
Sometimes they treat these tumors with a medication called Decadron. This causes the brain and spinal cord area fluid to shrink a little bit but not enough to allow pressure to be taken off the area of the brain that controls speech.
For me, having aphasia must be devastating for the patient. Imagine you want to say something and can’t get the words out even though you may know perfectly well what it is you are asking for but you can’t communicate succinctly. I am sorry your mother is going through this. I will suggest if you haven’t already, get her a writing board to help her communicate, or even home made flash cards.
I just read up on this. Her not being able to talk may be caused by the surgery, correct? It also read that chemo and radiation may follow. Her doctors should be able to help in what meds she should be taking.
One of our members may have had something similar with a LO and can help.
She is 55 years old. Maybe is from surgery but the doctor even care about my mother he said that it is from the tumor . She also had a stroke . She can't move also with her right side.
I'm sorry your mother has glioblastoma, the reality may be that the speech area of her brain has been too damaged by the tumour and surgery to hope for any recovery. The progression of her symptoms will depend on the location of the tumour, my brother never lost the ability to swallow until he was end of life and his passing was peaceful. If you are a reader the book Being Mortal might be helpful to you
You can Google a lot of information about aphasia on the net, almost certainly more than anyone here can give you. I know that the brain can make new connections that help, because it did with my sister. However it took years and years (she was 26 when the stroke happened). You need lots of patience if the words are hard to find, rather than the situation when she can’t speak at all. Best wishes.
I am so sorry that your mom and you are going through this. But there is nothing anyone here can do for your mom. We are here for support!
Dysaphasia is a neurology disorder. None of us could help even the ones with medical knowledge. We don't know your mom's history, surgeries, medications (if any). There is so much more to this. Plus, adding that your mom has a brain tumor there is no medication for that. There is chemotherapy and radiation.
We are here to support you and help with other questions, but your mom needs a Neurologist.
She needs to see a doctor. We don’t know her medical history, what kind of surgery she had, how old she is, whether she has dementia, etc. even if we did know these things and we were medical professionals, we shouldn’t give out medical advice on an anonymous forum. If something worked for us, it could be dangerous for someone else and you can’t get medications without a doctor anyway.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
The only thing that helped Luz was our frequent hugs.
Your Luz was so lucky to have you.
How old is your mother?
Is she still undergoing radiation and chemo?
I say this gently...glioblastomas are fast growing tumors and if you haven’t already thought about palliative care or hospice it may be time.
Sometimes they treat these tumors with a medication called Decadron. This causes the brain and spinal cord area fluid to shrink a little bit but not enough to allow pressure to be taken off the area of the brain that controls speech.
For me, having aphasia must be devastating for the patient. Imagine you want to say something and can’t get the words out even though you may know perfectly well what it is you are asking for but you can’t communicate succinctly. I am sorry your mother is going through this.
I will suggest if you haven’t already, get her a writing board to help her communicate, or even home made flash cards.
One of our members may have had something similar with a LO and can help.
https://www.agingcare.com/products/being-mortal-medicine-and-what-matters-in-the-end-433866.htm
Dysaphasia is a neurology disorder. None of us could help even the ones with medical knowledge. We don't know your mom's history, surgeries, medications (if any). There is so much more to this. Plus, adding that your mom has a brain tumor there is no medication for that. There is chemotherapy and radiation.
We are here to support you and help with other questions, but your mom needs a Neurologist.
Again I am sorry:(