After my mom died, my dad did not want to live alone. It was understood that it's my obligation to have him live with me. He uses a walker and doesn't go anywhere. I've been taking care of his needs, i.e., food, medicines, living supplies, paperwork, etc. I'm in my 50's and have been very happy living alone by choice. If I didn't bring him in, it would have have looked bad for me. I've already raised a child, been married twice and never really asked my parents for anything since I left home 35 years ago. I'm starting to feel resentful and I don't look forward to spending time in my home anymore. I really wish I didn't feel this way, but I can't shake it.
That said, I have a mom who has told me since my teen years (and I will be 60 in April) that all of her money is to be saved for a nursing home for her and Dad. Well, she lives like a pauper and has amassed around a million dollars. So, it occured to me that the nursing home thing is just an excuse to not pay for anything. She is the Queen of Excuses.
So, she has set her fate. I will always remind her of her lifelong dream of being in a nursing home. Maybe she knows more than the rest of us. Maybe all these parents who don't want to go to a home are missing something. I have a feeling she will certainly let me know when the time comes.
I'm sure you've spent 2/3 of your life taking care of everybody else's needs, and now you want to live a little. Nothing wrong with that.
If you put him in AL -- where he can have a social life -- he'd probably feel like a dog in a pound and blame you for "throwing him away." Family members will also gang up on you with something like "You're living by yourself and have plenty of room, why not take him in? ... It's your father. If it weren't for him you wouldn't be here."
Girl, it's time for a heart-to-heart with Dad. As kindly as possible, explain to him why you don't look forward to coming home sometimes. The bottom line is that his lifestyle is becoming a burden that no daughter looks forward to, no matter how loving she is. In a nutshell, he has to get off the pity pot somehow and do his best to become self-sufficient again so you don't have to worry.
Still, I have a few questions: Are you expecting your children to care for you in your later years? Would you hold it against them if they didn't?
Having my dad with us is so difficult at times. Not because he is mean spirited or difficult, but just because it's so confining. I can't even take a shower unless my husband can watch over him. My husband works part time and his hours vary, so sometimes I don't get a shower. That's life, but it wasn't what I was looking forward to in retirement. I take really good care of my dad and I do love him. When we get him into bed at night and he's content and blankets tucked in all around him, I tell him I love him and give him a kiss. There is always a smile in return and a, "I love you too sweetheart." My heart is always torn between wanting to have some freedom to do the things I need to do and looking after him. It's not even about having fun. It's draining and I would never advise another that they should take the road that we have. It's not my place. I think Gail gave you some good guidance. If you talk with your dad and can do it in the right way, maybe you will learn more about how he really feels. You know him, I don't. Just a thought.
But they'd been living together for quite sometime before the decline of their health.
The relationship between the two was one of my abusive aunt bossing my mom around. When mom was diagnosed w/ALZ, this just became worse. They both became increasingly immobile, so this meant they didn't want to leave the house.
Mom was so controlled by her sister, that she would not even want to go with either my sister or myself if we'd invite her out to dinner, or just to get out. We eventually didn't want to take my aunt, on account of the abuse she dished out to my sister and me. So for the last year of my aunt's life, mom hardly got out, by her choice, (didn't want to leave my aunt behind). Also, this dynamics has prevented us from at least up until now to try to see whether we could find an Adult Day Health Center, so mom could get some kind of stimulation, given the ALZ. Well, now that her sister just passed, it seems highly unlikely that the Adult Day Health Center plan will ever happen. Mom has become used to just being in her home w/caregivers, or us. So I believe, that as I've read via other posts, that parents sometimes whether they've ALZ, or other debilitating conditions, kind of make their own choices. I know in our family these two elders have been oh so stubborn, and have this, "It's my way or the highway kind of an attitude." Anyway, I just wanted to mention this in terms of the fact that many times, caregivers can try their best to offer possibly the best of intentions. But when you have some real resistance going on, WHOA! After I witnessed what my aunt put my sister through, living there w/them, in hindsight, even my sister admits now, she should have found a nursing home for her. No one should feel guilt for this either. We still have our mom, but even w/ALZ, she's well cared for, and actually is no problem in terms of her personality, especially now that her sister is no longer with us. Have a great evening, Margeaux
One of the things I've heard over and over and it's so very difficult to do, is to 'take care of yourself'. I did feel extremely guilty for not taking my mom in before she died, but I had a hugely crowded home (still do) and a husband who is disabled and needs 24 hour care. I basically had to decide where my own limits were. Ma went into a nursing home, where she was miserable. However, I also know that my mother would have been just as or more miserable living in my busy, crowded, messy home as well. I visited when I could, and paid attention to her doctors and the NH staff. I brought the family out to see her even though she acted more ashamed of the family than happy to see them.
The thing is, you need to do what is best for you first, and then for your loved one -- not the other way around. Who wants to live with someone who is stressed and resentful because of our presence? Really, it would probably be best if you helped him get placed in a facility, and then spent a lot of time visiting and doing things with him. Take him out shopping, or on a picnic once in a while. It would be quality time vs quantity.
I'm glad I had mom placed in the NH, because I was able to have some happy times with her before she died, rather than resenting her presence all the time. But, as so many have said, it really is up to you and your dad.
To everyone who has responded, I've really learned a lot. It's amazing - I don't feel as bad now as I did before I posted the question.
In answer to another post: My sister & I took him to a senior center that looked wonderful. My dad hated it. I've brought it up a few times since, but it's an absolute NO for him. Can't even talk about it anymore.
Reading all the answers, I will continue to try....until I just can't anymore. And I'll know when it's time to make a change, without Guilt.
DT and Margeaux - I totally related to your posts, and thank you.
This is a wonderful website. Experienced, honest and supportive answers.
In our country, we live in a throw away type of society. What does not provide us with immediate gratification; it is used up or gives us some degree of grief we throw away or trade for something better. We do the same with our elders when we put them in elderly homes for the simple reason that “they are inconvenient for us” or because “they will feel better around people their age”. Actually, we put them there because they remind us of our own mortality and we don’t want to deal with the notion that we are going to get there someday. I am not talking about people with mayor health issues here; those people really need special attention and care. The throw away notion is not an acceptable alternative to me. My dad has heart problems, an abdominal hernia and is 89% deaf. Nevertheless, he lives a full life in my home painting, being in the warm sun by the redwood trees in the afternoon, playing with my Rottweiler, enjoying my visitors and friends or watching television. He even travels with me when I have to make small business trips. How can we become a better more responsible society if we throw away the ones who chose to have us to start with? How can we look at ourselves in the mirror after leaving them in homes that even though a great many of them provide excellent care, medical attention and meals are not their own family’s homes? What our elders need and crave in general is the love of family. Children, grandchildren, pets, friends. The daily atmosphere of a full family unit where all generations are represented in its members. With all of the joys and heartaches a normal family experience in our society.
Easy? Not all the time. However, if I had to do it all over again I will do so. The day my father passes I will know in my heart that I did all I could do to reciprocate and even give him more than he had given me.
Vicktor Etchart MPh.D.
Clovis CA
Thanks for your response and for taking such good care of your dad.
So, having had absolutely no dealings with care giving and being 'friends' with my MIL for 40 years, we invited her to move in. It was great for the first 3-4 years and then her health failed. I HAD ABSOLUTELY NO IDEA what I was in for. And I do mean 'I.' Her other children do nothing to help and offering no help, respite or $ for anything EVER.
Her life now is going from one mini-crisis to the next with a major one thrown in for good measure every so often. I am worn out. She doesn't understand WHY?
Would I do this again? NO! I have also told my kids that unless they ALL help with our care (not putting the burden on just one as happens most of the time), don't even begin. Find a way to keep us in our home, then AL, then Nursing home and visit often. I don't ever want any of my kids to feel the way I do now. It just isn't fun. It is unhealthy. I too wonder if my MIL will outlive me.
This is a wonderful learning venue where we can exchange ideas and experiences. Ultimately each caregiver has to make individual decisions based on individual circumstances. Russkm, I hope we've given you permission to make decisions without regard to "how it looks" to outsiders.
Best regards to you as you struggle with this.
Nice to see something positive, but your situation is not most of us. You are very lucky.
I will tell you a little story about my mom and my twin's chihuahuas. When Dad died 4 years ago, my girls were in the middle of nursing exams at the University of Florida. They could not fly to Alabama where my parents live for the funeral. So my husband and i decided to turn around and go back to Alabama, two weeks later, pick up the twins in Gainesville and make the 11 hour drive so the twins could visit with their grandma. Since it was spring break, no one was around to babysit the chihuahuas and grandma said they absolutely could not bring "those dogs". The dogs are sweet not snippy. I was told it is her house and she shouldn't have to have the dogs. So my family's suggestion was for us to board them, drive the 11 hours, and visit my family for two days. Neither mom or my brother have been to my house in 9 years. So, of course, we said screw it. My girls are now 25, live in another state and haven't seen their grandma in probably 4 or 5 years. I wonder why.
Be glad you Dad is sweet, Mom has always been this way. Her way or the highway.
MPh.D. didn't mention if he/she were doing ALL the caregiving ALL Alone or if he/she is in a position to hire help or perhaps has an extended family who helps.
My MIL"s youngest son came to stay a week last year and give us a break - waved goodbye to us as we merrily and stupidly went off for a week of respite - only to find out 24 hours later and he had LEFT and went back home (actually, he went on a trip to Vegas!) leaving his mother who was fresh out of the hospital and in a weakened condition and the jerk didn't even call usto tell us he left her all alone. Our son called after my MIL called him asking about medicine. Of course, we turned around and came directly home. NO APOLOGIES THEN OR SINCE. So much for his help.
Everyone's circumstances are different. Everyone's temperament is different and that goes for the Elders too. Some are sweet and cooperative and kind. Some are Sneaky, grumpy, depressed, demented, prefer lies to the truth, love to insinuate that their care givers neglect them. My MIL told her bath lady that we leave her and don't tell her where we go (a lie). She also told her that she never gets to go anywhere. (another lie). Just yesterday I asked her to go to the store with me and she refused. She always refuses. So, whose fault is it that she goes nowhere. MINE, of course. How would the bath lady know that I offered? My MIL would never tell her. We tell her whenever we run an errand. If she forgets, does that mean we didn't tell her? NO! But that is what she tells people. Sure, she has beginning dementia - but it still hurts that she can only say unkind things. It gets old.
So, it is less than helpful for someone whose circumstances are not as difficult as another s to diminish another person's difficulties with platitudes and a guilt trip. I agree, HappilyDivorce1 doesn't need what most of us need and that is a place to voice our frustrations so that we can 'keep on keepin on' as long as possible. But, when it becomes impossible - and for many it does eventually become impossible - there should be NO GUILT HEAPED upon someone because they just can't take it anymore.
IF the day comes when my MIL needs more care than I can provide because of extreme health issues that I cannot address (and we do NOT have the finances to hire someone to come in and care for her 'professionally' - then she will go to a nursing home and we will make certain it is a good facility and we will visit her often and continue to care for her.
How awful for the many caregivers who are near the brink of exhaustion - both physical and emotional - to be made to feel guilty when they have done their best. I cannot imagine how SOME could be so self-righteous as to do that to another without even knowing that person or their circumstances. There are not BLANKET answers - no 'one size fits all.'
You talk of placing your MIL in AL or NH, but not being able to hire caregiver help. Part-time caregiver help is a fraction of the cost of either AL or NH. No, Medicare does not pay for any of the above, unless a doctor transfers her to a NH from a hospital where she had received at least 3 days of care. Then they pay only for UP TO 100 days. You can get a lot of months of caregiver help - parttime, interspersed with yours - for the cost of a NH or even AL. I realize your MIL wants only you to care for them, dispite their verbal abuse, but there are times when you must take a stand and take care of yourself; get that necessary break.
Try hiring someone from the church to come Sunday afternoons; or a nursing student one day a week. Your MIL just might adjust after a while when she realizes she can't control you that day.
Good luck to you and find a way to nurture yourself. You deserve it!
We had our granddaughter stay with her overnight a couple of years ago while we took a 'mini break' - we came home the next day and by that evening we were in the ER with my mother in law! We were just so thankful it didn't happen while our teenage granddaughter was here alone with her - although she is capable of calling 911 and my MIL has Lifeline.
But it is just that this sort of life/death scenario is a LOT of responsibility to put onto someone. It's a lot to ask of anyone. It's not exactly like 'dog sitting' or 'house sitting' - you are responsible for a frail elderly person with compromised health.
Basically, you end up 'trapped' by it all while the rest of her kids live their lives as though she doesn't exist. She has 5 other grandchildren who NEVER call, write or visit. And I do mean NEVER. She wasn't a nasty person - she was a good mother. Not sure what's up with them - but it is definitely 'out of sight, out of mind.'
Who is Eligible for Hospice
Patients referred to hospice when life expectancy is approximately six months benefit most from hospice care. While patients must have a doctor's referral to enter hospice, the patient, family and friends can initiate the process by contacting a local hospice program.
Patients can receive hospice care for 2 periods of 90 days and an unlimited number of 60 day periods. The hospice medical director must recertify the patient to receive hospice care for each subsequent period.
If a patient's life expectancy exceeds the six month period(s), hospice care can still be provided as long as he or she is recertified as having a terminal illness.
Before providing care, hospice staff meets with the patient's personal physician(s) and a hospice physician to discuss patient history, current physical symptoms and life expectancy.
After an initial meeting with physicians, hospice staff meets with both the patient and their family. They discuss the hospice philosophy, available services and expectations.
The patient or the patient's legal guardian must sign a statement stating that he or she elects the hospice benefit and waive all rights to Medicare payments for services for the terminal illness and related conditions. The patient will continue to receive Medicare benefits that are not related to their terminal illness.
Prior to service, staff and patients also discuss pain and comfort levels, support systems, financial and insurance resources, medications and equipment needs.
A "plan of care" is developed for the patient. This plan is regularly reviewed and revised according to the patient's condition.
Bereavement services and counseling are typically available to loved ones for a year after the patient's death.
Don't kid yourself into thinking that you might get to enjoy a lunch out with your friends, or a nice dinner and conversation somewhere, or a play or movie.....because you will pay dearly when you get home. You've enjoyed yourself, and they haven't!! You aren't allowed to! No matter how you set up an outing for yourself, with a safety net "in case something happens", be prepared to come home to a crisis that they have created for themselves in order to be the center of attention but, more importantly, to kill your joy. They thrive on sabotaging your every move - including your own daughter's wedding day.
You will also never be allowed to forget that you are THEIR child so therefore they are the parent and you have to do what they say/want. Your opinion on anything doesn't count because they are always right.
G-d forbid if you spend a moment talking to someone on the phone who has called for them, because you will be grilled to death on why you were talking so long to them "that's my friend, not yours". If you have a sibling, especially a male one, don't even think that you will ever be given credit for anything that you do for them, because they will call people and tell them "he's done far more for me than she ever has".
Yes, that's right, I (the female sibling) am stuck in slavery to my mother. I am 60 yrs old but in her eyes, I am still a child who needs to be told what to do, is not allowed to have an opinion, and what I say has no relevance because it is always discounted. My spirit is dead because she killed it in childhood. She has not gotten worse because of age or illness -- she has always been this way.
When I point out that my brother does NOTHING for her - doesn't come to see her or call or pay a penny towards her upkeep - all I get are her excuses for him - "he works and you don't" "he's busy" "he went away for the weekend". Well isn't it nice to know that someone has a life!!
I took her into my home because she convinced the doctors at the hospital that she was unable to care for herself (I should have filmed that Academy Award performance) and also because she won't pay to go to assisted living or a nursing home. Her heighth of laziness astounded me and she was very clever and getting everyone in her apt. building to bring her food, get her mail, do her laundry, buy her groceries and leave "treats" on her doorstep --- sick!!
Everything she does for you has strings attached, so beware. You are never going to get the accolade you deserve from her, so forget it. What you are doing is only important to Him.
Try to find some points of gratitude in each day - but I can't tell you it will be easy.
If you make the choice to take in an elderly parent I pray that you have one who at least appreciates what you do for them, is loving, kind and respectful - and tells you so.
Good luck.