My mother was entered into Hospice care after my aging father could not continue to care for her at home. She went into in-home hospice care at my brothers house. He got a letter a few days ago stating that she will be released from hospice in less than 2 months because they felt she has been "cured". We have no clue what will be happening.
She cannot walk or get out of bed, they offered no rehab during her hospice care to help her regain her strength or nutritional support.Plus now she is heavily addicted to the strong pain medications they prescribed during her hospice care.
I am so mad at the healthcare system, I don't know what to do next. Anyone can give advice on this?
They have private insurance, medicare and Tricare.They do not qualify for any low-income programs.
Hospice carefully wrote down all the details of after-death plans in our very first interview. They contacted the mortuary shortly thereafter to confirm expectations. They worked with the research clinic where the body was to be sent for autopsy. When I called to report that my husband had died (in our home) they checked their records and confirmed again where the body would be sent and they took care of requesting the removal. The mortuary showed up within an hour. I was very grateful not to have to be dealing with the details at that time.
Your Dad's body was LOST?! OMG. I think that would put me off hospice, too.
I am truly sorry that you went through such a traumatic experience. I will be interested in what the attorney comes up with.
But I still maintain that it is not appropriate to blame all hospice programs throughout the US for the terrible experience you had. Many people who use this forum have been or will be faced with end-of-life decisions for their loved ones. A campaign to destroy the reputation of the hospice concept itself is really not helpful.
I have heard of people being on hospice for 3 years in some cases. I hope you get the help you need soon. That is how I take things...one day at a time.
What you should know is that Hospice provides no rehabilitative of curative care. They are there just to provide comfort care and pain relief primarily through the use of narcotics.
I stayed with my mom every day. She died after a month. I was extremely close to her and feel guilty for not having been able to do more for her that may have extended her life or at least provided her with the comfort of spending her final days at home which is what both she and I wanted.