I've been taking care of my mother for 1 1/2 yrs since my dad passed. There have been a few months here and there when I haven't. I moved in with her because she asked me to. When she would get mad because I wouldn't kiss her @$$ she would kick me out and have my worthless sister and her husband move in. Then she would get mad at them and have me back. Once she got mad at both of us and moved in for a month with my oldest sister who hadn't even talked to my mother in yrs.
So this past February she called my from my oldest sisters house and said she wanted to come back home and would I move in and help her. I said ok but things need to change. she agreed.
In the last few months she has been doing some really strange things. I knew her mind was going so I called her doctor. We went in and he diagnosed her with dementia.
I have her DPOA and her health care POA. So I took over on everything. I had too because she started giving things away. She asked me to take her to the bank to get $1000.00 out. I asked her why she needed that kind of money. She said she just wanted it. I said no so she grabbed her purse and went walking down the road. I went out and asked her what she was doing and she told me she was going to get someone to take her to the bank. She cancelled her next doctors appointment when they called to confirm. So I took the phone so she couldn't do that again. I told her she would get it back after the doctors visit. I also fixed the front porch so that she would have a hard time getting around a bench if she tried to sneak out again. I caught her at 2am trying to get out.
So we go to see her doctor she tells him she scared of me, that I stole all of her money, that I went out and bought a brand new car and my husband a brand new truck. she told him I was holding her hostage for a month (I blocked the porch for 2 days). She told him so many lies I was stunned. I would try to defend myself and he got up and with a raised voice said we were both acting like 2 year olds and that he was going to call Adult Social Services. I said really? I'm doing my best to take care of her because she asked me to and gave me the rights to take care of her business. That was HER decision she made at her attorney's office where she had the papers drawn up and signed.
So then he has me go in another room to talk to me. I told him all the crazy things she's been doing, messing up her medications etc. He said he wanted to see us back in 2 weeks and if things weren't better he would call Adult Social Services. My mother told me that he asked her if I had ever hurt her, she tells me she said no. She said he asked her if she was afraid I would, she tells me she said no. She tells me she told him she wants me to be with her and take care of her.
So, the very next day guess who shows up. Adult Social Services. They come in and ask her some questions about if she was afraid of me etc. Then she talks to me and I explained why I had done the things I did even though I feel I shouldn't have to explain myself. This was this past Friday. Today is Tuesday. I gave her back the phones like I told her I would. I told her not to answer calls from anyone she doesn't know...so the phone rings and she answers it. It was for me. I get off of the phone and told her that I had told her not to answer to anyone who calls. She said well it just kept ringing. I said let it ring. She says "hear we go again".
So now I have to walk on eggshells?? Because she going to continue telling everyone I'm a monster? I forgot that part. She has told anyone she can how horrible I am but to my face says she loves me and wants me here.
I said what are you going to do? tell your doctor again so you can end up in a nursing home. She said she doesn't care that it's better than putting up with this.
Who protects the caretaker? What can Adult Social Services do to me? I've been so stressed its insane. I'm crying constantly. I take darn good care of her yet they will believe the rants of a woman with dementia?
I have no one to talk to about any of this. I'm scared. I want to take care of my mother but I don't want to end up in jail because of her. What can I do?
SO - mom expects you to wait on her hand and foot now and feels it is justified, because she is still a narcissist at heart and now she is a narcissist with dementia. If she ever had any capacity for empathy for you or anyone else if may be gone now. She feels she can get her way with you because she could call APS again. Go to the social work people yourself, and ask their advice, and ask if there is any respite because she has become more demanding, does not want to eat, and needs 24 x 7 supervision, which one person realistically cannot do alone. You keep your cool and act pleasant and professional rather than freaked out by Mom and the APS involvement. THAT's what you do, much more than "protect myself form APS." Remember anyone can call in a report and it has to be investigated - but again, the report will be unfounded, and the more obvious that no abuse is happening, the quicker that will be done. A little surreptitious video or at least audio of her ranting or refusing to eat good food in front of her might not hurt in that regard.
APS said I couldn't put a lock on the door even though I've read that's one of the things you should do as long as the locks are quickly accessible for emergency sake...she told me to put those alarm things on the doors so I would hear if they open. She "seemed" to understand that most of what mom said was a lie but I don't trust those type of people. She wanted to see my paperwork and I refused in a nice way. She doesn't need to see them and I was advised that I don't have to unless she has a warrant. but also warned to be careful not to ruffle feathers.
So today because my mom said my room is a mess which it's not even if it is so what the rest of the house is perfect clean..she told me that APS is coming out to look. Now she is holding this over my head. Yes, she is a complete narcissist and it's getting worse. She's trying to tear my marriage apart. She's constantly talking crap about me to my husband and saying things like "I don't know why you put up with her, you should just leave her," And the truth is that my marriage is stressed right now. My husband is tired of seeing me cry all of the time. He's tired of all the b/s going on. He's trying really hard to understand it all but right now he doesn't. I'm upset because I feel like I dragged him into this even though we talked about it before we moved in and he agreed and is telling me I didn't. We had planned to be traveling by now. We are both 50 and this is a time when we should be free. She's constantly crying and saying "How did I get such rotten children" "Why do all of my kids hate me". All of our lives she has pitted us against each other so none of us get along.
sorry I went off of the path a bit. I just have so much to vent about. Right now I'm doing some reading up on dementia. It's all making sense but it's still so hard. Oh and the refrigerator needs cleaned out so she says but it's fine so APS is going to come out. And she told my husband that I told her what to say to the doctor at her appointment this Thursday. I didn't. I haven't even spoke on it
So do I ask them to come back out? How do I get them to see more of what's going on? I'm trying to get her on video but she catches me nearly every time and shuts up.
Someone said I need to learn to STFU and I agree. I have to let that fear and anger go but it's so hard. It's harder when she talks shit about my husband. He's never done anything wrong to her. He works his ass off taking care of the yard and all that. D*mn she had him racking leaves when there was still snow on the ground. I told him he has to start telling her no or I'll do it later. He is now and it's working except she says stuff to me about him... I'l a mother bear when it comes to my family.
but anyway.... I said all that to say you are right LOL.
Not clear why you would not show your papers (POAs, etc. I assume) to APS? That would probably help you and them. Possibly they understand that you see them as a threat for reasons that are beyond the usual, but they are only human and may not accept that as well if they see it as resistance or hiding something.
Frankly, you COULD threaten your mom right back - that APS will come and see that you have been taking care of things as well as she will let you and they will get on HER case, not yours. And if they come over again, FINE, you will bake muffins and have a pot of tea for them when they arrive. Or, maybe just fantasize about that :-) And while you are at it, see if they have any help for caregivers and spouses because the strain on your marriage is realistically considerable, and if any kind of counseling could help you two pull together it would be awesome and help innoculate you against mom's cruel ranting that is getting to you, as it would get to anyone. Maybe they even could offer a respite person to come over and give you an afternoon and evening out once a week for it, plus a little couples' time after.
My mom's doctor visit is tomorrow. I talked to her over and over about how her threats could backfire. So she says to my husband the day before yesterday... she's only gotta be nice to me till after we go to the doctor. Then told him I told her what to say to him.
I took her to get her hair done yesterday. She told the stylist that all I do is sleep all day (eye roll). I had pre-warned the lady that my mom's libel to say just about anything and what was going on. She's been doing my mom's hair for 30yrs. So I didn't say anything. But it was nice because it was the first time I could just go for a drive in ages. She was getting a perm so I was able to leave and know she would be fine. Sue is a great person.
I have no clue what's going to happen tomorrow but I know she's plotting. She always gets that "look" on her face. Yesterday I had to make her 3 different meals for dinner because she didn't like anything I made. The last thing I made I told her if she didn't want it to eat an egg. I keep boiled eggs in the fridge so she can grab one when she wants as long as she doesn't eat too many. She eats and sleeps all day. She wakes up at 4pm and I always know it's coming "I'm hungry". She knows I don't usually have dinner ready until 5 or 5:30.
I haven't felt good today so I've been sitting most the day in my little TV room so I know she's mad. Hub is grumpy today because of her telling him he never does anything. I'm trying to hold tight to my nerves but it's hard.
I just looked at the lady from APS business card. They are homemade printer cards. The attorney I consulted warned me about ppl coming around saying they are from Social Services making up their own cards. I don't think she was fake though due to her coming the very next day after the last appointment.
I want to quit. Not sure what to do right now.
You don't need to put up with this, do you?
And honey, telling her that you would leave was NOT what I was advising you to do. I really think that the best you can do at this point is to tell the doctor that you don't feel like you are psychologically equipped to handle her care. Right niw, it seems like what you are doing is replaying a tape from your childhood. This is not healthy OR safe for anyone.
I asked him if he had gotten the report back from APS yet and he said no not yet but he's sure every things fine and said he knew I've always taken good care of her (I've been taking her to all of her doctors .. heart, and him) for years. He said he just had to make sure because he has had patients whose caretakers were stealing. I told him I understood that he had to protect himself (I emphasized that lol) and her but it just sucks having to wonder if APS is going to keep showing up. He said he's not sure but he doesn't think they will.
So today was a good day. I just hope it stays this way but I know it won't.. And I did tell her on the way in to just tell the truth. So thank you for the advise. I truly appreciate it. I know we're going to have bad days again but I think now I'll be much more in tune to handle them better. It's a half hour drive to town so we were in gone awhile. After the appt I took her to McDonalds and did a bit of grocery shopping and by the time we were headed home her mind was back in limbo.
Now all I have to do is try to find someone I can trust to have come in and be with her so I can get out of the house. I guess I call the council on aging in my area? Anyway, thank you again.