When my father was recovering from his stroke in the hospital he was told of all the rehabilitation he would get for his left arm and left leg. This gave him hope because he lost most functionality with both limbs. The way the hospital social workers described the rehab he was led to believe they would help him until he was better. Unfortunately, that was not the case.
First he went to an in-patient rehabilitation facility. He made some progress but the staff was very conservative with his treatment. Occupational therapy tried to get him accustomed to day-to-day living. They helped him with transfers but did not try to exercise his hand much. The therapists had all kinds of advanced technology they could have used but decided to leave behind. Physical therapy was a little more helpful; they tried to assist him with a walker. However, just as my father started to show signs of making progress he was promptly discharged.
He then started in-home therapy. That lasted for a few months. The occupational and physical therapists told him he made some progress, but there wasn't much more they could do in a home setting. What next? He was always told he could go for outpatient therapy. But when the time came for him to get the outpatient care that he was told he would get, he was denied further therapy unless he experienced progress on his own.
This was disappointing because he made progress while in rehabilitation. He never got the chance to attend an outpatient center or use the modern-day technology that could have helped his hand.
Has anyone else had a similar experience? It feels like therapists, rehab centers, and insurance companies get to decide whether or not patients regain functionality in their arms and legs. These decisions have profound effects on families and finances. What are your thoughts?
https://www.cms.gov/medicare/medicare-fee-for-service-payment/SNFPPS/downloads/jimmo-factsheet.pdf
BUT a patient must absolutely continue to show progress. The therapists keep painstaking records. Unless a therapist is willing to actually lie? Patients will most certainly be discharged when they peak. At least in mom's case, Medicare continued to pay for at-home rehab 2 or 3 times a. Week, but this is nowhere near as effective as inpatient.
They involve a lot of paperwork and hearings but my view is that all it involves is my time and effort. If your loved ones MD agrees with you, usually you need a letter from them stating why the rehab should be extended. My mom's attorney told me that I had nothing to lose and his experience has been that the farther you go with the appeal process, the better your chance of getting a favorable decision i.e. more rehab with someone else paying for it. ( of course, there is no gaurantee) Start with the insurance company who will only pay for so many days and they should give you the info for the appeal. I am at level three ( having had 2 denials already). The process is tedious but I really think my mom could use more rehab to increase her strength and endurance and improve her balance so she won't be prone to falls. (Isn't that cheaper for them than to have to pay for a fractured hip and extensive rehab ?). My third appeal hearing is March 24th. It is done over the phone so you don't have to travel anywhere. It might be worth a try.
My roommate at rehab was there for much much longer, they finally gave up and sent her home. She laid in bed unless they carted her off to PT. I'm sure once she got home she became a couch potato.
My cousin, age 60, was so over weight, the surgeon refused to replace both knees. She lost 80 lbs (36kg), got the surgery, did ten days in rehab and went home. She was MOTIVATED.
I knew it would come back to bite us when insurance companies began telling us what we could have done and when instead of the doctors. We are truly at their mercy these days.
Anyway, I hope that helps.
All the advanced technology in the world won't work if the patient is passive and expects the therapists to do the work. it is very important for caregivers to be involved in therapy sessions so they can continue to encourage and help the patient post rehab. Stroke destroys part of the brain and there is only so much improvement that can be expected. OT can train a patient in different ways of coping using other parts of the body. it is not uncommon for someone who has suffered a severe event such as a stroke not to be motivated to improve. Most progress will be made when there is a professional encourageing but naturally this is expensive and only so much recovery can be expected. There is also an amount of pride involved where the patient does not wish to be out in public in the disabled state. Given the number of people who suffer from disabling strokes it is rare to see someone out and about.
My Dad did pretty good in rehab after having heart attack, but once home he ignored all the exercises... he would act interested when the therapist came to his house... but after he/she left, Dad was back to ignoring. There isn't much a therapist can do if the patient isn't willing to help themselves, thus insurances don't want to keep throwing money out the window.