My 92 yr. old Mom has been living with me for over 8 years and the time has come for her to move to an assisted living facility. She wants to move to Las Vegas or Florida where she has friends. I live in the Northeast and think she should be closer to me. She doesn't value the help and care I have given her so it makes sense that she is willing to move away. Although, it would be less expensive to have her move to either of these places and easier for me, I do feel conflicted because I know better. She, however, is very stubborn and says that I am not her Boss. Any thoughts on this matter is appreciated!
This is not optional. When she falls in AL and is transported to the ER, she will be there alone until the GCM gets there.
When she needs new clothes, toiletries, snacks, thr GCM will be doing those tasks.
When there are questions about her insurance, when she needs to see a specialist, the GCM will see to it.
In dementia, logic often flies out the window. In your mom's case, I would give her the choice of where she wants to be, but with a GCM if it's not near you.
My mom recently died in a hospice house with end stage Parkinson’s disease and mild dementia. I can’t imagine my mom not having been nearby.
This is your decision to make. Having your mom near you is not only for your benefit but also for your mom. Not to be disrespectful of your mom, but she needs your help more than you need her to be happy with your decision. You can live with her being dissatisfied, as unpleasant as it may be.
You are the one who will be called upon for decisions to be made. Her ‘friends’ don’t have any say in her care. For all you know, they won’t even visit her.
I hope things will work out as smoothly as they possibly can. Best wishes to you and your mom.
Your mother doesn't have to value the care you've given her over the years or appreciate one single thing you've done for her in order for you to help her make the right decision now. Her 'friends' in Las Vegas or Florida won't do anything to help her once she moves there, and once again, YOU will be the 'go-to' girl for everything, except you'll be far away. Making everything harder and more expensive for you to handle. It makes no sense at all for her to be so far away from you. My mother is 94 and lives in Memory Care AL 4 miles away. I'll give you ONE example of ONE crisis I had to deal with recently. She had swollen feet and legs so the new shoes she insisted she needed wound up not fitting. First of all, I had to go buy them for her and drive them over to the MC to begin with. 2 weeks later when the nurse called to say they didn't fit, I had to drive over to Wal Mart to buy her 6 pair of MEN'S shoes in various sizes to see which ones would fit her swollen feet, wait while the nurse tried them on her feet, then bring back the extras to Wal Mart for a refund. Then I had to go home and order diabetic socks from Amazon b/c she refused to wear regular socks b/c they were hurting her ankles. That is one small story about how I had to run myself ragged on her behalf. What would have happened if I was 1000 miles away?
With dementia, you as POA get to make the decision about which ALF mother gets to live in. If she thinks that's bossy, so be it. Sorry mom, but I am still going to have a million things to do for you while you're in AL (and that is the God's honest truth) so you need to be close by. Period. Anyone suggesting you tell your mother to 'manage on her own' just doesn't get it. The facility will be calling you constantly b/c they cannot make decisions for demented elders; AL is for fairly independent elders who don't need a ton of assistance, in reality.
Wishing you the best of luck doing what's best for YOU and for your mother. There are TWO lives involved here, not just one, in reality. I've been 100% involved with my mother's life since my parents moved back here in 2011 when dad couldn't drive anymore. I am an only 'child' and I'm IT; the go-to gal for everything. "Stubborn" parents have no problem picking up the phone and asking us to do a ton for them when they need something.........that's really the truth!
Not one of her close friends ever visited her there.
When she had a stroke, it took my brother 2 hours and me several more hours to get to the hospital. By that time, several really critical errors had been made. (My mom nodded "yes" to everything, ie, do you have diabetes? Have you ever tried to dc insulin? It is really hard).
If your mom is competent and cognizent, she needs to understand that going to an AL NOT near you is a bad idea. If she chooses that, I wouldn't make any of HER emwrgencies YOUR emergencies.
Do you know any of their kids? If so, I’d call them, ostensibly asking about health care and doctors that mom might could go to as she’s planning a move nearby their folks. It could be quite enlightening.
At 92 whatever health issues she has are only going to get worse. Unless she moves into a CCRC with full range of tiered services, that is included in her $$$$ buy-in, she’s going to need others to help her find new doctors, get a pharmacy set up, get her kitchen set up. I’m assuming that mom cannot use any apps so she not ever going Instacart route for groceries, or can use Venmo or Prime.
Make a list of all the things you do for her right now & what services she’s on. Who is gonna do all these in NV or FL?
She needs a reality check. The issue will be that she probably has the beginnings of dementia & can’t …. Im guessing she still appears very competent and cognitive but it’s there lurking. The move to a new place will be a huge stress to her system and only exacerbate her dementia. The world she thought she was moving to happened back in the 1980’s, maybe 1970’s. If something goes amiss, can you immediately drop everything and go to NV or FL to band-aid the problem?
Out of curiosity, does she dislike most people or is it that she flat dislikes you? If so, is there anyone she would listen to as to why it’s best for her to stay in a new place in the NE rather than move states away?
WHO will be moving everything and setting it all up?
WHO will be moving it all back when it doesn't work out?
How old are these "friends", when were the last together and what are their conditions?
If, or rather WHEN, mom has serious medical issues, OP won't be there to assist.
Typically ANY move is hard on elders, and especially difficult for those with dementia.
Sure, mom WANTS to move to where she thinks her friends are. They could be active or they could be in serious decline just like she is. That's not a good recipe.
Sometimes we have to curtail what they want and consider what they NEED. OP isn't saying mom needs to stay more local because she'd be devastated if mom moved away. OP doesn't need a therapist to work out her "issues." This new "phase" isn't like your child going off to college and leaving you with empty nest syndrome. This is an elderly frail woman who will have needs that only OP can address and will need oversight. OP's the one thinking rationally.
I bought a house across the street from my mom (about 7 years ago.) My brother lived 2 blocks away. She was in her late 80s then and had a neighborhood community of support. But she wanted to sell her house to get her money out of it instead of leaving it to “the heirs”, my brother and me. So she sold her house, bought a mobile home in a park (the monthly expenses which were more than she paid in her home) and the heirs wound up having to drive 20 minutes when she couldn’t operate her tv or thermostat or just to visit. The move was a mistake. And the heirs suffered the consequences. Part of the justification for the move was also the social life she could have at the mobile community. It didn’t happen. She could no longer see well enough to play bingo, and the spry 70s did not want to take on an old lady (my opinion). She did not go to the clubhouse or pool across the street from her home. She was too disabled by then bc of macular degeneration to venture out. So instead she sat home alone waiting for the heirs to visit.
My point is that my mom’s expectations of her abilities—and my expectations—did not match her reality. We are often slow to recognize our limitations. I fear this is the case for your mom, too, and her memories of life with her friends will not match the reality.
One wonders why she didn’t move closer to the friends earlier if this is what she wanted. Do you think any of this is a passive aggressive way of punishing you, who she has lived with these past 8 years? Seems to me that likely she’s feeling hurt about the move to an ALF (where my mom now lives, by the way, tho this is new for us), and is striking out to hurt you by letting you know she doesn’t need you, either. She’ll be fine with her friends. Maybe a conversation about how much you’d miss her if she moved away instead of how hard it would be to navigate the distance would restore her feelings of worth.
Wishing you both love in working out these complications. (Note: my mom is in a Florida ALF, with my brother nearby, after a year of living with me. I am in MS. Tho I am enjoying my break and the chance to sort things out in my own life which were on hold while she was with me, it’s too far. I wish I lived close by so I could visit, take her out, enjoy her. I am going to have to figure this out.)
Wishing us both clarity, peace and quality time with our loved ones.
And... if things don't pan out? Who gets to undo all that and move her back? Who will be there to provide support (AL doesn't substitute for family) or pick up things she needs?
It IS a lot harder to maintain things for our LOs when they aren't local. If she has a serious medical issue, how soon can OP get there?
There are a lot of unknowns, but given age and medical issues, this isn't a simple "let mom do what she wants." Dementia alone clouds a person's ability to make rational decisions. Memory loss can make the old "stomping grounds" or being with "old friends" seem like paradise.
This isn't a child on the cusp of adulthood, who we should let fly to make or break. This is a vulnerable old woman.
Shoot! Tell her to call her friends and find out when she can go there for a visit. Make sure they understand her physical limits and can handle her for a few weeks - maybe a month! Maybe all she really needs is a vacation with the old gang.
Then why would OP be encouraged to facilitate this move? It's not like she'd be moving around the corner, the hassles of finding a place (which is best done IN PERSON), packing and getting all her things moved, getting her there is bad enough. Finding new doctors, dentists, etc, arranging transport to appts, shopping, etc will need to be handled. Medical emergencies will be a total nightmare. If she had "needs" beyond what AL provides and/or decides this "utopia" she dreamed of isn't up to snuff, who gets to deal with it and/or undo it all and bring her and her possessions back, just to mollify her?
If she were moderately capable physically AND capable cognitively, she could arrange all this herself. She isn't and she's 92. This shouldn't be all about her wants, but rather her needs.
Work with the Social Worker in helping your mom find a Care Manager that can navigate doctor visits and other "problems" that might arise. The cost of a care manager varies.
Does either the Florida or Las Vegas location have a "sister" company in your area? If so you could ask if she can "try on" a community and see if it is to her liking. It would also be important to actually determine how often she spends time with friends. Does she know people that would actually spend time with her and would she be active?
It might also be easier to transfer her from the Florida or Las Vegas facility to one close to you if they have another residence in your area.
I would say...let her make the move at least at this point she is active and wants to do things. You never know what will happen in 6 months, 12, or.....
Yes it might make things more difficult for you IF you try to do everything for her. If there is a crisis you will be contacted, decisions can be made over the phone and if needed you can be on a plane in a matter of hours.
Bottom line-elder care isn’t perfect. It helps to have those supports in place. I am that extra set of eyes to make sure her pills are given to her on time, her bed linens are washed, her apartment is clean and she is okay. New doctors at 92? It makes sense that she is near you. Moving across the country at 92 won’t work. The change alone in scenery and routine will be very hard on her and her memory might (will) get worse—not better.
Best wishes to you!
If you get that far to have her accept this is a viable option. Interview a couple, ask about their hourly rate. At around $100.00/hour that may be the end of the discussion.
https://www.aginglifecare.org/
https://www.nia.nih.gov/health/what-geriatric-care-manager
Mom has mild to moderate dementia and Parkinson's. It's not like she's a recently retired gadfly who wants to flit off to greener pastures. She's 92 and has lived with OP 8 years. Who are these "friends"? Will they take her into the "group" and facilitate her needs? Or will they leave her behind because she can't keep up? With PD she likely needs some help getting around and isn't likely driving - are these also 90+ old ladies going to be hauling her butt around and waiting on her? I doubt it.
With dementia and POA, it is up to us to ensure they get what they NEED, not always what they WANT.
My mother's dementia wasn't even all that bad, but it was NOT safe for her to be living in her own place, alone. I tried bringing in aides, 1 hr/day, to get her used to them, have "eyes" on her and check she took her meds from the locked dispenser (she was about 1.5 hours away - with hearing loss and forgetting to change hearing aid battery, misplacing the hearing aid or best of all, turning the vol off on the phone by accident, I needed "eyes" on her every day.) The plan was to increase time and duty as needed, but she refused to let them in. Plan B was MC. She wanted nothing to do with moving, esp not to AL even though that had been in her own plans before dementia.
THAT was the brief prelude. Just prior to the planned move to MC, she injured her leg and developed cellulitis. Thankfully she mentioned the "bruise" to her neighbor, who called and told me. She was still mobile and self caring, so who would be inspecting her all the time? That could have killed her before my next trip there. It required several rounds of antibiotics and took a long time to heal.
So, she was about 92, like OP's mom. She lived several months beyond her 97th birthday, but in MC, closer to where I live, so I could monitor, visit, provide necessities and gifts, etc. It was a wonderful place. Most of mom's friends were either too old or gone, all in her generation on both sides had passed years before and she was beginning to self-isolate. The move to MC local to me was best. I have 2 brothers and both suggested taking her in (AFTER they found out how much MC costs, and would want that paid to them!) Although I said I wouldn't stand in the way, I suggested they get better informed about what it takes to care for someone with dementia. Neither was EVER going to work and thankfully it was dropped. YB is more local, but working full time, no room in GF's condo and is, quite honestly, rather scatterbrained. OB is NOT local (2 day drive) AND is abusive. I had reservations about the distance, because we would not be able to provide help.
With dementia, we can't always let them drive the bus...
I say it's like the old Rolling Stones song:
"You can't always get what you want
But if you try sometimes, well, you might find
You get what you need"
And don't forget: "The grass is always greener ..."
You job is to do what is in her best interest - not necessarily what she wants - though it would be nice if the stars aligned that way more often than they do.
I agree get her into AL in your "neighborhood" and tell her you will check into moving to her desired location - without actually scoping them out. Do some pro forma looks on the internet into the properties and print off some of the pictures. Give her a chance to get acclimated to her new home. Let's face it she may never be happy in the property you pick out for her - or for that matter the one her friends live at. Maybe you can let her choose between 2 properties in your area, while "You look" for her property of choice.
BTW, I WOULDN'T actually answer with "I AM the boss of you." It sounds good in our head - but will just make mom more stubborn and entrenched in her view if it comes out of your mouth. LOL. Best of luck.
ESPECIALLY when viewed through the rose colored dementia glasses.
Good answer regarding the "check into moving to the desired location." With dementia, there are so many ways to play that tune, if and when the question comes up.
Never NEVER try to play boss in front of them! We have to work harder to make whatever decision is made seem like it is THEIR idea!
Trust me, I speak from experience when I say you need to place her where she'll get the best care but is closest to you. The friends aren't an issue because they won't be visiting one another any more than they do now, and if Mom has dementia, those friends will quietly drop away very quickly. Set up Zoom calls if necessary, but Mom doesn't get to move based on friends who have no obligation to her.
Do what makes your life easiest, and that means having her close by.
NO WAY is my mom capable of making decisions in her best interest.
I need to run over there at least once a week to keep my eye on how she is. The staff is wonderful, but they don’t catch everything.
Today, I had to bring her a new watch. Hers broke. She doesn’t remember for even one minute what time it is, but she REALLY likes looking to see what the watch says.
Last week, I restocked her toiletries.
Doing all of this from halfway across the country would be soooo much more difficult.
My mother does not remember her friends at this point. I wonder if your Mom REALLY understands how old she is, end what her friends can and can’t do, if they are her same age.
Best wishes.
Pull together a list of LOCAL ALs WITH connections to a Memory Care Unit, write that list out, and give it to Mom.
Invite and encourage her to choose from the list she’s been offered, using whatever points that seem reasonable TO YOU - less expensive, better building facilities, more activities and social connections available, better medical staff, whatever you can come up with.
If you think it’s worth it, sling in the emotional- “I’d MISS you terribly if you were so far away.”
Then back away a little and say you need to be in touch with the one she chooses
“….to get the sign in benefits….”.
If she won’t choose tell her she’s on her own to choose and arrange for her placement elsewhere.
It sounds as though you may be in the gray area on your POA. Probably a good time to clarify what rights you have on her behalf.