My mother is very sick she has high blood pressure, diabetes and is on dialysis and other health issues I am the oldest of 6 kids, and I am the only one she can depend on to take care of her. I am constantly fussing at my and sisters to help me out because my kids need me too. I am not getting paid for expenses such as gas, I can't get a job now because I love my mom and I want to be there to help her bust is becoming to hard, I am starting to feel tired and burned out, I need help
You mentioned that you can't find a job because you are caring for your mother. If you had a job, could you afford to pay a caregiver so you could work? While providing care in the short term (however long that is) begs the question of what you will do after she no longer needs a caregiver.
I hate the way they have ignored my Mother...But I don't hate them, I don't even know them... I
Hopefully it's a major Holiday.. Hee.. Hee..!!
Payback is a *itch...
We care givers must stick together and support each other out. I am so grateful for this website, a place where I don't feel so alone in this world.
I have taken both our parents (it is only me and my younger--by 18 months--brother) in to my home to care for them. Each had stage 4 cancers. For the 1-1/2 years before my mom died, my brother and his family barely acknowledged their illness. My SIL showed up for chemo appointments, but that was largely due to the fact that she worked at the hospital where my mom was treated. I, on the other hand, took off work to attend ALL doctor, chemo, PT visits, all pharmacy and insurance work, all daily living work etc. I am single, divorced and I was new at my now-current job at the time. Thank God I work for an amazing company who understands and values the contributions caregiving brings! At any rate, when mom was put in hospice before she died, not only did my sibling and SIL NOT help in the least, they hired a lawyer to come into MY home and re-draft all of my parents' legal paperwork: their wills, their healthcare POAs and their durable POAs! They even added THEIR names to the beneficiary deed for the condo I lived in and paid the mortgage on for the previous 9 years! In addition to that, the new will accused me of not repaying a family loan (it was repaid) and the POAs were changed to allow them to access my parents' bank accounts without their knowledge or consent! Yes-my mom and my dad did sign those documents, but at the time, my mom was on morphine and did not really know what she was doing, and my dad just signed what was put in front of him in hopes that they would just go away so he could get back to caring for his wife!
In the end, we had to hire another lawyer to get everything straightened out, but even though my mom had passed by then, my brother and his family (of 6, mind you) never called, visited, texted, tweeted, instant message, sent a card or visited my dad, whose own conditioned worsened with his pancreatic cancer. My brother's family never once came to a doctor appointment, inquired about a test result, offered to help or responded when I asked, and asked, and asked for help. Again, thank Goodness for my wonderful employer, or I would be out of a job by now!
My dad and mom had a beautiful house on a resort lake not very far from where we live, and over the past 3 years, my brother and his family have taken many vacations for weeks at a time--inviting their friends, using my dad's boats and all the amenities, never once asking if it was ok. My dad was not one to "rock the boat" so to speak and his unconfrontational style gave my brother tacit approval to just help himself. Over the years, however, I had to listen while my dad complained about him and I could do nothing.
He has recently passed, and it breaks my heart to know that my dad was aware that his son did not care or even respect my dad enough to be there for him.
Now, my brother and I are se to inherit the lake house and some cash, as well as a car and two boats--one being a houseboat. I am locked in hell for the foreseeable future until this is all resolved. I have, however, engaged the services of a lawyer right away, so as to curtail any of the shenanigans that they perpetuated while my dad was alive.
Sorry to be so winded about my experience! It just goes to show you that this happens in every family, and it usually is the ones you would never think! I try to manage by reminding myself that I have the memories, I have the inner peace that comes from knowing I did my best and it was so very appreciated by my parents (as well as all the other family and friends who saw what was happening), and I can move forward with absolutely no guilt. I have even tried to forgive myself for not wanting anything to do with my brother or his family aside from what has to be done to liquidate my dad's estate. I did speak with my brother, letting him know that what they have done has not gone unnoticed by dad and by me, and that they have hurt me very deeply, so he knows that unless there is an acknowledgement and an apology, then we are done. That is all I can do, and just move on. As I struggle with this, I guess the only thing I can say is to try to spend every bit of your energy in caring for your parents. Focus exclusively on that, and not on your own hurts. Try to find a way to value this exclusion: for me, it helped to have no one challenging my decisions or interfering in the process, especially when they would not do things the way I would or as timely, and just try to find a way forward in forgiveness. I am trying to remind myself that they are just clueless and naive-- they shouldn't be hated for being stupid, just pitied. In the end, we are only responsible for our own actions, and for that, I am very proud that I was able to help my parents when it was so very critical, as they have helped me over the years. Good luck to you!
What I learned is, you do what you can, you try to mend fences, and do the practical thing of getting help WHEREVER you can.
Sorry I can't offer much advice because I am in the exact same boat. I have to drive 100 miles to help my mom who won't move closer to me and I have 2 siblings that live 5 minutes from her. One won't help at all the other only when I say something. Try delegating if at all possible, it might help a little. Take care.
Of course, I have none of the issues as yet that some of you do. Bless your socks, I hope I have half the strength and courage you all do as time passes and Mum gets worse.
There is a funny word call "respite care" which essentially means "services provided by a health care agency that permit a primary caregiver temporary relief from caring for an ill individual". Respite care is needed both for your health and the health of your family.
I would recommend speaking with your local ADRC (Aging and Disability Resource Center) for their professional guidance. Not having relief is my chief concern but also not being paid/recognized as the primary caregiver is another concern.
Our agency here in Wisconsin sends out a RN for a full assessment - the assessment, the on-site visit is completely free and confidential. We need obviously to have the person who needs the care present with our nurse but we prefer to also have the primary caregiver at the same time.
First of all, I feel for you and you have come to the right place for advice. We are sort of in the spot your siblings are. My husband moved across country for school and work and is not available to help his parents, who are leaning more and more on his only brother. His parents moved recently - not into senior housing (they are almost 80) but to a new house in a tiny town with NO senior services. So they expect his brother to drive a hour each way for every showfall so he can blow them out - and it has to be right away. They also depend on his wife for laundry and cleaning. Now, it is getting to the point that they don't want to drive in winter and expect their son and daughter in law to drive them to doctor appointments, grocery, bookstore, coffeeshop - etc - ON THEIR SCHEDULE, never mind that the two work full time.
so yes - my brother and sister in law are very angry with us who live across country because we are not helping.
We've suggested that MIL and FIL hire someone local to do the snow blowing and yard work, hire Merry Maids to clean and do laundry, and look into social services for things like driving help. (my mom lives in a tiny rural town and can use a car service for $2 a trip - set up by the county social services). My inlaws refuse because they do not want to PAY someone or have someone strange come into their home. And my brother in sister in law cannot say "no - you need to find local help" so they blame us for not helping. AND they all are mad at us for not coming out every vacation to help - how dare we take our son for a week at the lake instead of coming out to do their work!!!!
My point is - why are you giving up your job and your life? Mom should pay you for gas. Mom should be looking at services that do much of what you are doing. Help ONLY with those things where ONLY you can help. Just because she expects you to do them, does not mean you have to.
Just another view point and probably not a very popular one :(
Mom is midway through vascular dementia and is still living at home. She should be in a facility where she can be looked after and safe 24/7. They are, or were, both in denial to the severity of the situation. Because of their denial and my needing to care for my son, I finally had to shorten my days with her and ultimately step all the way back. Before my ultimatum (screaming for more help), my brother shut me out of Mom's care. She will not see me. It is all on him and my sister now. I actually called APS to prove the emotional neglect, but they only saw that she was not physically neglected. UGH!
I can only offer you hugs and tell you are definitely not alone. You can try to force the issue, but that rarely works. Hang in there.
My recommendation to you is, let go of what you cannot change (yes it's hard!) and focus on finding other ways to get a break...enroll her in a senior center (if she's physically able), some even have transportation available....they pick up a senior take them to facility for lunch and a couple fun activities and bring them back....this gives you a 2-3 hour break! Go to your local chapter of VSN (visiting nurse Assoc) and see what options are available to your situation that would give you a break, help, with your Mom's care! For a while I had a local high school student we knew from church who would come Granny-sit so I could go out to a movie or dinner....unfortunately Mom's health has deteriorated now so it's no longer an option....
Just have to think outside the box....this is a tough time...but it does have its rewards!! You will find you have more energy, the whole tone of your household will change if you let go of that/those you cannot change!! You are in my prayers! (((HUGS))) and God bless you for caring....!!!
I have 3 sisters who live in different states and can not physically be here. But one is close enough to drive and help out as I need when a major situation occurs. She and I made a pact that we are a team. We've even given our team a name and have a mascot and that makes it more "fun". Get rid of the hate...do it for a higher purpose. BUT set boundaries and care for yourself.