Are there any suport grooups online, or even in the community? my zip code is 32817, I want to get as involved as possible!!! GOd sent u
want to be apart of any and all support groups u may offer, online would be awesome as I am disabled to, my mom has PSP, which is very rare.
The desease is extremely progressive, and causes of death are falls or pnewmonia, she is on a thicket diet, and is very impulsive but in full control of her faculties!!!!
which sometimes I wish wasnt so...as she realizes how bad things are going to get and are already. I want to participate in helping others and maybe even starting my own support group, for a legacy to mom....her condition was also very hard to diagnose. All I can to is keep her calm, safe, and secure, but the facility she is in, is making major health mistakes, thank God I caught a few, but I do have my own life and need to take care of myself in order to take care of her!!!!! add me to any and support groups either online or not hopefully not too far from me as I live in the 32817 sip code, I beg of u to help me keep calm and serene myself, so I can continue to take of her and my family
Has any new research been done yet on PSP that could help mom, exept for levopeda, anything to help her stay calm and at peace, like a support group?
I have legal assistance, but they must be very busy, because I am having a hard time getting responses, etc, moms life choices are next..
thanks so much in advance, God must have sent u to me!!!! thans so much in advance
His grace is new each day. Often and as the end draws nearer they are not themselves. Keep being your sweet self as best you can. Another caregiver recomended the Love&logic website to me. I found it helpful in dealing with a difficult mom. Check the testimonials. They can be a help with elders as well as children.
Its really depressing,,,,,,,,,,,,,,,,,thanks for ur support, and that doesnt include me being her POA, accountant, and trustee, she never says thanx and I spend everyday (weekdays) working as if I had a full time job taking care of all her paperwork, doing her taxes now, because before she didnt care and didnt want to pay them! all she is concerned about is her money! all I want her to do is to spend it up while she is still with us, enjoy herself and stop being cheap with herself!!!! oh gosh its hard, and her desease is so progressive that everyday I see her disintergrating more and more!!!!
Trust God & trust God & trust God to get you & your family through it.
Don't take my thoughts as absolute, but I think UTIs are caused when ther is a blockage of some sort. Be it dirt or buildup of matter either inside the bladder or outside in the urethra. Holding urine too long when you have to go can also cause problems.
Cranberry juice (vitamin suppliments) and tomato juice tends to keep the bladder clean with Uric Acid.
I've heard a little vinegar works also but I haven't tried it (natures antibiotic). Small quantities of couse mixed in with water??? Check on this before you try it. Pickles are packed in vinegar. Our family doc reccomended vinegar when my hubby had the flu. Made sense to me.
You are correct to care for yourself. You can't care for another if you are out of commision yourself. Take care of you also.
Pray for wisdom & guidance. God has helped me so many times & through so much.
AARP website is also good.
Area agency on Aging & Community service organizations.
Google your specific topic & you will be amazed at what you find.
Learning the hard way is a bite. Forwarned is forarmed. Try to know as much as you can up front. Try not to let your emotions get in the way.