My 88-year-old mother has been declining mentally and physically for about a year. It is no longer safe for her to live at home on her own. We have found a senior facility that we really like. But, do we place her in assisted living or place her in the memory care unit? The facility did an assessment and told us she is right on the verge of needing memory care. Although she has dementia, she can still carry on conversation and enjoys talking to people. I fear that if she is placed in memory care there will be little stimulation, as most of the residents appear significantly less mentally aware. However, if we start her out in assisted living, we may be faced with needing to move her to memory care within a few months. Have any of you faced this type of decision?
Wishing you the best of luck.
My concern would be more to ask about the other residents. Are they only seeing those who are visible at the time of visit, those who require more care or are not mobile, while the more "with it" residents are elsewhere?
Our mother was the first to move into the newly opened MC (entire IL/AL/MC was rebuilt) section. The other residents vary in capability and progression. Generally in the 3+ years she has been there, the mix has been varied between those who are more capable vs those who need help (or move on, either to another facility or pass.)
ANY MC facility should have activities and socialization to keep the residents active. I would either find another MC facility, or find out if they are only seeing those residents who are less capable (visiting at different times might be more revealing, esp at mealtimes.)
You may request from her Physicians to get her assigned to a Nurse Case Manager, these Case Managers usually have local resources at their fingertips. Be prepared to answer alot of questions about finances, etc. to also help determine what type of facility for her short- and long- term care.
Side Note: Regarding mental stimulation, also ask about Adult Day Care Centers as an outing.
Determine if she may also be eligible for Dual Health Coverage, meaning Medicare and State Medicaid, as per finances/liquid assets/etc... If you believe she qualifies for Government assistance besides Medicare, go to the local Social Security office and get a determination decision. Bring financial paperwork, POA to this meeting.
What's medically necessary for her short- and long- term care are the types of questions to start asking her Physicians.
Once, it gets narrowed down to a facility, please do what you can to learn if they have any complaints of abuse or neglect of Residents.
During the process, I strongly recommend you keep a special notebook to take down names, numbers, dates/times, instructions you will be given ....
Maybe see if there are any local CareGiver support groups for Dementia that you could go to? Sometimes, that could give you some golden nuggets from others in your circumstance that, either is or, has experienced on a personal level.
I hope this helps some, and I certainly hope all the best during the transition.
Kind regards,
Delene
On the other hand, it could be depressing to her, so you may be the better one to judge this depending on her personality.
The one I enjoyed was 99 when she moved in and was much more "with it" than my mother!! She loved jigsaw puzzles, which I like too, so we'd work on them together, getting mom to participate (which was surprising to me, she was never one to do this!) I gave her one for her 100th birthday! She almost made it to 101, but a serious fall hastened her demise. I miss her a lot!
I would place her in AL and see how she does. MC is not for someone that can function at all from what I have seen.
My dad improved tremendously by getting the above.
Unless she is a flight risk.
My father was in assisted living until he recently passed, and there are statistics that when they are placed in memory care, they decline much faster.
Most assisted Living facilities are so crowded now, that they put ankle bracelets on their ankles so if they are not locked in, the door beeps loud if they leave.
I know all my clients that had Dementia and or Alzheimer's or many other issues, the children would not put them in memory care. One son was a fireman, and he said he could tell the difference just by going to the different floors.
Problem with dementia is you don't know if/when this might happen. They haven't been a risk until they were...
My YB had arguments for AL vs MC, which were silly actually. "Oh, she won't want to be in with a bunch of old farts." Not everyone in AL is an old fart and not everyone in MC is either - dementia knows no age. There have been several residents in mom's MC who weren't even early retirement age!!! AL vs MC with walkers, canes, rollators, wheelchairs is about even. When I mentioned that there was no control at the door to AL, she could walk out at any time, he responded with 'She doesn't do that now.' No, HOWEVER that was her own place and she was self-isolating. Here she won't know where she's at and can walk out the door looking for home. Staff who were there said no, MC.
Although she had never wandered prior to the move (that we are aware of anyway), based on what I saw/heard myself, she WOULD have left the facility... looking for her mother's place, my place, her home previous to the condo she was in last, etc. She would often ask where her room was, easiest one to find right at the corner of the common area. She WOULD have been a serious flight risk if we let her move into AL!
For example: could your mother (with other more able MCU residents) join in appropriate activities sessions in the ALF? Or the other way about - what would stop them bringing ALF residents to pet therapy in the MCU, as another example?
If this facility prides itself on continuing care, there should *be* a continuum. Challenge them on it.
As for "... join in appropriate activities sessions in the ALF..." I'm glad you wrote this! When mom first moved in, she was the first and only resident (several were to move in at the same time, newly opened MC, but were delayed), so there were many times I would find her upstairs with an aide and AL residents. They also often bring those who are capable to various activities (with staff to watch over them) to some of the AL functions/activities.
In mom's MC, several who moved in about the same time and about the same level are already gone (they progressed beyond most capability and either had to move to NH or passed away.) Others who have come later, some younger than ME, have progressed and/or moved on more than our mother. Our mother is declining, but slowly. She just started year 4. The first year she had a step down in memory at about 9 months (started asking about HER mother and forgetting her condo, but remembering a previous home from over 25 yrs ago.) She was still walking unassisted and doing most ADLs and continued to do so. It took 2 years before she asked for a rollator, but still mostly cared for herself. About 4-5 months ago she developed fear of standing/walking, so now she's in a wheelchair.
Memories are still slowly regressing, so she is living in about 40+ years ago, but given the progressions seen in others vs hers, MC isn't the cause.... She still know who I am and while communication is hard due to nearly non-existent hearing and the dementia, she still gets along great with staff! She's 96 now.
good luck. ❤️
Are you sure there is no better place available, one that is more person-centered? For-profit long-term care communities are notorious for finding some basis on which to raise a resident's rate of payment: "She needs more care now." "His memory is failing." I hope you can find a better place, one that isn't waiting for your mom to need more care, but to give her the kind of care that helps her thrive rather than decline. Best of luck.
Not in the facility our mother is in! It is IL/AL/MC and to get to MC one has to enter where everyone else does - I meet and chat with various residents from all levels. There was one AL gentleman who is actually older than my mother, no walker, or other assistance, sharp as a tack! Most I have met are just fine mentally. Age and physical ability are the more important deciding factors in choosing IL vs AL. While someone in the early stages of dementia might do fine in AL, initially, it can be hard to make the move when it is needed. My YB and I didn't agree on where mom should go, but staff said NO to AL after assessment and meeting her. Outwardly she could seem fine, and could function "fairly" well at that point, but it doesn't improve...
My LO fell between the two and continues to do so after a year and 9 months of residential care.
It was VERY TOUGH for me to accept the recommendation of the center that she needed the locked MC placement, but they proved to be absolutely right.
There is PLENTY TO DO in her MC unit, and higher functioning residents can go to religious services, concerts, the beauty salon on site, and MANY other activities with the higher functioning AL folks.
Socialization and boredom are NEVER concerns in her residence. Look for good programs before you choose......
My suggestion was to visit the MC area again, preferably at meal time. You would see a much better representation of all the residents. At other times the only ones you might observe in the "common" area might be those who are more challenged, physically and/or mentally, who require more care. Others may not be present, so you don't get the full picture.
Mom's place (and her residence) just started year 4. Those who moved in at the same time and similar level are gone. Others have moved in/out. There is always a mix of capability present in her place, and various activities geared to the resident's interest/ability.
Always go several times at different times of the day to get a better idea what ANY facility offers.
I KNOW my mother would have found the entrance and walked out, although she never wandered from her own place (YB disagreed with MC.) Within 9 mo of moving in, she was asking to get dropped off at her mother's (gone 40+ years) and was going to walk to her place, my place, her previous home, etc. She may have been asking staff about it prior to that (never asked me to bring her back to her condo, she saved that for YB thankfully!) but no way to know.
By the time they realize someone has wandered, it might be too late...
It should be based more on the current capability and how good the short term memory is - mom would never have been able to get from A to B without help. One has to anticipate AND understand progression happens at different rates for different people (just like any baby's progression from rolling over to crawling to walking, etc - it varies a lot and there are no real warnings!)
My mom at first was not at the same level as the other residents, and she basically stayed in her room watched tv and played cards. Within this last year, she stopped playing cards and at this time is basically nonverbal so she is at the same level as the other residents and actually takes herself to breakfast and stays a bit before going back to sleep in her room.
Memory care was right for her.
One thing that our facility is doing to beef up her socializing is including her on a regular basis in the activities in the PC cottages. I think that's been working really well. So as long as she's able, we'll continue to do that. This is a progressive condition, so the stimulation may help to keep her from turning the corner as quickly, but her condition will deteriorate, so I'd rather minimize the amount of change we have to subject her to.
Good luck!
We had many signs it was time to move to memory care, a long list I won't go into, but the final huge sign was that she was no longer safe due to wandering. We ended up going with a memory care unit divided into 2 separate living areas based on functionality of the resident. Mom is really happy and thrives there. She is well cared for, safe, eats much better and is kept busy with activities all day long. She is out with the other residents most of the day and has a beautiful atrium patio to enjoy. Any need is taken care of with visiting dr's, physical and occupational therapy as needed and emergent needs addressed promptly. It hasn't been perfect but is a wonderful place for her to spend the rest of her life. If and when her dementia progresses she will move to a room on the other side with those less functional. Not looking forward to that day, but am glad in the mean time she is with people like her. It's not depressing for her or her family to visit and participate in the many activities and parties offered because she resides with people who still enjoy much of life.
So I guess, short story long, depending on her functionality, I would do assisted living as long as she's safe and well cared for AND allow the flexibility of looking at stand alone memory care facilities rather than just moving her into the memory care unit of her senior facility.
Due to the level of care she needed, I got daily, sometimes more, phone calls from the AL. There were so many things that she needed help with. She went to a wheelchair and bladder incontinent. Plus, the resistance to care....AL staff are not just trained to manage the care of someone with dementia, like MC are. They will remind residents, but, if the resident has short term memory loss, they forget soon after the reminder. And, they need lots of prompting to bathe, bush teeth, change clothes, eat, etc. Based on my experience, someone with significant dementia, even if they are verbal, are not going to be fine in a regular AL.
When I moved my LO to MC, she immediately relaxed and was able to get the one on one attention that she needed. And, they allowed her to go to the regular AL section for visits, special occasions, holiday parties, etc. In her case, it worked out. Each person is different.
I don't approve of the AL/MC. From what I have learned, the place where she is now, they started out AL/MC but it didn't work. I hate the separation from the AL part of it. Not all who live in the MC should be separated from the AL side. My mom is the higher functioning in some areas.
What is your experience where your LO is now? She must be in a lovely place to have everything done for her like that. My mom wasn't too lucky at the first place she was.
Mom has dementia. Her short term memory is totally gone. She repeats the same statements/questions multiple times a minute, all day long. She could not help Dad in any way, and actually caused him a great deal of irritation at the end.
Once he passed, the AL staff told us she would need MC immediately. She was assessed as being at a 6 year old level of functioning at the time, less now. While the AL area had good programs and there were lifelong friends living there, Mom became confused and somewhat agitated in any group setting, even family. She could take one or two at a time but not more. She gets more agitated later in the afternoon. She cannot remember to change her clothes, bathe or shower, go to meals, take her medications, go to bed. She does not remember that dad is gone and does not remember that she doesn't live in the family home (sold) any longer. She constantly packs "to go home." Constantly asks where Dad is.
Her MC area is locked, but they have all day program of activities that she can participate in. There are occasional "excursions" to the AL area for programs. We can also take her out for lunches and MD appointments, but she's resistant to that. We are told she enjoys the "crafts" projects but hates "bingo" since it involves groups of people talking at the same time. She has her favorites among the residents and some less favorites but she is not one to rock the boat. It is a great relief to family that she has 24/7 oversight, since that's what she needs. She seems pretty settled and content there.
Many can't afford either full-time help or a facility. This is where the majority of seniors in need seem to be!
Our mother could also do ADLs, and carry on a conversation, but also tended to repeat statements/questions. While searching/waiting for a place to open we tried hiring aides 1 hr/day to check on her. We installed cameras, more to watch who came/went, but to check on her as we weren't local. Over time I saw her wearing the same clothes (she had enough clothing to open a store), initially 2 days in a row, and eventually 6 days in a row! Sometimes they would be soiled with food droppings. Once we took the car away, I had to take her shopping and realized although she was buying fresh fruit, veggies and meat, she was eating frozen dinners and boxed crap. Had no way to tell if she was bathing. Found evidence of "accidents" when we finally got to clearing, cleaning and fixing condo for sale. She also started this odd OCD behavior just before bed - initially a day here and there, a few times, but it became 1 - 1.5 hour marathon checking the door lock, sidelights, dishwasher and LR, over and over! Most likely her "version" of sun-downing, although it was later in the evening.
To others, she might seem fairly functional, but clearly she wasn't. In her mind she was fine, independent and could cook. She wasn't and couldn't. She refused to let the aides in after less than 2 months. She wanted no part of ANY AL or moving anywhere (AL had been part of her plan before dementia) and wanted nothing to do with Meals on Wheels.
She didn't (that we're aware of) wander from her place, but again, there's no warning sign for this! Her "circle" of travel was slowly becoming smaller, so clearly she would've easily gotten lost. She was in self-isolating mode, making excuses or ignoring the other seniors who would all go to the Senior Center functions/special meals together. YB was adamant she would prefer AL, but there was nothing to stop her from leaving the building. She would, at this point, get lost in a "new" place, and would likely go out, looking for her "place." I said no. Staff who did assessment and met her said no. I do think MC was the best choice for her.
The first 9 months, she begged YB to take her home. Then she asked me to drop her at her mother's on my way home, or did I have a key to their previous home, sold >25 years ago! I know she asked staff many times to call her mother, gave them that old address and often said she was going to walk to her mother's, my place or her place. She, IMO, would have walked out of the place with no warning. In MC, fairly independent 2+ years, no walker before that, ADLs were done by her. It's only recently she won't stand/walk, so needs more help (into yr 4.)
In other responses I suggest going to visit the MC at other times, specifically meal times, when more residents are together. You might be seeing only those who are less mobile or more needy of supervision. Others could be elsewhere. IF all the residents are together and all appear to be minimally functional, could you try any other facilities? Mom's place is a mix and being there 3+ years now, I see residents come and go, some progress rapidly, others not so much. If there at certain times, it can appear that not many are very functional, but other times there are activities, meal times are fairly busy, residents are as active as they can be. Often they have outings for those who can participate, and other times they join the AL residents for special activities/occasions.
Not all facilities are alike, and must be checked thoroughly. Go at different times to get a better sense of the residents. Ask what their plan is for your mom if she's more aware.