I hate caregiving. I hate smiling while I listen again and again to stories about things that they did in the 40s, 50s, 60s.... I hate hearing about how their pooping or peeing is going that day; that they need me to order more diapers or they don't like the new sheets I bought or that the housekeeper missed a spot or that the sandwich doesn't taste as good as it did 40 years ago when he was still new to pipe smoking... I hate all of it. It sometimes becomes hating them, but I really don't. I hate seeing my fathers cry - one because he feels so sorry for himself, the other because he's trying to keep up the lie that my mom isn't careening into dementia. I hate watching my mean-spirited mom sink into that dementia. I hate watching my sweet stepmom in so much pain it's intolerable. I hate all of it.
I only have one living child remaining. I have been a single mom since she was two. WHAT are we going to do to make sure our child/children don't have to watch us go through this miserable process of aging? HOW do we prepare - not just financially - to make sure they never have to go through this love-hate dance at the end of our lives, too?
Our family’s memories are not contained in a house. They are contained in our hearts and minds. We can see them in pictures. My girls know that I will NOT cling to the idea of staying in this place.
My mother is in MC Assisted Living. My local daughter knows that I would be more than happy to move over there when the time comes. It is lovely.
No way do I want EITHER of my daughters to have to take care of me 24/7 when my mind has left me.
One of my daughters says no way re taking care of me. Other says yes. She has worked in an AL and knows the deal. BUT, I'm thinking NO. I don't want her to have to take care of me when I'm a difficult pain-in-the-a$$.
When we get older, we plan on downsizing. We already have wills, living wills, POAs and such in place. I would hate to ruin their lives like I feel like mine is. It's not "ruined" it's just hard and not fun.
I have been there. I feel for you and hope you find relief somehow.
My mom is in a hospice house which is difficult too.
Still, the people who care for loved ones daily have it the worst.
Take care.
The very first thing I said back to them is, “No, you won’t! Thanks, but no thanks. I want you to live your life for you, not me.”
They were surprised at first. Then they both said, “Thank you, Mom.”
I remember hearing other posters saying that they never felt a responsibility to care for their mom because they didn’t care for their moms. Those moms set the right example for their children.
I think the best way to prevent the cycle repeated is to show our children that our parents will be just fine in a facility.
If possible, never take them in. If that isn’t possible and sometimes it’s not due to extenuating circumstances, then put a time limit on how long they live in your home.
Please don’t leave your own home to be with your parents. Most people regret doing this. Again, if it is necessary to this, put a cap on the amount of time that you will stay.
This isn’t ‘The Waltons.’ That was a television show!
Any other television show that makes it look like ‘one big happy family’ is hogwash! It’s stressful and very often ruins the family dynamics. Sometimes there isn’t even a strong foundation to begin with so you can be sure that the relationship will crumble.
Plus this business of them raising you is a crock! They had to raise you. That’s a parent’s job. Otherwise, it’s neglect and abandonment, in which case they don’t deserve you now sacrificing your life for theirs.
My cousin calls her mom on Mother’s Day and Father’s Day to wish a her mom a happy Mother’s Day and happy Father’s Day because her mom raised her alone! I love that she is so very grateful to her mom.
Her dad wishes to be in her life but she says that he is a stranger to her. I understand how she feels this way.
Eventually, we are going to have to downsize. My husband is not going to be able to continue to do the up keep. I already dread when I need to clean an 8 room house so downsizing will be nice. But will probably hang in there until grandson is older.
As said, get all your paperwork in order. I have all mine in a filing cabinet. I am about ready to reorganize that with notes or what is what and who to call. Get rid of what you don't need or have not used in years. I have been doing this for a while. If not for DH, I could get rid of lots more. That means that China u never use. That punch bowl with 12 cups that was grandma's. Believe me, your kids probably don't want it. I have girls and they don't want any of my stuff.
What always bothered me is "we want to keep Mom in her house as long as possible" and those Ads for reversed mortgages. "So you can stay in your home". To me when it comes to needing a reversed mortgage, time to sell because you can't afford the house any longer. When a spouse dies, so does the money they brought in. This usually effects the woman because the husband made more money. The pension gets cut and so does the SS. I so wish I had talked Mom into selling her house when Dad died and move to an apartment. Her money went into a money pit. There comes a time when staying in your home is not feasible. We need to keep an open mind to changes. Not just how it effects us, but how it effects others. We can't expect our children who have jobs and families of their own to be able to mow our lawn, be Caregivers, ect. So we do what we can for ourselves. Seek out resources. Know when staying in our home is just too much and time to move on. And hopefully we can put some money aside.
If you don't want your child to experience it, be sure to have plenty of money in the bank to pay for nursing home care, move into one before you need it, and don't go on any medications when you start developing health problems. You'll die more naturally and much faster.
She was 100% proactive in her own health - and even a month before her stroke had just had all her arteries checked and was cleared.
Life happens - bad things happen and they are totally out of our control. Because she lived alone - she was alone when she had her stroke - the clot traveled too long and it was considered a massive stroke. She was just shy of 72 bday - she will now need care for the rest of her life - in a country that isn’t prepared to provide quality places for her type of disabilities.
That has make me -the now 49 year old daughter think about my own as well as my husbands future care.
To be honest - I cannot wrap my head around it yet. I don’t want to put this on anyone I love to do alone either - but I also realize I need to figure out who will fight as hard as I have had to fight if this happens to me.
My husband and I don’t have children - we were the people who took in other people’s kids lol. Scary to think either of us would be sent to a very broken system if our outcome was anything like my moms. Assisted living and memory care places are great fits for some - but they are not a great fit for someone like my mom.
Gosh just what it takes to recognize UTIs (the cognitive decline and strange behaviors) and how to treat them carefully without severe side effects and how to find time in the day to mobilize and immobile person - the baths and hoyering and changing etc etc eats up an entire day. Getting to an appointment is like a entire day for a dr to see you for 15 minutes. So I don’t know the answer this to this question yet - I’m still after 2 years trying to figure it out.
I do know 100% that the care my mother requires and the quality of life she deserves doesn’t appear to exist in my area - but I have not given up - I hope to find the answer and until then I just keep going :).
They know me and my husband have PoAs in place (and they know it is them and what the duties are, when the duties kick in and that we in no way want any bickering over our affairs). We have Living Wills (so that no one need make the awful ending of life decision themselves); we have Last Wills (and they already know we have a trust which should be spent on good qualify care for us and whatever is left over will be split 3 ways equally). They have a "working" understanding of how the law works in terms of who can make decisions for another and when. They know in no uncertain terms that they are not to move us into their homes when we seem needy nor orbit around us pretending we are "independent" in our home. They have, first hand, seen the signs of dementia, what a UTI looks like in the elderly, Parkinsons, and the impact of denial and stubbornness. They at least have an idea of when to legally intervene.
The second half of this plan is for me and my husband to be realistic and move ourselves into an appropriate community BEFORE a crisis, BEFORE we "think" we need it, so we get to make the decision while in our right minds and do all (or as much) of that work as possible. Few individuals are able to acknowledge, and then act, when they sense cognitive decline has slipped into themselves, and my sons also know this. So I guess giving your child knowledge and wisdom about what will probably happen is what needs to happen. This way she isn't blind-sided. I would also impress on her that she is NOT your "caregiving plan". She can surely be your helper and manager but not your hands-on daily caregiver. My own mother lives in a small house next to mine and is still mostly independent at 91. My husband and I are not retired and don't plan to be for another few years. I've had the discussion with her that when her care becomes too much for me, she will need to go to the very nice facility where my MIL also is, 3 miles from my house. As my mom's short-term memory erodes, I'm not sure that she will even remember this discussion or like this plan, but we DID discuss it, she DID agree and that's all my conscience needs. So, even if your finances are not stellar, there are still solutions of which you should make your daughter aware for your care, even if it means Medicaid. My MIL is in LTC in a very nice facility as a Medicaid resident. She receives the same care and attention as the private payers. She is even in a private room. She is with people all day and doing better than I think she would cloistered away in a private home. And my husband and I have our lives. I am not judging anyone who wishes to provide hands-on in-home care for their LOs. But it should never come at the cost of their own well-being or future. What would be the point of that? I wish you much wisdom and peace in your heart as you move through your caregiving.
My daughter, 28, continues to believe she'll just tuck me into a "grandma flat" in her basement someday, but 1) she has no idea how awful my own life is right now caring for our elders and 2) I would NEVER like to live with her, even when I'm old, because it's such a burden on the young.
xoxox
My mom had the means to private pay for care in a facility, as well as a LTC policy. Whatever else I might have gone through, it was a huge relief to know that finances were not an issue. When she needed things, I could just buy them; we had it worked out that if I started to experience financial strain from not being able to work because I had to take care of her, she would pay me. It took a lot of stress out of the situation.
The issue as I see it is that "our" generation isn't going to have the financial resources that our parents had. So it's going to take some serious financial planning to ensure our kids don't end up in the situation we find ourselves in. My husband and I are currently shopping around (with the aid of a financial planner) for LTC policies...and I have to say, being on this site has helped me know the "right" questions to ask: such as, does this policy mandate that a qualified facility have 24/7 RN on duty (thanks, Alva!); is there a continuum of care; will the policy pay directly, or do I have to pay out of pocket and then wait for reimbursement; what's the top amounts they will pay out; etc.
I sure don't want my kids "stuck" where they have to put their lives and their families lives on hold to take care of me and hubby because we were flippant with our future care plans!
I love the house where my husband and I live now, but certainly NOT ENOUGH to saddle my children with trying to keep me here.
I will hopefully remain healthy long enough to see my grandchildren approach adulthood, but I leave the choice of visiting OR NOT, to them. I CHOSE to do what I did for those who depended on me, but my PERSONAL INDEPENDENCE is too important to ME to depend on them.
I’ve told them that if my personal situation indicates that I’m not connecting cognitively, they are to DISREGARD my complaints and insults and tears, and I MEAN IT. They have known me as a loving and supporting parent, and I want THAT MEMORY to be the one that lasts.
My “departure service” will be preplanned and paid for.
If anything else occurs to me while I’m still mentally competent, I’ll incorporate it into my “declining” plans.
I love them dearly, and I’ll do ALL I can to spare them.
Of course, all of my legal responsibilities are in place.
And then make sure your loved ones know and understand exactly what you want and don't want, regarding your care. If things are made clear, there should be no issues in carrying out a persons wishes.
- A living trust. I have a living trust where my bank's Trust department takes over if I'm physically and/or mentally incapacitated. My trust department's representative instructed me to put everything possible into the trust so the department can take care of it should I become incapacitated (and act as successor trustee when I die). My dogs and household goods are included too.
- A Specific Durable POA for "stuff" so those items that can't or shouldn't be in the living trust like vehicles or an IRA account and other accounts like the power company and phone company. (The trust department CAN ONLY handle things in the trust.) So, if I deteriorate mentally, my friend is my Agent and has the authority to take care of non-living trust stuff like selling my car to collect the proceeds for my care.
- A General Durable POA as a over-arching device in case I miss something that hopefully an agency will accept.
Just my two, possibly useless, cents.