Four years ago my Dad (84) had completed an advanced medical directive with the assistance of his attorney and in my mother's presence. My brother, who was a physician, insisted on not following my father's wishes, I took care of my father at each hospital, vent care unit, rehab center, etc. I went daily over the next 8 months after a day of teaching special needs children, was 55, and received support from the hospitals but absolutely none from my family. My father had been declared competent to make his own decisions after 3 months of recovery of a massive stroke, was initially intubated against his specific written instructions by my brother at the hospital where he worked, and Dad finally told the doctors and nurses that I was to be in charge. My mother was busy enjoying her first freedom - they had been married for 63 years. She rarely visited. She and my brother made very poor decisions that had a serious negative impact on Dad's health. In the end, I was the only person there when he died. My other siblings were not. This site gave me so much comfort. My brother lost his license as a consequence of ethics violations for three years after forty years of practicing. In Georgia, he could have been charged with a third class felony. Georgia follows the AMA's ruling 8.19 which prohibits a doctor from treating his own family unless there are no other doctors present. My brother was not close to my father, and rarely visited him. I am the only one who lives near my parents farm. My brother has now been given back his license, and he is now treating my mother for aches and pains and her health needs. She had a traumatic brain injury six years ago and has struggled with emotional and memory needs. As a special needs teacher, neurological issues were my specialty for 35 years. She needs a specialist and is ill now and refuses to go to her doctor because she "has my brother to tell her what she needs" to do or not do. Do I just ignore this ? I do not want to go to court. What is your advice ? My older brother will not speak to me.
Do I have this right? Your greatest fear (among lesser others) is that your brother's inappropriate professional intervention will prolong your mother's life artificially and subject her to, possibly, years of institutionalised, humiliating dependence on others?
Your best case scenario is attractive for a person who likes the quiet arcadian life, which you do, which is good. But. Your mother is not comfortable with your input, is she? Hasn't she already made it clear that she - quite irrationally - places all of her faith in your older brother and will not listen to your advice? The idea that you could do good for her by stealth, being present but not visible from her home… This is not healthy. It is not a sound basis on which to operate. Pretending you're not there and she's managing on her own? Your having to pretend anything is not a good sign.
What is it about your local social services that makes you dread their influence on her life? As far as I know, the role of social services is to support clients in leading their own lives as far as possible, and I've never personally experienced anything different from them. What's wrong with that? Have there been previous run-ins with social workers, perhaps somewhat officious ones?
With regard to your brother, as you say: "he's at it again." Have you considered consulting the AMA about what possible steps might persuade him to desist from treating your mother without having an adverse impact on what remains of his reputation and career? You could give them a call without naming names, perhaps, and not take it further unless you really have to. Your mother needs, as you say, to see a specialist. If your brother is blocking that, he must be removed.
This does lead me to wonder, though, whether actually, on the contrary, you are afraid that your mother's life will be prematurely cut short through neglect of her medical needs; as though you and your brother have swapped places in terms of interventionism. But either way, your brother needs to "resign." If he won't see that himself, and your mother clings to him as her doctor, then you will have to pursue other courses of action. You won't get any thanks for it.
Another reason for scepticism about your plan to care for your mother yourself is that you are not the only child she has ostracised - you're just the only one she hasn't *successfully* ostracised: the others - how many? - have taken the hint. I think you might be in danger of making a huge sacrifice in memory of your father which will do no good to any one living: not your mother, not you, not your husband or son, not your brother. In your place, I'm afraid, I'd have social services round to her place in a heartbeat. I realise that isn't what you'll be happy to read, but it is the conclusion I keep coming back to.
Just a very cautious thought about you, too. You are a loving and dutiful person. But you are also one who has taken some very heavy blows from people you love. These must have been painful. If you have forgiven your mother and eldest brother for inflicting them, I applaud that; but nonetheless these people have hurt you and, more importantly, their behaviours harmed your father in a horrific way. Be careful not to pretend to yourself your feelings play no part in your thinking. Do be kind to yourself and practical about your mother's care.
Walking away is one alternative, but would be very difficult for several reasons, not the least of which is that you care for your mother and your brother and you see him walking them into another, as cm says, "can of worms".
I am a little concerned about the phrase "and make her happy". No one can make another person happy, We see others here try and get very distressed when they can't. You may be able to get her proper medical care, see that she is fed and dressed and kept clean perhaps. If she is a hoarder and an alcoholic, you may not even achieve all of these things, never mind keeping her happy.
You wrote about a pretty big change for your family - you and your husband building a home and moving out to your parent's farm. What does he think about this? I think it is crucial that you two are of one mind as there are many challenges in caregiving, and it sounds like your mother and brother offer a few extra challenges. How realistic is building a home when your mother is aging and her health will deteriorate eventually and she may eventually need more care than you can give her. She may need a facility at some point. Does this move affect anyone's job? Do read around this site to get see others experiences of caregiving.
What a very difficult situation, and heart breaking. After seeing what your father went through, I can see it is weighing on your mind. ((((((hugs)))))
Walking away is one alternative, but would be very difficult for several reasons, not the least of which is that you care for your mother and your brother and you see him walking them into another, as cm says, "can of worms".
I am a little concerned about the phrase "and make her happy". No one can make another person happy, We see others here try and get very distressed when they can't. You may be able to get her proper medical care, see that she is fed and dressed and kept clean perhaps. If she is a hoarder and an alcoholic, you may not even achieve all of these things, never mind keeping her happy.
You wrote about a pretty big change for your family - you and your husband building a home and moving out to your parent's farm. What does he think about this? I think it is crucial that you two are of one mind as there are many challenges in caregiving, and it sounds like your mother and brother offer a few extra challenges. How realistic is building a home when your mother's health will deteriorate eventually and she may eventually need more care than you can give her. She may need a facility at some point. Does this move affect anyone's job? Do read around this site to get see others experiences of caregiving.
What a very difficult situation, and heart breaking. After seeing what your father went through, I can see it is weighing on your mind. ((((((hugs)))))
Is your mother competent? If she is, you're a bit stuck. If you're confident that she is not: do you have any medically qualified candidates lined up to take over her medical care? Given the inevitable conflict that would ensue, you'd be asking a physician to tread heavily on the toes of another physician and they don't generally go for that.
You have rather an emotional can of worms on your hands, haven't you. What do you *want* to do?
Disregarding all external factors, would you choose to care for your mother?
I'm curious, not contradicting: given that you seem to be a reasonably forthright and assertive person, why are you especially troubled by the expectations of the nearest small town? I take it they wouldn't actually burn you in effigy, would they, if you were to explain to the key gossip mongers that your mother had rejected your help?
Medicare bars payment for items and services rendered by physicians to immediate relatives of the physician, to the physician’s partner in a partnership, or to members of their household. “Immediate relatives” is defined to include husband and wife; natural or adoptive parent, child and sibling; stepparent, stepchild, stepbrother, and stepsister; father-in-law, mother-in-law, son-in-law, daughter-in-law, brother-in-law, and sister-in-law; grandparent and grandchild; and spouse of grandparent and grandchild. Medicare Benefit Policy Manual, Chapter 16, Section 130. Perhaps that is what you are referring to.
Could you ask advice from your own doctor how to address either issue? You are in a difficult situation.