Mom is in a facility so we don't see what happens when we aren't there. She is fine during the day but at night, her personality changes, from what I am told. She doesn't have a mean bone in her body. But this dementia, or the people who have worse memory issues than she does, is either making her worse or something. I was told that she could have sundowners. She doesn't wear her glasses, which is fine. Now she won't wear her hearing aids again. They are new. I don't think that the employees know how to deal with people like her. Although, I do like one of them. One of the care givers tonight when I stopped over, told me that she hit one of the caregivers when she either tried to give her the morning meds or tried to put on her hearing aids. She doesn't have any problems with me. Does anyone else deal with situations like this? I would love for her to live with us but I think that I would be in for a larger responsibility than I can handle.
If your mother is refusing to wear her glasses and her hearing aids, then she's likely to be having even more behavioral troubles as she will have difficulty knowing where she is in space. Poor eyesight & poor hearing = trouble. If the care givers can find an effective way to help her on with both of these items, she'll be much better off.
Here is a link to some useful info about Sundowners:
https://www.seniorliving.org/health/sundown-syndrome/
Be sure to speak to the staff at your mom's community to make sure they DO have experience with memory issues/dementia/Alzheimer's, so you can feel assured she's being properly cared for and doesn't have to placed elsewhere.
Best of luck!
I was told that if she starts creating any problems, that she will be asked to leave. She knows not to hit me. I don't want her to leave and I know that my brother doesn't either.
I would prefer she be moved to assisted living. But they need to show her again how to do some of the things for herself but they won't. Just like a little kid, if you don't show them, they won't learn?
I don't feel that they really know how to deal with people who have anger issues there. It seems all that they want are people that are calm all the time.
I was told that they told her that she should wear her hearing aids. She was told that she only needs to wear her glasses when she reads but she doesn't do that. I will talk to her again about her wearing her hearing aids. I made a sign for her about what she should do. I can just as easily get back to her in a nice way.
And don't worry,I won't bring her home with me. Still working full time and no time to take care of her properly. Plus she is with other people and with us she would be with just the cats during the day and us during the night.
In my mom's journey with Vascular Dementia, the GeriPsych folks and the advanced practise nurses who worked with them were the best source of information and treatment. They were able to get mom on a regimen of meds that kept her calm but not knocked out.
That DOESN'T sound like Memeory Care.
Judy, are you familiar with Alz.og? Even if your mom doesn't have Alzheimer's, they have loads of good articles.
https://www.alz.org/alzheimers-dementia/treatments/treatments-for-behavior
Hugs 🤗
My mom/we were told that she has mild unspecified for years. She is 88. And her doctor said that she will have good and bad days. It is expected. Shoot, I have my good and bad days too. :)
my mom was giving Quetiapine (seroquel) for her fits of rage & sleeplessness. My Mom has taken swings at me multiple times.
The staff knows of sundowning but probably can’t do anything about it. You’ll have to make that step to help her in helping them, medication.
A friends Mom used to get violent but because they had never researched, they didn’t know what to do & would instead take her to ER. That’s how bad this mood swing can get...the hospital would end up sedating.
It sounds like you need to take this info, from caregivers, to heart & research! They need your help if you are your Moms POA.
My brother is her POA. I am her healthcare rep. But they go between the both of us for issues. Plus they have been hiring more caregivers because they have a lot more people there than they did when she moved in there.
Perhaps she needs medications changed to manage her brain chemistry.
It is certainly possible that line staff do not know how to deal with your mom in an appropriate manner - with the stress they are under. I would encourage you to not 'just' let the staff deal with her as some here are advising. If I were you, I'd ask to speak to the MD/medical professional in charge.
Doubt that your mom with dementia will ever be able to live in a regular assisted living unit. Memory Care Unit within an an AL could work until dementia becomes worse. The drugs Namenda and Aricept, have been used for years to help slow progress of Alzheimer's disease. Having worked with patients who took these meds, I would say results are mixed. Nothing works for everyone! At a point in the progress of the dementia, the above meds are most definitely not going to help! But there are other medications that can help with combative behaviors and also drugs to help sleep patterns.
Also remember that sundowning behaviors can partly be caused by waning of light, increased shadows, and fear. (Many other reasons too)
Having read through most of the comments (focused more on your posting/replies, the previous comment if context needed) I agree with 2 things others have said:
Test for UTI
Sun-downing
These *MIGHT* be related. Our mother, when living alone, didn't have traditional sun-downing symptoms, but rather ever longer OCD behaviors later at night, just before bed (we had camera that caught all this!) She is in MC now (3 years in January.) Around mid-year last year, she developed some serious sun-down symptoms (posted more in response to another/your question if it only happens at night.) It WAS UTI related AND behavior was only later day/early evening. She was always begging to go home regardless (less now) but in general was mild-mannered, well behaved, so this was out of the ordinary for her.
You indicate mom has been there about 3 months - is this a recent behavior change? It could be one or the other or even both UTI/sun-downing. The UTI test is simple, cheap and can rule out that as the cause. She may not need any other medication changed, but in our case mom got Lorazepam (anti-anxiety) to take the "edge" off. It was the smallest dose, only one later in the day if needed for the sun-down behavior, and once UTI was treated, we haven't needed it again. It works quickly (10-15 min, even the first time), doesn't "dope" her up and took care of the behavior.
There is also discussion about moving her to AL - she IS where she needs to be, in our opinion. She has already wandered from her previous place, and there are NO restrictions to coming/going in AL, so there won't be anyone around to prevent her wandering off, which she WILL do. Additionally, every move is hard on those with cognitive decline. She is where she will need to be, I would not move her. She is also only recently moved - it can take a long time to adjust fully. Mom sometimes either doesn't realize this is "home" or forgets where her room is (first one around the corner from the LR/TV area and mere steps away from the hallway bathroom, who she is on intimate terms with!!! :-D
When I joined this forum, I didn't believe the UTI posts, but now having experienced it, I am a believer! Additionally, she recently had night-time bed wetting, which is also not her norm, and sure enough, UTI. Clearly it was, because now that it is treated, the bed wetting has stopped.
Also, no matter how clean they (or she) might think she is, UTIs are so easy for elderly to get. Merely wiping "the wrong way" can introduce bacteria and the older we are, the less able our bodies are to ward off the infections.
"I don't want her to leave and I know that my brother doesn't either."
VS
"My brother wants to move her after 6 months due to finances."
Although you are not POA for finances, you two have to work in conjunction. Have you been able to discuss the financial concerns with him? If she truly doesn't have enough funding to stay beyond 6 months, this needs to be dealt with NOW!
Would her income be low enough to qualify for Medicaid?
Does the facility she is in accept Medicaid?
If she is over the income for Medicaid, what are the alternatives?
Moving her might not even be an option - while costs can vary, if she is in dire financial need, there isn't likely to be another place she can afford. AL & MC certainly are not cheap, and are usually in the same dollar bracket per regional area. Hiring in-home care is usually MUCH MORE expensive and finding good aides is difficult at best ($25/hr x 24hrs x 365 = $219,000! Mom's MC is less than half that - we're in a more expensive but not the most exp region.)
I would be thinking about having someone stay with my mom during the day then she would be with us during the evenings. But then I know that I would eventually overwhelm myself with the responsibility and work. I am just awed how some people are able to take care of their parents full time. Have to quit their jobs,etc.