Aunty had a third stroke about 3 weeks ago. She is still in the hospital and will be discharged in four days. It was a mini-stroke that was only picked up when my cousin the nurse noticed that Aunty's speech was slurred and she called the doctor. She was still recovering from the hip surgery. She was allowed to go to 11-year-old's graduation last week, and tomorrow is his big party that his parents are throwing for him to celebrate passing to middle school. Hospital is letting her go, but we have to bring her back by a certain time. She was unhappy about having to do therapy before leaving for the party but I said that at least they are letting her go, and she agreed. Now when she comes back home, everything starts all over again. ...the physical therapy, occupational therapy, and I think speech therapy and nursing services too.I was beginning to ease up on some of my caregiving duties, but now I have to increase too; I have to stay home to let the therapists and nurses in, take care of her, etc. I'm not sure about 11-year old's plans for the summer; i.e., his mom is looking into some camps for him but I don't know if I am involved in any of the babysitting, picking up/dropping off, etc. or watching his baby brother. , POA cousin is helping with transportation and running errands, so there is a sense of obligation there with the kids.I was planning on visiting my older sister who lives out of town this summer, but I guess that's out now. I also had a regular summer volunteer job at a day camp that I loved. ..can't do that either. I have to wait and see what happens with the therapists' schedules and work around them.
Don't let them hold you back like this. Aren't you already paying for half of the expenses?
I had physical therapists coming to the house ordering this and that device and running up bills, and then they would brag about their vacations etc. knowing full well I could not leave as my Mom is bedridden and has multiple other health problems. I had one physical therapist that wouldn't think before opening her mouth and she was a lazy person complaining about her job, etc. Once when my Mom mentioned the Queen of England in conversation, this slob of a PT said "Oh yes the Queen...she is an old hag too..." Too?? An old hag in addition to whom?? My Mom??? She also questioned my Mom's eligibility to her benefits. I had her fired!! This sorry excuse for a human should not be working with people. This is just some of the s*&&$ I had to put up with when we were in "rehab" mode. I could fill volumes with other stories of incompetent fools
The hospice people have been understanding and caring and it is a world of difference from when we were in rehab mode. The hospice people actually care about me too and ask if there is anything more they can do to help. I tell them I am ok, but just knowing that someone understands the situation is great and such a relief. Hospice has taken so much pressure off, though it still isn't easy by any means.