I care for my mother - she does not have dementia, but seems to have every other ailment under the sun. Diabetic for over 40 years, rheumatoid arthritis, congestive heart failure, thyroid & gallbladder removed when she was young, atrial fibrillation (now reliant upon a pacemaker), osteoporosis, diabetic foot ulcers, rectal cancer in 2005 which has left her incontinent, etc. etc. - the poor woman was dealt a really sh*tty hand in the health department, that's for sure. She broke her right hip earlier this year, and had that replaced in september. She was gone for 3 months at a SNF for rehab, and I felt like it was the first time I could breathe in a long time.
Now that she is back home (she lives in my home), I immediately noted how different I feel. I am chewing my fingers again, my temper is short, I'm anxious, I feel like I am a snarky smart-assed 15 year old whenever I respond to her...and I'm going to be 50 in July! To put it bluntly, I DO NOT LIKE the person that I become when I am around my mother, but I feel like I am powerless to stop it!
Obviously she is frail and she needs my help - am I resentful of that?? Am I trying to push her away, or prepare myself for what I know is to come down the road??? I just don't get it. She has never been the most positive person - always complaining about something & making comments about people's appearances that aren't exactly complimentary, but she's always been that way - it's not like it's news to me.
I know she can't help (to some extent) the position she is in, but there are days where I feel she COULD help me out a bit more than she does. Sorry for being graphic, but when she gets poop on the inside of her clothes because she didn't make it to the bathroom on time & the diaper leaked....she can certainly rinse them out or at the very least say something instead of just rolling the clothes up, poop and all, into a ball & leaving them in her room until she has a full washer load, can't she??? I have stuck my hand into god-knows-what more often than I care to admit, and I get SO PISSED OFF. To me, there is no excuse for that behavior, whether she's embarrassed by it or not. As a result, I have ruined a few of her articles of clothing by soaking them into a bucket with bleach water, but what does she expect me to do??? Just put her crap-filled clothes into my washing machine????? She then turns around & yells at me for ruining her clothes. UGH!!!
Instead of enjoying time with her, I feel like all I do is bitch & moan about every little thing she does to everyone. My huband & my oldest daughter are around her enough to sympathize with me for what I put up with, but everyone else looks at me like I'm a raging bi*ch for talking about my mother like that. I guess I need to be more cautious of who I vent to (THANK GOD FOR THIS BOARD!) but seriously...she brings out the worst in me and I just don't know how to handle it. (((vent over...whew!)))
When I start acting ratty because my elderly handicapped mother is bothering me, I try to change my own reactions to her actions. At some point I just have to accept the reality of the situation (the deafness, the confusion, the exhaustion, the endless doctor's appointments, the poop) because my goal is to lead a happy useful and fulfilling life and to provide my mother with the best and happiest, healthiest life possible as well. This doesn't include too many arguments and strife and hard feelings. I'd like to preserve the cordiality of my home.
The most trivial example is that I will say something, and she says "What?" and I say it again, and get the same reaction, and after a while I get the impression she really isn't trying very hard to hear me and I raise my voice, and she looks so offended and says "Well, you don't have to yell at me..." and this goes on every day. I say "You're going deaf, and you can't hear me, so of course I have to raise my voice" and she says....well, it goes on and on. You get the picture.
So I am trying to find an alternative to getting frustrated. Because they say the definition of insanity is doing the same thing over and over and expecting different results... Perhaps instead of repeating myself I will take a deep breath, look her right in the face, smile and repeat myself gently while she is looking at me (instead of staring at the floor, or having her eyes closed, or looking in the other direction.
It's worth a try.
The reason our parents push our buttons so easily is because they installed them. They know exactly where they are and what it takes to make us flip at the drop of a hat.
Needy people = entrapment, and it sounds like you are a prisoner in your own home because you've allowed her to rent space in your head and take over your house.
As gently as you can, let her know who's in charge and that she needs to "get with the program" lest other living arrangements are made. ... You're certainly nobody's doormat.
I still have issues with her going against orders and doing things she shouldn't be doing as far as her hip recovery goes. I spoke to her orthopedist about it, and he said "all we can do is suggest she follow the precautions, we can't force her to follow them - the responsibility lies with her at this point." I told him that if it happens again, to please know that I have done everything in my power to prevent it - she's just not working with me. He said "I understand completely - I have to say that your mother is one of my more challenging patients" haha! Challenging..I like that word. Needless to say, I am learning to choose my battles and trying really hard to take a deep breath before arguing with her over the "big stuff". Thanks for the suggestions.
There was a tendency towards that with my folks as well, and after my Dad moved in here and we had to change directions on that before we got into personal conflicts. I will say however, that my Dad was the sweetest guy, always anxious in his dementia to please others and thank us profusely, and really would try to change. He just couldn't remember to change for more than 3 minutes, so it had the same effect as him being unwilling to change.
The point is to take concrete steps to change whatever relationship you have, one step at a time. Do not buy into the baits and do something to get the behaviors you need changed. I don't know if this is going down the right path or if some or any of these things would be a good start, but:
1) Mom, if you bend over and dislocate that hip, it's going to cause you a lot of pain and trouble. We are both adults so I'm not going to tell you what to do, but if you do it again, you will cause yourself lots of pain and again spend lots of very lonely time in a recovery facility - your choice.
2) Mom, I don't have time to rinse out your clothes today so I need you to do it... or... Mom, neither of us like it when I ask you to do things for yourself and I know you don't like being treated like a child, but I need you to be rinsing out your soiled garments. I know it's unpleasant for you but it's also unpleasant for me.
3) Mom, I know you have a lot of health issues and appreciate that. But I suspect and am very happy that you will probably be here with us for a long time. However, I'm not 20 yrs old anymore either and don't have the energy or time that I once did. I am glad that you are here where I can help take care of you, but I need you to be as independent as you can be for as long as you can be. Here are some things that you can do that will help me and that I need you to do.
4) Mom, I'm not looking for an argument. I'm just looking for some help and I know you can do that for me. Can I count on you?
Don't wait for her to volunteer to take care of herself. Tell her what you need from her and treat her like any other adult. The parent-teen dynamic is an automatic thing that kicks in without intending to. Change isn't easy and will take time, so be patient. And remember that your mom has been in the same personality rut far longer than you have and may take longer to change those habits.
There are some people who never figured out what it meant to parent. For many it meant give birth and feed, but they didn't learn about nurturing and loving. My parents were actually relieved when my oldest brother died, because he had become a thorn in their paw. This is a mighty icy family. I hope when I die I am given a chance to come pack and pick out a Walton family. I would love that.
Mom finally "qualified" for Medi-Cal, but because she makes 100/month "too much", her share of cost is over $650/month. Absolutely ridiculous. We have changed her insurance over from Medicare HMO to a Medigap plan instead (the premiums are higher so it reduces her income). As for IHSS she was in the SNF for 3 months, and so they denied her that because they said she didn't "need" the in home support, so now that she is home we get to start that process over again. I swear, it's one thing right after another - it's enough to make a person want to scream.
I think if I weren't going through perimenopause while all of the above is going on I'd probably be able to handle it a little better, but boy these mood swings and hot flashes are killers!!! My husband is really a saint for putting up with me lately, I'll tell you that! haha!