Where to begin...My name's David and I'm 46 y.o. with an 85 y.o. Mom who's going blind and her short-term memory is shot. I'm pretty much the primary care person in our family even though there's 4 more siblings... 3 sisters and an older brother; I'm the youngest. 2 of the sisters are MOS (married and out of state) and the closest sis is also married and helps when she can (when I say "when she can", it's literally cause she can't do anything unless her a-hole husband says she can). My older brother lives with Mom and I but he's having a lot of mental and emotional issues which makes his moods go up, down and all around and I can't deal with him sometimes. So like I said I'm the primary caregiver for my Mom who's physically able to do things but is very depressed so she doesn't do anything but sleep all day(says she doesn't really sleep but just lays there...her excuse is "Why should I get up; there's nothing to do" WHen she chooses to get up she goes straight to her recliner and the TV which is her only form of entertainment...She had vision problems in the past for which she went through the Lasik eye surgery for cataracts or glaucoma back in 2008 or 2009 but as of this past year it's come back again...she says everything is blurry or cloudy so she can't see very well...can't see the numbers on the remote, can't read magazines or the TV Guide. She also has memory loss so sometimes she asks the same questions over and over...Always asks what day it is and if it's day or night!!! Other than those issues she's just gotten LAZY...she doesn't bathe or do her towel bath like she used to; I dread the evenings cause then it's the "channel changing game"... I will put something on for her to watch and after a few minutes she starts her whining cause the program is "boring", they talk too much, she doesn't understand what's going on, etc. So I change the channel...10 or 20 times a night... then it's "I want to watch the Spanish channels" so I put them on and she just can't sit and watch whatever's on...she can't see the remote buttons too well but she changes them anyways and pretty soon she's sitting there whining again with the TV on a blank channel...you get the idea...EVERY NIGHT!!! I get frustrated and can't take it...then the mental abuse kicks in...starts her attitude and takes it out on me...not to mention I have to keep the house clean, cook for her, care for her 4 cats (feeding, changing litter, etc.) and with no help whatsoever. Since she gets up late sometimes 6,7 or 8'oclock she'll be up till 2 or 3am with her channel game. I always rise at 6:30 or 7am so I try to be in bed by 9 or 10 but she'll keep yelling at me to change the channel again & again and I'll be up till she gets tired of the TV and goes to bed. There's more to this story but I'm sure you get it...like my user name, I'm "at my wit's end"... David
The TV channel changing is sheer boredom on her part, she needs to be around more mental stimulation. Boredom could also be the reason for not bathing, it's like why bother. I do realize that some of is from memory issues, too. I have heard on this forum where other parents have improved going into assistant living.
That way you and your brother can continue on with your life, you can care for your Mom's cats [they would less stressed], and maybe your brother will feel better, too, because the household would be much calmer. It's something to think about.
The first step is a visit to the doctor. Put your concerns in writing (as you have done for us) and get it to the doctor before the visit. There is no cure for dementia, but there are treatments for depression. First see what can be done medically.
The next step (in my opinion) is to provide some stimulation to combat the boredom. I suggest looking into an adult day health program (adult day care). Often they provide transportation and a hot lunch, and sometimes also have services such as giving a shower, cutting toenails, etc. My husband went two or three times a week and it was very good for him and for me as his full-time caregiver. It is a reason to get up, get dressed, try to look nice, and take an interest in something. Usually you can sign up for 1 to 5 days a week. I can't say enough good things about our experience with it.
I would hope that going to an adult program a few times a week would produce some improvements. If there is no adult program near you or if you try it and it doesn't work for Mom, then the next step probably is to consider placing her in a care center where her needs could be met. This is really too much to expect you to handle on your own.
I know she needs to live in an adult care facility and she would be cared for and all her needs addressed but for her that's absolutely OUT OF THE QUESTION!!! She will not leave her home and mostly her cats; they are her sole concern, even before herself. She doesn't trust that I (or we if you count my brother, which I wouldn't) would care for them, feed them and make sure their litter is cleaned daily WHICH I DO ALREADY!!! I could go on and on but I'll stop for now... Thanks for understanding....David
Get on a schedule.Be firm about it.Be professional. Forget she's your mother between 7 AM/ and 8 PM.
Do not argue.
With my mother...
I tell her I have a life ( not true but I like saying it).
I put on a channel she likes and take the remote telling her flatly I will not be in again unless I am passing by the room.She will get angry. Ignore it.
However recognize that she may just using this as way to have company.Loneliness and the feeling that her body is betraying her causes depression and aggression.
7:30 PM My mother gets ready for bed under supervision.
Bathroom, hand wash, ( other) and pajama's. I stand outside the door and tell her I'm waiting.Offer help if she needs it.
We have grab bars (everywhere).I encourage her to do for herself. If she refuses I insist and will do it for her.She knows I am good to my word and does not want my help though in a pinch she has come around to accepting it.
Lights out at 8 PM (she's 94).
I monitor her but do what I need to do for myself.
She is awakened at 7AM and up whether she likes it or not.
Bathroom routine, wash, dress, breakfast.TV on to her favorite show.
Most days I find jobs she can do.
I wash her clothes, she folds it.I insist as it helps me and keeps her busy and useful.It's important to feel you can still be useful.
She is responsible for dusting her room every other day. I give her the dust cloth and polish, shut the TV and say "time to work!"
Helps keep her mobile as well.
We put a Christmas tree in her room. I left the decorations for her to do as she see's fit.
Don't take "no" or encourage her pity party.
It won't help her or you.
She's blind, not dead.The blind learn to get around.
Your life is not over and the experience of caring for your parent is the best training you can get even if you aren't paid for it.
I'm getting frustrated just writing this with her yelling at the TV like it's the Tv's fault that there's nothing but junk on....usually at 8pm when her usual programs finish that's when the whining begins...gotten to the point where I'll change the channel twice maybe three times and the last time i'll tell her either watch what I put on or don't watch anything!!! Then I'll go to bed and insert the ol' earplugs and tune her out...Honestly I'm really sooooo worn out by her antics...I treasure the early mornings and afternoons when she's sleeping and I have the house to myself!!! I dread it when i hear the shuffling of her slippers in the hallway...like my mood just drops like a lead ball hitting the floor!!! I know what's coming....first the twenty questions she asks me every day: What day is it? Month? Did the cats eat yet? Did my sister call today? Is there money on my card (bank card) My sister is in charge of her finances and adds funds to her debit/credit card in case we need stuff from the store. If we need anything I'll walk to Wal-Mart which is nearby and pick up whatever we need...if she's up and about right when I get back from the long walk from the store she'll ask if I bought cake or cookies or chocolate instead of telling me BEFORE I LEAVE or call me on my cell and tell me what she wants...that would be too easy on me...I've tired myself out writing about this, you can imagine how tired I am when i finally crash....Thanks for being there and reading this!!! David
I will make a an observation, though:
Your mother has dementia. You are treating as if she still has normal cognitive skills. That will not work. Not today and not next week. Keep up what you are doing and you'll keep up having the same frustrations.
If venting here helps, you are welcome to vent. If you want a solution, you have to be willing to make changes.
I really wish you could encourage your mother to go into assisted living and let the two sons sort their own lives out.