I've been caring for my father who has the combined illnesses of complete kidney failure (dialysis 3x week), congestive heart, vascular disease, one leg that is fused, extreme joint pain, pulmony problems and arrhythmia. Luckily his mind is sharp with no major signs of dementia. He is 82, and doing much better than the dr.s could ever have expected. That means he's holding on, not doing well. In fact, he is constanty in terrible pain, often has uncontrollable bleeding from the fistula site, mini strokes, heart problems etc. etc.etc. I have to call 911 at least every other month for some new thing. He has been this way for almost three years now. I have two selfish vicious sisters who live ten minutes away each, but have chosen to let me do it all because I was living in dad's house when he got sick. I am 52!!!! I was only living here temporarily after a terrible divorce, and then he got sick. I adore my dad, and would never leave him. The problem is these two rotten selfish women who are more concerned with their plastic surgeries, and screwing around than they are helping dad and I. They have never liked me, and have always been a two girl gang, but come on..... they're 50 and 40!!!!!!! I am disabled, and on many days can't walk at all. I also suffer extreme depression, and actually had to be hospitalized for a week last summer. No one called ever once to ask if they could do anything or how I was. They NEVER ask if we need help, or offer to kindly talk. They treat me like absolute crap, and I find myself blowing up at them occasionally because I simply cannot take it. It's just become WAY too much. I am criticized, and treated horriffically by them behind my dads back. Of course he is oblivious to all this, and is in fact in denial about the situation! I do everything...EVERYTHING associated with his care. I feel like I want to get in my car and just drive away forever. I do see a therapist, and many other dr.s, but this whole thing has aged me at least ten years. I am beyond exhausted and no longer know how to cope. I go out two times a week to hear music, and if my leg allows, I walk in the woods a tiny bit. I am an artist, but since I've been here I have been artistically frozen completely. I do not work aside from my grueling job here, do to my disabilities. I really need to connect to others in my same situation. Thanks for listening.
Your exhaustion is just your body pumping adrenalin and cortisol around your system which is the fight or flight reaction to all things that are endangering our survival. Spend enough time in this state and you will get sick...very sick. One thing that will never happen is that anything positive will change unless you make it...Your evil sisters will not suddenly stop being evil and support you, your dad will not stop needing care and support, those are the things you can't change. What you can change is YOU, and your thought processes. And its not easy, I'm going through the same process at the moment, and some days I'm so brave and onto it, others I make for a dark corner somewhere like a scared child and wonder what the hell am I doing.
Try to change the things you can and accept those you can't, it does make life alot easier. Your art must be a huge outlet for you, just start doing it again, even if you stare at a blank canvas for a couple of days, turn the negativity into something creative even if its dark paintings of your sisters being tortured :). Gosh sell them and make some money...You have a wonderful talent...don't let that be taken away, use it. And yes this too shall pass I believe that, but can you survive it until it does? Start today by just doing something small for you. Give up and let it go about your sisters being kind, it will not happen, let it go and accept they are satans spawn to be pitied, don't waste your energy hoping they will become anything other than who they are, it helps believe me.
Find some strength, bake some yummy chocolate chip cookies and eat the lot!!! Try tapping...it sounds like the weirdest out there thing to do...look up the free videos on google, it really works by stopping the negative gloomy thoughts, and believe me, I've never tried anything like it in my life, and it blimmen well works, you got nothing to lose thats what I figured. Anyway a long ramble from me, don't run away, don't freak out, just change a few thought patterns...I'm a work in process too :)
I know-- I do it, too:) let's promise each other--Sisters of our Hearts-- that we
treat ourselves the way we treat each other here, on Aging Care! With Love,
Encouragement, Unconditional Support, and Humor! Why not?
We have a secret society of sorts that outsiders do not share. I am so Thankful
for this haven for Caregivers. Truly, we are Blessed in many ways. Even though
we are tired, we were set apart to do this job of caregiving. We are special,
strong, and compassionate. The world is full of selfish and greedy people who
are beneath our dignity. Let's try to think in higher terms of self respect.
Please bring out your paints and create something. With the deeper dimensions of a caregiver's perspective, your work will take on a different light. Let us know..
to All you Beautiful Caregivers: hugs, Christina xo
You are doing a fantastic job, your Dad loves you, and people who are guilty and
small minded do act differently than we do, because they are different. I try to
look at this time of caregiving and exhaustion as if I am looking down "from above" at a board game.... It must be someone's turn next, right?!
game.
Now I have to fix dInner! Check in mañana! Love, Christina xo