Hi Everyone, I just wrote a very long post and when I went to Submit it, I got a mesage stating that my post could not be posted b/c I used the symbol of a backward arrow... I'm just in a lot of pain physically and emotionally and am exhausted. I wouldn't hurt myself. But entertaining just the thought of "taking the easy way out" scared me. I have a strong Faith and feel like I'm losing that Faith! I want it back, but don't see a way out of the constant labor or caring for others and taking care of Everything! I'm just so tired and my own health is declining fast. I want to thank you all for being so supportive and for sharing your story with me/us! I'm sorry that you too are in the seemingly endless caretaking roll. We all need something good to look forward to! Well, I'm off to the grocery store for the third time this week. My body hurts so bad. My spirit hurts even worse. God Bless you all!
Kathy
I tend to be more left brained than right, so being logical is easy for me, so if you're not, find someone who is. That may be just the ticket to getting you back on solid ground instead of quicksand. And please find a church you like.
One thing you can be sure of. The situation WILL CHANGE. It always does.
GOD grant Willow peace during this storm & stregnthen her during this difficult time. Open divine doors to help her in her struggles. Amen.
You are so tired and rightfully so. Please try to see your doctor. Even though this was a fleeting thought, and nearly everyone has such a thought from time to time if they feel overwhelmed, depression among caregivers is high. Lifestyle changes and even prescriptions and/or counseling can help - really it can. Please take care of yourself. You can't take care of others if you are sick, so do it for everyone.
Hugs,
Carol
Kathy
Refuse to take her home after her surgery because you are incapable of taking care of her (suicidal thoughts?!). She will go to rehab for a couple of weeks and you can get a break. During this break figure out what she qualifies for in terms of home care, sign her up, let them in and decide what you need to do for yourself. Do not back down. Groceries once a week firm, you out of the house for a day each week firm make an agenda with health aides and stick to it. If you stick to your guns your parents may treat you better. My sibs and I have had to make what some would view as selfish decisions but had we not we would have been stuck in my parents dysfunctional world. (They are old and alone now but their behavior over the years to us has been nothing short of horrific, recently my mom had dad arrested, a play that has had many repeat performances) It sounds like your life is getting to that point. Get healthy, take care of yourself FIRST. A dead caregiver is useless.
It sounds like the bondage of your dysfunctional childhood is still in place and your parents can be much nicer to you now because they have you emotionally trapped. Often it is that feeling of I'm trapped, this pain or whatever has no options to deal with or any end in sight which leads to suicidal thoughts which can escalate quickly into suicadal plans. Sometimes as in my case, I was washing dishes and suddenly my mind was filled with not just wanting to die, but how I wanted to kill myself and well as where. Please talk with a doctor about these suicide thoughts. Please talk with the hospital discharge people and tell them your situation and that you can no longer handle this mess. If the hospital has a chaplain, I'd talk with that person too. As an only child also, I feel for you and wish you well. My own childhood was very dysfunctional, but I think that as an only child I got the abuse worse from my mother than my three male cousins who were raised by mom's sister. Please, take care of yourself.
Bless you all!
Kathy
That is TWISTED!!!!
You are to be their one and only slave without any hope of compensation ever?
You are putting your life on hold for these people?????
Please make some plans for your future and stand up for yourself. You have rights according to our constitution just as anyone else.
Enough already. Even those in prison eventually get paroled.
Thank you all again for being here! It helps so much when I see yet another wonderful post from y'all!!! God Bless and much love to you all!!!
Kathy
I don't know what to do. I'm SO sorry for complaining!!! I just have a bad feeling that if my mom is sent home and can't do anything for herself, I'm going to burnout what's left of my body and mind! I still miss my real dad so much and it hurts knowing that it's come to a no-win situation with my mom too. I'm terrified of becoming an orphan!!! I have the two half sisters from my real dad, but neither of them have ever wanted to be close. I tried. They're both angry with me b/c "I was born first"...lol. I so have 1 step-sister who has really stepped up to the plate to help me, but she works full time and has her own life. She doesn't have to come into this house and can leave whenever. I do appreciate ANY help at all, especially the emotional support. Basically though, I'm on my own.
I hope to keep in touch with all of you often! I am reading all of your posts, that I can read off of my cell phone email, but it won't allow me to reply on the cell phone. I thank God for all of you and wish you could get a break from all of this insanity!!!
God Bless you all!
Love to you all,
Kathy
willow215@gmail.com
I did not go into visit my mom yesterday and won't be going in today. I just can't. The other day when she had me doing the nurses work, it all became too much for me to handle. I'm hurting worse physically since then and am just disallusioned at how little she seems to really care about me at all. Her surgeon is away on a conference until Monday night, and my mom say's that she's being discharged to home on Monday am. Today I vacuumed the entire house and I'm paying for it now big time. I had to call my mom in the hospital to ask where new vacuum cleaner bags were. She told me in a dull and un-interested voice and there were no "thank you's"...not that I was looking for praise. I feel like Cinderella. How would I get in touch with her social worker (if she has one) over the weekend? Would the social worker or any other medical professional I s/w about my mom keep that info confidential, in that I went above my mom's head to try to get her to go to a rehab first before coming home? My mom is already discouraged with me b/c I said "no" to handling the IV meds for her at home and I have told her that I cannot take care of her regarding lifting, turning and positioning, bathing, and I do not cook... Cooking is NOT and never has been in my personal job description/resume! Of course they've been offered 'meals on wheels', but that's not good enough for them. For some reason, they don't want anyone they don't know to come into their home. It's like there's some huge secret that they don't want anyone else to know about. If she comes home and does need a LOT of help, I'm going to call the Office of the Aging and have someone come out and assess the situation. Of course I'll need to move...and take my puppy with me. I can go to my step-sisters, but I know I'd feel so guilty that I'd have panic attacks. I did leave and go to live with my s-sister for about a week and a half, about a month ago, but had such bad panic attacks that I came back out of guilt. It started when I visited and saw that they had very little in groceries. I have MAJOR issues with guilt, yet I don't know why. I'd leave and move in with my s-sister again in a New York Minute if I thought that I wouldn't panic and come back into their home. I have no privacy at all here, so if I can find someone to call I like a social worker, etc... I'll need to leave the house if I want to use my cell phone to call and talk in private. Do Social Worker's work on weekends? Being on disability, I've been away from nursing for so long now that I can't remember who works on weekends. My mom is set on coming home on Monday, 2 days from now. I'll need to work fast. Right now I'm hurting so bad physically from vacuuming that I can't drive.
Thank you all again for being here!!!I'd be totally lost and totally alone without all of you here! God Bless your tired hearts!!!
With love,
Kathy
BTW, one of the biggest if not biggest the 12 step program and nothing else has or will work is that you keep going back to the same sick, abusive environment which is tough not to do, but for your own survival, you must. She never protected you from abuse when you were a child which is abusive itself and she sure as ___ an't going to change now. She's been and still is abusing you.
1) Hire in-home help to come by once a week for personal care and light houskeeping. My Mom resisted this for awhile, now she looks forward to talking to her paid caregivers. Also, it lets your parents know that you are their child not the unpaid help!!
2) Can you get disability and medical help? You need to get back on your feet physically and heal. I just went through a series of minor ailments that I attribute directly to caregiving.
3) continue your counseling...you are thinking of "suicide" because what you are going through is hell. Remember that it is temporary. And the reason it IS temporary is because you are now going to take charge of your life, stand up to your parents, and get well. Your life is precious - do not squander it.
Let us know how things are going.
Peace,
Lilli
You really need to let it ALL go for a season, and get your own life in order. Stop worrying about what will happen if...WHEN it happens is when you need to deal with the situation at hand, to spend one ounce of energy worrying about what will happen if, is just that, wasted energy. It could have been energy used to do something productive for yourself.
Here's an idea, run a HOT bubble bath, light some lilac candles, and turn on some soft music. Lie back and let the relaxing water and the scent of lilac bring some long needed peace to your stressed out mind. You deserve to take some special time for yourself. Take care of YOU and the rest will fall into place.