She has been since she moved to the city in which I live, about 4 years ago, but now she’s recently been put on hospice care. I’ve had to deal, and am still dealing, with how I feel about all of this.
This isn’t so much a question, as an attempt to put my thoughts and emotions into some kind of an understandable order. Venting, if nothing else. So bear with me.
My mom has never been a kind person. She’s always had this bitter child inside her, and her self-shame colored her entire world, and thus – mine. She was and is ashamed of me and my choices, although I have a good life, if not a moneyed one. I married a biker (more of a teddy bear than a bad boy lol) and his cars and trucks tend to litter the yard. So, of course I’m trailer trash, and Mom is reluctant to admit her relationship with me.
My children are also a source of shame to her, as my daughter is just now working her way out of an abusive relationship, and my son has yet to graduate at age 19. My step-son and family have just moved in with me from across the country, and of course, they have little money. That, too, is a shameful thing.
To me, all of these things are proof that we have a wonderful, loving, supportive family who are all doing their best to learn and grow. They all help me with my husband’s care, and Mom has shoved everyone but me away. She has no one.
So now she’s waiting to die. I had her placed in an NH about two years ago, since I couldn’t care for her and my own family. Guess who I chose? And that shamed her, too. The angry child in me who tried for so long and so hard to please Mommy is relieved she is going soon. This, I believe, does not make me a bad person. It only means I understand my own feelings. There is another side of me that says, “but she’s my MOM!” and weeps uncontrollably. I believe the tears are more for what should have been rather than what was.
But then, Mom is also not that bad off yet. She has confusion issues, and refuses to use the call lights or leave the buzzers on in her room. She’s fallen many times in the last few months, and has cracked her tailbone, and bumped her head a few times. Mostly, she comes out of it uninjured, and refuses to acknowledge her need for help – even accusing the staff of tricking her and making her crazy. A year ago, she was full of praise for the staff, so I know this is a product of her illnesses.
She has COPD, congestive heart failure, and is a brittle diabetic who spend much of her adult life refusing to take her blood sugar readings and barely doing anything about insulin. Being a diabetic shames her, I believe, as if it was some kind of failing on her part instead of a disease that can be managed. She stopped smoking and drinking years ago, but her behavior didn’t change much. She has no friends, and my little brother never bothers to come and see her, let alone help with her care.
I am all she has, and I try to see her realistically as a failed, bitter old woman who is ashamed of her life. She doesn’t make me so angry anymore – only intensely saddened. But still, I must go see her again today, and my heart races. I must take my anti-anxiety meds, gird my loins, and I go in as if prepared to do battle. For this feeling, I do have shame. I should be the good daughter – patient, kind, and loving in spite of her ill humor. I have my children, my husband, and my grandchildren for support and love. She has no one.
I am the lucky one. And that, alone, should make me kind to her. Instead, I am an angry, bitter child who wants Mama to love her, and who always fails to make Mama proud.
And how do I feel? Faintly nauseated. I'm doing my best not to grieve before she's gone, and to be there for her. After all, she's my mom, and I do love her. I don't want her to be alone like my dad was. But dad was alone by his choice, and I still fight with the guilt and anger over that. He didn't have to be alone, but he told the hospice that he was estranged from his family. He wasn't from me, so that made me think I probably didn't count since I was his first kid from his first marriage. Best not to go to deeply into that or I'll arrive at the hosp angry. Must control emotions.
For whatever it's worth, it sounds like YOU have the capacity to be with all of it: sweet and bitter. Life is messy. You can't be in life without being with all of it. Whether she intended to or not, your Mother raised a daughter who gets that, and is willing to be in the midst of it all. Because you are.
Sending love and light your way.
First, my condolences on the loss of your Mother. What a Blessing she went peacefully and you were there until the end.
Secondly, I had just seen your topic a few minutes ago, and read with interest your concise, well-thought out analysis of your Mother. I was thinking, "There is nothing wrong with this girl. She has it together, she is not afraid to live her life as she has chosen, even though Mother was critical. Lisa is a unifier, a strength alone and to her family."
So, what more can be said? You are a good daughter, you cared for your Mother in every way while not letting her overstep your boundaries. There are many elements to every situation, and sometimes the bad outweigh the good, but truly, in this situation, it is obvious that you did everything with compassion and concern for everyone involved, Mother and the rest of your big "clan!"
Your last years will be different. You will be surrounded by "the sweetness" you have created and collected. You are a strong person with values that could not be taken from you.
Good for you, Lisa. Don't replay any doubts, for you should be very proud of how you helped your Mom complete her life.
All the Best to you and your loving family.
Hugs,
Christina xo
It's so hard to deal with the behaviors of our parents especially when we are affected by them but don't understand what causes them.
You did the best you could Lisa and at least now you can have peace knowing that your Mother is also at peace and resting her own broken soul.
Prayers and Angels to you and yours.
TRUER words were never spoken. I read many years ago (at least 40) that we often grieve MORE for an imperfect relationship - something 'that should have been' - whether with our spouse, parents, siblings or job.
It sounds like you did your very best and that's all one can do. Happiness isn't about money or what it will buy - it is about our family, friends, and what WE DO for others. Condolences to you and your family. Loss IS loss. We grieve - no matter what.
Christina xo
That's the hard bit. Now, I have to deal with the emotional issues that will probably be ongoing for years. I know the bad feelings will fade, the guilt, sadness, etc, but I also picture my mom as she was at the viewing and feel odd about it. The hard flesh, the pinched look of her lips that used to be so eloquent a sign of how she was feeling. That might just be TMI, but then again, we all act as if death was something to hide, to 'get over'. Death is an absence in our lives. It is a reminder that we, too, will some day be gone. It is scary as hell.
So I made an appointment with my counselor, who I haven't had the time to see since before Ma died. Now, the emotional bits are going to drag me into a funk. I can feel it already, and I'm tired of feeling sluggish due to anxiety meds. I need to change something in my life, but I don't want to get carried away, so I'm asking help to decide what to do.
Oh, and no one cooked but me. My kids that are living with me all left the state for a week the day after Ma died. I moved her things by myself. I did it all without anyone but my hubby by my side. It's all right, though. I'm used to it.
Um, yes, I'm doing the anger bit of grieving these days. lol I know it, and I'm doing my best not to take it out on everyone else. Again, this would be why I made that appointment this morning. Gotta wait a week, though. Hurry up and wait. Story of my life.
Personally, I would try and replace the meds with vitamins - but, then again, I always have been a health 'nut.' My kids leave off the health part :-)
But a good mulit, extra B's (for nerves), Omega 3's and calcium. Just the basics - and then lots of time and TLC. Try and do something you enjoy. Try not to stay in a funk too long - but you WILL go in and out of one for a while. That's normal.
At first, I remembered my folks as they looked in death - but now I don't. We can 'choose' what we want to remember and what we want to forget. I do believe that It is a self protection mechanism of sorts. Now I choose remember my dad riding his lawnmower or working in the garden and mom is smiling and making home made bread. I still remember the time she hurt her hands and I volunteered to make the bread and it was all she could do to keep from putting her bandaged hands into the dough! I still have her handwritten bread recipe! We can save our sanity by forcing the good memories to the front and pushing away the bad ones. I don't think there is a thing wrong with doing that. (ask your therapist and let me know!).
Take care of yourself now and I hope all goes well for you and your family.