I'm the sole caregiver of my 89 year old mom diagnosed with AD 3 years ago. Plus I care for my older disabled bro who suffers a brain injury due to a traffic accident years ago. Mom is delusional, sees things that aren't there, pees and poops on her bedroom floor and my bro can't remember 3 min to the next and suffers from OCD. Day to day living is certainly a challenge.
im kidding. this place needs a laugh or two or were all going to self destruct..
It might be tough to have someone in, not because there is no availability, but because of the personalities I'm dealing with. Some time ago when Dad was still alive and Mom was normal, they found a male respite worker willing to stay with my brother on nights when they wanted a night out. Well, he took an absolute fit. So, whenever they wanted a night out, I would stay with him. I told him recently that I might have to have someone come in when Mom gets to the point that I can't take her shopping. He did not look pleased. Plus, if I'm not within sight for over 15 minutes, Mom gets upset and agitated.
Surprisingly, I'm doing ok. I don't feel burnt out......yet. lol I'm learning every day what works and what doesn't. Oddly, even though Mom is worse, I'm more at peace with all of this now, than a few years ago. Once I get everyone to bed, I spend some quiet time in my own space for a couple of hours each night.
The only thing that really bothers me is her sundowning. She becomes extremely agitated and makes absolutely no sense when she speaks.
And thanks again for your concern. :)
It's a little off the subject, but I really don't like the word "respite." It sounds so clinical and solemn. Maybe we should just call it "me time" or "goof off time" -- something not so dramatic.