Mom lived with myself and my 2 teens for the last 8 yrs. When Moms COPD progressed and she was diagnosed with congestive heart failure, she decided it was time for Hospice. when we noticed she was sleeping alot, and her moods changed faster than Indiana weather, I started paying attention to her more. We noticed she was falling asleep standing up, sleeping all day, up all night. Bad irregular bowel movements ( I knew cause someone would yell the toilet was stopped up again ), not eating more than finger foods, and couldnt stay on topic, got mad at us because she didnt understand what was bieng said to her.... Id ask her if shed taken her meds, and she started not remembering, and would double dose. Shed become anxious and started taking meds from the comfort kit from hospice, and she would double dose it in front of me. Myself, the hospice team, and my sisters felt she wasnt safe at home ( hey , I have to work)... we had Mom placed in a nursing home. Now before you label me, understand that Mom and I had been dicsussing the fact that her health was getting worse, and she told me several times she wanted to go to a nursing home, to be around other adults and play cards etc.
So we get Mom into a nursing home, and ya , you guessed it, she HATES it. Her roomate was a piece of work , Mom asked for a new room. Now the nursing home isnt bad, not state of the art, but the staff do care. I talked to Mom yesterday (after she kicked me out of her room , then asked me to come back) and told her she could either cont to feel sory for herself and stay in bed, or she could get up and see what was offered. She seemed kind of indifferent.but did come out of her room for about 45 min..
I understand that she feels betrayed, alone, and scared, but what can I do ? I check in with her and talk on the ph, when we go see her , she lashes out, and the nurses tell me she mostly stays in bed. I asked the social services if they can encourage her to get up, and come out of her room, but the cant make her. I feel bad, shes my Mom, shes not hapy, she wasnt happy at the house either, and made us all miserable....please dont suggest I go see her more, a person can only handle so much negativity,,,, i dont want to pull away either, then shel feel abandoned....
Glad you are stepping back, and looking at your priorities. I will look for your update! :) #1 look after you - Joan
All because I was asking her to help find a solution, to get her more help because I was tired. I then guilt sets in because maybe I shouldn't have asked, or could have asked differently, or shoul dhave left and not raised my voice. And of course the guilt if I insist she goes into assisted living and is not happy...but she's not happy in her home either. I guess it's a damned if you do, damed if you don't situation.
pink - you too- you can never do enough for,or do right by a narcissist, and to keep someone like that in your home, poisons the atmosphere. There are trained staff where she is, who can more easily not take things personally, and go home at night and forget the difficulties of the day.
To both of you and others - guilt serves no positive purpose. I am getting better and better and better at looking it in the face, deciding it doesn't belong in my life, and telling it to go back where it came from. It is never God who condemns, He convicts, so you know where the guilt comes from.
As with my mother, she is never happy no matter where she is. I did visit her a couple of days ago and she is in the right environment to meet her needs. There are so many different workers coming in an out all day - activities going on, etc.
I finally am accepting that I am doing the best I can do for my mother. And I hope you will too. My mother is on additional meds for the personality disorder and it has made a big difference. I've learned that guilt serves no purpose - doing the best you can does. Hugs to you and take care.
Keep in touch and let us know how it goes.. It is not a piece of cake even when they are in a facility.
Joan
Im trying to let myself relax, and learn to breathe and sleep again. The good thing is, the kids are becoming more relaxed.....
The guilt is irrational, of course. You did not cause your mother's health failures. You did not cause her confusion. But instead of spending a lot of effort trying to convince yourself of that, accept that a certain low level of feeling guilty is likely to continue. Dr. Boss suggests pushing it into the background and going forward with what you have to do. Try to make decisions based on what will be best for all concerned rather than what will make you feel less guilty.
You can't make perfect decisions, because this is a highly imperfect situation. That is not your fault. You are dealing with it with love and compassion and thoughtful, careful decision making. Please push the guilt aside enough for feelings of pride. You are doing an awesome job!
Be good to you, you deserve it.
Take care of yourself,
Carol