My wife and I have been caring for my 82 yr old mother for the better part of 5 yrs. She is physically able to do most everything for her self but she won't do anything... Bathing has been an issue since before my wife and I took over the care giving..She would say "I can't smell me" or "I don't stink" or "at my age, who the h*** cares".. even if she goes to the bathroom on herself.. she will just lay there.. She is making herself bedridden..most of the time, if we ask her to get up and go to the bathroom, she will just look at you and not say anything... Eating has become an issue as of late...she will chew but not swallow (sometimes, she will fake swallow) or she will get up and flush her food down the toilet.. this lasts for 3 or 4 days then she will eat a couple of days.. She likes eating from a baby bottle.. We have a respite care giver come in a few times a week, which worked for a couple of weeks, but now that my mother knows the care giver and refuses to do anything.. again... If a new person comes, my mother is all happy to do what she needs to do..like go to the bathroom and shower.... We are not the "put her in a rest home" type... It is our responsibility to take care of her.. but it is real difficult to care for someone who does not care about them self.
The problem is that the less she moves, the weaker she becomes and then, she really will be helpless.
And, oh, the smell. She can't smell herself but the family gags when she comes into the room. Getting her to bathe is a struggle.
Sorry, I don't have any advice bur you are not alone
Medication will probably help some but it will not disappear..
Patience and education will help..
If so, I try acting sweeter, more patient, more loving,etc. But sometimes I'm acting very sweet and patient and she wont respond until I go all military on her :) There are no hard and true answers for Dementia patients. You just have to keep trying to word things differently or use different psychology until something clicks with them. Sometimes they don't want to do things but what they aren't telling you is that they don't know how because they are confused and they are too embarrassed to admit it. Good luck to you and lots of hugs. Every day brings new challenges and it can be very exhausting.
It is als true that novel figures, grandchildren from far away, new visitors can get a person with dementia to "rouse" themselves for a lmited amount of time. That's why when relatives come for the holidays, the person looks much healthier to them, than she does to you, who are with her every day/
SO
1. do not fight with her. When she smells, calmly lead her by the hand into the bathroom and wash her. As hr if she would prefer to wash up in the shower. If she agrees, fine, if not, just wash her.
Place food in front of her at mealtimes. If you see she is not eating after 20 minutes, remove the food. She may eat the next meal --or not.You may give her kid food that she can eat with her hands and is easy to chew--chicken nuggets, french fries. Place her dessert on the table at the same time. She may eat her ice cream first. That's fine too. You are not making her well or healthy, you are making her and yourselves comfortable.
Calm down, reduce your stress, reduce your expectations of her cooperation to zero. Do for her, love her and realize she has dementia and she is failing. She needs your love and support, but not your criticism or orders.
BE GOOD TO YOUR SELF & BLESS YOU BOTH FOR CARING FOR HER....
Merry Christmas!
So I have reminded Mother all along she must stay active, to stay here. I can not lift her. Lots of challenges. Sometimes, you have to use different tactics, or think how to direct or redirect them.
I have given her lots of care, and concern, but I can not break down my own health.
She does attend adult day care, she is on Medicaid. That gives me a wonderful break. And she loves it and the activities. Gives her something she has come to love, and extra friends.
That said, my Mom is 86 but has really cognitively regressed to a 5 year old sometimes, but then seemingly "okay" at other times. That's what someone posted here before. Some days are up and some are down. My 65-year old brother lives with her (always been a mama's boy but also was the object of my Mom's controlling personality from the time he was born). Although not the ideal situation, having my passive-aggressive brother living there does take some of the pressure off of me.
Unfortunately, they too do not take daily baths/showers. She was born during the depression and he was brought up during the 50's. Baths/showers were not a daily thing back then. You're lucky people took a bath once a week -- showers were non-existent in homes basically -- everyone had bath tubs. My Mom gets up everyday and washes herself the best she can with a wash cloth and soap. My brother, nothing. Not only do they smell, the WHOLE HOUSE smells. And they have a cat, too. It is horrible and embarrassing to anyone stepping foot in that house. I have taken to bringing over a dozen cans of Glade linen air freshener spray and leaving them all around the house. As soon as I walk in the door, I'm walking all over spraying, spraying, spraying. When my Mom finally passes and we move my brother to a senior apt., the house will have to be fumigated before being sold.
I know I need to get over there more often and help Mom into the shower but it's an exhausting process. Showering her is at least a 3 hour ordeal because she can barely move or lift her legs to get into the shower and sit onto the shower chair. Getting an aide in to help do this? No way -- she won't allow strangers in. Once done though, SHE smells like a daisy but, again, my brother and the rest of the house reeks. I gag every time I'm over there.
I am also not a "put her in a rest home" type and try my best to make her happy and keep her from falling. I have gotten her at home physical therapy but as soon as the PT person leaves, she doesn't do her exercises and just sits there. I've asked my brother to "remind" her to do them but again, he's passive aggressive and when I'm not there, he just leaves her be to sit there on the couch all day. I'm frustrated beyond belief.
I am constantly struggling with my own anxiety and depression and feeling like nothing I do is making any difference. It's horrible. I know I should be happy that I'm doing SOMETHING GOOD that seems to make a difference in keeping her in her home and independent, but I still feel terrible. That's the depression in me. I know I have to keep working on making MYSELF feel better because my health and happiness at this point does not matter to my Mom (she just is getting cognitively worse by the day so she's just not getting it) and my brother who just does what he does to get by everyday and avoid any meaningful interaction with our Mom. It's a daily grind mentally and I've just learned I've got to forge ahead or I'll end up in a mental institution myself. It is what it is.
I am no health care worker or psychiatrist, but your Mom could indeed be depressed, but medication for this may or may not make her more cooperative. Dealing with depression and it's accompanying medication in a "regular" person is difficult, but for an 82-year old with possible dementia/depression, the odds of her cooperating at this juncture is spotty at best. Again, there is no "reasoning" with the elderly with dementia. So ultimatums are meaningless. You need to take charge in your own mind and calmly tell her that if she refuses to bathe, eat, etc., "xxx" will happen and then follow through on it. It's tough love really.
Taking care of elderly parents is not for the faint of heart. You either decide to do it all in or make the decision to get help, whether from outside aides coming in or exploring a NH or other living situation. I personally cannot put my Mom in a nursing home, she will not leave her home and she refuses outside help/aides, so I've made the decision for myself to chug along and do what I can. I'm waiting for "the call" that she has fallen and will be hospitalized for a broken hip or worse. Then I'll go from there. I need to mentally "step back" from my Mom/Brother or I will surely go over the edge. My husband is very supportive and my sounding board. I thank God for him EVERY DAY.
His uncooperation is just a manifestation of his being told what to do all his life. Now that our father's dead and our mother has regressed to a 5 year old, my brother has turned the tide on her. He now is frustrated at her physical/mental limitations but refuses to really do anything about it and is totally uncooperative. Again, he just does the minimal required interaction with our Mom that he can get away with. It's pitiful really. I feel bad for her, hence why I go over there and try to make her day to day life a little more enjoyable, because, good God, I would never want to live like that. Other than cognitive dementia and weak muscles/frail, she is basically healthy (heart, lungs, etc.). Sigh.....