My wife and I have been caring for my 82 yr old mother for the better part of 5 yrs. She is physically able to do most everything for her self but she won't do anything... Bathing has been an issue since before my wife and I took over the care giving..She would say "I can't smell me" or "I don't stink" or "at my age, who the h*** cares".. even if she goes to the bathroom on herself.. she will just lay there.. She is making herself bedridden..most of the time, if we ask her to get up and go to the bathroom, she will just look at you and not say anything... Eating has become an issue as of late...she will chew but not swallow (sometimes, she will fake swallow) or she will get up and flush her food down the toilet.. this lasts for 3 or 4 days then she will eat a couple of days.. She likes eating from a baby bottle.. We have a respite care giver come in a few times a week, which worked for a couple of weeks, but now that my mother knows the care giver and refuses to do anything.. again... If a new person comes, my mother is all happy to do what she needs to do..like go to the bathroom and shower.... We are not the "put her in a rest home" type... It is our responsibility to take care of her.. but it is real difficult to care for someone who does not care about them self.
If so, I try acting sweeter, more patient, more loving,etc. But sometimes I'm acting very sweet and patient and she wont respond until I go all military on her :) There are no hard and true answers for Dementia patients. You just have to keep trying to word things differently or use different psychology until something clicks with them. Sometimes they don't want to do things but what they aren't telling you is that they don't know how because they are confused and they are too embarrassed to admit it. Good luck to you and lots of hugs. Every day brings new challenges and it can be very exhausting.
Medication will probably help some but it will not disappear..
Patience and education will help..
The problem is that the less she moves, the weaker she becomes and then, she really will be helpless.
And, oh, the smell. She can't smell herself but the family gags when she comes into the room. Getting her to bathe is a struggle.
Sorry, I don't have any advice bur you are not alone