I didn't realize my inward anger but I had little children and a husband, plus his business to tend to and also had to take care of my grandmother through many health issues. My parents didn't seem to care about my needs and now I am giving up more for their needs and find myself struggling with anger. Shouldn't I love them anyway?
When they were my age [mid 60's] Dad was retired, they were going on vacations, going to the movies, going out to eat, going shopping, etc. Now at my age I can't do any of that because I am getting their groceries, taking them to appointments, running errands, plus I am still employed.
My parents have no understanding what they are acquiring from me because they never had to take care of their own parents when their parents were older. They each had siblings who lived near the parents that helped. My parents had lived out-of-state and used that as their excuse for not being there on a daily basis.
Maybe I need to move :]
While I think it is wonderful that you are taking care of someone else (which I see is in a nursing home) who is not even kin to you, I think you are possibly transferring your anger about the family of the person you are caring for onto those here or possibly even a fear you have of your own future. If you are visiting a person in a nursing home, it is not the same as taking care of a parent 24/7 in your own home. Home care of someone who is totally bedridden or someone with dementia is a totally different experience. Please try to listen a while to those who share their experiences before you judge or "shame" them. They have a right to come here to express their concerns and feelings however negative they might sound to you.
Yes, I am very aware of what people had to work with in order to take care of the elderly and ill at home many years ago. My mother took care of her mother back in the 1940's when she had cancer. I have a letter my mother wrote to her mother when she had gone to some health restoring clinic in hope of getting help. In the letter my mom tells her about the "electric" being put in the rural area they lived in and how people were buying the new appliances including wringer washers. So that means my mother washed my grandmother's bed clothes and linen by hand and even the poop diapers. It was very hard on her even when she was in her early 20's at the time. I took care of my mother in my 20's and early 30's when she was elderly and had cancer not because she washed my diapers as a baby or did so much for me, but because of a deep love I had for her. I can tell you that I turned her every two to three hours 24/7 for close to 2 years (not including the years before she was this bad off), changed her diapers, bathed, clothed, gave insulin and other meds, and got her in and out of bed with a hoyer lift and even got a reclining wheelchair to get her out into the fresh air when she could no longer hold herself up for more than 5 minutes. I can say I have said many a time "when you change your parent's diapers, then we will talk" to someone who was clueless about something. I also washed my child's clothes diapers even during this age of disposable everything.
The difference in taking care of one's child as opposed to one's parent is I assumed the responsibility of bringing another life into this world by the decisions I made just like my mother and her mother and so on, so I was obligated to care for my child. We do not ask to be born nor do we have the control over where or to whom we are born to (though some belief systems do believe we choose.) We are not legally obligated to take care of our parents and as a parent myself I did not make the decision to have a child so someone would be there to take care of me in my old age. I love the scene in the movie "Look whose coming to dinner" where Sidney Poitier tells his father this in a very poignant way. Please watch it.
My mother did not want to be a burden to me as she knew what it was like to take care of a dying mother and later her father. I also do not want to be a burden on my child. I do not want my child to feel guilt or shame to take care of me. I want my child to make up his/her own mind out of a deep love for him/herself and of me. I cherish the time and privilege of taking care of my mother (and father) and would never have chosen a different path even in hindsight. Yet that being said, others may have not had the best childhoods or the best circumstances to be a caregiver and I would be very reluctant to begrudge anyone for choosing how they approach the role of caregiving.
While you may have the luxury of staying with them 24/7 (and have family who will help out as no one can do 24/7 care competently) - many of us have to work.I am fortunate as we can afford someone to stay with my husband while I work. But neither Medicare nor Medicaid will pay someone to stay with parents or spouse in a private home (unless they are on hospice or are coming off hospitalization -very limited time). If you and/or your parents can't
pay for caregiver for times you are unavailable - to give parents (spouse) best care, a ALF or NH may be best care placement for them.
Not a matter of not loving them, but doing what is in their best interest when they can no longer do for themselves. A babysitter for a child can be a teenager from the neighborhood - a caregiver for an adult with dementia and incontinence, etc will need to be experienced in elder care and run $20 per hr or more. Unless you are rich or can do caregiving yourself (and have family willing to help) just do what is in your parents best interest needs wise.
My Jesus doesn't do the shame thing, so don't use His name to pull that stuff.
As far as parents go, what they sow also shall they reap. If we wish to be well loved and cared for in our old age, then we should be sure to love and care for our children now for they will certainly choose our living situations at some point, LOL!
Sometimes local Senior centers have some sort of day care programs that the Parent can attend to give yourself a break and them a chance to socialize with others their own age. Older people are often depressed. Even low grade, chronic pain can grind them down so they don't want to do anything. they will say they are not interested in anything you suggest doing. Sometimes you have to insist they do go to the medical appointments or other things they might enjoy once they actually get there. They are not likely to "feel" like doing anything. Their diet is often poor because they do not eat properly. This adds to the problems. Juicing can often be a way to get good nutrition into an older person because you can get a lot of concentrated vitamins and minerals into the juice that they could not eat if they were still in vegetable or fruit form. Many local libraries will deliver books, audio books or DVD's for free to homebound people. There are cd's available that will change the actual brainwaves when listened to, hypnosis cd's that help with pain, healing cd's for improving functioning. Some will help you cope as well. Check into Byron Katie's work. Dealing with an elderly person who has chronic pain/depression is like dealing with a toddler in the "no" stage. You have to often insist they do what they need to do for their own good. Be respectful and compassionate, but don't tolerate "temper tantrums". either. Remember they are frequently afraid, hurting, tired of living and afraid of dying. they may have little to look forward to and little pleasure in life. Sometimes you have to be creative to help them try to do something they used to enjoy or discover new interests. They need to feel useful, have a reason to get up, be important to someone. Help them find this reason again.
Good luck!
I know that many compassionate and nonjudgemental posters are also Christians, so I try not to judge a whole religion by a few vocal people who are sure they know what God wants for a situation they know little about, but, really, if I were trying to find a religion, these kind of posts help me to see where not to look.
My Mom lived 3 years with lung cancer. One of my sisters and I took care of her.
My other sister was living with Mom when she got sick. She moved out. Said she couldn't deal with it. Mom was able to live in her home till the end.
Now on the other had my father is 80 and mean as hell. He has always been very abusive.He abused all 5 of us. We put him and his wife in an assisted living home. I am the only one who even talks to him at all.
The sister who moved out on Mom. I took care of her for about 5 Years. She had End Stage Renal Failure. Her 2 Sons packed up their families and moved out of state. I had her POA medical and all.
Now my DH has dementia & AZD
. So does my baby sister the one who helped so much with Mom. He children are
caring for her.
Do what feels best for you and your hubby. Hugs and prayers for all.
Of course, there were the family farms that required all children to help, but again it was a matter of survival and farming was a way of life and support. Elderly parents who owned the farm needed their adult children to continue the farming to keep them afloat and again, the promise was, we'll leave this all to you if you help with the farm and take care of us in the bargain.
I don't really believe that there has ever been a time when caring for our parents or loved ones has been easy or necessarily bathed in the light of values and cohesiveness that folklore would suggest.
There was plenty of child abuse, of the worse kind, that went on then too. There were plenty of parents who used whatever asset they had to manipulate their kids and inflict pain and guilt on them. Lots of skeletons were kept in the closet, but most of us know someone, our parents or grandparents who suffered terribly in the good old days and at the hands of those who raised them.
My hat goes off to everyone who does their best to help their parents or loved ones. Being a care giver is very difficult and confining. At the same time, I celebrate the right and good sense of those who realize that they can't do it or don't want to do it for whatever reason. Recognizing a bad situation before it takes you over is a sign of wisdom.
We should do our best to make sure our elders and loved ones are safe and cared for. There is no requirement that we must sacrifice our health, happiness, and sanity to keep them in our homes.
Cattails.
Ellenjay, you know you're situation better than anyone, and you, like everyone else here, needs to do what you feel in your heart is right. It is insanely difficult. Don't be made to feel guilty over what you can or can't do. :) Good luck! xx
Agree. Don't think about taking them into your home. It will kill you and you need to live your own life. I'm in a similar position. I very much resent having to take care of my parents but because my other two siblings took off. I have no support from them. I'm on my own and it's really, really hard to have a life outside of their care. I know my parent's money won't hold out. I had to put dad in a NH after his last fall in December because they couldn't afford in-home care and he can longer care for himself. I feel bad but that's the way it goes when you don't plan for your future and they didn't. I have my Mom on a public housing list if she can longer afford to rent. I would recommend you do the same and also putting them both on a list at a local Nursing Home. If you don't come from a hospital, most places want you to "be on the list." Otherwise, do some research NOW about continuum care facilities in your area. Look up what that means. As i understand it, it means you go in as independent and as your needs arise, you then go to their assisted living facility and then to their skilled nursing facility. Good luck and stay strong.
-SS
Whether their money holds out or not is not really your problem. You are not obligated to pick up where their money stops. When they start (or you help them start) applying for long-term care, all will be revealed.