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By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington. Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services. APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid. We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour. APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment. You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints. Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights. APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.I agree that: A.I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information"). B.APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink. C.APFM may send all communications to me electronically via e-mail or by access to an APFM web site. D.If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records. E.This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year. F.You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
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Mostly Independent
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This is a problem with mirapex/ pramipexole, NOT Requip/ ropinerole. My husband was on a high dose of mirapex (3 mg 3 times a day) and developed an abnormal sex behavior. I had read of the drug’s well-known reputation for causing abnormal addictions and recognized it pretty quickly. I took him off the mirapex at once, reported it to his neuro and she agreed with my assessment and action. Mirapex is also used to treat RLS, which I have had for 30 or so years. Like most with this disease I progressed thru numerous meds - they would work for a while then become ineffective, and the search for a new drug would start. Requip didn’t work. Mirapex does. I started on 1/4 mg in the evening, and titrated to 1 mg in the evening. Have been on that dosage for 8 years with no need for more, no negative side effects. PD meds are very complicated - some work, some don’t. Some cause nasty side effects, others are great. Long term use, especially as the PD gets worse, should be carefully monitored. Dosages get increased but can become part of the problem. It is a constant juggling act.....
How early on do you notice personality changes with Parkinson’s? My BIL Jay seems to be changing quickly. Normally very intelligent he is very forgetful. He does okay at work. But at home and socializing he is forgetful. He is my late husband’s younger brother. Unless reminded he doesn’t remember my husband is dead. His wife says he forgets stuff at home frequently. He is also having more falls. The tremor in his hand is worse.
The thing that is so challenging about Parkinson’s disease and the meds is that is truly effects everyone so differently. There is no one ‘general’ description at all. I say this as a caregiver to my mother for over 14 years in my home and many years before that as well. I spoke at length to her neurologist about the effects and treatments for this disease. It’s trial and error and can be tricky to treat. Blood tests and doctor appointments are routinely done to monitor the disease and meds.
Margaret, it is an interesting article. A friend of ours had this reaction while on ropinerole, in his case it was gambling and the casinos. He's been off the meds for some time, but still is very careful at the casino just in case. On a lighter note, our dog got into the meds case in my purse. Not knowing what he'd ingested, the vet called poison control. She had this odd, puzzled look on her face as she told me they said to watch the dog, should he get my credit card and be heading to the casino.
I sent on the link that came up in the news, but have no other knowledge about it. The University of Queensland is highly reputable, and it should be possible to send an inquiry to them. We have had a few posts recently about highly sexualised people with dementia (NOT the poor guy whose wife had dementia), so I guessed it might interest some of us.
Jay is on ropinerole. So far without side effects. His doctor has said eventually he will be on levadopa. He’s doing well so far. He’s still working some, travels to visit friends and is easy around the house.
I may be missing it, but nowhere in this article do they tell us what the medication is. What I think the writer is referring to is ropinerole, a dopamine agonist used in younger PD patients. This is also known as Requip, used for restless leg syndrome. So people with RLS are also subject to the possible side effects, not just people with PD. The reason this really concerns me is they refer to it as "the key medication" used to treat PD. Ropinerole is used in younger people with PD in the early stages to help with dopamine. In time, it's not enough and doctors move the patient to carbidopa/levadopa, which IS the key medication used by people with PD. As carbidopa/levadopa is also not without side effects after years of use, doctors try to hold off on this until needed. For DH, ropinerole worked great for a couple years, and that was a couple years less on the carbidopa. What concerns me is people reading this and thinking the carbidopa is going to cause these problems.
By proceeding, I agree that I understand the following disclosures:
I. How We Work in Washington.
Based on your preferences, we provide you with information about one or more of our contracted senior living providers ("Participating Communities") and provide your Senior Living Care Information to Participating Communities. The Participating Communities may contact you directly regarding their services.
APFM does not endorse or recommend any provider. It is your sole responsibility to select the appropriate care for yourself or your loved one. We work with both you and the Participating Communities in your search. We do not permit our Advisors to have an ownership interest in Participating Communities.
II. How We Are Paid.
We do not charge you any fee – we are paid by the Participating Communities. Some Participating Communities pay us a percentage of the first month's standard rate for the rent and care services you select. We invoice these fees after the senior moves in.
III. When We Tour.
APFM tours certain Participating Communities in Washington (typically more in metropolitan areas than in rural areas.) During the 12 month period prior to December 31, 2017, we toured 86.2% of Participating Communities with capacity for 20 or more residents.
IV. No Obligation or Commitment.
You have no obligation to use or to continue to use our services. Because you pay no fee to us, you will never need to ask for a refund.
V. Complaints.
Please contact our Family Feedback Line at (866) 584-7340 or ConsumerFeedback@aplaceformom.com to report any complaint. Consumers have many avenues to address a dispute with any referral service company, including the right to file a complaint with the Attorney General's office at: Consumer Protection Division, 800 5th Avenue, Ste. 2000, Seattle, 98104 or 800-551-4636.
VI. No Waiver of Your Rights.
APFM does not (and may not) require or even ask consumers seeking senior housing or care services in Washington State to sign waivers of liability for losses of personal property or injury or to sign waivers of any rights established under law.
I agree that:
A.
I authorize A Place For Mom ("APFM") to collect certain personal and contact detail information, as well as relevant health care information about me or from me about the senior family member or relative I am assisting ("Senior Living Care Information").
B.
APFM may provide information to me electronically. My electronic signature on agreements and documents has the same effect as if I signed them in ink.
C.
APFM may send all communications to me electronically via e-mail or by access to an APFM web site.
D.
If I want a paper copy, I can print a copy of the Disclosures or download the Disclosures for my records.
E.
This E-Sign Acknowledgement and Authorization applies to these Disclosures and all future Disclosures related to APFM's services, unless I revoke my authorization. You may revoke this authorization in writing at any time (except where we have already disclosed information before receiving your revocation.) This authorization will expire after one year.
F.
You consent to APFM's reaching out to you using a phone system than can auto-dial numbers (we miss rotary phones, too!), but this consent is not required to use our service.
Mirapex is also used to treat RLS, which I have had for 30 or so years. Like most with this disease I progressed thru numerous meds - they would work for a while then become ineffective, and the search for a new drug would start. Requip didn’t work. Mirapex does. I started on 1/4 mg in the evening, and titrated to 1 mg in the evening. Have been on that dosage for 8 years with no need for more, no negative side effects.
PD meds are very complicated - some work, some don’t. Some cause nasty side effects, others are great. Long term use, especially as the PD gets worse, should be carefully monitored. Dosages get increased but can become part of the problem. It is a constant juggling act.....
All the years I cared for my mom I never noticed that kind of forgetfulness. She knew who was dead or alive. That would concern me.
Here’s the thing. My mom’s neurologist said to me that if a person is diagnosed older it is a slower progression
If a person is diagnosed at a younger age then it is a faster progression, such as the rapid progression and severe symptoms like Michael J. Fox.
Alan Alda was diagnosed not that long ago at an older age and his is progressing slowly.