Hi, I'm new here :) howdy :) Long story short: I take care of grand dad, 87, with slight case of Dementia, he lives alone. I do the BULK of the caretaking. I'm lucky in that he lives alone (grandma passed away many years ago), he can cook & clean for himself. But he needs help 2 or sometimes 3 days a week with a MULTITUDE of chores (which I wont list). I literaly saved his life at least 3 times. I'm the person who makes him able to live alone--doing everything from preparing his daily prescriptions, taking him all his doctors appointments, picking up his meds, paying all his bills every month, being on call 24/7 for when he does stupid stuff like forgets how to turn the tv on or loses his cane for the 100th time. But the WORST part about everything isn't doing all these chores--its his got damn horrible, rude, NASTY attitude--he literally barks at me, screams at me like I'm a dog after I busted my @$$ spending all day helping him out. He's an ungrateful jerk at times. His nasty attitude & verbal abuse is so horrible that almost NO ONE visits him--despite the fact he has 9 kids and almost 20 grandkids! Example: his son visited him and spent almost 2 hours moving boxes because granddads living room was so cluttered he could barely get around: afterward my Uncle was out of breath and pouring with sweat--but "grand dad" barks at him "Ok, Why are you still here! Dont you have a home to go to!"....The theme is: No matter how much you help him or save him--he rewards you by acting like an Ungrateful Donkey. It honestly IS NOT his dementia that causes this--he was like this BEFORE his dementia... How are you all dealing with this in your own life??? Listening to you may help me vent, or just realize I'm not the only one :) Anyone want to share their own story? :)
thank you and thank everyone for listening. You all were right that Grandad needs much more help. To make a long story short, I spent the past 2 months taking it upon myself to hire a Home Nurse for him (3 days a week, 4 hours a day). Thank GOD his insurance pays for it. The Insurance gave me a hard time and denied him at first, but after 3 weeks of haggling, they agreed to pay. Weeks BEFORE I hired the Nurse, I contacted his oldest Daughter who lives 15 minutes away from him (my aunt, age 60) and asked her to start helping out. She gave me a ton of excuses, saying she has to have surgery soon, has a heart condition, blah, blah, blah . (Granddad's other 7 kids either live out-of-state or are wrapped up in their marriage & kids.) Granddad was still being nasty & cranky, and I actually started to get depressed every time I had to go visit him. Dealing with someone's mood swings & verbal abuse can make you anxious & depressed. I was forced to visit him because I'm the only one who delivers his precriptions....Anyway, I just went ahead & called his insurance company for weeks, so the Nurse FINALLY started last week. I met with her every time she came to Granddads, teaching her what to do. Strange enough, Grandad likes her and he's being very nice to her (he used to be a "ladies man" back in the day, so he enjoys cute ladies). She's GREAT and I love her. But after her first day of work, Granddad asked me to please switch her for a Nurse who wasn't as "chunky/fat". I told myself No way. So she will stay, and other than her being about 30 pounds heavier than what he thinks she should be, he truly likes her...Anyway, this will not solve every problem, but I feel RELIEVED; a big chunk of the burden has been lifted off my shoulders. .
Maybe the day will come when he needs a Nurse Home, I dont know. Luckily the insurance will allow the Nurse to come 5 or even 7 days a week if I need to. So we'll see how this goes.
So Granddad has a damaged brain. It doesn't help any that his basic personality is not exactly lovable to start with. The damage will become more and more apparent. People with this kind of brain damage cannot live on their own into the harder stages. He can't live on his own now. He is only doing so with your help.
Personally, given the situation, I think family should stop trying so hard to enable him to live on his own. Sooner or later he will need to be where there is supervision around the clock. It might as well be sooner.
Bow out of your caregiving role. Discuss with his children that it may be time to stop enabling him to stay at home.
And definitely know that this is Not Your Fault.
[And just for the record, my advice is for this particular situation. It is not a blanket recommendation that all person with dementia be placed in a care center immediately.]
Don't let any of these 9 adults bully or guilt you into continuing because it's not convenient for them to step up. One of them is going on vacation? "I hope you bought travel insurance." Another has 12 kids, 10 dogs, 8 cats, 6 birds, 4 fish, 2 ferrets and a bunny? "Your home must be bursting with love - how soon can you get here?"
I agree with the poster above who says you are the one who needs to decide if you're going to stay or go. I wish you lots of luck and wisdom. Please keep us posted on what you decide.
Get going
There's really nothing you can do except distance yourself. He doesn't really have any power over you except what you give him. You can always walk away and let him fend for his grouchy old self. It sounds like he has plenty other resources to lean on.
My cousin was difficult and ugly some, when she first got dementia, but I know that I would not be able to tolerate the kind of verbal treatment you are getting. Id' have to make other arrangements for his care or get him some help.